diagnosing question (kinda long)

August 5, 2000

Hi .. My name is . I was a member of this group about a year ago and

am back with a question. First a short history. I am 36 years old and have

been having autonomic problems for about 2 years. I was told by my

Neurologist that I may have Shy-Drager. I have had a lot of test all of

which were normal except a Tilt Table Test, Autonomic Nervous System Test,

and a SPECT scan. Well when the SPECT scan came back with abnormalities I

was sent for a PET scan and the results were normal. That is when Shy-Drager

was ruled out.

So I was sent to a neurosurgeon and had a Mylogram CT done. (I have a

pacemaker so can't have a MRI.) The Mylogram showed that I had Chiari

Malformation, so in May I had the surgery for that. Well the problem is I am

still having all the some symptoms that I had before surgery, dizziness,

passing out (not as much), vision problems, memory problems, etc. etc. Now

to the question. Just because the PET scan was normal can that rule out

Shy-Drager? I am just hoping that we have not missed something. Have any of

you had normal PET scan and still diagnosed with Shy-Drager? The results for

the SPECT scan were just written off. They have to mean something. Any

advice would be appreciated. Sorry this is so long.

From South Carolina

Chiari & Cervical Stenosis at C5 & 6 (decompressed 5/26/00)

Nurocardiogenic Syncope

Pacemaker

here to go to my web page</A>

Recommended Posts