Guest guest Posted July 23, 2007 Report Share Posted July 23, 2007 Again the "vertigo" issue. When I gave out the website on how to rid oneself from vertigo, I was very specific to say that it was for "inner ear cases" If the Epley maneuver works, it is a ClEAR indication of inner ear issue. It is NOT to say that some people with MS have vertigo due to the MS. We DO have to be very careful NOT to blame EVERTHING on MS and become victims of this disease. I am affected by MS but my motto is: "I have MS but MS does not have me" Attitude is everything. No, do not "assume" that a symptom is automatically to blame on MS. I am Ivy - MS affected for more than a decade and still fighting....yes, I HAVE pain, stiffness, gait, bladder issues - you name it! But I continue to fight ...not let it take me down and enjoy life.Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2007 Report Share Posted July 24, 2007 my uncle was often dizzy had trouble walking after months of going to his DR he found he had an infection in his big toe lyn [low dose naltrexone] vertigo Hi folks. Feel need to comment on the vertigo issue. Before I was DX (in about '93) I went to my then PC about dizziness (vertigo) and was given the middle ear explanation. I had strong feeling and even suggested MS which was poo-pooed. I think anyone who has MS can safely assume that it IS from their MS. Dizziness IS a classic MS symptom. This is a very complicated disease. After trying many treatments, I believe that LDN is giving me some hope. Such tiny improvements like rolling over in bed, taking a few unaided steps, a bit of bladder control - feel like real miracles to me. Those who are experiencing the dizziness may be passing through some of their early disease stages on the way to health with LDN. Let's have hope. I'm sure that many newbies like me have been so close to despair like "the sun's going down on me". I want to believe that all of these pesky symptoms will soon subside. be well, ebaker from Oregon USA Get a FREE AOL Email account with 2GB of storage. Plus, share and store photos and experience exclusively recorded live music Sessions from your favourite artists. Click Here for more information. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 Hi, All, I seem to have been hit with a bout of Vertigo. The room is spinning, I'm nauseous and BLECH! At first I thought it was a reaction to a new med, but it's been ruled out. Then I realized I feel exactly as I did after my last CI surgery in 2005. That lasted 2 weeks (severe) to 2 months (less so). Any insights or solutions? Yes, I've contacted 3 docs already and all said to take anti-vert (I am-it's not helping) and wait it out! Thanks - Jackie ( ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 Hi Jackie, I haven't posted in ages but occassionally I come back to check whats going on here and came across this subject. I use to have vertigo attacks " before " I had my CI implant and before I lost my hearing. Anti-vert didn't help me any. I was diagnois with Menieres disease. Once I was implanted my vertigo disappeared but I do have vestibular lost. I know this dosen't help you much but thought I would mentioned it. Hope you find relief soon as I can truly sympathize with you. > > Hi, All, > I seem to have been hit with a bout of Vertigo. The room is spinning, > I'm nauseous and BLECH! At first I thought it was a reaction to a new med, > but it's been ruled out. Then I realized I feel exactly as I did after my > last CI surgery in 2005. That lasted 2 weeks (severe) to 2 months (less so). > Any insights or solutions? Yes, I've contacted 3 docs already and all said > to take anti-vert (I am-it's not helping) and wait it out! Thanks - Jackie ( > > > > ************************************** See what's new at http://www.aol.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 Hi , I agree.anti-vert is a joke. I have bi-lateral Meniere's and it never seemed to help. How are you doing with your implant? I go next week for an eval. I do not get the vertigo anymore (sometimes just feel a little " off " however), but I do have a severe hearing loss in both ears. Belinda DeLaby, CPDT Canine Action, Inc. (407) 325-9317 www.tempestwires.com www.canineaction.com www.godogs.biz _____ From: [mailto: ] On Behalf Of brendac251 Sent: Friday, October 19, 2007 9:04 PM Subject: Re: Vertigo Hi Jackie, I haven't posted in ages but occassionally I come back to check whats going on here and came across this subject. I use to have vertigo attacks " before " I had my CI implant and before I lost my hearing. Anti-vert didn't help me any. I was diagnois with Menieres disease. Once I was implanted my vertigo disappeared but I do have vestibular lost. I know this dosen't help you much but thought I would mentioned it. Hope you find relief soon as I can truly sympathize with you. > > Hi, All, > I seem to have been hit with a bout of Vertigo. The room is spinning, > I'm nauseous and BLECH! At first I thought it was a reaction to a new med, > but it's been ruled out. Then I realized I feel exactly as I did after my > last CI surgery in 2005. That lasted 2 weeks (severe) to 2 months (less so). > Any insights or solutions? Yes, I've contacted 3 docs already and all said > to take anti-vert (I am-it's not helping) and wait it out! Thanks - Jackie ( > > > > ************************************** See what's new at