Wecome Graham

[Guest guest]

Welcome Graham. 

I am a 29 yr old wife and mother. Your symptoms mimic my own story.  Only a few

slight differences, I had a lot of pain and heaviness in my legs and arms.  I

would drop things without realizing it and think my feet were in one place and

they were actually in a completely different place.  I also had unilateral hair

loss and had to wear a wig when I went out. Its not fun, let me tell you.  I had

a clean MRI as well and my spinal tap was borderline.  Two of my Drs thought I

had MS and Systemic Lupus along with Fibromyalgia; but the lupus was negative. 

My neurologist still diagnosed me with Relapsing Remitting MS and the

aurumatologist diagnosed Fibro. I wasnt convinced that my neuro was

correct. This was at the beginning of July 09. By the end of July I had a major

relapse and ended up in a wheelchair for three months. I was on some major

steriods for a spell and after that relapse, I started having incontinence

issues around the start of my

menstral cycle.  Everyone's story is different.  I am on a once a week

injection called Avonex.  Its not as bad as I hear other meds are.  I take 3

asprin about an hour before the injection and I am fine.  The first three weeks,

i would have hot flashes, night sweats, dizziness, nausia and headaches, but

then I started taking it right before bed and the only real issue I have is

soreness at the injection site.  I cant complain though because I am doing

better than I ever dreamed possible.

Another change I made was a lifestyle change.  I changed my eating habbits.  I

eat organically and very little starch and no refined/processed sugar.  Its a

bit difficult at first but its well worth the improvement I have seen in

myself. 

When did your symptoms start?  Have you noticed if they get worse when you are

tired or stressed?

There is another yahoo group called MSCure.  The majority of the members are

completely natural and do not take meds for their MS and are doing wonderful.  I

get a lot of info from them about natural remidies.  I am very much into herbs

and natural nutrition so I find it interesting what they have to offer.

Good luck on your course with MS. 

from Ft Worth

My name is Graham and I live in Denver, CO. I'm currently struggling with a

variety of symptoms -- numbness, tingling/itching, pain, balance, feeling

disconnected or foggy, muscle twitching -- and have been given a diagnosis

of possible MS, whatever that means. I had a clean MRI w/o contrast and

have my first appointment with a neurologist later this month (all early

tests, etc., have been done with my regular doc).

I'm interested in learning about alternative methods of dealing with what

might be MS, since the medicines sound pretty terrifying. It's all a bit

overwhelming right now, though, with reading stuff on the internet and

trying to decide for myself what seems right and what doesn't.

Thanks for having a group like this where people can come to learn and share

info.

Graham