Perhaps Orencia has quit on me? A little whine....

December 16, 2008

I have been on Orencia since starting it July 22 of this year. Three

months ago I had about 2 1/2 weeks of relief from my RA. Two months

ago all I got was a a day or so less than 2 weeks. After my last

treatment all I got was one week of relief. I will be seeing my

Rheumy tomorrow and am kinda curious what he's going to say about it.

The last month I've had horrid headaches that will not ease even

after taking my Tramadol and Aleve. The only time I didn't have the

headache was when I took my last Oxycontins with me to make an all

day train trip to Chicago. Each month before my treatments they ask

me about headaches and tingling in the arms or legs. I'm having a lot

of tingling in my hands/arms now to the point that I'm dropping

things as I can't tell if I have a good grip or not. Back to my adult

sippy-cups for now.

My finger joints are pink but they are not swelled up but my hands/

wrists/ elbows/ shoulders/ hips/ knees/ ankles/ toes all feel so hot

to me...did I leave anything out? Geez, I'm so tired now too. This is

what I felt like before I ever saw my Rheumy last year!

I realize that Orencia is a relatively new drug but has anyone been

on it and had it crap out on them?

Will sudden stress cause ones medications to stop working? My husband

had a heart ablation that failed last week and he may have to have

another one quickly. His heart is now beating up to 200x per minute

for up to 30 minutes at a time. Yes he has spoken to his Dr about

this and he is going to his Dr. tomorrow too. This situation has

caused my stress level to rise so high that I'm almost a conehead now!

Knowing that I " m going to talk to my doc tomorrow (Wednesday) helps

somewhat but my husband isn't real sensitive to me right now. I DO

understand why- one cannot live without a heart, he's only 44 and

he's very scared. Right now, to him my pain seems insignificant.

Understanding him doesn't help and I just wanted to reach out and see

if anyone else is or has dealt with this?

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