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Posted
Posted

Hello !

I've always had negative bloodwork and have been diagnosed with seronegative RA.

My RA factor has always been low, ANA was negative and my sedrate has gone up

and down, but was never very high. It made it a little difficult to diagnose me

- even the rheumatologist was surprised that my bloodwork was normal. I've

never had all that much swelling, but even with what I've had I've still ended

up with some deformity in my fingers and my feet. I'm 32 and the mother of two

young girls, so I know how hard it is to parent while in so much pain. Besides

pain pills, have you tried prednisone? Are you on any RA medications? A

combination of Methotrexate and Humira has really helped me. I do hope you get

some answers and relief soon!

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

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Posted
Posted

and group;

Omg you poor thing, You need to see a rheumatologist. I heard you

can have RA without it being positive. I think they call it sero

negative. I can't wait to hear our pros about this one. You sound

like you got RA and fibromyalgia. I am no doctor, but you need

medical treatment bad. I am so sorry for you pain hon. Our group

will jump on this one hon. God bless.

gentle hugs

Clora

***********************************************************

> Hello everyone! I have a specific concern and I would love to hear

> your input. I am actually a nurse, but I speciallize in

Neonatology.

> So I have no more knowledge than any of you about RA. I do know my

> mother and her father both had RA. I have pain in every single

joint

> in my body. My hands ache. My fingers " lock up " . I toss and turn

> each night to try to find a comfortable position and I wake up

stiff

> and unable to move in the morning. I am only 34 and it takes me

hours

> to get going in the morning. I am a single mom. After about two

hours

> of working I hurt so much! I take the pain pills my doctor

prescribes

> me. I am swollen all over. I have pitting edema in my legs and

> generallized swelling everywhere else. Now, my doctor keeps

sending me

> to get my blood drawn for RA. Always negative! Not only is my

> Rheumatoid Factor negative, but so is my ANA and my sed rate! She

is

> checking out other causes while I keep on taking pain pills and

Lasix

> and higher doses of antidepressants. Has anyone else ever had

negative

> EVERYTHING and did have RA? I realize that there is such a thing

as RF

> negative RA. But my doctor says that my ANA and sed rate should

have

> been elavated. I'm frusterated and really want a diagnosis!

> Thank you,

>

>

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Posted
Posted

My name is Jennie..i havn't posted in a while cause of my illnesses have been so

bad... my RA factor is negative and my regular doctor says i dont have RA but my

rheumy doctor who has been my doc since i was 10 yrs old ... i'm so complicated

as my regular doc says because of all the diseases i have and i take about 14

pills different types for different reasons...i have severe depression and

anxieties bad,  and have 2 kids  one is 4 yrs old and the other is 11 yrs old...

i am 27 yrs old now...the best time that i have was when i was pregnant with my

daughter i was the healthiest then after she was born my RA came back with

vengence.  its ok  for the RA to be negative but its more complicated to

treat.   its alot easier to treat RA when its positive or atleast thats what my

rhuemy has explain to me.  Hope this helps even just a little..  talk to ya'll

soon..bye for now!

 

Jennie from Texas.

From: CLORA <clora4jesus@...>

Subject: [ ] Re: Negative! Negative! Negative!

Date: Thursday, December 11, 2008, 5:00 PM

and group;

Omg you poor thing, You need to see a rheumatologist. I heard you

can have RA without it being positive. I think they call it sero

negative. I can't wait to hear our pros about this one. You sound

like you got RA and fibromyalgia. I am no doctor, but you need

medical treatment bad. I am so sorry for you pain hon. Our group

will jump on this one hon. God bless.

gentle hugs

Clora

************ ********* ********* ********* ********* ********* **

> Hello everyone! I have a specific concern and I would love to hear

> your input. I am actually a nurse, but I speciallize in

Neonatology.

