Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 Thank you for the welcome ! I think there is a surge of awareness regarding gluten intolerance. I experiment alot in my health and I found that gluten definitely had a huge impact on how I felt. It wasnt easy though and it did take several years of punishing myself with weening myself off of it mainly by eating it and then regretting it. Alcohol was easier despite it being a part of my daily life for 10 years and my love for wine. But I notice the next day how horrible I feel, so it made it easier. I also cut out 90% of sugar in my diet. The last to go is caffeine and coffee. This is gonna be tough. I have not come across the Best Bet Diet (BBD), thanks for the recommendation I will check it out. --- In mscured , Janet Orchard Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 > I also cut out 90% of sugar in my diet. The last to go is caffeine and coffee. This is gonna be tough. I have not come across the Best Bet Diet (BBD), thanks for the recommendation I will check it out. > Hi , Here's a link to BBD info: http://www.ms-diet.org/ Before MS came along, I used to do periodic colon and liver cleanses. I would always go off of coffee then but eventually it would sneak back into my life. lol I started BBD in Feb '08 and in Oct '08 I tried to treat myself to a one-shot espresso made with rice milk at a local coffee house. I had a reaction. I was so sad to know that I couldn't even treat myself occasionally. Recently, I was looking at maca root as a substitute, but I decided to try yerba mate first instead (mainly because it's a lot easier to find locally), and I've been happy with that. It does contain caffeine, though, so it's a treat and not an everyday thing. For sweetener, agave nectar is my favorite. Some people have a hard time wrapping their brain around the fact that I don't have sugar in my home. lol Some of the other things that I'm doing are acupuncture, detoxing, fasting, some herbs/supplements in addition to those on the BBD. I had lots of symptoms and got rid of them all EXCEPT when I eat something I have a reaction to. I keep a food diary to help me prevent this. I recently had to cut out eggs after suspecting them for a while, going off of them for a while, then testing. Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 ---------- Forwarded message ---------- Date: Sun, Nov 15, 2009 at 10:17 AM Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! To: mscured Moderator <mscured-owner > hello my name is fouzia.i was dignossed with ms in jan 09 and stared on avonex therapy. i need more than this i need to know how i can make my self better or healtheir. fouzia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 I conquered MS! To read my free preview of my book at www.ginascorner.com, click on book and scroll down and you will see free preview. Have a Happy and Healthy Day, Kopera M.H. © Copyright 2007 www.sCorner.com . All rights reserved | Privacy Policy WARNING: None of the above statements have been evaluated or approved by the Food and Drug Administration or the American Medical Association. The information provided on this site is intended for your general knowledge only and is not a substitute for professional medical advice or treatment for specific medical conditions. Always seek the advice of your physician or other qualified health care provider before using any herbal products. ________________________________ To: mscured <mscured > Sent: Sun, November 15, 2009 11:23:48 AM Subject: Fwd: Yahoo! Groups: Welcome to mscured. Visit today! ---------- Forwarded message ---------- From: Fouzia Hashmi <fouzia1sbcglobal (DOT) net> Date: Sun, Nov 15, 2009 at 10:17 AM Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! To: mscured Moderator <mscured-owner@ yahoogroups. com> hello my name is fouzia.i was dignossed with ms in jan 09 and stared on avonex therapy. i need more than this i need to know how i can make my self better or healtheir. fouzia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2009 Report Share Posted December 13, 2009 Forward: New Member > Hi, > > My daughter was recently diagnosed with MS and prescribed Beta-Seron. The > side effects are horrible. We need to find an alternative. She doesn't want > to feel worse than she did before, a cure would be great. > Wanted to find out what has been working for others. > Thanks, > > > ------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2009 Report Share Posted December 13, 2009 Hi,  A good diet is helping me. I read " MS recovery diet " by Ann D. Sawyer & Judith E. Bachrach  A good site she should explore is www.hacres.com It's a strict diet but she would have to slowly ease into it. Click on testimonies and read...they have a lot of good info if you have time to read.  Also look into LDN ...it is the only low dose drug I take for MS and my symptoms haven't got worse in over a year. They also have a (LDN) yahoo groups w/ lots of great info. The site to look at is www.lowdosenaltrexone.org  Make sure you get her good wheatgrass and she drinks twice a day w/ her fresh fruit juice. It has so many different vitamins. I order from the uk bc I'm in Europe...I can give you the site if you're in Europe.  