Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 To, Jw_Todd, keep your chin up. My 28 y/o son was diagnosed with tm a little over 7 months ago and he's recovering. Doesn't use the wheel chair anymore...And, he's starting to walk around without the walker...The next step for him is to get this braces off that he has from the knee down..We're all very encouraged with his progress...He's in a pt program twice a week...They really know what they are doing and he's getting results...Do all you can to stay as active as possible and seek out pt people who know what they are doing....Duncan, Maine Hello all... I just found this group and thought I should introduce myself. Myname is Jim, 38, from Ontario, Canada.I'm kind of experiencing a double whammy here. I was diagnosed withtransverse myelitis last July and am now having to move around ina wheelchair. How much I'll be able to recover is still up in theair. And that recovery is hampered by some sort of middle-ear problemthat's causing dizziness and nausea. I'm waiting for an appointmentwith an ear/nose/throat specialist to see what's going on there, butI'm worried that it could be Meniere's Disease.Anyway, I'm glad I found this little group, and also that some of youhere are also dealing with TM. It helps to know that I'm not alone indealing with it.Thank you for being here,Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Hello again... Just a quick update. My appointment with the ENT is this afternoon. I'm expecting to be subjected to a number of tests, because I understand there are a number of conditions/ailments that exhibit similar symptoms to those I'm experiencing. Hopefully they'll determine what's going on in my middle ear, and we can come up with something to correct it. Meanwhile, the vertigo and dizziness continues to be troublesome. I simply haven't felt well enough to go anywhere the past few weeks. In fact, I'm concerned about feeling well enough to go to the appointment. But I must go, no matter what. Wish me luck, Jim > > I just found this group and thought I should introduce myself. My > name is Jim, 38, from Ontario, Canada. > > I'm kind of experiencing a double whammy here. I was diagnosed with > transverse myelitis last July and am now having to move around in > a wheelchair. How much I'll be able to recover is still up in the > air. And that recovery is hampered by some sort of middle-ear problem > that's causing dizziness and nausea. I'm waiting for an appointment > with an ear/nose/throat specialist to see what's going on there, but > I'm worried that it could be Meniere's Disease. > > Anyway, I'm glad I found this little group, and also that some of you > here are also dealing with TM. It helps to know that I'm not alone in > dealing with it. > > Thank you for being here, > > Jim > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Hello again... Just a quick update. My appointment with the ENT is this afternoon. I'm expecting to be subjected to a number of tests, because I understand there are a number of conditions/ailments that exhibit similar symptoms to those I'm experiencing. Hopefully they'll determine what's going on in my middle ear, and we can come up with something to correct it. Meanwhile, the vertigo and dizziness continues to be troublesome. I simply haven't felt well enough to go anywhere the past few weeks. In fact, I'm concerned about feeling well enough to go to the appointment. But I must go, no matter what. Wish me luck, Jim > > I just found this group and thought I should introduce myself. My > name is Jim, 38, from Ontario, Canada. > > I'm kind of experiencing a double whammy here. I was diagnosed with > transverse myelitis last July and am now having to move around in > a wheelchair. How much I'll be able to recover is still up in the > air. And that recovery is hampered by some sort of middle-ear problem > that's causing dizziness and nausea. I'm waiting for an appointment > with an ear/nose/throat specialist to see what's going on there, but > I'm worried that it could be Meniere's Disease. > > Anyway, I'm glad I found this little group, and also that some of you > here are also dealing with TM. It helps to know that I'm not alone in > dealing with it. > > Thank you for being here, > > Jim > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Hi Jim: welcome to the group. I am from Newfoundland Canada, I wish you well in your appt and hope your don't have to go through too much. Let us know how you get on with it. Take care and Good Luck. marg o3002 Todd <jwtodd@...