> So I have no more knowledge than any of you about RA. I do know my

> mother and her father both had RA. I have pain in every single

joint

> in my body. My hands ache. My fingers " lock up " . I toss and turn

> each night to try to find a comfortable position and I wake up

stiff

> and unable to move in the morning. I am only 34 and it takes me

hours

> to get going in the morning. I am a single mom. After about two

hours

> of working I hurt so much! I take the pain pills my doctor

prescribes

> me. I am swollen all over. I have pitting edema in my legs and

> generallized swelling everywhere else. Now, my doctor keeps

sending me

> to get my blood drawn for RA. Always negative! Not only is my

> Rheumatoid Factor negative, but so is my ANA and my sed rate! She

is

> checking out other causes while I keep on taking pain pills and

Lasix

> and higher doses of antidepressants. Has anyone else ever had

negative

> EVERYTHING and did have RA? I realize that there is such a thing

as RF

> negative RA. But my doctor says that my ANA and sed rate should

have

> been elavated. I'm frusterated and really want a diagnosis!

> Thank you,

>

>

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Posted
Posted

I'm all negative but have RA. Wish yo the best.

Stella

>

> From: CLORA <clora4jesus@...>

> Subject: [ ] Re: Negative! Negative! Negative!

>

> Date: Thursday, December 11, 2008, 5:00 PM

>

>

>

>

>

>

> and group;

>

> Omg you poor thing, You need to see a rheumatologist. I heard you

> can have RA without it being positive. I think they call it sero

> negative. I can't wait to hear our pros about this one. You sound

> like you got RA and fibromyalgia. I am no doctor, but you need

> medical treatment bad. I am so sorry for you pain hon. Our group

> will jump on this one hon. God bless.

>

> gentle hugs

> Clora

>

> ************ ********* ********* ********* ********* ********* **

>

> > Hello everyone! I have a specific concern and I would love to

hear

> > your input. I am actually a nurse, but I speciallize in

> Neonatology.

> > So I have no more knowledge than any of you about RA. I do know

my

> > mother and her father both had RA. I have pain in every single

> joint

> > in my body. My hands ache. My fingers " lock up " . I toss and turn

> > each night to try to find a comfortable position and I wake up

> stiff

> > and unable to move in the morning. I am only 34 and it takes me

> hours

> > to get going in the morning. I am a single mom. After about two

> hours

> > of working I hurt so much! I take the pain pills my doctor

> prescribes

> > me. I am swollen all over. I have pitting edema in my legs and

> > generallized swelling everywhere else. Now, my doctor keeps

> sending me

> > to get my blood drawn for RA. Always negative! Not only is my

> > Rheumatoid Factor negative, but so is my ANA and my sed rate! She

> is

> > checking out other causes while I keep on taking pain pills and

> Lasix

> > and higher doses of antidepressants. Has anyone else ever had

> negative

> > EVERYTHING and did have RA? I realize that there is such a thing

> as RF

> > negative RA. But my doctor says that my ANA and sed rate should

> have

> > been elavated. I'm frusterated and really want a diagnosis!

> > Thank you,

> >

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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Posted
Posted

HELLO JENNIE, I DON'T BELIEVE I'VE EVER CHATTED W/U BFORE. UR COMPLICATED THEN

I'M JUST AS BAD AS U, THE DRS SAY THAT ANYWAY!!! THEY ALWAYS REFERE TO ME AS A

" SPECIAL CASE " THANK-YOU VERY MUCH..

I'M JUST LIKE U JENNIE, I TAKE SOOO MANY MEDS CUZ OF THE DIFFERENT ILLNESSES

I'VE HAD OVER THESE 33YRS.

I TAKE OVER 16 PILLS EVERY DAY SOME OF THEM EVEN 2xA DAY. IT SUX!!! I HAVE AN 12

YEAR OLD DAUGHTER,ALYSSA.

I CAN SO RELATE TO U I FELT SO AWESOME WHEN I WAS PG W/MY DAUGHTER. I WAS UP &

DOWN ALL OVER THE PLACE & PEOPLE WOULD FREAK OUT ON ME CUZ OF THAT.. HOWEVER,

LIKE IT TOOK ALIL WHILE TO SET IN BUT

WHEN IT DID  IT WAS DEFINITLY A BITCH. IF I WAS ABLE TO STAY PG ALL THE TIME I

WOUD OF BUT THAT'S NOT REALISTIC. DAMN IT!!!!! WELL IT WAS A PLEASURE TO FEED

SOME INPUT TO U. HOPE U HAVE AWESOME DAYS & MAY

GOD BLESS YOU,JENNIE. TAKE CARE, MELYNDA

________________________________

From: <franknjenj3225@...>

Sent: Thursday, December 11, 2008 8:43:41 PM

Subject: Re: [ ] Re: Negative! Negative! Negative!