Hope all goes well for her. Helena > Hi, > > My daughter was recently diagnosed with MS and prescribed Beta-Seron. The > side effects are horrible. We need to find an alternative. She doesn't want > to feel worse than she did before, a cure would be great. > Wanted to find out what has been working for others. > Thanks, > > > ------------ --------- --------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Please welcome a new member.. ---------- Forwarded message ---------- Date: Fri, Feb 19, 2010 at 12:08 PM Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! To: mscured Moderator <mscured-owner > My goal is to find out all I can and hear about the diet alternatives and success stories coming from them. I do not take CRAB drugs, nor do I want to. I do not even want to discuss them, because I can't take them and they are of no use for me. I am allergic to most of them. So my only way to fight and be completely successful with MS and let my body heal itself is to learn all I can about certain diets. I know that diet plays a major role with any disease, regardless of what most Dr.'s state. I have had great success without any CRAB drugs so far with first using the Swank Diet, then tweaking that more to a Candida Free diet, then I heard about the Paleo Diet and now the BBDiet. I am trying to find one that would work best for me, that I can live with for the rest of my life. I need help from others who are fighting the same battle to help me fully research these diets and learn all I can about food and it's effects on the body. Thank you, Yvette B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Welcome Yvette, You've come to a place where diet has become an issue for most of us. I'll tell you my latest discovery. I had a hair mineral analysis and learned my mineral profile (at least the minerals that were detoxing through my hair) and my metabolic type. I've been eating a diet for my metaboic type and taking the appropriate supplements ever since. I feel better than I did when I was eating another way. It's good that you have an open mind about the foods that you eat. Not everyone needs to eat the same diet. > > Please welcome a new member.. > > ---------- Forwarded message ---------- > > Date: Fri, Feb 19, 2010 at 12:08 PM > Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! > To: mscured Moderator <mscured-owner > > > > My goal is to find out all I can and hear about the diet alternatives and > success stories coming from them. I do not take CRAB drugs, nor do I want > to. I do not even want to discuss them, because I can't take them and they > are of no use for me. I am allergic to most of them. So my only way to > fight and be completely successful with MS and let my body heal itself is to > learn all I can about certain diets. I know that diet plays a major role > with any disease, regardless of what most Dr.'s state. I have had great > success without any CRAB drugs so far with first using the Swank Diet, then > tweaking that more to a Candida Free diet, then I heard about the Paleo Diet > and now the BBDiet. I am trying to find one that would work best for me, > that I can live with for the rest of my life. I need help from others who > are fighting the same battle to help me fully research these diets and learn > all I can about food and it's effects on the body. > Thank you, > Yvette B. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 http://www.arltma.com/HairAnalysis.htm They do overseas customers. After I found out my metabolic type I had to find a diet that worked for me. I'm doing a diet that corrects my digestive system (GAPS) and it fits in to what I should eat according to my metabolic needs. I'm hoping that this diet will make me balanced and solve many problems that I intensified by eating the wrong kinds of foods for so long. The test gave me direction. > > > , Can you tell me the name of the company you used for the mineral analysis if they operate via the Internet and think they would deal with overseas customers? > > Janet > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 new member... > Thank you!! > I am a homeschooling mom to 4 beautiful children, and have been dealing > with MS symptoms for awhile, but have not yet been officially diagnosed. I > do have Gastroparesis, and several other things going on that is MS related. > This month I have been having worsening conditions, along with new symptoms. > The thing that is driving me crazy is my skin feels like it has been > sunburned, and it's at the tingling stage. It is very sensitive to touch. My > feet have also been hurting, along with my muscle fatigue, no energy, and my > eyes have been really acting up. > I go to the doctor on this Thursday, so hopefully we will find out more. > I want to be as natural about this as possible, especially with diet, and > supplements. > I hope to learn as much as I can from this group, and also give support to > others. > Thank you!!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 new member On Mon, Feb 22, 2010 at 11:17 PM, Jane Ann McCubbin < j.a.mccubbin@...