http://www.aol. <http://www.aol.com> com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 Thanks for replying, , It took me awhile to figure out that Vertigo is what's going on. I was hoping the anti-vert would help with one pill, but no such luck! The nausea is a lot calmer today, but the dizziness remains and it's the PITS! Hopefully it's on it's way out and my doc will check it out when I see her for a regularly scheduled appointment on Tuesday. I've only ever had this after my last ci surgery, so I hope it's not going to be a pattern. I had a kidney stone attack a few weeks ago, the first of which I had exactly one year ago. I hope that isn't going to be an annual thing either! " Growing old ain't for sissys! " I think Betty said that! LOL ) Jackie ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 -- how interesting that vertigo would be associated with migrianes!! I have had them since I was six and I remember having some attacks of vertigo but the doc says oh just a virus and gave me antivert meds. Snoopy Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 Flash, my good woman, Vertigo sucks. I've had several episodes in the last year, some lasting 7 hours or longer when you're on your knees praising the porcelain goddess. For those who don't understand THAT reference, it is vomiting. Here's what I did - went to see a Neurotologist (specialist in brain and hearing) who specializes in dizziness and balance problems. Your implant center can probably refer you to one. Prior to seeing this very special specialist, we did shots of gentamycin in the ear twice, shots of steroids in the ear, and all to no avail. Write down which way the dizziness is going - up and down, side to side, rolling, etc. and what sets it off. If it's from changing position in bed -= like rolling over, that is benign proximal positional vertigo (BPPV) and there are ways to control that. If you have a severe headache around the same time as the dizziness, it could well be migraine related. After trying countless things, like the aforementioned shots, the Dr. told me if I presented with all the symptoms minus the hearing loss, he would have diagnosed migraine. So we're treating it like migraine. I have Ativan (which is a tranquilizer) to take under the tongue if it starts, and I also have Clonazapem (another tranq) that I take half a pill twice a day to prevent the dizziness from happening. I also have antivert, and Relpax for migraine. So when the rolling dizziness starts and it's not positional vertigo, I start with antivert and ativan. If that doesn't work, I follow with another ativan. There is also anti nausea drugs you can take, so you aren't spending hours vomiting. I had a blanket and pillow in both bathrooms for months because of this. I am now taking Physical therapy for gait disorder - I walk funny, can't balance well, etc. Narrowed it down to the neck and jaw, causing it. So, see a specialist and hang in there. I know I felt like I way dying, and then thought it would be worse -- I'd live and feel like this. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Thanks so much, ! This is really helpful. I HAVE been getting headaches with this! I never had migraines before. What is this new hell? Fortunately, while still feeling a bit of nausea, I'm not worshipping the porcelin goddess. Good thing, too, because the most convenient one I have is black! LOL I'm not totally incapacitated , still doing household chores, etc, but I wouldn't drive in this condition. When I first woke up with it at 4 am I was truly terrified! With symptoms modified, I'm dealing with it a little better. I see my GP on Tuesday and ask about a neurologist. My CI center is in NY and I don't want to be traveling that far. We have excellent medical centers right here in our backyard, and I'm sure there is someone good available if it comes down to that. Anyway - I'll keep you posted. Thanks for responding! :oP Jackie ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Jackie, I'm really sorry to read that you have having this episode of vertigo. I agree with that it can be Migraines. In fact, a doctor I see a the Cleveland Clinic told me that my dizziness problem is a Migraine issue and I take Vitamin B2 every day. When the dizziness is worse - I take Ibuprofin. I find that it helps. If you are seeing any type of aura (lights or flashing or even visual distortion), it is most likely a migraine issue. I'd talk this over with your doctor when you see him this week. I'm glad you have the appointment. Please feel better FAST !!!! Alice http://www..com In , Flashwun@... wrote: > > Thanks so much, ! > This is really helpful. I HAVE been getting headaches with this! I never > had migraines before. What is this new hell? Fortunately, while still > feeling a bit of nausea, I'm not worshipping the porcelin goddess. Good thing, > too, because the most convenient one I have is black! LOL I'm not totally > incapacitated , still doing household chores, etc, but I wouldn't drive in this > condition. When I first woke up with it at 4 am I was truly terrified! With > symptoms modified, I'm dealing with it a little better. I see my GP on > Tuesday and ask about a neurologist. My CI center is in NY and I don't want to > be traveling that far. We have excellent medical centers right here in our > backyard, and I'm sure there is someone good available if it comes down to > that. Anyway - I'll keep you posted. Thanks for responding! > :oP Jackie > > > > > ************************************** See what's new at http://www.aol.