My name is Jennie..i havn't posted in a while cause of my illnesses have been so

bad... my RA factor is negative and my regular doctor says i dont have RA but my

rheumy doctor who has been my doc since i was 10 yrs old ... i'm so complicated

as my regular doc says because of all the diseases i have and i take about 14

pills different types for different reasons...i have severe depression and

anxieties bad,  and have 2 kids  one is 4 yrs old and the other is 11 yrs old...

i am 27 yrs old now...the best time that i have was when i was pregnant with my

daughter i was the healthiest then after she was born my RA came back with

vengence.  its ok  for the RA to be negative but its more complicated to

treat.   its alot easier to treat RA when its positive or atleast thats what my

rhuemy has explain to me.  Hope this helps even just a little..  talk to ya'll

soon..bye for now!

 

Jennie from Texas..

From: CLORA <clora4jesus@...>

Subject: [ ] Re: Negative! Negative! Negative!

Date: Thursday, December 11, 2008, 5:00 PM

and group;

Omg you poor thing, You need to see a rheumatologist. I heard you

can have RA without it being positive. I think they call it sero

negative. I can't wait to hear our pros about this one. You sound

like you got RA and fibromyalgia.. I am no doctor, but you need

medical treatment bad. I am so sorry for you pain hon. Our group

will jump on this one hon. God bless.

gentle hugs

Clora

************ ********* ********* ********* ********* ********* **

> Hello everyone! I have a specific concern and I would love to hear

> your input. I am actually a nurse, but I speciallize in

Neonatology.

> So I have no more knowledge than any of you about RA. I do know my

> mother and her father both had RA. I have pain in every single

joint

> in my body. My hands ache. My fingers " lock up " . I toss and turn

> each night to try to find a comfortable position and I wake up

stiff

> and unable to move in the morning. I am only 34 and it takes me

hours

> to get going in the morning. I am a single mom. After about two

hours

> of working I hurt so much! I take the pain pills my doctor

prescribes

> me. I am swollen all over. I have pitting edema in my legs and

> generallized swelling everywhere else. Now, my doctor keeps

sending me

> to get my blood drawn for RA. Always negative! Not only is my

> Rheumatoid Factor negative, but so is my ANA and my sed rate! She

is

> checking out other causes while I keep on taking pain pills and

Lasix

> and higher doses of antidepressants. Has anyone else ever had

negative

> EVERYTHING and did have RA? I realize that there is such a thing

as RF

> negative RA. But my doctor says that my ANA and sed rate should

have

> been elavated. I'm frusterated and really want a diagnosis!

> Thank you,

>

>

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Posted
Posted

SHANNON, U HANG IN THERE GIRL. I'M SOO SORRY FOR YOUR PAIN. I TOO HAVE SEVERE RA

.. IT'S HARD FOR ME TO SLEEP, WAKE OR EVEN GET AROUND AWHILE. THE MORNINGS R THE

HARDEST FOR ME & SOMETIMES THE NIGHT.

MY HUB USUALLY PUTS ON BEN GAY OR SOMETHING THAT WILL RELAX ME CUZ I'M A REAL

BITCH WHEN MY RA IS AT THAT POINT OF NO RETURN.............. YES YOUR SED RATE &

EVERYTHING ELSE COULD B NEGATIVE BUT YOUR RA COULD B POSITIVE, LOW RED & WHITE

BLOOD CEELS AS WELL. I HATE THAT WHEN IT HAPPENES!!!!!

AS FOR DEPRESSANTS I TAKE LIKE 3 DIFF. KINDS LOOPY U BET!!!! WELL, SHANNON I

HOPE U FIND THE PROPER DX &

THEY TREAT IT CORRECTLY CUZ NO ONE I MEAN NO ONE SHOULD HAVE TO SUFFER THIS WAY.

