Re: Has anyone used doxycyline for their MS?

[Guest guest]

> Can anyone tell me about their experiences with doxycyline or their

> advice as to whether or not it is wise to sign consent to be a

> published case study?

Hi there,

I don't have any personal info, but recently someone posted this:

http://www.davidwheldon.co.uk/ms-treatment1.html

and doxycycline is in the protocol for treating c.pneumoniae,

implicated in MS.

I'm not a fan of antibiotics, but the case is quite compelling and

your personal experience adds to that.

HTH!

Crystal

[Guest guest]

--

Hi,

Have you ever been tested for Lyme disease through a specialized lab?

The reason I am asking is doxycycline has been used to treat Lyme

successfully and can work against the Lyme spirochete. Regular Lyme

tests i.e. Quest Labs a lot of times report false negatives if you

had one of those. It has also been used for MS by several leading

integreative medicine doctors including one called Dr Rowen

who is in California and writes the Second Opinion newsletter. I

think it is very encouraging that this is working for you and since I

have a bottle of it that a doctor had prescribed to me I am going to

start taking it and see what effect it has me and I will let you

know. As far as signing the consent for the study, there is not a

problem in doing so as long as you would like to be a part of a

published study and do not have any problem with that. Consent forms

are always used in research studies with human subjects. I conducted

a research study when I was at UC and I had to have all my

participants sign consent forms.

Good luck with the doxy-- this is great news for you!!

P.s. How many milligrams of the doxy are you taking and how often?

Best,

- In mscured , " lizaalvarezdiaz "

wrote:

>

> For about 6 months now I have started having what doctors strongly

> suspect to be MS. I have yet to be given an official diagnosis but

> they have ruled out most all other possibilities and have found

> several lesions in my MRI.

>

> When this all started I had been prescribed doxcycyline for a

> bartonella infection (cat scratch fever/disease) and it cleared up

my

> first episode of optic neuritis. A few weeks later I started having

> all the typical ms symptoms. I then had a second episode of optic

> neuritis a month later and my new neurologist sent me for a week of

> high dose steroid treatment(solumedrol)but it only worsened my

> vision. He then just told me to 'hold tight' until it went away.

> Frustrated I started taking the rest of the leftover doxycycline

that

> had worked for me the first time and surprise.......it worked

again.

> I went to the doctor who prescribed me the original dose and she

gave

> me more since it seemed to be helping me.

>

> Has anyone else used doxy for their ms? It made almost all my

> symptoms disappear (tingling, memory-loss, cognitive impairments,

> pain in my limbs, vision trouble:spotting & blurriness, diziness.

> etc.). My doctors have asked for my consent to write up a case

study

> on my reaction to the doxy since it is not a traditional medicine

for

> MS patients.

>

> Can anyone tell me about their experiences with doxycyline or their

> advice as to whether or not it is wise to sign consent to be a

> published case study?

>

> I am new to this and any help or advice is appreciated!! Thanks!

>

[Guest guest]

--

Hi,

Have you ever been tested for Lyme disease through a specialized lab?

The reason I am asking is doxycycline has been used to treat Lyme

successfully and can work against the Lyme spirochete. Regular Lyme

tests i.e. Quest Labs a lot of times report false negatives if you

had one of those. It has also been used for MS by several leading

integreative medicine doctors including one called Dr Rowen

who is in California and writes the Second Opinion newsletter. I

think it is very encouraging that this is working for you and since I

have a bottle of it that a doctor had prescribed to me I am going to

start taking it and see what effect it has me and I will let you

know. As far as signing the consent for the study, there is not a

problem in doing so as long as you would like to be a part of a

published study and do not have any problem with that. Consent forms

are always used in research studies with human subjects. I conducted

a research study when I was at UC and I had to have all my

participants sign consent forms.

Good luck with the doxy-- this is great news for you!!

P.s. How many milligrams of the doxy are you taking and how often?

Best,

- In mscured , " lizaalvarezdiaz "

wrote:

>

> For about 6 months now I have started having what doctors strongly

> suspect to be MS. I have yet to be given an official diagnosis but

> they have ruled out most all other possibilities and have found

> several lesions in my MRI.

>

> When this all started I had been prescribed doxcycyline for a

> bartonella infection (cat scratch fever/disease) and it cleared up

my

> first episode of optic neuritis. A few weeks later I started having

> all the typical ms symptoms. I then had a second episode of optic

> neuritis a month later and my new neurologist sent me for a week of

> high dose steroid treatment(solumedrol)but it only worsened my

> vision. He then just told me to 'hold tight' until it went away.

> Frustrated I started taking the rest of the leftover doxycycline

that

> had worked for me the first time and surprise.......it worked

again.

> I went to the doctor who prescribed me the original dose and she

gave

> me more since it seemed to be helping me.

>

> Has anyone else used doxy for their ms? It made almost all my

> symptoms disappear (tingling, memory-loss, cognitive impairments,

> pain in my limbs, vision trouble:spotting & blurriness, diziness.

> etc.). My doctors have asked for my consent to write up a case

study

> on my reaction to the doxy since it is not a traditional medicine

for

> MS patients.

>

> Can anyone tell me about their experiences with doxycyline or their

> advice as to whether or not it is wise to sign consent to be a

> published case study?

>

> I am new to this and any help or advice is appreciated!! Thanks!

