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Re: Foodies ()

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There is no need to be in mourning and stop eating out. My husband and I are

foodies too.You soon get to know which restaurants will be accommodating, it

just needs a little planning instead of just going somewhere as in the past. My

husband cooks (in a BBD-conformable way) a lot of the foods we used to love

eating out AND we're still eating at Michelin 3 star restaurants - MS isn't

going to take that one away from me.

Whereabouts do you live?

JanetTo: mscured@...: kristinb769@... husband and I are

/ were big foodies and we live in a town with so many wonderful restaurants... I

am now in mourning about not being able to eat out, as it has been one of our

great joys.

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I live in a small town in upstate NY that is known for horse racing. We have a

vibrant downtown with so many restaurants. I now live in fear of butter and

gluten-containing broth at restaurants. I used eat a lunch of soup and salad

regularly at a place here, but I am aware that most soups start with butter.

Rice is often made with butter and broth. And it seems so difficult to get

information on what is in a meal. Often, the server isn't sure and they are in

a hurry and busy, and I feel bad sending them back and forth to the chef. So we

are eating out a lot less. At least we are saving money, which I then spend on

supplements and various treatments! I can't win!

(I am in a whiny mood today, feeling a bit sorry for myself! Sorry for the

depressed nature of this post.)

Any ideas about how to communicate with restaurant staff?

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Hi ,

If I were you, I would forget about eating out, particpating in potluck suppers,

and even accepting dining invitations at people's houses. The reason? Unless you

cook something yourself, you really don't know what's in it. MSers must have a

zero tolerance for food and drink that will worsen their symptoms, such as

wheat, dairy, suger, soy, soft drinks, fried food, processed food, MSG,

aspartame, etc. It takes sacrifice, willpower, and discipline--but it's well

worth it!

Sincerely,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

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Keep looking it's worth it when you find a restuarant that will provide

food that is within the BBD guidelines.

 

Bruce

Subject: RE: Re: Foodies ()

To: mscured

Received: Monday, 24 November, 2008, 2:33 AM

I live in a small town in upstate NY that is known for horse racing. We have a

vibrant downtown with so many restaurants. I now live in fear of butter and

gluten-containing broth at restaurants. I used eat a lunch of soup and salad

regularly at a place here, but I am aware that most soups start with butter.

Rice is often made with butter and broth. And it seems so difficult to get

information on what is in a meal. Often, the server isn't sure and they are in a

hurry and busy, and I feel bad sending them back and forth to the chef. So we

are eating out a lot less. At least we are saving money, which I then spend on

supplements and various treatments! I can't win!

(I am in a whiny mood today, feeling a bit sorry for myself! Sorry for the

depressed nature of this post.)

Any ideas about how to communicate with restaurant staff?

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    I eat out very rarely and only with my husband or very close friends who

know about my diet. All I have is grilled fish or chicken with green salad.

I order the salad without sauce or with olive oil and lemon (the most common

dressing in my country). I am not a foody and this helps. Chinese food is my

favorite, but there is soy in everything. I resort to cooking healthy chinese

- style dishes at home!

    I avoid social gatherings. What is most annoying about them is that people

in my country are focused on food and won't accept a very thin woman like me

being on a " diet " . When I invite people for dinner at home, I cook a BBD dish, a

non-BBD dish and salads with separate dressings.

Katerina

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To swap eating out at good places for buying supplements is enough to depress

anyone! It sounds much more difficult there than here in Spain where they

haven't even heard of MSG, never use butter and most dishes don't have dairy.

Fast food hasn't yet happened. At the more basic restaurants, straight-forward

grilled wonderful fish straight out of the water are on every menu, fresh salads

with only ever olive oil and wine vinegar as a dressing, and fresh fruit. OK so

there is bread and tomato everywhere but it is easy to ignore. I have made it a

mission in restaurants I like and respect, to get to know both the waiters and

the chef. Again, I am lucky here because words speak more than money and there

is no need to tip to get better service. Make up a list of questions that you

normally ask during a busy service and phone around all your favourite

restaurants. Ask if it isn't convenient to suggest a time when they'd have the

time to answer a battery of dietary questions as you have become badly allergic

to some things but love their restaurant/food. Print out and get laminated (so

it looks professional and important!) a card that states you are allergic to

gluten (wheat, barley, oats, rye)dairy (milk, butter, cream, cheese)legumes

(soya, peas, beans)MSG, aspartame

Hand it to all waiters to take to the kitchen.You have the advantage in the

States that if they get it wrong, you can sue! I have the disadvantage here

that many of the waiters can't even read! If you're going to Jean-s, Le

Bernardin, Masa or Per Se tell them that Santi Santamaria from Can Fabes in Sant

Celoni, Spain (3 Michelin stars) cooks me wonderful BBD food (because of my

" allergies " ). He even made us a magnificent flourless cake on our anniversary.

Sorry for the long post - I can't bear to think of a foodie not being able to

eat the best food.

JanetTo: mscured@...: kristinb769@... ideas about how

to communicate with restaurant staff?

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> You have the advantage in the States that if they get it wrong, you

can sue!

Ha! Don't bet on it. lol Since diet isn't acknowledged to have any

ties to the cause or the cure, you have no chance here either. If you

managed to find a lawyer to take the case, you'd be facing

medical " expert witnesses " who would make everyone think you're an

uneducated idiot. Would be nice to know that, if I went blind b/c the

barrista used soy milk instead of rice milk, I could get some kind of

compensation but I'm not holding my breath. ;)

Crystal

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Mercury (and toxic metals)  is a major factor in gluten & casein (milk)

problems.  Mercury blocks the enzymes needed to digest/process gluten and

casein.   www.flcv.com/autismgc.html

so that gluten/casein free diet are beneficial to most with chronic conditions

such as MS, autism, etc.  

However,  mercury detox reduces this problem over time,  so that many who've

done amalgam replacement and detox are often able to eat wheat and milk products

again after a period of time, with little problem.   I'm one of those.   I

still test to have some problem, but don't notice it when eating those products

and don't avoid them now. 

Bernie

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I know being a truck driver's wife and traveling with him often that

if you go to truck stops like Petro or TA they have a resteraunt and

they normally tell me the only thing of there's that has the MSG is

the spaghetti sauce. IT seems so far if I stay away from the MSG then

I can normally have no stomach problems with their foods. I didnt

realize though till this message group that MS patients was sopposed

to keep away from the MSG I have never been told about any bad food's

till now. If anyone could give me a specific list of food that I

should stay away from I would appreciate it. Right now I have not

been taking any meds for this but fighting it on my own and with

God's help. So any advice is more than great to have. Take Care and

hope yall have a God's Day.

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