GOD BLESS YOU,MELYNDA

________________________________

From: smf1mom <smf1mom@...>

Sent: Thursday, December 11, 2008 10:26:26 PM

Subject: [ ] Re: Negative! Negative! Negative!

I'm all negative but have RA. Wish yo the best.

Stella

>

> From: CLORA <clora4jesus@...>

> Subject: [ ] Re: Negative! Negative! Negative!

>

> Date: Thursday, December 11, 2008, 5:00 PM

>

>

>

>

>

>

> and group;

>

> Omg you poor thing, You need to see a rheumatologist. I heard you

> can have RA without it being positive. I think they call it sero

> negative. I can't wait to hear our pros about this one. You sound

> like you got RA and fibromyalgia. I am no doctor, but you need

> medical treatment bad. I am so sorry for you pain hon. Our group

> will jump on this one hon. God bless.

>

> gentle hugs

> Clora

>

> ************ ********* ********* ********* ********* ********* **

>

> > Hello everyone! I have a specific concern and I would love to

hear

> > your input. I am actually a nurse, but I speciallize in

> Neonatology.

> > So I have no more knowledge than any of you about RA. I do know

my

> > mother and her father both had RA. I have pain in every single

> joint

> > in my body. My hands ache. My fingers " lock up " . I toss and turn

> > each night to try to find a comfortable position and I wake up

> stiff

> > and unable to move in the morning. I am only 34 and it takes me

> hours

> > to get going in the morning. I am a single mom. After about two

> hours

> > of working I hurt so much! I take the pain pills my doctor

> prescribes

> > me. I am swollen all over. I have pitting edema in my legs and

> > generallized swelling everywhere else. Now, my doctor keeps

> sending me

> > to get my blood drawn for RA. Always negative! Not only is my

> > Rheumatoid Factor negative, but so is my ANA and my sed rate! She

> is

> > checking out other causes while I keep on taking pain pills and

> Lasix

> > and higher doses of antidepressants. Has anyone else ever had

> negative

> > EVERYTHING and did have RA? I realize that there is such a thing

> as RF

> > negative RA. But my doctor says that my ANA and sed rate should

> have

> > been elavated. I'm frusterated and really want a diagnosis!

> > Thank you,

> >

> >

>

> 

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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Posted
Posted

you sound like I did before i was diagnosed with RA in Aug 06. Have

your doc check your Anti-CCP and your Vit D levels. if your Vit D level is low

and your Anti-CCP level is High then there could be a possiblity that you have

Sero Negative RA. In may 06 I spent 3 days in bed and could not move, then once

I forced myself to move around I started to blow up like a balloon and I hurt so

much, I could barely move or walk. My doc had me on prednisone, cereblex(not

spelled right sorry) and percocet. He would see me once a week and test my

blood. But could not find anything wrong as well finally he sent me to a rheumy

who I couldn't get into til July 06. In the meantime he saw me once a week.

Once I got in with the rheumy she ran more blood tests and put me on

methotrexate which made me sick but made me feel better and made the swelling

start to go down. She also put me on a higher dose of the prednisone. When she

saw me in August 06 she then diagnosed me with sero negative RA. In Oct 06 I

left my xhusband who during the whole time of what was going on with me was very

verbally, emotionally and physically abusive. I am now on Enbrel but have been

off for about 6 to 7 weeks due to surgery but will be going back on this sunday.

Diagnosed with RA at 31

Single Mom of a 3 and 5 year old

[ ] Negative! Negative! Negative!

Hello everyone! I have a specific concern and I would love to hear

your input. I am actually a nurse, but I speciallize in Neonatology.

So I have no more knowledge than any of you about RA. I do know my

mother and her father both had RA. I have pain in every single joint

in my body. My hands ache. My fingers " lock up " . I toss and turn

each night to try to find a comfortable position and I wake up stiff

and unable to move in the morning. I am only 34 and it takes me hours

to get going in the morning. I am a single mom. After about two hours

of working I hurt so much! I take the pain pills my doctor prescribes

me. I am swollen all over. I have pitting edema in my legs and

generallized swelling everywhere else. Now, my doctor keeps sending me

to get my blood drawn for RA. Always negative! Not only is my

Rheumatoid Factor negative, but so is my ANA and my sed rate! She is

checking out other causes while I keep on taking pain pills and Lasix

and higher doses of antidepressants. Has anyone else ever had negative

EVERYTHING and did have RA? I realize that there is such a thing as RF

negative RA. But my doctor says that my ANA and sed rate should have

been elavated. I'm frusterated and really want a diagnosis!

