Re: RA, CTS, COPD, UC...what's next?

[Guest guest]

Good thing it isn't 1810, Lee. LOL!

What cardiovascular effects did your physician say that Enbrel has?

Not an MD

On Fri, Jan 15, 2010 at 1:01 PM, leefortenna <leefortenna@...> wrote:

>   I've managed my RA pretty well over the past couple years, switching to

Orencia (because my doc thought Enbril and my family history of cardiovascular

disease didn't mix well). I can't say I'm anywhere near normal, but I can live a

relatively normal life.

>   I manage the COPD with Spiriva, and that seems to work ok (6 months now).

But it's expensive.

>   I had developed carpal tunnel syndrome and treated that successfully with

the Carpal Therapist. That's done and over with.

>   I just had a colonoscopy Wednesday (due to occult blood - in stools) and I'm

told it's due to errosive colitis.

>   Does this stuff end...I'm only (??) 48?! My husband says, bless his heart,

that if it was 1810 instead of 2010 the average life expectency was 43 and I'd

be dead! lol! Lee

[Guest guest]

Enbril has a much higher risk of HA than Orencia.

Lee

>

> I've managed my RA pretty well over the past couple years, switching to

Orencia (because my doc thought Enbril and my family history of cardiovascular

disease didn't mix well). I can't say I'm anywhere near normal, but I can live a

relatively normal life.

> I manage the COPD with Spiriva, and that seems to work ok (6 months now).

But it's expensive.

> I had developed carpal tunnel syndrome and treated that successfully with

the Carpal Therapist. That's done and over with.

> I just had a colonoscopy Wednesday (due to occult blood - in stools) and

I'm told it's due to errosive colitis.

> Does this stuff end...I'm only (??) 48?! My husband says, bless his heart,

that if it was 1810 instead of 2010 the average life expectency was 43 and I'd

be dead! lol! Lee

>

[Guest guest]

I have RA, Crohns, CTS, UTS, Dercums, narcolepsy ,asthma and a few more. I

believe that all of it is part of a biggerb unknown picture that medicine is in

2010 unaware of ..... Too many of us w/ the same symptoms. Wht do u all believe

?

Deb rn

Sent from my iPhone

On Jan 15, 2010, at 1:01 PM, " leefortenna " <leefortenna@...> wrote:

I've managed my RA pretty well over the past couple years, switching to Orencia

(because my doc thought Enbril and my family history of cardiovascular disease

didn't mix well). I can't say I'm anywhere near normal, but I can live a

relatively normal life.

I manage the COPD with Spiriva, and that seems to work ok (6 months now). But

it's expensive.

I had developed carpal tunnel syndrome and treated that successfully with the

Carpal Therapist. That's done and over with.

I just had a colonoscopy Wednesday (due to occult blood - in stools) and I'm

told it's due to errosive colitis.

Does this stuff end...I'm only (??) 48?! My husband says, bless his heart, that

if it was 1810 instead of 2010 the average life expectency was 43 and I'd be

dead! lol! Lee

[Guest guest]

Deb,

Do you know Judi in our group who also has Dercum's?

Not an MD

On Sun, Jan 17, 2010 at 3:59 AM, I_ownaberner@...

<i_ownaberner@...> wrote:

> I have RA, Crohns, CTS, UTS, Dercums, narcolepsy ,asthma and a few more.  I

believe that all of it is part of a biggerb unknown picture that medicine is in

2010 unaware of ..... Too many of us w/ the same symptoms.  Wht do u all believe

?

> Deb rn

>

[Guest guest]

I agree.

I just found out that I have Ehlers Danlos syndrome about 6 months ago which

explains all the multiple health problems I've had for my entire life>

>

> I have RA, Crohns, CTS, UTS, Dercums, narcolepsy ,asthma and a few more. I

believe that all of it is part of a biggerb unknown picture that medicine is in

2010 unaware of ..... Too many of us w/ the same symptoms. Wht do u all believe

?

> Deb rn

[Guest guest]

I recently read this book, The Autoimmune Epidemic, which was a real mind-blower

and an eye-opener. You might find some of the answers you are looking for in it.

I know I did. Here's a link so you can look at it. I think I got it from my

local library when I was doing research on my RA condition.

http://www.amazon.com/Autoimmune-Epidemic-Donna--Nakazawa/dp/0743277767/r\

ef=sr_1_1?ie=UTF8 & s=books & qid=1264134083 & sr=8-1

Michele

>

> I agree.

>

> I just found out that I have Ehlers Danlos syndrome about 6 months ago which

explains all the multiple health problems I've had for my entire life>

>

>

[Guest guest]

Thanks,

>

> I recently read this book, The Autoimmune Epidemic, which was a real

mind-blower and an eye-opener. You might find some of the answers you are

looking for in it. I know I did. Here's a link so you can look at it. I think I

got it from my local library when I was doing research on my RA condition.

>

>

http://www.amazon.com/Autoimmune-Epidemic-Donna--Nakazawa/dp/0743277767/r\

ef=sr_1_1?ie=UTF8 & s=books & qid=1264134083 & sr=8-1

>

> Michele