Re: Stopping Plaquenil due to low white count

[Guest guest]

I had to stop my arava due to low platelet count. The platelets were 115

when I quit and they are now up to 120...a few months later. and my hair is

growing back. lol

a

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[Guest guest]

My rheumy had me on 20 mg...then I had stomach issues, he dropped it to 10

mg a day. My hair is baby fine anyway but with the arava...yikes..it went

to baby. Now it's growing back.

a

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[Guest guest]

After ten+ years of watching people suffer thru Arava. And after having tried to

take it myself twice all I can say is it is He**. And I wouldn't usually say

this but on this I am going to... Don't take it!!! MicheleBB

-- In , rascalsniche@... wrote:

>

> I had to stop my arava due to low platelet count. The platelets were 115

> when I quit and they are now up to 120...a few months later. and my hair is

> growing back. lol

>

> a

>

>

> **************

> Download the AOL Classifieds Toolbar for local deals at

> your fingertips.

>

(http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown00000004)

>

>

>

[Guest guest]

i've never taken Plaquenil, but MTX caused my white blood cell count

to get too low. Arava continued the decline. I had to go off of both

meds.

Sue

On Jun 15, 2009, at 8:47 AM, klcxman wrote:

> Hello. Just wondering if anyone else out there had to stop their

> Plaquenil due to a low white count and if after doing so, did it

> come back to normal? I still continue with my 8 MTX pills a week.

> Thanks.

>

> Kristy

> from land

[Guest guest]

Michele,

Many people with RA use Arava (leflunomide) and experience no

significant problems.

Not an MD

On Mon, Jun 15, 2009 at 11:09 AM, Michele <michelebrooks04@...> wrote:

>

>

> After ten+ years of watching people suffer thru Arava. And after having tried

to take it myself twice all I can say is it is He**. And I wouldn't usually say

this but on this I am going to... Don't take it!!! MicheleBB

[Guest guest]

Michele,

 

I too stopped taking Arava around the second week in May and I just told my

Rheumatologist yesterday.  She does not like me.  The only medicine I believe in

right now is Humira....and my Chiropractor...and sometimes Aleve...oh, and

Vitamin D.  That is my mix.  Within this past year, my Rheumatologist has

prescribed Methotrexate, Prednisone, and Vicodin....won't even try them again. 

There is no point.  Have tried them and hate the way they feel..internally.  I

thought I would try Arava and had been on it since November, I think.  I ended

up in the ER the last weekend of April.  Couldn't breathe.  Never felt a pain

like that before.  Thought my neck and chest was going to explode.  Was

disgnosed with costochondritis....wtheck.  Of all the years I have had RA, have

never heard of costochondritis.  (have seen it some in this group, but before

two months ago....never.  Was prescribed Voltaren.  Seemed to help for a few

days, but then pain in my neck and chest started to come back.  I, personally,

blamed the Arava and Voltaren so quit taking both, and the pain has went away. 

Some swelling is coming back, but I would rather cope with that pain (that I

know way to well) than the bs chest, neck and breathing problems, stomach aches,

headaches.

So I guess what I am trying to say is " high five " to don't take it.

Take care

(musiclvr3237)

>

>

> After ten+ years of watching people suffer thru Arava. And after having tried

to take it myself twice all I can say is it is He**. And I wouldn't usually say

this but on this I am going to... Don't take it!!! MicheleBB

[Guest guest]

Hey , I can't say I blame you for stopping Arava. It can take a few years

to find the right meds " cocktail " for each individual. I am on Rituxan now and

it has been the first med in over ten years that has given me pain free time!!

So there is hope we each just have to find the right mixture for our bodies. So

I say high five to you too!!! MicheleBB

>

>

> From: <Rheumatoid.Arthritis.Support@...>

> Subject: Re: [ ] Re: Stopping Plaquenil due to low white count

>

> Date: Tuesday, June 16, 2009, 10:00 AM

>