Guest guest Posted June 4, 2009 Report Share Posted June 4, 2009 Hi everyone: Ugh, well prednisone not working anymore, bad flaring. I feel the heat in my body. I dont want to take it anymore anyways, I am fat enough without blowing up some more - L0L:)) Something is now happening to my knuckles there is bad swelling in between them. The metatarsals on my foot are hurting so bad, feels like my foot is going to break, but my foot is not swollen, just heated. I had to submit to baseline x-rays (27 of them, jeez!) and the tech kept manipulating my knees and ankles, hands etc (he had too), but that exacerbated the flare I think. All I had for pain was Flexoril and it does nothing to me. So I called my pain management specialist, told her pills were bothering my stomach, so she gave me a fentanyl patch, very low dose. It was great, you wear it for 2 days, the change it. The only thing is there is so much discomfort from the swelling/heat that once the pain is controlled, the discomfort is not. Going to Rheumy today, i guess she will start me on methotrexate. I dont want to loose my hair, so she is giving me Folic Acid. I am gonna fight this thing hard, I cannot take pills to combat pills to combat pills, and I dont want to start injections, there must be a better way. patches are good, and I think people have a big misconception about opiates when taken properly, we are not trying to get high, just relief. Sorry for the rambling, but I am only 3 months into this challenge. There is really something with the Chinese and their position on cooling the heat in your body to combat this, I am going whole-hog into investigating this. I used to volunteer with The handicapped Riding Association, I was a lead walker and a side walker and its alot of responsibility because the children are very handicapped. I love horses and kids, and I stopped because my legs were hurting me so bad afterwards, for months I thought it was because I was just out of shape, imagine that? I pushed thru it until I couldnt anymore. Sometimes I feel like if I keep moving I will be alright. I hate pain though, but I am not going to be depressed, cause they are going to try to give me a pill for that too! OKD Quote Link to comment Share on other sites More sharing options...
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