Thank you,

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Posted
Posted

Hi, .

If your anti-CCP is high, you are seropositive.

Not an MD

On Thu, Dec 11, 2008 at 11:33 PM, Massey

<renandstimpy3@...> wrote:

> you sound like I did before i was diagnosed with RA in Aug 06. Have

> your doc check your Anti-CCP and your Vit D levels. if your Vit D level is

> low and your Anti-CCP level is High then there could be a possiblity that

> you have Sero Negative RA. In may 06 I spent 3 days in bed and could not

> move, then once I forced myself to move around I started to blow up like a

> balloon and I hurt so much, I could barely move or walk. My doc had me on

> prednisone, cereblex(not spelled right sorry) and percocet. He would see me

> once a week and test my blood. But could not find anything wrong as well

> finally he sent me to a rheumy who I couldn't get into til July 06. In the

> meantime he saw me once a week. Once I got in with the rheumy she ran more

> blood tests and put me on methotrexate which made me sick but made me feel

> better and made the swelling start to go down. She also put me on a higher

> dose of the prednisone. When she saw me in August 06 she then diagnosed me

> with sero negative RA. In Oct 06 I left my xhusband who during the whole

> time of what was going on with me was very verbally, emotionally and

> physically abusive. I am now on Enbrel but have been off for about 6 to 7

> weeks due to surgery but will be going back on this sunday.

>

>

> Diagnosed with RA at 31

> Single Mom of a 3 and 5 year old

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Posted
Posted

Thank you gina

it was the one thing I couldn't remember. I think mine were low instead of high

because I was seronegative. I appologize for putting out the wrong information.

Re: [ ] Negative! Negative! Negative!

Hi, .

If your anti-CCP is high, you are seropositive.

Not an MD

On Thu, Dec 11, 2008 at 11:33 PM, Massey

<renandstimpy3@...> wrote:

> you sound like I did before i was diagnosed with RA in Aug 06. Have

> your doc check your Anti-CCP and your Vit D levels. if your Vit D level is

> low and your Anti-CCP level is High then there could be a possiblity that

> you have Sero Negative RA. In may 06 I spent 3 days in bed and could not

> move, then once I forced myself to move around I started to blow up like a

> balloon and I hurt so much, I could barely move or walk. My doc had me on

> prednisone, cereblex(not spelled right sorry) and percocet. He would see me

> once a week and test my blood. But could not find anything wrong as well

> finally he sent me to a rheumy who I couldn't get into til July 06. In the

> meantime he saw me once a week. Once I got in with the rheumy she ran more

> blood tests and put me on methotrexate which made me sick but made me feel

> better and made the swelling start to go down. She also put me on a higher

> dose of the prednisone. When she saw me in August 06 she then diagnosed me

> with sero negative RA. In Oct 06 I left my xhusband who during the whole

> time of what was going on with me was very verbally, emotionally and

> physically abusive. I am now on Enbrel but have been off for about 6 to 7

> weeks due to surgery but will be going back on this sunday.

>

>

> Diagnosed with RA at 31

> Single Mom of a 3 and 5 year old

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http://www.iolo.com

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Posted
Posted

No need to apologize, .

Anti-CCP is relatively new on the scene. Either RF or anti-CPP count

when classifying RA as seropositive.

Not an MD

On Fri, Dec 12, 2008 at 10:58 AM, Massey

<renandstimpy3@...> wrote:

> Thank you gina

> it was the one thing I couldn't remember. I think mine were low instead of

> high because I was seronegative. I appologize for putting out the wrong

> information.

>

>

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Posted
Posted

Are you seeing a rheumatologist, ?

Ask for an anti-CCP test. Also, the ANA will not necessarily be

positive in those who have RA.

