RE: C-RP, Sed Rates and Venting, whining whatever you want to call it!

December 9, 2010

Hi

In 2006 was feeling lightheaded, fatigued, dizzy - thought I was pregnant.

They ran some tests and found that my elevated Sed Rate alternated between

39 - 49 and my CRP 2.8-3. This is what started the whole nightmare for me

in 2006. Instead of a baby I was getting ready to deliver an alien. My

symptoms kept getting worse - pains everywhere, could hardly walk, stopped

going to the GYM to tired, nerves on edge, extreme fatigue, weird dizzy

spells, recurrent infections, etc...I went through a variety of specialist,

lab test, MRI, x-rays, more labs and more specialists. I finally delivered

one of the twin aliens " Lupus " October 2009 followed by RA in March 2010.

I feel like my body has been invaded by aliens who have taken control of it.

I am still me intellectually but my body has a mind of its own...we are in

constant struggle I want to do but it screams at me - no way!

It is perfectly OK to vent...if we can't vent in this forum where can we do

it? As for me -I understand-there are some days that you wake up and you

are feeling so lousy that you have to have a good cry. After that you pick

yourself up and go on. Being chronically ill and depending on medications

that have such awful side effect is more than a drag. Add to that dealing

with some doctors who understand the disease process but really don't get

what the patient is going through. Sometimes I feel like I am invisible -

the disease is visiting the doctor not me because he only looks at labs not

me. I don't blame the healthcare team unless you have an autoimmune

disorder you can't possibly know what we are going through. Moreover, these

conditions have a variety of differences and complications in each of us.

The one thing that really gets under my skin is when people come up to me

and say " How can you be sick you look so good and you don't sound sick " .

That really gets me going...but I reply with common courtesy because people

are ignorant of these disorders...they just don't understand.

So go ahead and vent is good for the soul but don't stay there, dust

yourself up and continue your race! I care and understand.

God Bless you! Your fellow warrior - Vivian

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