Re: Can't take Biologics? and a Vent.

[Guest guest]

You may want to print this out and share it with your Doctor.

You must be able to communicate with your physician for any regimen to be

effective.

God Bless....

Raniolo

From: Normsgrl@... <Normsgrl@...>

Subject: [ ] Can't take Biologics? and a Vent.

Date: Wednesday, January 6, 2010, 11:28 AM

 

,

Thank you for letting me know of your situation. I'm so sorry to hear of

you having Hep A and B also.

I was taking sulfasaline before the doc insisted on Embrel. While on the

Sulfasaline I had flare ups once in a while. And sometimes I had some

throbbers. It's when I have the throbbers is when I want something for the

pain.

I can live with that rather than this anxiety I get about these shots. I

am so worked up all of the time. My tolerence level is below 0. And my

irritability is off the charts. My daughter (last child at home) is turning

18 in a couple of months. I don't want her to move out before she is

ready just because I'm being a " You know what " ! I don't want that to be her

last memories of living at home. Also, I'm going to drive my husband away.

I'm angry all the time because I know I've got to have another shot.

I know it is childish. But this is something I'm having a hard time

dealing with. And it is worse not only the anxiety of knowing I've got another

shot coming, but not getting along with anyone. I don't enjoy doing

anything and can't put my mind to anything because I hate shots!

No one seems to be taking me seriously about the fact that shots just

aren't for me. Which is worse? The disability of RA or losing all my friends

and loved ones? Hmm.. it is a toss up.

But, I don't want to lose my friends and love ones. I'm thinking why

can't the doc just put me back on the Sulfalazine and give me something I can

take when I get the throbbers?

I'm seriously considering talking to my doc about this but then I'm afraid

he won't want to see me any more.

Sigh....... Wow! That ended up being way more than what I had intended

on saying. LOL!

Thanks for listening!

Michigan

[Guest guest]

That is a great idea. I was tossing ideas around in my head and couldn't come

up with any way of bringing this up with the doc. What better way than just to

print it out and show him what I wrote to you.. I think what I wrote to you

says it all! Thanks a bunch, I think thats what I'll do!

Michigan

>

> You may want to print this out and share it with your Doctor.

> You must be able to communicate with your physician for any regimen to be

effective.

> God Bless....

>

> Raniolo

>

>

[Guest guest]

Hi :  I too agree with .  Let your Rheumy read this letter.

 

You have to remember this is your body and your life.  If you can't endure the

shots, then end them, and take the Sulafalzalazine.  If it worked well before,

then I say take it, and ask your Rheumy for some RX meds. for pain etc.  You

will feel better and better knowing you made the right decision for yourself. 

Remember too, no one walks in your shoes, but you.   If you have to, insist

all this to your Rheumy.  I wish you good luck with everything, and I know you

and your family and friends will feel better seeing you feeling better.

 

Hugs,

 

Barbara

From: Normsgrlaol (DOT) com <Normsgrlaol (DOT) com>

Subject: [ ] Can't take Biologics? and a Vent.

@gro ups.com

Date: Wednesday, January 6, 2010, 11:28 AM

 

,

Thank you for letting me know of your situation. I'm so sorry to hear of

you having Hep A and B also.

I was taking sulfasaline before the doc insisted on Embrel. While on the

Sulfasaline I had flare ups once in a while. And sometimes I had some

throbbers. It's when I have the throbbers is when I want something for the

pain.

I can live with that rather than this anxiety I get about these shots. I

am so worked up all of the time. My tolerence level is below 0. And my

irritability is off the charts. My daughter (last child at home) is turning

18 in a couple of months. I don't want her to move out before she is

ready just because I'm being a " You know what " ! I don't want that to be her

last memories of living at home. Also, I'm going to drive my husband away.

I'm angry all the time because I know I've got to have another shot.

I know it is childish. But this is something I'm having a hard time

dealing with. And it is worse not only the anxiety of knowing I've got another

shot coming, but not getting along with anyone. I don't enjoy doing

anything and can't put my mind to anything because I hate shots!

No one seems to be taking me seriously about the fact that shots just

aren't for me. Which is worse? The disability of RA or losing all my friends

and loved ones? Hmm.. it is a toss up.

But, I don't want to lose my friends and love ones. I'm thinking why

can't the doc just put me back on the Sulfalazine and give me something I can

take when I get the throbbers?

I'm seriously considering talking to my doc about this but then I'm afraid

he won't want to see me any more.

Sigh....... Wow! That ended up being way more than what I had intended

on saying. LOL!

Thanks for listening!

Michigan

[Guest guest]

Dear Barbara,

Thank you so much for your support. It does mean a lot! And yes, I am taking

your advice. It just feels right.

I can just feel the love radiate from this group!

Thank you!

Michigan

>

> Hi :  I too agree with .  Let your Rheumy read this letter.

>  

> You have to remember this is your body and your life.  If you can't endure

the shots, then end them, and take the Sulafalzalazine.  If it worked well

before, then I say take it, and ask your Rheumy for some RX meds. for pain

etc.  You will feel better and better knowing you made the right decision for

yourself.  Remember too, no one walks in your shoes, but you.   If you have

to, insist all this to your Rheumy.  I wish you good luck with everything, and

I know you and your family and friends will feel better seeing you feeling

better.

>  

> Hugs,

>  

> Barbara

>

>