>

[Guest guest]

I have read several testimonials of either minocycline, doxy, and/or

other antibiotics being helpful for reversing MS. It is intriguing, but

I haven't tried that route yet. As pointed out, this is also a

common trestment for Lyme, and some feel Lyme and MS are similar in

many cases and/or that MS is Lyme misdiagnosed. In either case, my

feeling is to keep going with whatever works for the individual.

Unfortunately, I haven't found my own answers yet.

>

> For about 6 months now I have started having what doctors strongly

> suspect to be MS. I have yet to be given an official diagnosis but

> they have ruled out most all other possibilities and have found

> several lesions in my MRI.

>

> When this all started I had been prescribed doxcycyline for a

> bartonella infection (cat scratch fever/disease) and it cleared up my

[Guest guest]

I am following the Wheldon protocol of antibiotic treatment (with

supplements) for MS (http://www.davidwheldon.co.uk/ms-treatment.html). I am

starting month 4 of the protocol and have seen gradual improvements in

cognitive function, fatigue, memory and so on. My optic neuritis has not

improved however -- an improvement that I am waiting and hoping for.

Can I suggest that you read the whole of the Dr. Wheldon web site. It is not

always an easy read but has answered many questions for me and has provided

some hope of a 'cure'

Dan

2008/12/28 lizaalvarezdiaz

> For about 6 months now I have started having what doctors strongly

> suspect to be MS. I have yet to be given an official diagnosis but

> they have ruled out most all other possibilities and have found

> several lesions in my MRI.

>

> When this all started I had been prescribed doxcycyline for a

> bartonella infection (cat scratch fever/disease) and it cleared up my

> first episode of optic neuritis. A few weeks later I started having

> all the typical ms symptoms. I then had a second episode of optic

> neuritis a mo

>

[Guest guest]

Hi Dan,

Did you find a Doctor to administer the regimen to you or are you

doing this on your own based on the information provided on Dr.

Wheldon's website? Thank you for the information. WW

[Guest guest]

The subject caption on this one seems in error.  

Is someone claiming that MS is a disease with a cause that is treatable with

antibiotics,  that is caused by some type of bacteria?

Apparently the intent is actually that someone diagnosed with MS actually had

lyme disease or some bacterial infection, that is treatable by antibiotics.  

But the treatment isn't for MS, its for something else or a cofactor condition

that a person with MS also has.

I don't think MS is actually a " disease " but rather is diagnosed based on

symptoms caused by toxic exposures or exposures to some other substances that

cause autoimmune attack on nerve sheaths by the immune system.   But some of

the MS symptoms can also be caused by biological attacks by Lyme

bacteria/spirachettes, etc.    There needs to be more focus on the underlying

condition/cause rather than depending on generic assumptions about something

broadly called MS that may not apply to all with some of the MS symptoms.

for example I've taken Doxy and other lyme treatments, but it was for lyme

disease, not for MS.  Earlier I had been diagnosed with mercury toxicity and

essentially recovered from my MS symptoms through amalgam replacement and

detox.   I also had some of the MS symptoms return(not all) that was resolved

by jawbone cavitation treatment (extracted wisdom tooth site and root-canaled

tooth site).

Bernie

[Guest guest]

I found a doctor in the UK who understands and prescribes the Dr. Wheldon

protocol. There are some who simply buy the antibiotics online, I believe,

which are all off-patent and can be sourced reasonably cheaply without a

prescription. www.alldaychemist.com for example.

Dan

2008/12/30 truckingdeals

>

> Hi Dan,

>

> Did you find a Doctor to administer the regimen to you or are you

> doing this on your own based on the information provided on Dr.

> Wheldon's website? Thank you for the information. WW

>

>

[Guest guest]

Hi Dan,

I am thinking about approaching my GP in the UK about this protocol.

How did you manage to find a doctor who understands the protocol and

where are they based? Also, what guarantee is there that the drugs

bought over the internet are the real thing? If my GP doesn't agree I

would like to try the treatment but would like to know that I am taking

the real drugs and not some imitation.

I don't mean to doubt you but wanted some re-assurance as you know what

the internet can be like.

Thank you.

Frances

>

> I found a doctor in the UK who understands and prescribes the Dr.

Wheldon

> protocol. There are some who simply buy the antibiotics online, I

believe,

> which are all off-patent and can be sourced reasonably cheaply

without a

> prescription. www.alldaychemist.com for example.

>

> Dan

>

[Guest guest]

Hi Steve

Generally I am doing well on the protocol, shortly coming up to the end of

month 4. It's definitely not an overnight fix and the first couple of

Metronidazole (Flagyl) 'pulses' were not too pleasant (inflamed throat,

chest, back pains, for example)

Im going to stay the course, at least for now, and see where it takes me. I

get the feeling that for each individual there may or may not be a bacterial

component to their disease. I;m still trying to assert whether and how

bacteria might have affected my disease onset and early symptoms.

I have Optic Neuritis, which is not improving yet, but some of the more

usual MS symtpoms lsuch as fatigue do seem to be improving. I also take LDN

which I believe to be helping.

Best of luck with your GP -- mine was not able to help with this.

Dan

2009/1/6 stephen mcmanus

> Hi Dan.

>

> Following your posting I read the protocol and how this helped the

> microbiologists ( Dr Wheldon) wife make a miraculous recovery.

> Can I ask how

>