Reality Check

[Guest guest]

Hi guys,

Got my first real " reality check " today. I woke up feeling almost

normal this morning. Even commented to hubby that I was moving pretty

good and my hands weren't really bothering me. Talk about short

lived...Went to get on the bus this afternoon and couldn't get my knees

to work long enough to climb the two stairs to get on the bus! I looked

pretty funny and felt even funnier trying to explain to the senior

citizens why I was holding up the bus (I'm only 45!!!). Was definately

a humbling experience.

I have my first follow-up appt. with my rheumy in about 2 wks. which

means an 8 hour trip from the VI to FL. NOW I'm a little worried about

traveling, especiallly since I will be alone.

[Guest guest]

But you don't look sick! That's a great site and I often think about it when I'm

out there and people are watching, they just don't know.

Stan,

Seattle, cloudy.

-------------- Original message --------------

From: " eafarchette " <eafarchette@...>

Hi guys,

Got my first real " reality check " today. I woke up feeling almost

normal this morning. Even commented to hubby that I was moving pretty

good and my hands weren't really bothering me. Talk about short

lived...Went to get on the bus this afternoon and couldn't get my knees

to work long enough to climb the two stairs to get on the bus! I looked

pretty funny and felt even funnier trying to explain to the senior

citizens why I was holding up the bus (I'm only 45!!!). Was definately

a humbling experience.

I have my first follow-up appt. with my rheumy in about 2 wks. which

means an 8 hour trip from the VI to FL. NOW I'm a little worried about

traveling, especiallly since I will be alone.

[Guest guest]

Yeah - the Shortness of Breath is called " air hunger " and is attributed to

one of the co's - either Bartonella or Babesiosis - CLASSIC symptom. Sounds

as if there is no doubt but that you are suffering from a co-infection - or

perhaps many.

This info jibes with mine EXACTLY.

OK, next steps: co-infection, like Lyme testing is notoriously difficult.

V. few labs have the appropriate tests.

IGeneX in California has the most complete.

You will either have to have a Lyme knowledgeable physician to order tests -

or do some homework to simply TELL your doctor what you want.

Remember however that Lyme and co-infections are Clinical Diagnoses -

meaning that as there are no perfect 100% tests, the doctor must diagnose

and treat based on you symptoms and history.

Co-infections: well this is v. difficult. Depending on where you were bitten

the doctor must rule out: Rockey Mountain Spotted Fever, Babesia in its many

many forms (Duncani is the most difficult to eradiacte) Erlichea, Babessia -

which has many forms; mycoplasma (which seems to eventually lead us to

Chronic Fatigue Syndrom) and a few others.

Google IGeneX in California - this is the best lab, and they are very

familiar with talking to patients, and a very patient centered place. Call

them to ask which test would be appropriate. Try to narrow it down so as to

save $.

good luck, plz post again. Meanwhile simple answer is: You sound as if you

have

co-infections. And you should know that you can have these (one or several)

and Not nec. have " Lyme. "

On Tue, Apr 12, 2011 at 9:06 PM, ette Meier <paulette@...>wrote:

>

>

> In response to Paige's question about symptoms. Sounds like there's a

> number of things going on, for sure. I've been diagnosed with babesiosis,

> Lyme, and bartonella though not ever through a definitively positive blood

> test. Practitioners have told me that sore soles of the feet and painfully

> dry eyes are symptoms of bartonella. Periodic sweats (along with what I

> call tingling chills) are symptoms of Babesiosis, as is what is known as

> " air hunger. " I know that headaches are common with Babesia as well, though

> I've been fortunate not to have them.

> My Lyme symptoms are mostly neurological; I've had sudden sharp nerve

> pains (like being electrocuted) and I have constant neuropathy... tingling

> and numbness in my lower legs and feet. I use to have numb hands, but that

> stopped. My leg muscles are always problematic; it's hard to climb stairs

> especially.

> The one symptom my doctor is not sure of is the shortness of breath I

> sometimes get whenever I do the least bit of exertion, especially climbing

> steps. I've had pulmonary function tests and heart stress tests, but

> they've found nothing. I don't understand most of this stuff, why it is,

> but I just began re-reading Buhner's book and his explanation about

> collagen

> tissue makes the most sense to me.

> Blessings to you and to us all! ---- ette

>

> --

> ette Meier

> www.lessonsongs.com

>

>

[Guest guest]

Sounds like Bart is still active for you. Not sure about what symptoms maybe

from Lyme, but Bart sounds prevalent.

>

> Hi everyone,

>

> My symptoms are pretty intense and I'm wondering if they sound like Lyme

symptoms. They are:

>

> Severe burning skin sensations (all over)

> Painful nerve zaps/tingling (all over)

> Traveling pains

> Nerve pain that sometimes turns into itchy skin

> Occasionally fingertips feel slightly numb and " chalky "

> Painful tendons, muscles (i.e. palms, wrists)

> Drowsy feeling in afternoon

> Extremely sore soles, especially in a.m.(sometimes tops of feet too)

> Weird frontal headache I've now had since Friday

> Occasional slight nausea (seems to coincide with headache)

> Upset, gurgling stomach

> Sour, bitter taste

> Traveling facial pressure and burning

> Burning/stinging sensations in mouth/gums/eyes (sometimes even urine and stool

seem to " burn " )

> Weird taste " zaps "

> Agitation/depression/paralyzing anxiety/brain fog (when symptoms are the

worst)

> Sore eyeballs

> Off/on stuffy nose

> Increased lymph congestion around face / jaw

> " Pounding heart " / heavy lungs sensation

> Occasional palpitations

> Increased sweating

>

>

> The headache is one of the worst symptoms, it's right in the center of the

forehead but travels around occasionally. I wonder if it's sinus related, but

the pain doesn't get worse when I bend forward (as a sinus infection would). The

area around my temples, forehead and top of head are sore to gentle finger

pressure, as if the muscles underneath are inflammed.

>

> I need a reality check as to whether these are Lyme symptoms, as I've got

several things going on here. The Lyme bugs and heavy metals attacked my

jawbone, resulting in bone infection, which can present with systemic symptoms.

Also I recently started the HPU/HKU supplementation protocol, which can prompt a

rapid body-wide release of heavy metals, microbes, etc. I also recently started

A-BART and rifing. In 2005 I tested + for Bb, Babesia, Erlichia, Bartonella. I

tested + for several strains of Bb, but the worst one was the neurological

strain prevalent in Europe. I have been on the Nutramedix protocol since 2007

but am switching to the Buhner program. I recognize that these symptoms could be

from these other issues, but do any of them sound like Lyme? It's hard to tell

what is what. I was doing really well until last November. Thanks in advance for

your replies. :-)

>

> Paige

>

[Guest guest]

I agree with this below. I think you are having a huge herx from starting the

A-Bart remedy. I would stop taking the remedy for a few days to a week and see

if symptoms reduce. If they do then it could be a herx. I've had huge responses

to both A-Bart and A-Bab. I have to take a very low dose of each.

Best,

Connie

[ ] Re: Reality check

Sounds like Bart is still active for you. Not sure about what symptoms maybe

from Lyme, but Bart sounds prevalent.