Re: scared of drinking liquids

December 11, 2008

Lornadrury and group;

It sounds like your really feeling bad. Whether anyone believes you or not, you

feel this pain. See a doctor as soon as possible. It sounds a lot like

fibromyalgia. You need to see a doctor to have it diagnosed.. A rheumatoligist

should be able to help you . Sorry for your pain, there is help out there.

gentle hugs

Clora

From: lornadrury50 <lornakobus@...>

Subject: [ ] scared of drinking liquids

Date: Thursday, December 11, 2008, 3:22 AM

Thanks to everyone that replied obout too much pain

I seem to have a problem and I am not sure if there is anything one can

do about it.I feel so simple asking my dr question because she might

think I am stupid.

My problem is I am scared to drink too many liquids as especially at

night it is very difficult to get out of bed and go to the loo.

When I walk it feels like I am walking on balls and it is so painful

As the days go by I seem to be begging for the end of life.

I know I am depressed and really trying very hard to get over it but

most of the time I feel I am fighting a losing battle.

Another problem I have is that the pain moves around alot today it will

be my ankles , tomorrow the elbows next day my knees or toes or

fingers or whatever and in some instance it will be different places at

the same time

Is there others that have the pain like that as my family thinks I am

putting on AND MAKING IT WORSE THAN IT IS

PLEASE HELP AND THANKS FOR YOUR SUPPORT GROUP

December 11, 2008

Lorna,

Have you ever played or seen the game " whack a mole " where the moles

pop up from different holes and you have to whack them back into the

hole to score points. Sometimes our RA seems like that. You get one

set of joints quiet and another set pops up and starts to cause pain.

It's the nature of the beast that is RA. Luckily, as you progress on

this journey, get your meds regulated, things will get better.

Sometimes just getting a better understanding of things will help.

Like the feeling of walking on stones, that is most likely RA acting up

between the bones in your feet and causing swelling. So the synovium

of the joints in your feet is swollen and has a lot of fluid. It gives

you the feeling of walking on stones. I get the same thing. I do feel

for you.

Knowledge is key when dealing with RA.

December 11, 2008

When my RA started, it moved about from joint to joint like that. What

medications are you on? Are you seeing a rheumatologist? It's important

for RA to be treated aggressively to prevent joint damage.

Sue

On Thursday, December 11, 2008, at 03:22 AM, lornadrury50 wrote:

>

> Another problem I have is that the pain moves around alot today it will

> be my ankles , tomorrow the elbows next day my knees or toes or

> fingers or whatever and in some instance it will be different places at

> the same time

> Is there others that have the pain like that as my family thinks I am

> putting on AND MAKING IT WORSE THAN IT IS

> PLEASE HELP AND THANKS FOR YOUR SUPPORT GROUP

December 11, 2008

MY RA ALSO MOVES FROM PLACE TO PLACE ,SOMETIMES WORSE PAIN THAN AT OTHER

TIMES....

SOMETIMES IT'S SOO DIFFICULT BUT WE SAY WHAT WE FEEL & THEY SHOULD UNDERSTAND

CUZ BELIEVE U ME I

WOULD GIVE ANYTHING TO B HEALTHY & PAIN FREE.HELL YEA!!!!

FAMILY THEY DON'T KNOW HW WE FEEL ONLY WE DO, I JUST BLOW IT OFF!! FEEL BETTER

SOON,SWEETIE.

GOD BLESS,MELYNDA

________________________________

From: Sue <marysue@...>

Sent: Thursday, December 11, 2008 4:01:30 PM

Subject: Re: [ ] scared of drinking liquids

When my RA started, it moved about from joint to joint like that. What

medications are you on? Are you seeing a rheumatologist? It's important

for RA to be treated aggressively to prevent joint damage.

Sue

On Thursday, December 11, 2008, at 03:22 AM, lornadrury50 wrote:

>

> Another problem I have is that the pain moves around alot today it will

> be my ankles , tomorrow the elbows next day my knees or toes or

> fingers or whatever and in some instance it will be different places at

> the same time

> Is there others that have the pain like that as my family thinks I am

> putting on AND MAKING IT WORSE THAN IT IS

> PLEASE HELP AND THANKS FOR YOUR SUPPORT GROUP

------------------------------------

December 12, 2008

Lorna - have any of your doctors checked you for Fibromyalgia? Please

don't think you're stupid - there is NO SUCH THING as a stupid

question. Rheumatologist have heard much worse than anything we can

possibly think of to ask. This is their job - to answer our questions

and to keep working with us until they find a combination of meds that

work for us. This is not a cut and dry situation we're in. Some are

worse than others. Some combinations work for one, but not another.

