Guest guest Posted January 4, 2010 Report Share Posted January 4, 2010 I can not take biologics. We have tried sulfasalazine, plaquenal, prednisone etc.... all caused major problems. I treat symptoms when able. I do not recommend this to others but my DR's and I decided better to suffer from RA, perhaps ending up completely disabled than die of liver disease or internal bleeding. Raniolo From: Normsgrl@... <Normsgrl@...> Subject: [ ] Can't take Biologics? Date: Monday, January 4, 2010, 12:09 PM  Hi all, For those of you that are not able to take biologics. Where does the Rheumy go from there? What do you take then? Thanks, Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2010 Report Share Posted January 4, 2010 Which biologics have you tried, , and what side effects did you have? I do consider myself lucky that Enbrel works so well for me and so far has not caused any adverse side effects. It's too bad that the biologics cost so darn much. Since my co-pay more than doubled, for about six months now, I have been stretching out my injections, from two per week to one. I seem to be doing well on one injection per week. I am not in remission, though, because last time it was time for an injection, I could tell again that I do have RA. Sue On Jan 4, 2010, at 5:16 PM, CATHERINE RANIOLO wrote: > I can not take biologics. > We have tried sulfasalazine, plaquenal, prednisone etc.... > all caused major problems. > I treat symptoms when able. > I do not recommend this to others but my DR's and I decided > better to suffer from RA, perhaps ending up completely disabled than > die of liver disease or internal bleeding. > > Raniolo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2010 Report Share Posted January 4, 2010 I have never taken a biologic. My Mom had hepatitis during WW2. Myself and my siblings all have hep A and B. It is under good control. The fear is altering the immune system will allow the hepatitis to run rampant .  I have had horrid reactions to celebrex, prednisone and all the others. They are awesome in the beginning but if there is a side effect I get it.  Last winter I was diagnosed with celebrex/prednisone induced diabetes. My blood sugar was 1100 ....I was bleeding internally and faced death.  I stopped all meds and my blood sugars returned to normal range.  I now take gambentin which helps resolve nerve pain. I can not take aspirin, tylenol or anything over the counter.  I am functioning quite well. When I get a flare I sleep - sometimes for days. Then the energy pops back....... and I rejoice with what I can do. Raniolo > I can not take biologics. > We have tried sulfasalazine, plaquenal, prednisone etc.... > all caused major problems. > I treat symptoms when able. > I do not recommend this to others but my DR's and I decided > better to suffer from RA, perhaps ending up completely disabled than > die of liver disease or internal bleeding. > > Raniolo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2010 Report Share Posted January 4, 2010 Hi :     Wow. I knew you had allergies to meds., but not like that. You are so lucky to be alive! I never saw sugar that high. It is a miracle you survived that too. You just never know when some medicines make our bodies go crazy. We all need to be careful when taking new ones.     I hope this will be a good year for you, and you sell your condo. so you can move into your new home. The RE market is picking up here, so that's good. I don't think you will have any trouble selling yours. People always are on the look out for water front property.     Take care and talk soon.  Hugs,  Barbara > I can not take biologics. > We have tried sulfasalazine, plaquenal, prednisone etc.... > all caused major problems. > I treat symptoms when able. > I do not recommend this to others but my DR's and I decided > better to suffer from RA, perhaps ending up completely disabled than > die of liver disease or internal bleeding. > > Raniolo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2010 Report Share Posted January 4, 2010 , I'm glad that you're functioning well in spite of the fact that you can't take any medications. I hope that your RA continues to be under control. I'm glad that your blood sugars have returned to normal range; prednisone can certainly raise them. Keep keeping on. Sue On Jan 4, 2010, at 5:39 PM, CATHERINE RANIOLO wrote: > I have never taken a biologic. > My Mom had hepatitis during WW2. > Myself and my siblings all have hep A and B. > It is under good control. > The fear is altering the immune system will allow the hepatitis to > run rampant . > > I have had horrid reactions to celebrex, prednisone and all the > others. > They are awesome in the beginning but if there is a side effect I > get it. > > Last winter I was diagnosed with celebrex/prednisone induced diabetes. > My blood sugar was 1100 ....I was bleeding internally and faced > death. > > I stopped all meds and my blood sugars returned to normal range. > > I now take gambentin which helps resolve nerve pain. > I can not take aspirin, tylenol or anything over the counter. > > I am functioning quite well. When I get a flare I sleep - sometimes > for days. > Then the energy pops back....... and I rejoice with what I can do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2010 Report Share Posted January 4, 2010 Thank You Sue. Raniolo > I have never taken a biologic. > My Mom had hepatitis during WW2. > Myself and my siblings all have hep A and B. > It is under good control. > The fear is altering the immune system will allow the hepatitis to > run rampant . > > I have had horrid reactions to celebrex, prednisone and all the > others. > They are awesome in the