> wrote: Hello again...Just a quick update. My appointment with the ENT is this afternoon. I'm expecting to be subjected to a number of tests, because Iunderstand there are a number of conditions/ailments that exhibitsimilar symptoms to those I'm experiencing. Hopefully they'lldetermine what's going on in my middle ear, and we can come up withsomething to correct it.Meanwhile, the vertigo and dizziness continues to be troublesome. Isimply haven't felt well enough to go anywhere the past few weeks. Infact, I'm concerned about feeling well enough to go to theappointment. But I must go, no matter what.Wish me luck,Jim>> I just found this group and thought I should introduce myself. My> name is Jim, 38, from Ontario, Canada.> > I'm kind of experiencing a double whammy here. I was diagnosed with> transverse myelitis last July and am now having to move around in> a wheelchair. How much I'll be able to recover is still up in the> air. And that recovery is hampered by some sort of middle-ear problem> that's causing dizziness and nausea. I'm waiting for an appointment> with an ear/nose/throat specialist to see what's going on there, but> I'm worried that it could be Meniere's Disease.> > Anyway, I'm glad I found this little group, and also that some of you> here are also dealing with TM. It helps to know that I'm not alone in> dealing with it.> > Thank you for being here,> > Jim> All new - Get a sneak peak at messages with a handy reading pane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Hi Jim: welcome to the group. I am from Newfoundland Canada, I wish you well in your appt and hope your don't have to go through too much. Let us know how you get on with it. Take care and Good Luck. marg o3002 Todd <jwtodd@...> wrote: Hello again...Just a quick update. My appointment with the ENT is this afternoon. I'm expecting to be subjected to a number of tests, because Iunderstand there are a number of conditions/ailments that exhibitsimilar symptoms to those I'm experiencing. Hopefully they'lldetermine what's going on in my middle ear, and we can come up withsomething to correct it.Meanwhile, the vertigo and dizziness continues to be troublesome. Isimply haven't felt well enough to go anywhere the past few weeks. Infact, I'm concerned about feeling well enough to go to theappointment. But I must go, no matter what.Wish me luck,Jim>> I just found this group and thought I should introduce myself. My> name is Jim, 38, from Ontario, Canada.> > I'm kind of experiencing a double whammy here. I was diagnosed with> transverse myelitis last July and am now having to move around in> a wheelchair. How much I'll be able to recover is still up in the> air. And that recovery is hampered by some sort of middle-ear problem> that's causing dizziness and nausea. I'm waiting for an appointment> with an ear/nose/throat specialist to see what's going on there, but> I'm worried that it could be Meniere's Disease.> > Anyway, I'm glad I found this little group, and also that some of you> here are also dealing with TM. It helps to know that I'm not alone in> dealing with it.> > Thank you for being here,> > Jim> All new - Get a sneak peak at messages with a handy reading pane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 Hi , I'm glad to see you back on the list. Please come back often and we can all encourage each other. The lists have been quite slow and it would be great to see some old friends post when they can. Take care! Wanda > > Well greetings everyone... > > I've been gone a while...I have not been doing my lifelift as " well " > as I should...At least not with the resolve to drop weight. I do the > breaths...but not regularly enough I think. > > I read some testimonials today and i am going to make more effort...i > will get my 20 minutes a day in...I will aim for MORE... > > And the water...I can do that. > I will check in more often as I want some encouragement that this > really works and I don't have to DIET again in my lifetime. > I have been using the affirmations and they have helped me get a good > night's sleep and I am working with the self image. > I just finished 20 minutes of lifelift. I AM SO HOT...I feel like I > ran a marathon. so my 10 minutes here and 10 minutes there wasn't > cutting it. > > Where are the " tips " in the newsletters. I remember there was one > newsletter that listed a number of tips. > drink your water, > 20 minutes of LL a day...40 breaths... > don't skip meals... > what else? > > Love to everyone... > I do remember you all.. > By the way, Gustav put me out of my home for 2 weeks but i am back > home again. > > mary > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 Hi , It is good to hear from you!  I have been trying to get into the LL: mode again but am having a hard time! Still reading the messages and they are slow!  