Re: Fw: MS drug sickens patient...again

[Guest guest]

> Another case of a potentially fatal brain infection has been

reported in a

> patient taking the multiple sclerosis drug Tysabri, the biotech who

developed the drug announced yesterday.

Before I had a diagnosis, but after the neuro " thought " I could have

MS I was in a different MS group and kept hearing about Tysabri. I

kept thinking, " if it turns out I do have MS, THAT is the drug I

want " . Then I read the side effects! I said, why would anyone take

that drug? " .

After my diagnosis (July this year) by a specialist at the MS Center,

I was not even offered it as a choice. I chose not to take anything

at the present time (he said they really don't work for PPMS anyway).

I didn't want to take an interferon.

That is why I joined this group. The idea of alternative or non-

traditional medicine appeals to me. My husband has used vitamins to

control his Hep C for years.

I was put on the list to participate in the trial for FTY720 --

fingolimod and will find out about it next month. I'm not sure I'll

do it and I'm not sure I'd be allowed to do it as my oncologist said

they don't usually allow cancer patients into trials. (I have Non-

Hodgkins Lymphoma, but have not had a sypmtom or any treatments for

it).

I just have to be careful NOT to order every vitamin and mineral I

hear about here, I'll break the bank. I am going to ask the doc about

LDN though.

[Guest guest]

,

Right before this newscame out, my doctor was pushing Tysabri. He

can't get it through my head I don't take drugs other than LDN.

Interesting note, Dr. Wahls states MS patients are low in endorphins

and they should be raised...which is exactly what LDN does.

I know what you mean about supplements breaking the bank which is why I

stick to the supplements Dr. Wahls takes because they are found to help

heal nerves.

So much to learn...so much to do...sigh.

[Guest guest]

Hi

I have 2 questions for you. First how do you get started with the LDN, did your

doctor prescribe this? And secodly, what are the suppliments that are included

in Dr Wahls plan?

Thanks for your help

Shirley

[Guest guest]

I think you mean Resveratrol not Reversitral 200 mg

[Guest guest]

>

> Hi

> I have 2 questions for you. First how do you get started with the

LDN, did your doctor prescribe this? And secodly, what are the

suppliments that are included in Dr Wahls plan?

>

> Thanks for your help

> Shirley

>

Shirley, you have the wrong person. I didn't start LDN yet and it's not

me that knows about Dr Wahls plan.

Sorry,

[Guest guest]

I'd appreciate it if anyone can answer these questions. I'm currently doing

Rebif injections but am very curious about LDN.

Do you take this instead of the Rebif, along with it???? I'm just not quite

sure from reading everyone's messages just how this all works and how to get

started.

Thanks!

Shirley

[Guest guest]

Hi Shirley,

This site list the drugs to avoid when taking LDN:

http://tinyurl.com/drugs-to-avoid-on-ldn

The only CRAB drug deemed compatible with LDN is Copaxone.

For information about LDN in the treatment of MS, visit

http://tinyurl.com/advice-to-msers

Sincerely,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

>

> I'd appreciate it if anyone can answer these questions. I'm

currently doing Rebif injections but am very curious about LDN.

> Do you take this instead of the Rebif, along with it???? I'm just

not quite sure from reading everyone's messages just how this all

works and how to get started.

re: Rebif, I was on it for about 7 months & it made me sicker 'n a

dog almost every time. I quit because it was harder and harder to

believe something so harmful in the short term could be helping me

long term... I quit and have never regretted it!

Having said that I am currently on (gasp) Tysabri, which I know is

antithetical to this group. I also try to watch my diet and stick

close to the BBD and trake a number of supplements. <brag> I got a

blood test done a while back, and my total cholesterol dropped under

150 for the first time ever... which I'm proud of <\brag>, but

MSwise, nothing really changes, I just continue my slow downhill

slide. But I have found that I may be disabled but I can still be a

smart-alek!

MC and HNY to the group!