beginning but if there is a side effect I > get it. > > Last winter I was diagnosed with celebrex/prednisone induced diabetes. > My blood sugar was 1100 ....I was bleeding internally and faced > death. > > I stopped all meds and my blood sugars returned to normal range. > > I now take gambentin which helps resolve nerve pain. > I can not take aspirin, tylenol or anything over the counter. > > I am functioning quite well. When I get a flare I sleep - sometimes > for days. > Then the energy pops back....... and I rejoice with what I can do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2010 Report Share Posted January 23, 2010 I thought that I was the only one " freak " in the group. The worst reaction that I had was to the Remicade where they could not get a hold of the infection and I went on to lose my right knee above the knee. At this time, the rheumy doesn't want to do anything and I too will occasionally self treat the symptoms and that has already produced several deep ulcers and a very difficult anemia to treat. My worry is that I have already lost 2 joints and my hips need to go next. No snow in FL, but the temperature is slowly crawling up the thermometer, but it makes it like sleeping in a basement. Enjoy the cuddle weather! Gentle, tender, angel hugs..................................... Debs in FL [ ] Can't take Biologics? Date: Monday, January 4, 2010, 12:09 PM Hi all, For those of you that are not able to take biologics. Where does the Rheumy go from there? What do you take then? Thanks, Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2010 Report Share Posted January 23, 2010 Perhaps we can meet one day. I am in St Pete area, moving to Ellenton shortly. Raniolo From: Normsgrlaol (DOT) com <Normsgrlaol (DOT) com> Subject: [ ] Can't take Biologics? @gro ups.com Date: Monday, January 4, 2010, 12:09 PM Hi all, For those of you that are not able to take biologics. Where does the Rheumy go from there? What do you take then? Thanks, Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2010 Report Share Posted January 23, 2010 Hi Debs: Nice to see you posting today. How have you been feeling? Good I hope, and no E.R. trips or hospital stay.  Yes, the weather is great here too. Happy to see the cold weather leave. Lots of damage to our palm trees and plants. Every yard has suffered this. I hope they come back, but I am doubtful of that.  What have you been up to lately? I hope you are pain free and no more infections. It is surely your turn for some better health.  Have a good night and talk soon.  Hugs,  Barbara From: Normsgrlaol (DOT) com <Normsgrlaol (DOT) com> Subject: [ ] Can't take Biologics? @gro ups.com Date: Monday, January 4, 2010, 12:09 PM Hi all, For those of you that are not able to take biologics. Where does the Rheumy go from there? What do you take then? Thanks, Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2010 Report Share Posted January 24, 2010 Hey! I lived in St. sburg for 12 years. Also, Pinellas Park. I went to Transfiguration Private School and then Gibbs High. What a small world. Michigan 4b. _Re: Can't take Biologics? _ ( /message/134684;_ylc=X3oDMTJybDdocmxqBF\ 9TAzk3MzU5NzE1BGdycElkAzEwMTQ3OARncnBzcElkA zE3MDUwNjE2MTAEbXNnSWQDMTM0Njg0BHNlYwNkbXNnBHNsawN2bXNnBHN0aW1lAzEyNjQzMjgwN zg-) Posted by: " CATHERINE RANIOLO " _c.raniolo@... _ (mailto:c.raniolo@...?Subject= Re:%20Can't%20take%20Biologics?) _cask1008 _ (cask1008) Sat Jan 23, 2010 8:26 am (PST) Perhaps we can meet one day. I am in St Pete area, moving to Ellenton shortly. Raniolo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2010 Report Share Posted January 24, 2010 Do you miss it or are you happier up north?? Where is the RA easier to deal with? Raniolo From: Normsgrl@... <Normsgrl@...> Subject: [ ] Re: Can't take Biologics? Date: Sunday, January 24, 2010, 10:17 AM Â Hey! I lived in St. sburg for 12 years. Also, Pinellas Park. I went to Transfiguration Private School and then Gibbs High. What a small world. Michigan 4b. _Re: Can't take Biologics? _ (http://groups. / group/RA- SUPPORT/message/ 134684;_ylc= X3oDMTJybDdocmxq BF9TAzk3MzU5NzE1 BGdycElkAzEwMTQ3 OARncnBzcElkA zE3MDUwNjE2MTAEbXNn SWQDMTM0Njg0BHNl YwNkbXNnBHNsawN2 bXNnBHN0aW1lAzEy NjQzMjgwN zg-) Posted by: " CATHERINE RANIOLO " _c.ranioloverizon (DOT) net _ (mailto:c.ranioloverizon (DOT) net?Subject= Re:%20Can't% 20take%20Biologi cs?) _cask1008 _ (http://profiles. / cask1008) Sat Jan 23, 2010 8:26 am (PST) Perhaps we can meet one day. I am in St Pete area, moving to Ellenton shortly. Raniolo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2010 Report Share Posted January 24, 2010 Oh... I miss Florida terribly. I absolutely loved it there. I had to move back to Michigan due to family issues and this is where my family resides except for my dad. I would love to move back to Florida, but I don't think it is going to happen. It's been almost 18 years since I've lived there. And since then have gotten married to a wonderful man that is rooted here. I absolutely hate the winters here in Michigan. Every year I dread the winter coming and try to relish every minute of summer that I can. I've only been diagnosed in 2008. I noticed symptoms in 2004. So I don't know if it would be easier there in Florida for me or not. I do know that the weather so far here doesn't effect me at all. I hear Florida has been getting some pretty cold spells. Does your RA give you more trouble than usual when it is that cold? Michigan > > Do you miss it or are you happier up north?? > Where is the RA easier to deal with? > > Raniolo > > Quote Link to comment Share on other sites More sharing options...
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