Zena

[Guest guest]

Knocked on wood for you......I've been off prednisone two years. I didn't realize that it took that long to get it out of your system. I learn something new every day from this board. Our bodies produce cortisol from the adrenal glands. It's our natural response to stress. Good explanation, thanks Zena! Leanne uip 1/03 IllinoisZena wrote: What I know about steroids is this.

Your body produces a natural steroid, which is increased when necessary, but sometimes a steroid 'boost' is helpful to sort out different problems. The natural steroid damps down some reactions and helps with a feeling of general well being. Now, our bodies are intrinsically lazy, so if you put steroids in your body doesn't bother to make it's own. If you've been on steroids long term then you have to gently remind your body to make some more. I believe that your body naturally produces the equivalent of about 7mg of pred daily. If you come down too quickly, then your body doesn't have the steroid it needs and doesn't have the ability to make that much. In this country we are encouraged to carry our steroid alert card for about 2 years after coming off of them completely if you've been on them for a while. This is how long it takes for your body to get back to normal steroid production.

I've been on pred for many years as each time we tried to reduce the dose something cropped up and I had to go back up again. Touch wood I manage it this time. Love Ze xx> > >> > > Sher,> > > Speaking for myself the reason I need O2 and will likely always > > need O2 with these lungs is the damage already done by existing > > disease. I have slightly less than 40% total lung capacity. Unless > > someone finds a way to reverse the damage I will always need O2.> > > NSIP is one of the types of fibrosis that SOMETIMES responds well > > to corticosteroids (prednisone), mine did. The rather long course of > > prednisone that I took in 2006 stablized my disease and I've stayed > > stable since. This is not the case for everyone. I've been very > > fortunate.> > > There are subtypes of NSIP, fibrotic, cellular and mixed. They > > believe cellular NSIP is most likely to respond well to prednisone > >

but I THINK they need a biopsy to determine which type you have but > > I'm not sure of that. Maybe that would be a good question for the > > doctor...> > > > > > > > > Beth in NC age 48 Fibrotic NSIP 06/06> > > > > > "For as long as I shall live, I will testify to Love." > > > > > > > > > > > > > > > > > > Medications. ..> > > > > > > > > I am currently taking Cellcept for the NSIP in additions to all of > > my > > > other meds for copd which include...> > > > > > Theophylline 300mg 3x/day > > > Spiriva 18mcg/day > > > Advair 500 1puff 2x/day > > > Singulair 10 mg/day > > > Prednisone 15mg/day (tapering from 60 due to bronchitis) > > > Ventolin HFA 2 puffs as needed > > > Lorazapam 0.5mg as needed > > > Furosemide 40mg

every other day > > > Acetylcysteine20% 3ml 3 x/day (oral)> > > Sulfamethoxazole/ tmp ds M,W,F> > > Colchicine 0.6 x 2/day> > > > > > I am seeing the specialist next week at Mt Sinai in NYC, and she is > > > going to change the cellcept...I forgot what med she is trying > > next? > > > > > > I am curious what meds people take for their Fibrosis or their > > other > > > lung diseses?> > > > > > Steve-NY> > > Sge 43> > > NSIP (2000) and COPD> > >> >>

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

What a great clue.....HRH...TA!

GIO>> > Ze..> > I too read from the board (website). To get my signiture with> diagnosis, etc. on my posts....I just copy from a previous post and> paste it on every one that I write for that day.> > Works for me.> > Hugs, Joyce D.> Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension> 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) > Rejected for Transplant 2006> .....I will not forget you. Behold, I have engraved you on the palm of> my hands. Isaiah 49: 15-16>