> wrote: > I was diagnosed with MS in Nov. 06. It presented through optic neuritis. > I > began taking supplements to better my health. I remained symptom free for > a > little over 2 1/2 years when I started having tingling and numbness in both > feet. The numbness began moving up both legs. A MRI in Aug. 09 revealed a > lesion on the T-11 that encompassed the entirety of the spinal cord. I > started taking LDN in Sept. 09. The tingling and numbness has left my > legs, > but remains in both feet. I work in the school system, and I am on my feet > most of the day. I want to address the cause of the disease--not treat > symptoms. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 My MS started that way too and 14 years later I have got rid of the numbness apart from in the soles of my feet. I believe gluten removal was the big thing that helped me. I've been following the Best Bet Diet (BBD) for 3 years and slowly improving. Good luck and welcome. Janet To: mscured From: atlanteanproductions@... Date: Tue, 23 Feb 2010 08:04:55 -0600 Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! new member On Mon, Feb 22, 2010 at 11:17 PM, Jane Ann McCubbin < j.a.mccubbin@...> wrote: > I was diagnosed with MS in Nov. 06. It presented through optic neuritis. > I > began taking supplements to better my health. I remained symptom free for > a > little over 2 1/2 years when I started having tingling and numbness in both > feet. The numbness began moving up both legs. A MRI in Aug. 09 revealed a > lesion on the T-11 that encompassed the entirety of the spinal cord. I > started taking LDN in Sept. 09. The tingling and numbness has left my > legs, > but remains in both feet. I work in the school system, and I am on my feet > most of the day. I want to address the cause of the disease--not treat > symptoms. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 Welcome . I used to get the sunburning feeling but it just disappeared and I wasn't actively fighting MS in those days. Diet is so important - read up on the Best Bet Diet (BBD) in archives here or on MSRC's website. There are loads of ways to help MS naturally - look through the files here and ask any questions. Janet To: mscured From: atlanteanproductions@... Date: Mon, 22 Feb 2010 22:18:14 -0600 Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! new member... > Thank you!! > I am a homeschooling mom to 4 beautiful children, and have been dealing > with MS symptoms for awhile, but have not yet been officially diagnosed. I > do have Gastroparesis, and several other things going on that is MS related. > This month I have been having worsening conditions, along with new symptoms. > The thing that is driving me crazy is my skin feels like it has been > sunburned, and it's at the tingling stage. It is very sensitive to touch. My > feet have also been hurting, along with my muscle fatigue, no energy, and my > eyes have been really acting up. > I go to the doctor on this Thursday, so hopefully we will find out more. > I want to be as natural about this as possible, especially with diet, and > supplements. > I hope to learn as much as I can from this group, and also give support to > others. > Thank you!!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2010 Report Share Posted March 3, 2010 Hi Dick and welcome! You will find a lot of useful info on this site and a wealth of knowledgeable people. I conquered MS by following cleansing, fasting and letting the body heal thyself you can read more about me at www.ginascorner.com, go to the book page and scroll to the bottom and there is a free preview. Have a Happy and Healthy Day, Kopera M.H. © Copyright 2007 www.sCorner.com . All rights reserved | Privacy Policy WARNING: None of the above statements have been evaluated or approved by the Food and Drug Administration or the American Medical Association. The information provided on this site is intended for your general knowledge only and is not a substitute for professional medical advice or treatment for specific medical conditions. Always seek the advice of your physician or other qualified health care provider before using any herbal products. ________________________________ To: mscured <mscured > Sent: Wed, March 3, 2010 1:24:53 PM Subject: Fwd: Yahoo! Groups: Welcome to mscured. Visit today! new member ---------- Forwarded message ---------- From: Dick Duncan <dickduncan2@ gmail.com> Date: Wed, Mar 3, 2010 at 12:16 PM Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! To: mscured Moderator <mscured-owner@ yahoogroups. com> I refused to use prescription meds all my life, as well as OTC painkillers etc. In my sixties my cholesterol level and BP started creeping up. I got my cholesterol down with diet and exercise, but couldn't control my BP. Afraid of stroke, I'm now on 3 BP meds, but so far only Baclofen for MS, as it seems to help with the stiffness. I take a dozen supplements, but not nearly as many as are recommended on some of the MS web sites and discussion groups. I'm still trying to sort out what really works. I look forward to hearing the experience of people in this mscured group. Thanks! Dick Duncan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2010 Report Share Posted April 9, 2010 ---------- Forwarded message ---------- Date: Fri, Apr 9, 2010 at 11:50 AM Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! To: mscured Moderator <mscured-owner > Hello, I am 50 and have MS for 10 years that I know of. It was confirmed with MRI, spinal tap, optic neuritis. Ive taken steroids, use Copaxone which I hate and am on mega pills for every complaint I have which are many. I am desperate, Im trying accupuncture Monday. I take Vit D, cranberry and Vit C along with my many meds. I would love to join your group. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2010 Report Share Posted April 9, 2010 Don't despair Kate. You will find lots of ideas in this group - have a look through the archives. Acupuncture is indeed one that helps many, as is CST (cranio-sacral therapy) and yoga. The Best Bet Diet (BBD) which basically excludes all gluten grains, all milk products and legumes (peas, beans and pulses) is very effective for many, including myself. Rather than taking a band-aid (one of the ABC type drugs that often are just masking symptoms), it is possible to treat yourself alternatively. Diet, exercise, supplements, etc. Welcome to the group and enjoy your acupuncture session on Monday. Janet To: mscured From: atlanteanproductions@... Date: Fri, 9 Apr 2010 12:23:58 -0500 Subject: Fwd: Yahoo! Groups: Welcome to mscured. Visit today! ---------- Forwarded message ---------- Date: Fri, Apr 9, 2010 at 11:50 AM Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! To: mscured Moderator <mscured-owner > Hello, I am 50 and have MS for 10 years that I know of. It was confirmed with MRI, spinal tap, optic neuritis. Ive taken steroids, use Copaxone which I hate and am on mega pills for every complaint I have which are many. I am desperate, Im trying accupuncture Monday. I take Vit D, cranberry and Vit C along with my many meds. I would love to join your group. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2010 Report Share Posted April 9, 2010 All the info is here: http://www.direct-ms.org/ Also, more of a summary of the info here: http://www.msrc.co.uk/ Yahoo Group for BBD: http://health.groups.yahoo.com/group/MS-Diet/ I hope you find everything you need here. The diet (with recommended supplements) and acupuncture have both helped me tremendously. Crystal > > Can I order the best bet diet as a book or is it something online? > Thanx, > Triva > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2010 Report Share Posted April 9, 2010 Thanks! Any way you could get me a copy? lol I wanted to get a subscription, but it just costs too much to send it across the pond. I could pay for a single issue though! Crystal > Crystal, I loved seeing you in NP - so good to put a face to a name, and your boys look adorable. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2010 Report Share Posted April 18, 2010 ....new member On Sun, Apr 18, 2010 at 9:57 PM, Liesl Benning wrote: > I've been recently diagnosed with MS and very interested in how alternative > methods may help. I've been reading several books on diet, and I've noticed > how my neurologists all say chiropractic can cause strokes (is that a class > in neurology 101?) and yet it seems like it could really help. Anyway, > interested in what the forum has to say. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 new member ---------- Forwarded message ---------- Date: Fri, Apr 23, 2010 at 11:37 PM Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! To: mscured Moderator <mscured-owner > My brother has MS--and has had it for about 30 years. I'm very interested in whatever others find helpful regarding fewer symptoms, reverse of symptoms, etc, using new findings. Thank you very much. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 New member: ---------- Forwarded message ---------- Date: Thu, May 13, 2010 at 3:10 PM Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! To: mscured Moderator <mscured-owner > Hi, my name is Dayna and I am 37. I have had multiple sclerosis for a year and a half. I had just had a baby when this happened. I have a suspicion that the epidural triggered this. I was planning on having my baby at home, but my midwife quit on me. I should have done my homework and found a good dependable midwife. I'm trying to learn not to go back to the past because it just hurts. I have taken zero drugs for this condition. I am doing everything naturally; hoping to regain my health asap. I have never felt such torment to my body as MS. I feel weighed down and heavy. I have had all kinds of different symptoms; paresthesia, electrical feelings. pins and needles in extremities, and so on. Some of the weird sensations have been alleviated. I am doing the best that I can with diet and drinking lots of h2o, supplements, rebounding and so on. ------------------------------ ** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 After child birth is a very trying time for most, but when you have MS it is widely reported that the decrease in your hormones will have an effect on MS. they beleive it is Estirol (SP) that is the culprit. I myself had my first blown attack after my second child, and had no epidural. In hindsight I had symptoms in my early 20's, pre children and wasn't tillafter my 2nd that I had very definitive symptoms. Premenstrual is a very delicate time for me so I always will try to avoid occasions at this time of the month. EimearI On Thu, May 13, 2010 at 9:24 PM, Yvette < atlanteanproductions@...