Not an MD

On Thu, Dec 11, 2008 at 12:39 PM, <angel2woods@...> wrote:

> Hello everyone! I have a specific concern and I would love to hear

> your input. I am actually a nurse, but I speciallize in Neonatology.

> So I have no more knowledge than any of you about RA. I do know my

> mother and her father both had RA. I have pain in every single joint

> in my body. My hands ache. My fingers " lock up " . I toss and turn

> each night to try to find a comfortable position and I wake up stiff

> and unable to move in the morning. I am only 34 and it takes me hours

> to get going in the morning. I am a single mom. After about two hours

> of working I hurt so much! I take the pain pills my doctor prescribes

> me. I am swollen all over. I have pitting edema in my legs and

> generallized swelling everywhere else. Now, my doctor keeps sending me

> to get my blood drawn for RA. Always negative! Not only is my

> Rheumatoid Factor negative, but so is my ANA and my sed rate! She is

> checking out other causes while I keep on taking pain pills and Lasix

> and higher doses of antidepressants. Has anyone else ever had negative

> EVERYTHING and did have RA? I realize that there is such a thing as RF

> negative RA. But my doctor says that my ANA and sed rate should have

> been elavated. I'm frusterated and really want a diagnosis!

> Thank you,

>

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Posted
Posted

Shannan,

My RF ANA and sed rates are all normal. I am considered Sero-negative RA.

I have all the pains etc but it does not show in the blood work. It actually

is pretty common. My Rhu says it happens in about 1/3 of the cases he sees.

THey diagnosed mine by the signs and symptoms as well as an MRI of my hands

( with contrast)

Heidibug

On Thu, Dec 11, 2008 at 1:39 PM, <angel2woods@...> wrote:

> Hello everyone! I have a specific concern and I would love to hear

> your input. I am actually a nurse, but I speciallize in Neonatology.

> So I have no more knowledge than any of you about RA. I do know my

> mother and her father both had RA. I have pain in every single joint

> in my body. My hands ache. My fingers " lock up " . I toss and turn

> each night to try to find a comfortable position and I wake up stiff

> and unable to move in the morning. I am only 34 and it takes me hours

> to get going in the morning. I am a single mom. After about two hours

> of working I hurt so much! I take the pain pills my doctor prescribes

> me. I am swollen all over. I have pitting edema in my legs and

> generallized swelling everywhere else. Now, my doctor keeps sending me

> to get my blood drawn for RA. Always negative! Not only is my

> Rheumatoid Factor negative, but so is my ANA and my sed rate! She is

> checking out other causes while I keep on taking pain pills and Lasix

> and higher doses of antidepressants. Has anyone else ever had negative

> EVERYTHING and did have RA? I realize that there is such a thing as RF

> negative RA. But my doctor says that my ANA and sed rate should have

> been elavated. I'm frusterated and really want a diagnosis!

> Thank you,

>

>

>

>

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Posted
Posted

I had a bone scan that helped me get the diagnosis. It showed the inflammation

in multiple joints.

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

Re: [ ] Negative! Negative! Negative!

Shannan,

My RF ANA and sed rates are all normal. I am considered Sero-negative RA.

I have all the pains etc but it does not show in the blood work. It actually

is pretty common. My Rhu says it happens in about 1/3 of the cases he sees.

THey diagnosed mine by the signs and symptoms as well as an MRI of my hands

( with contrast)

Heidibug

.

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Posted
Posted

Hi Melynda and Jennie - This is just a thought I've had when reading

your posts about how good you felt when you were pregnant. I wonder

what exactly it is that made you feel so good - maybe the PG specific

hormones. You'd think the doctors could create a " pseudo pregnancy "

that would not allow you to gain weight or produce another child, but

give you the benefits of feeling better like you did when pregnant.

Wouldn't that be wonderful?..........Doreen :)

>

> HELLO JENNIE, I DON'T BELIEVE I'VE EVER CHATTED W/U BFORE. UR

> COMPLICATED THEN I'M JUST AS BAD AS U, THE DRS SAY THAT ANYWAY!!!

> THEY ALWAYS REFERE TO ME AS A " SPECIAL CASE " THANK-YOU VERY MUCH..