Got to try harder!!! I have gained so much weight!   Love, Connie hello all... Well greetings everyone... I've been gone a while...I have not been doing my lifelift as " well " as I should...At least not with the resolve to drop weight. I do the breaths...but not regularly enough I think. I read some testimonials today and i am going to make more effort...i will get my 20 minutes a day in...I will aim for MORE... And the water...I can do that. I will check in more often as I want some encouragement that this really works and I don't have to DIET again in my lifetime. I have been using the affirmations and they have helped me get a good night's sleep and I am working with the self image. I just finished 20 minutes of lifelift. I AM SO HOT...I feel like I ran a marathon. so my 10 minutes here and 10 minutes there wasn't cutting it. Where are the " tips " in the newsletters. I remember there was one newsletter that listed a number of tips. drink your water, 20 minutes of LL a day...40 breaths... don't skip meals... what else? Love to everyone... I do remember you all.. By the way, Gustav put me out of my home for 2 weeks but i am back home again. mary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 Connie jump back on One day at a time You can do it!!!! Start today breathe 40 God's blessings (BSM Chaplain) Army mom The opinions reflected above are strictly my own and in no way reflect the views of the Blue Star Mothers or the Proud Military Moms hello all... Well greetings everyone... I've been gone a while...I have not been doing my lifelift as " well " as I should...At least not with the resolve to drop weight. I do the breaths...but not regularly enough I think. I read some testimonials today and i am going to make more effort...i will get my 20 minutes a day in...I will aim for MORE... And the water...I can do that. I will check in more often as I want some encouragement that this really works and I don't have to DIET again in my lifetime. I have been using the affirmations and they have helped me get a good night's sleep and I am working with the self image. I just finished 20 minutes of lifelift. I AM SO HOT...I feel like I ran a marathon. so my 10 minutes here and 10 minutes there wasn't cutting it. Where are the " tips " in the newsletters. I remember there was one newsletter that listed a number of tips. drink your water, 20 minutes of LL a day...40 breaths... don't skip meals... what else? Love to everyone... I do remember you all.. By the way, Gustav put me out of my home for 2 weeks but i am back home again. mary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 Hi !  Thank You!!  I am right NOW!!!  Hugs, Connie hello all... Well greetings everyone... I've been gone a while...I have not been doing my lifelift as " well " as I should...At least not with the resolve to drop weight. I do the breaths...but not regularly enough I think. I read some testimonials today and i am going to make more effort...i will get my 20 minutes a day in...I will aim for MORE... And the water...I can do that. I will check in more often as I want some encouragement that this really works and I don't have to DIET again in my lifetime. I have been using the affirmations and they have helped me get a good night's sleep and I am working with the self image. I just finished 20 minutes of lifelift. I AM SO HOT...I feel like I ran a marathon. so my 10 minutes here and 10 minutes there wasn't cutting it. Where are the " tips " in the newsletters. I remember there was one newsletter that listed a number of tips. drink your water, 20 minutes of LL a day...40 breaths... don't skip meals... what else? Love to everyone... I do remember you all.. By the way, Gustav put me out of my home for 2 weeks but i am back home again. mary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 Awesome God's blessings (BSM Chaplain) Army mom The opinions reflected above are strictly my own and in no way reflect the views of the Blue Star Mothers or the Proud Military Moms hello all... Well greetings everyone... I've been gone a while...I have not been doing my lifelift as " well " as I should...At least not with the resolve to drop weight. I do the breaths...but not regularly enough I think. I read some testimonials today and i am going to make more effort...i will get my 20 minutes a day in...I will aim for MORE... And the water...I can do that. I will check in more often as I want some encouragement that this really works and I don't have to DIET again in my lifetime. I have been using the affirmations and they have helped me get a good night's sleep and I am working with the self image. I just finished 20 minutes of lifelift. I