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Hi leonie:

Thanks for your letter and your concern. I live with my son, his

fiance, and her son.

Yes, they will do anything for me. Michele did my wash, folded it, and

put in on my bed. Such a good girl.

My knee pain is driving me nuts. I take the pain meds. every 4 hrs.,

but not much help. The minute I try to get up the pain is unbearable.

So I am just resting on the couch, which is fine with me. These are my

" down " days. Not much else I can do. It feels good just to be off my

feet.

I hope you are having a good day, and not having much pain.

Hugs,

Barbara

>

> Dear Barbara,

> You sound like you're in bad shape - I'm sorry ! It's awful having to

live on the couch. Do you have anyone around for company or to look

after you ?

>

> Leonie

>

>

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Hi Leonie:

It sure would be! I am still on the couch for the day, or should I say

days!!!

I have to shower and dress my wound. I will see how it is today.

Thanks, and hugs,

Barbara

>

> Hi Barbara,

> Well I'm glad someone is looking after you - it would be hell on your

own.

>

> Leonie

>

>

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Hi Susie:

Yes, I was very scared. I am glad with all the tests, and the P E T

tests, that my lungs are fine and clear. I have a great Pulmotologist,

and I was thankful for his skills.

It seems like it is always something else we have to deal with.

I hope you get checked out soon, so you can have some peace, and stop

worrying. It is hard not to worry!

God Bless you, and wishing you better days ahead.

Hugs,

Barbara

--- In , " susiestepro " <susiestepro@...>

wrote:

>

> That is really scary, having nodules in your lungs. That is one thing

that this disease differs in from the osteo type: It can affect your

internal organs. I wonder if my lungs are also being affected because I

did have a pleurisy (inflammation around the sac of the lungs) episode

with this ordeal. I would wake up with my bladder full and it hurt to

breath deeply. I got some relief after urinating, but the pain continued

to some degree. This occured off and on in the past two weeks. It scares

me that possibly I could get pericarditis (inflammation around the sac

that contains the heart). I try not to worry myself to death since I

know that can cause flares in this disease, but it is so hard not to. I

took a couple medical terminology classes and anatomy/physiology classes

in college, and I think that makes me worry more since I know about how

serious those kinds of complications can be. It is good to be able to

come here and chat with others who have the same worries. My family is

really beginning to worry about me now too. I plan to let my neurologist

know that I think I may be experiencing pleurisy. I appreciate

everything and I sure hope you are feeling well. Susie :)

>

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  • 9 months later...

Hi Barb..we're kind of in the same boat...losing someone we loved. But it

will get better...its just take it a day at a time. and allow yourself pity

party days cause they help too. You let yourself be down but the next day

do something else. The holidays were tough but the toughest was NY Eve day

for me. I don't know why....just the conclusion to a crummy year, I guess.

Dave's parents went to Casselberry FL (by Orlando) for the holidays to be

with his sister and her family. She said it was soooo darn cold there and it

got to the 20's at night. (Thats one reason why dave and I would vacation

in Feb or March...the weather was better). They said no more trips to

florida...the kids can come and see them. Its just too hard for them to travel.

But she said the whole time they were down there, she was freezing.

I would love to move to florida...maybe one of these days. these winters

kind of push me in that direction. I'm looking for a nice over 55 mobile

home community.....not too expensive just neat and clean. so, sometimes I get

online and check them out. There are just so many to look at.

Sorry about your banana trees....boy...that's such a shame.

Dave told me to move to florida if he was me. I told him that I have no

one I know down there....he said, you'll make friends. easy for him to say.

It's still hard if you don't know people.

I should be set and not get sick this year..with the flu anyway since I got

both flu and swine flu shots....knock on wood.

You take care....you'll have some good and some bad days...me too.

Hugs..a

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