I am very concerned about you " begging for the end of life " . You don't

have to be in this much pain! Have you been to a pain management

doctor? He/she could work with your Rheumy to formulate a plan to help

relieve your pain.

As for your family - if they aren't going to be supportive of you and

your quest to get this disease under control, then I don't think I

would be talking with them. Its wrong and unfair of them to judge your

pain levels based on what they see.

Check out The Spoon Theory at http://butyoudontlooksick.com/ . Print

it out - give it to your family members to read. Don't let someone

else's opinion of what they can't see interfere with whatever you need

to do for yourself to feel better.

As far as the water drinking - be careful - my Rheumy told me to drink

plenty of water. As for night time, maybe stop drinking water after

6pm so that your bladder may stay semi-empty during the night.

Hang in there, Lorna. There is a combination of meds out there that

will work for you. Keep in constant contact with your Rheumy and your

regular doc until you get the results you want........Doreen

>

> Thanks to everyone that replied obout too much pain I seem to have

> a problem and I am not sure if there is anything one can do about

> it. I feel so simple asking my dr question because she might think

> I am stupid.

> My problem is I am scared to drink too many liquids as especially

> at night it is very difficult to get out of bed and go to the loo.

> When I walk it feels like I am walking on balls and it is so

> painful As the days go by I seem to be begging for the end of life.

> I know I am depressed and really trying very hard to get over it

> but most of the time I feel I am fighting a losing battle.

> Another problem I have is that the pain moves around alot today it

> will be my ankles , tomorrow the elbows next day my knees or toes

> or fingers or whatever and in some instance it will be different

> places at the same time Is there others that have the pain like

> that as my family thinks I am putting on AND MAKING IT WORSE THAN

> IT IS

> PLEASE HELP AND THANKS FOR YOUR SUPPORT GROUP

>

December 12, 2008

I keep reading about the RA in the joints. I haven't had much of that but

rather the attending muscles, tendons, and ligaments. IMHO, that's more

painful and harder to treat and to live with because it moves around a lot

more.In almost 20 years, I've not had a joint malformed except in my right

hand. Am I missing something or is it the Fibro I'm confusing it with?

Dennis in eastexas

On Thu, Dec 11, 2008 at 4:01 PM, Sue <marysue@...> wrote:

> When my RA started, it moved about from joint to joint like that. What

> medications are you on? Are you seeing a rheumatologist? It's important

> for RA to be treated aggressively to prevent joint damage.

>

> Sue

>

> On Thursday, December 11, 2008, at 03:22 AM, lornadrury50 wrote:

> >

> > Another problem I have is that the pain moves around alot today it will

> > be my ankles , tomorrow the elbows next day my knees or toes or

> > fingers or whatever and in some instance it will be different places at

> > the same time

> > Is there others that have the pain like that as my family thinks I am

> > putting on AND MAKING IT WORSE THAN IT IS

> > PLEASE HELP AND THANKS FOR YOUR SUPPORT GROUP

>

December 12, 2008

Hello, Dennis.

The primary target of RA is the synovial tissue of the joints.

Not an MD

On Fri, Dec 12, 2008 at 10:25 AM, Dennis W <betnden@...> wrote:

> I keep reading about the RA in the joints. I haven't had much of that but

> rather the attending muscles, tendons, and ligaments. IMHO, that's more

> painful and harder to treat and to live with because it moves around a lot

> more.In almost 20 years, I've not had a joint malformed except in my right

> hand. Am I missing something or is it the Fibro I'm confusing it with?

>

> Dennis in eastexas

December 12, 2008

So I've been told, but I haven't seen it in me. Is that good or bad?

Dennis in eastexas

On Fri, Dec 12, 2008 at 11:02 AM, <

Rheumatoid.Arthritis.Support@...> wrote:

> Hello, Dennis.

>

> The primary target of RA is the synovial tissue of the joints.