AM SO HOT...I feel like I ran a marathon. so my 10 minutes here and 10 minutes there wasn't cutting it. Where are the " tips " in the newsletters. I remember there was one newsletter that listed a number of tips. drink your water, 20 minutes of LL a day...40 breaths... don't skip meals... what else? Love to everyone... I do remember you all.. By the way, Gustav put me out of my home for 2 weeks but i am back home again. mary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 Hi All, it was good to see your message. I don't know if we have " met " yet. I've belonged to this group for awhile but don't post too much. Like Connie, I am trying to get back into the LL habit and also having a hard time. I was away last week and thought for sure I would do my LL but I was not consistant. I was very faithful with my physical exercise program but for some reason, LL is hard for me. I don't mean hard to do just hard for me to get myself to do it. :-{ I should make myself do the 40 first thing in the morning and then anything else is a bonus. , how is . I was sorry to read that he was hurt. You all are in my prayers. have a good evening. Chris ____________________________________________________________ Click for the latest fitness products and trends. http://thirdpartyoffers.juno.com/TGL2141/fc/Ioyw6i3nD5H4FG4lDACXIKX2lflK5Lx130bO\ Cxbtan650E0MB48XBh/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 Thanks Chris is doing great try not to think of 40 all at but one at a time I DO THEM IN GROUPS FO TEN You can do it! God's blessings (BSM Chaplain) Army mom The opinions reflected above are strictly my own and in no way reflect the views of the Blue Star Mothers or the Proud Military Moms Re: hello all... Hi All, it was good to see your message. I don't know if we have " met " yet. I've belonged to this group for awhile but don't post too much. Like Connie, I am trying to get back into the LL habit and also having a hard time. I was away last week and thought for sure I would do my LL but I was not consistant. I was very faithful with my physical exercise program but for some reason, LL is hard for me. I don't mean hard to do just hard for me to get myself to do it. :-{ I should make myself do the 40 first thing in the morning and then anything else is a bonus. , how is . I was sorry to read that he was hurt. You all are in my prayers. have a good evening. Chris __________________________________________________________ Click for the latest fitness products and trends. http://thirdpartyoffers.juno.com/TGL2141/fc/Ioyw6i3nD5H4FG4lDACXIKX2lflK5Lx130bO\ Cxbtan650E0MB48XBh/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Hi Friends: I'm sorry I've been quite for so long, but my family and I got hit with a major virus that knocked us all for a loop! I'm only now just starting to feel a bit like my old self, but I've really been off the LifeLift wagon; I need to get back on track FAST before the Holidays interfere with any progress I've made. I have kept off that dress size and lost a few inches here and there, but not nearly as much as I'd like, mostly because I haven't been doing much to get there...I really need the love, help, and support that I know this lovely list can offer. Rashelle, I hope you and your family are doing OK...I think about you all the time, and pray fo you. I'll be ordering a bunch of stuff for the holidays; trying to get my sister on board, as well as some friends from Church. It's always nice to read the posts here; everyone is so full of hope! Thanks for listening, Love, Helene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Hi Helene! It is soo very wonderful to see a post from you. We're being hit now with that horrid virus and it does take its' toll. I sure hope you are all feeling yourselves very soon. I love giving Lifelift products as Christmas gifts. The best gift is the gift of love and health; and that's what we're giving when we share Lifelift with others. : ) You are certainly right Helene; this is an amazing group of friends here; we always feel at home here. This list has been very quiet. It would be wonderful to see more posts and see how everyone is doing. I miss this group. Welcome back Helene and glad to see you! Love, Wanda > > Hi Friends: > > I'm sorry I've been quite for so long, but my family and I got hit > with a major virus that knocked us all for a loop! I'm only now > just starting to feel a bit like my old self, but I've really been > off the LifeLift wagon; I need to get back on track FAST before the > Holidays interfere with any progress I've made. > > I have kept off that dress size and lost a few inches here and > there, but not nearly as much as