> wrote: > > > New member: > > ---------- Forwarded message ---------- > From: Dayna Griego <daynagriego@... <daynagriego%40yahoo.com>> > Date: Thu, May 13, 2010 at 3:10 PM > Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! > To: mscured Moderator <mscured-owner <mscured-owner%40yahoogroups.com> > > > > Hi, my name is Dayna and I am 37. I have had multiple sclerosis for a year > and a half. I had just had a baby when this happened. I have a suspicion > that the epidural triggered this. I was planning on having my baby at home, > but my midwife quit on me. I should have done my homework and found a good > dependable midwife. I'm trying to learn not to go back to the past because > it just hurts. I have taken zero drugs for this condition. I am doing > everything naturally; hoping to regain my health asap. I have never felt > such torment to my body as MS. I feel weighed down and heavy. I have had > all kinds of different symptoms; paresthesia, electrical feelings. pins and > needles in extremities, and so on. Some of the weird sensations have been > alleviated. I am doing the best that I can with diet and drinking lots of > h2o, supplements, rebounding and so on. > > ------------------------------ > ** > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 Dear Yvette, Are you able to remove me from mscured or advise how to delist myself. Stan ________________________________ To: mscured <mscured > Sent: Fri, 14 May, 2010 6:24:17 AM Subject: Fwd: Yahoo! Groups: Welcome to mscured. Visit today! Â New member: ---------- Forwarded message ---------- From: Dayna Griego <daynagriego@ yahoo.com> Date: Thu, May 13, 2010 at 3:10 PM Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! To: mscured Moderator <mscured-owner@ yahoogroups. com> Hi, my name is Dayna and I am 37. I have had multiple sclerosis for a year and a half. I had just had a baby when this happened. I have a suspicion that the epidural triggered this. I was planning on having my baby at home, but my midwife quit on me. I should have done my homework and found a good dependable midwife. I'm trying to learn not to go back to the past because it just hurts. I have taken zero drugs for this condition. I am doing everything naturally; hoping to regain my health asap. I have never felt such torment to my body as MS. I feel weighed down and heavy. I have had all kinds of different symptoms; paresthesia, electrical feelings. pins and needles in extremities, and so on. Some of the weird sensations have been alleviated. I am doing the best that I can with diet and drinking lots of h2o, supplements, rebounding and so on. ------------ --------- --------- ** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2010 Report Share Posted May 17, 2010 stan, you can easily do it yourself by going to the bottom of your email or by erasing it as 'junk' in most mailboxes. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: sgrbsolutions@... Date: Sun, 16 May 2010 17:22:05 -0700 Subject: Re: Fwd: Yahoo! Groups: Welcome to mscured. Visit today! Dear Yvette, Are you able to remove me from mscured or advise how to delist myself. Stan ________________________________ To: mscured <mscured > Sent: Fri, 14 May, 2010 6:24:17 AM Subject: Fwd: Yahoo! Groups: Welcome to mscured. Visit today! New member: ---------- Forwarded message ---------- From: Dayna Griego <daynagriego@ yahoo.com> Date: Thu, May 13, 2010 at 3:10 PM Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! To: mscured Moderator <mscured-owner@ yahoogroups. com> Hi, my name is Dayna and I am 37. I have had multiple sclerosis for a year and a half. I had just had a baby when this happened. I have a suspicion that the epidural triggered this. I was planning on having my baby at home, but my midwife quit on me. I should have done my homework and found a good dependable midwife. I'm trying to learn not to go back to the past because it just hurts. I have taken zero drugs for this condition. I am doing everything naturally; hoping to regain my health asap. I have never felt such torment to my body as MS. I feel weighed down and heavy. I have had all kinds of different symptoms; paresthesia, electrical feelings. pins and needles in extremities, and so on. Some of the weird sensations have been alleviated. I am doing the best that I can with diet and drinking lots of h2o, supplements, rebounding and so on. ------------ --------- --------- ** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2010 Report Share Posted September 4, 2010 Hi , Welcome to the group! Here is a website you may find helpful in treating your MS: http://tinyurl.com/advice-to-msers With best wishes, Dudley Delany http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
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