> I'M JUST LIKE U JENNIE, I TAKE SOOO MANY MEDS CUZ OF THE DIFFERENT

> ILLNESSES I'VE HAD OVER THESE 33YRS.

> I TAKE OVER 16 PILLS EVERY DAY SOME OF THEM EVEN 2xA DAY. IT SUX!!!

> I HAVE AN 12 YEAR OLD DAUGHTER,ALYSSA.

> I CAN SO RELATE TO U I FELT SO AWESOME WHEN I WAS PG W/MY DAUGHTER.

> I WAS UP & DOWN ALL OVER THE PLACE & PEOPLE WOULD FREAK OUT ON ME

> CUZ OF THAT.. HOWEVER, LIKE IT TOOK ALIL WHILE TO SET IN BUT

> WHEN IT DID  IT WAS DEFINITLY A BITCH. IF I WAS ABLE TO STAY PG ALL

> THE TIME I WOUD OF BUT THAT'S NOT REALISTIC. DAMN IT!!!!! WELL IT

> WAS A PLEASURE TO FEED SOME INPUT TO U. HOPE U HAVE AWESOME DAYS &

> MAY GOD BLESS YOU,JENNIE. TAKE CARE, MELYNDA

> ________________________________

> From: <franknjenj3225@...>

>

> Sent: Thursday, December 11, 2008 8:43:41 PM

> Subject: Re: [ ] Re: Negative! Negative! Negative!

>

> My name is Jennie..i havn't posted in a while cause of my illnesses

> have been so bad... my RA factor is negative and my regular doctor

> says i dont have RA but my rheumy doctor who has been my doc since

> i was 10 yrs old ... i'm so complicated as my regular doc says

> because of all the diseases i have and i take about 14 pills

> different types for different reasons...i have severe depression

> and anxieties bad,  and have 2 kids  one is 4 yrs old and the other

> is 11 yrs old... i am 27 yrs old now...the best time that i have

> was when i was pregnant with my daughter i was the healthiest then

> after she was born my RA came back with vengence.  its ok  for the

> RA to be negative but its more complicated to treat.   its alot

> easier to treat RA when its positive or atleast thats what my

> rhuemy has explain to me.  Hope this helps even just a little.. 

>talk to ya'll soon..bye for now!

>  

> Jennie from Texas..

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Posted
Posted

, my labs were " negative " (really more like high normal) in 1998 when I

was first symptomatic. It wasn't until 2006 when I found I had a high antiCCP

antibody that they realized it was RA. Sometimes it takes a while to reveal

itself. Have they drawn your antiCCP?

________________________________

From: <Rheumatoid.Arthritis.Support@...>

Sent: Friday, December 12, 2008 11:10:45 AM

Subject: Re: [ ] Negative! Negative! Negative!

Are you seeing a rheumatologist, ?

Ask for an anti-CCP test. Also, the ANA will not necessarily be

positive in those who have RA.

Not an MD

On Thu, Dec 11, 2008 at 12:39 PM, <angel2woods> wrote:

> Hello everyone! I have a specific concern and I would love to hear

> your input. I am actually a nurse, but I speciallize in Neonatology.

> So I have no more knowledge than any of you about RA. I do know my

> mother and her father both had RA. I have pain in every single joint

> in my body. My hands ache. My fingers " lock up " . I toss and turn

> each night to try to find a comfortable position and I wake up stiff

> and unable to move in the morning. I am only 34 and it takes me hours

> to get going in the morning. I am a single mom. After about two hours

> of working I hurt so much! I take the pain pills my doctor prescribes

> me. I am swollen all over. I have pitting edema in my legs and

> generallized swelling everywhere else. Now, my doctor keeps sending me

> to get my blood drawn for RA. Always negative! Not only is my

> Rheumatoid Factor negative, but so is my ANA and my sed rate! She is

> checking out other causes while I keep on taking pain pills and Lasix

> and higher doses of antidepressants. Has anyone else ever had negative

> EVERYTHING and did have RA? I realize that there is such a thing as RF

> negative RA. But my doctor says that my ANA and sed rate should have

> been elavated. I'm frusterated and really want a diagnosis!

> Thank you,

>

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