I'd like, mostly because I haven't > been doing much to get there...I really need the love, help, and > support that I know this lovely list can offer. > > Rashelle, I hope you and your family are doing OK...I think about > you all the time, and pray fo you. > > I'll be ordering a bunch of stuff for the holidays; trying to get my > sister on board, as well as some friends from Church. > > It's always nice to read the posts here; everyone is so full of hope! > > Thanks for listening, > Love, > Helene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 I appreciate that so much, Wanda, thanks! Love, Helene > > Hi Helene! > > It is soo very wonderful to see a post from you. We're being hit > now with that horrid virus and it does take its' toll. I sure hope > you are all feeling yourselves very soon. > > I love giving Lifelift products as Christmas gifts. The best gift is > the gift of love and health; and that's what we're giving when we > share Lifelift with others. : ) > > You are certainly right Helene; this is an amazing group of friends > here; we always feel at home here. This list has been very quiet. > It would be wonderful to see more posts and see how everyone is > doing. I miss this group. > > Welcome back Helene and glad to see you! > > Love, Wanda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2008 Report Share Posted December 23, 2008 My name is . I am 36 years old and live in Indiana now, as we just moved here from Ohio. I was diagnosed with RA at age 12 and now have been on pred for over 15 years, as I am allergic to every NSAID out there. I do take plaquenil with my pred tho, although Im not sure it helps much. I wanted to hear some suggestions from everyone about meds. I NEEEEDDDD to get off the steroids! I feel lousy with them, BUT even worse without, so I dont know what to do. Im really flaring lately, and would love to hear about other treatment options from other that have been there, instead of just a DR. Thanks so much, God Bless, and Happy Holidays! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2008 Report Share Posted December 23, 2008 hello jenny, i'm sorry to hear about ur pain..i'm39yrs.old & have it since i was 5.i too have been on the steroids for almost18years. it sux!!!!!!! i take plaquenil as well.i'm pretty much in the same boat that ur in, except u actually stopped the preds. i'm still taking them w/a16mg. more of the roids i was taking b4... i'm not sure what helps either.... i'll just keep flying (high again). HOPE U FEEL BETTER SOON,GOD BLESS,MELYNDA ________________________________ From: Sue <marysue@...> Sent: Tuesday, December 23, 2008 10:08:28 PM Subject: Re: [ ] Hello all... Enbrel works wonderfully well for me. I also take arthritis-strength acetominophen. Have you considered one of the biologics, such as Enbrel, Humira, Remicade, or Orencia? Sue On Tuesday, December 23, 2008, at 08:36 PM, wrote: > My name is . I am 36 years old and live in Indiana now, as we > just moved here from Ohio. I was diagnosed with RA at age 12 and now > have been on pred for over 15 years, as I am allergic to every NSAID > out there. I do take plaquenil with my pred tho, although Im not sure > it helps much. I wanted to hear some suggestions from everyone about > meds. I NEEEEDDDD to get off the steroids! I feel lousy with them, > BUT even worse without, so I dont know what to do. Im really flaring > lately, and would love to hear about other treatment options from other > that have been there, instead of just a DR. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2008 Report Share Posted December 24, 2008 Hi Welcome to the group. I don't take steroids (yet) but I do take Methotrexate and Humera. It seems to help me. I just went back on the MTX because it had gotten to where it made me sick. I am not injecting it and it does not hurt me. Maybe one of them could help you. Again welcome to the group. Heidibug On Tue, Dec 23, 2008 at 8:36 PM, <Scrpbookinmom@...> wrote: > My name is . I am 36 years old and live in Indiana now, as we > just moved here from Ohio. I was diagnosed with RA at age 12 and now > have been on pred for over 15 years, as I am allergic to every NSAID > out there. I do take plaquenil with my pred tho, although Im not sure > it helps much. I wanted to hear some suggestions from everyone about > meds. I NEEEEDDDD to get off the steroids! I feel lousy with them, > BUT even worse without, so I dont know what to do. Im really flaring > lately, and would love to hear about other treatment options from other > that have been there, instead of just a DR. > > Thanks so much, God Bless, and Happy Holidays! > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.