Re: Re: OUCH - Everything hurts AGAIN

[Guest guest]

Hi OKD:  I was sorry to read that you are in a lot of pain right now and

flaring.  I sure hope the new pain meds. work for you.  I know you don't want to

try Pred., but believe me, if you can take it, it works wonderfully.  It gets

you out of pain and the flaring.  I know I have been on it daily for 6 1/2

years, but it has done wonders for me.  I hope someday I can get off it, but so

far I haven't been able to.  I do keep trying though.  It is " My wonder drug " . 

 

I have been in a medicine induced remission with my RA for 13 months now.  It is

a true miracle for me, and however long this lasts, I am very grateful.  I guess

my " cocktail " of RA meds. is really working well for me.

 

I sure hope everyone here can get to this state.  I wish everyone here pain free

days ahead.

 

I hope things get better for you OKD.  I know you are suffering so much right

now.

 

Hugs,

 

Barbara

From: M A <pcortas1@...>

Subject: [ ] Re: OUCH - Everything hurts AGAIN

Date: Wednesday, November 4, 2009, 1:03 PM

 

Hi OKD,

You need to give your self a chance & try Prednisone. Our bodies are so

different that we do not know what will work unless we try. I had to try Embrel,

Prednisone, Lefluimide & now Retuxzin before I got some relief. You will know if

Prednisone is for you if not keep trying the different options we have out

there. Hope you feel better & not fear the MEDS out there for you.

Mousie in Calif.

>

> Hi guys:

>

> Thanks all who answered me. Breakthru pain all weekend, feeling really blue,

angry, then I laugh. Just when I thought I was going into remish - POW - BANG -

Back to pain...

>

> Called pain doc. She says I need something for breakthru pain, cause Fentanyl

patches take HOURS to start working, so she gives me LEVO-DROMORAN? ? (anybody

take that?. Not sure what it is, but I am going to try it. Its supposed to come

today. Hate narcs, pills, thats why I opted for patches, but they take a longgg

time to absorb into your body. At least a pill will hit you within 20 mins-1

hour.

>

> Refusing to take prednisone still. There must be a better way than long-term

steriod use.

>

> I was happy the Enbrel was working, I am much better, but I am hurting, I dred

the coming cold winter (its cold a little bit already here in NY).

>

> With the RA its not one spot that hurts, its all over, everywhere I have a

bone and a joint, even my jaw hurts. I want to curse at the disease, but it wont

listen - L0L:)). I know, I know RA is incurable. Even the word Incurable makes

me mad.

>

> Laughing helps though.....whistlin g/singing " Always look on the bright side

of life " by Monty Python...... ..

>

> the only bone in my body thats not aching is the one I am sitting on!

>

> OKD

>

[Guest guest]

I so know what you mean.  At least the Pred. can help so much, and maybe you

will just have to take it for a short time.  Oh, just to get out of that God

awful pain is worth everything!!!!  You just get to the point as to how much

you can stand day in and day out.  I thank God for my Pred. so much.  It helps

me all the time!!!!

 

Feel better soon I hope.

 

Hugs,

 

Barbara

From: OKD <Cofade_2000@...>

Subject: [ ] Re: OUCH - Everything hurts AGAIN

Date: Wednesday, November 4, 2009, 3:26 PM

 

Thank you Barbara, your words are always so comforting when I read them.

Thanks to the others that responded too about the Predni. I know i am going to

have to breakdown for 4 days and take it tonight, cause I the aching is so bad,

I even can't sleep. I did try.

Felled by inflammation, funny thing is that I am not that swollen, but the pain

is THERE.

Well, the " bright side of life " is that at least there is something that brings

the inflammation down forcibly, I hope.

Ugh.....