>

> Not an MD

>

> On Fri, Dec 12, 2008 at 10:25 AM, Dennis W

<betnden@...<betnden%40gmail.com>>

> wrote:

> > I keep reading about the RA in the joints. I haven't had much of that but

> > rather the attending muscles, tendons, and ligaments. IMHO, that's more

> > painful and harder to treat and to live with because it moves around a

> lot

> > more.In almost 20 years, I've not had a joint malformed except in my

> right

> > hand. Am I missing something or is it the Fibro I'm confusing it with?

> >

> > Dennis in eastexas

>

December 12, 2008

Lorna dear,

I really feel for your despair. Believe me, it's OK to get down

about your pain and circumstances for a while because we all do that.

But after getting better from an episode declare yourself a winner

because you have met the challange and came through it.

Unfortunately, the pain will always be there in some form or

another. I don't know if it travels in RA, but I have

fibromyalgia/cfs and the pain travels with that. I had some extremely

difficult years in the early 90's and I was working. While sitting at

my desk, I had pain all over-head to toe-, then on top of that I had

the aches that would shoot from my ankels to my shoulder to my knee

(s) to my foot to my back to my hands...just randomly shooting at me

nonstop every few minutes. It was really very nausiating and my head

felt like it was under water and I was holding my breath getting

weaker. I would be so weak that I hardly had energy to talk to

customers on the phone. I had very bad shooting needle like pain into

my eyes that would take my breath away...literally. No one

understood me or believed me, especially back then. One of my main

focuses was to cover up what I was going through so no one else could

see it. What got me through those years was that I had 3 children to

support and care for and if I didn't do it there was no one elso who

would...really. And here I am...still hurting and going through a

miriad of hard times. Along the way and inbetween the misery, I had

some nice times, watched my children grow up and now have 10

grandchildren. My life never went back to what it was 30 or so years

ago, but it did continue with joy, love, and injections of hope.

So, my point is that there is always a reason to go on, there is

always a reason that can help you be more positive, just find the

source. The people who are negative in your life have no place in

your life to judge you, including your spouse, children, other

relatives or friends and they need not be part of your inner most

circle of life that you depend on. Find a personal support group if

you can, find what ever and who ever can lift you up and give you

positive feeling and pound the pavement to that end. You need

positive caring feedback...DO NOT listen to those who are too selfish

to take the time to try to understand what you are going through. It

is in your right to pull away from them. If they ask why, you tell

them that they are bad for your health because they are so negative.

If they want to be in your life or a part of your life, tell them

they need to educate themselves about the condition(s) you have and

when they have something positive to say, you will listen.

It's " tough love " so that you can go on.

I wish you peace, love and joy with gentle HUGS,

Stella

--- In , " lornadrury50 " <lornakobus@...>

wrote:

>

> Thanks to everyone that replied obout too much pain

> I seem to have a problem and I am not sure if there is anything one

can

> do about it.I feel so simple asking my dr question because she

might

> think I am stupid.

> My problem is I am scared to drink too many liquids as especially

at

> night it is very difficult to get out of bed and go to the loo.

> When I walk it feels like I am walking on balls and it is so

painful

> As the days go by I seem to be begging for the end of life.

> I know I am depressed and really trying very hard to get over it

but

> most of the time I feel I am fighting a losing battle.

> Another problem I have is that the pain moves around alot today it

will

> be my ankles , tomorrow the elbows next day my knees or toes or

> fingers or whatever and in some instance it will be different

places at

> the same time

> Is there others that have the pain like that as my family thinks I

am

> putting on AND MAKING IT WORSE THAN IT IS

> PLEASE HELP AND THANKS FOR YOUR SUPPORT GROUP

>

December 12, 2008

That was a beautiful , honest letter that I needed to hear

RIGHT NOW....We all require a reminder at times of the wondrous joys we

experience. Thank you....

Raniolo

From: smf1mom <smf1mom@...>

Subject: [ ] Re: scared of drinking liquids

Date: Friday, December 12, 2008, 7:48 PM

Lorna dear,

I really feel for your despair. Believe me, it's OK to get down

about your pain and circumstances for a while because we all do that.

But after getting better from an episode declare yourself a winner

because you have met the challange and came through it.

Unfortunately, the pain will always be there in some form or

another. I don't know if it travels in RA, but I have

fibromyalgia/ cfs and the pain travels with that. I had some extremely