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Apparently since the dizziness comes first, followed by the headache, (an unusual almost backwards way) people thought the dizziness was causing the headache. Rather than the headache would cause the dizziness. Migraine is supposed to improve with age - yeah, like fine wine, etc. And decrease at menopause. Got news for you, that didn't happen either. -- how interesting that vertigo would be associated with migrianes!! I have had them since I was six and I remember having some attacks of vertigo but the doc says oh just a virus and gave me antivert meds. Snoopy Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Thanks so much, Alice, Viamin B2 and ibuprofin - now that's easy enough. I'll check the B2 with my doc tomorrow. Meanwhile, today I went to the urologist about the kidney stone attack I had 2 weeks ago. What does he give me? Flomax! Yep - what they usually give to MEN and 10% of people using it get a side affect of - guess what? Vertigo! ARGGG - I have used it twice before with no side affects so hopefully this will push the stubborn stones that are still there OUT and NOT make me any dizzier! I'm just falling apart! Blech! Thank G-d I'm much better but still won't drive, and I'm not in pain, so we'll see what this week brings! So far, despite the x-ray showing the stones still in me, I got treated to a wonderful breakfast that was delicious! LOL Hope you are doing well and making progress on your issues, too! ) Jackie ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Hey, , I did read your post and will be asking about a neurotologist and not just a neurologist. I just spelled it wrong last post. Thanks! ) Jackie ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Hmmm, , I never had migraines before, that I know of. But I AM aging, and surgery sent me into menopause last November, so what's the deal?? I recently had a kidney stone attack and now the stones want to stay with me, too! Now if they were diamonds, fine - but this stinks! LOL I repeat - " Growing old ain't for sissies! " :o/ Jackie ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Hey Jackie, If it is the benign proximal positional vertigo, (BPPV) it is very easily cured. There are crystals in your ears (who knew?) and when they move out of place, they cause dizziness. Sudden movements can cause it, and if it occurs in bed, then it's almost always BPPV. There is a little trick the Dr. can do to reposition the crystals. Called the " Modified Eppley Maneuver " . But after it's done, you need to sleep almost upright for 2 days to keep those darned crystals where they belong. If you are still doing household chores, there has been some degree of brain damage. Anything would, and does, get me from doing household chores. Good luck. Mention BPPV and the Eppley maneuver and impress your GP all to pieces. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 Belinda: Do you have an implant? I am bilateral Menieres also and have had a labryinthectomy on one side. thinking about CI on the other but worried that it may not be a good choice due to playing around with my last balance ear. FYI, you are right about antivert....no help at all. But 1 mg of Xananx works wonders for me during an episode of dizziness or vertigo. Let me know what you think about doing an inplant Sid > > > > Hi, All, > > I seem to have been hit with a bout of Vertigo. The room is > spinning, > > I'm nauseous and BLECH! At first I thought it was a reaction to > a new med, > > but it's been ruled out. Then I realized I feel exactly as I did > after my > > last CI surgery in 2005. That lasted 2 weeks (severe) to 2 months > (less so). > > Any insights or solutions? Yes, I've contacted 3 docs already > and all said > > to take anti-vert (I am-it's not helping) and wait it out! > Thanks - Jackie ( > > > > > > > > ************************************** See what's new at > http://www.aol. <http://www.aol.com> com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2007 Report Share Posted November 26, 2007 Hi, , Nice to " see " you and thanks for responding. My vertigo finally resolved, but not before practically driving me crazy! I never had it before I was implanted and my doctor thinks it was just some kind of ear virus that has no connection to my CI's. It was very severe the first few days. It took about a week to settle enough where I felt comfortable driving, but around 2 mon ths for it to completely clear. I guess it was just one of those weird things. This year seems to have brought a lot of them my way! LOL Hopefully I won't have this again. I just saw where another poster says Xanax helped him so I will try that next time if there IS a next time, (which I hope there ISN'T), as I always have that in the house (doesn't everybody?) LOL ) Jackie **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2007 Report Share Posted December 9, 2007 Ever since I have been an adult the only way I have been able to tell that I have an ear infection is when I develop vertigo. It is terrible and If and when it starts I know just exactly what the cultprit is. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2007 Report Share Posted December 30, 2007 i have never had vertigo per se...but have been dizzy. but a good friend has had it and it is not fun. my doctors do not use flouro with fills. why do you think that the band was involved with your vertigo? At 07:47 AM 12/30/2007, you wrote: >Hi Everyone. > >I'm back in the land of the living after having a bout with vertigo >yesterday. If I hadn't heard my dad, brother, and sister talk about >it, I would have thought I was losing my mind. I woke up and turned >my head in bed and was suddenly dizzy. Spent the next 24 hours in bed >hanging on for dear life because everything was spinning. I didn't >eat or drink, couldn't move my head off the pillow. DH called the doc >and got some motion sickness pills to chew, but I had dry heaves off >and on all day long. Poor band. I have to say, it was the most >frightening experience of my young 53 years. Has anyone else here had >vertigo? My fill doc doesn't use fluoro, only upper GI. After >yesterday I'm concerned about band erosion. > >Carol >246/208/125 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2007 Report Share Posted December 30, 2007 Yes, I have this situation. My condition was diaginosed as " Benign positional proximal vertigo. It can be awful. Mine comes and goes and has been a " visitor " for over 25 years. Usually it is just " annoying " but once in a while it can land me on my back hanging on for dear life. Yes, it is scarry. There are some head jiggling techniques that work for some folks. An ear doc or neurologist can help refer you to the proper person if necessary. Wms 223/180/125 > > Hi Everyone. > > I'm back in the land of the living after having a bout with vertigo > yesterday. If I hadn't heard my dad, brother, and sister talk about > it, I would have thought I was losing my mind. I woke up and turned > my head in bed and was suddenly dizzy. Spent the next 24 hours in bed > hanging on for dear life because everything was spinning. I didn't > eat or drink, couldn't move my head off the pillow. DH called the doc > and got some motion sickness pills to chew, but I had dry heaves off > and on all day long. Poor band. I have to say, it was the most > frightening experience of my young 53 years. Has anyone else here had > vertigo? My fill doc doesn't use fluoro, only upper GI. After > yesterday I'm concerned about band erosion. > > Carol > 246/208/125 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2007 Report Share Posted December 30, 2007 Only because of all of the vomiting as a result of the vertigo. > > i have never had vertigo per se...but have been dizzy. but a good > friend has had it and it is not fun. > my doctors do not use flouro with fills. why do you think that the > band was involved with your vertigo? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2007 Report Share Posted December 30, 2007 ah, sorry. didnt realize. At 11:01 AM 12/30/2007, you wrote: >Only because of all of the vomiting as a result of the vertigo. > > > > > > > > i have never had vertigo per se...but have been dizzy. but a good > > friend has had it and it is not fun. > > my doctors do not use flouro with fills. why do you think that the > > band was involved with your vertigo? > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2007 Report Share Posted December 30, 2007 yes, have had it. has been due to inner ear infections or other problems for me, and for my daughter. I'd not worry about erosion (actually you mean slippage, I think) unless you have reason to be due to symptoms. Sunday, December 30, 2007, 5:47:03 AM, you wrote: > Poor band. I have to say, it was the most > frightening experience of my young 53 years. Has anyone else here had > vertigo? My fill doc doesn't use fluoro, only upper GI. After > yesterday I'm concerned about band erosion. -- " It's OK to be a little broken, everybody's broken in this life " Jon Bon Jovi Dan Lester, Boise, Idaho, USA www.mylapband.tk Banded 4/27/03, Dr. Ortiz, Tijuana Started at 355, at goal in the 210-220 range for almost 4 years Ultimate goal of 195 Tummytuck in Boise and SmartLipo in Tijuana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 Yes, Jeannie, I have had this many times. as far back as the beginning of my fm symptoms. I think the magnesuim helps and i take iron about 3 x a week. > > I am just recovering from my 2nd bout of BPPV (benign parovsmal > positional vertigo) in less than one year. I was wondering if anyone > else has had a problem with this? Could it be related to fibro? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Hi Gerry I'm undergoing investigation for BPV - Benign Positional Vertigo. So far, we've not been able to replicate the vertigo in clinic, and so he can't diagnose it firmly, but he says it would be about par for the course. This is in my cholesteatoma (right) ear - and I always fall/roll/stumble to the right. Kazzy xx Vertigo Hi,I was wondering about experiences with vertigo for people who have had cholesteatomas. I've just been diagnosed with vertigo and have been undergoing the Epley maneuver to try to get rid of crystals in the tubes of my left ear. Surprisingly, it's not in my cholesteatoma ear, the right ear. I was just wondering if this has been encountered by other people with cholesteatomas. Gerry -- This email has been verified as Virus free. Virus Protection and more available at http://www.plus.net No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.2/1353 - Release Date: 3/31/2008 6:21 PM Quote Link to comment Share on other sites More sharing options...
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