Re: Re: mtx - need some advice PLEASE READ THIS REPLY!!!!!!!

[Guest guest]

In a message dated 6/7/2009 3:35:22 P.M. Central Daylight Time,

squarehead52@... writes:

You see, I, myself, took thee pills, then switched to injections, and used

then for about three years.....until I went into the emergency room at the

V,A, unable to stay awake, in pain from my back.......it turned out that

my liver was failing! And the cause was Methotrexate. You see, I, myself,

took t >>

How often were you having liver function tests done?

dd

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cntnew00000007)

[Guest guest]

Greetings!

             You probably don't know me, as I post very rarely......my name is

" ken:, or :squarehead " , which ever you prefer.......but after reading your post,

about methotrexate injections, I feel it would be an injustice if I didn't.

             You see, I, myself, took thee pills, then switched to injections,

and used then for about three years.....until I went into the emergency room at

the V,A, unable to stay awake, in pain from my back.......it turned out that my

liver was failing! And the cause was Methotrexate.....which I no longer take!

           Please, Please...if you must use this often dangerous drug, PLEASE,

once a month, get a blood test! Tho' I do not know you, I am a Christian, and

YOU are part of a small and growing group of people who suffer from a terrible

disease...and I CAN say that I love you, for your daily courage,for your pain,

that only one who suffers from this knows....

       and I would be amiss if I didn't warn you.

                           Take care, and be happy...................love, ken 

From: Barbara <bcreedon@...>

Subject: [ ] Re: mtx - need some advice

Date: Sunday, June 7, 2009, 11:16 AM

Hi OKD:

No one hates needles more than me, but, due to the MTX pills making me

so sick to my stomach 24 hrs. a day, I started the injections.

You never feel the needle stick at all. I was a wreck doing my first

shot, but all is fine now. I have been injecting for 6 years now. I

use my thighs, no where else.

If the MTX pills makes you very sick, please try the injection. You

won't be sorry.

Wishing you pain free days ahead.

Hugs,

Barbara

--- In @gro ups.com, " cofade_2000 " <Cofade_2000@ ...>

wrote:

>

> Yes. The doctor gave ms some folinaic acid. I bought some kiddy stuff

from the pharm for nausea.

>

> I will deal. dont like needles, trying to avoid the biologicsl. hope

the mtx works.

>

> ugh.

>

> , how many auto immune diseases can a person have, do you know. I

have 2 and I hope there are now more pending.

>

> OKD

>

[Guest guest]

I agree, it should be seriously noted in our discussions when we talk about

prescribed medications that they are indeed prescribed by a professional health

care provider who provides a treatment plan. Although we may share some advice

on how we handle these harsh medications to get through the day no one is

suggesting to try or do anything without seeing a physician and following-up

with the treatment and lab work required.

Stan,

Seattle, Cloudy when not dark.

Sent: Sunday, June 7, 2009 1:27:18 PM GMT -08:00 US/Canada Pacific

Subject: Re: [ ] Re: mtx - need some advice  PLEASE READ THIS

REPLY!!!!!!!

Greetings!

             You probably don't know me, as I post very

rarely......my name is " ken:, or : squarehead " , which ever you prefer.......but

after reading your post, about methotrexate injections, I feel it would be an

injustice if I didn't.

             You see, I, myself, took thee pills, then switched to

injections, and used then for about three years.....until I went into the

emergency room at the V,A, unable to stay awake, in pain from my back.......it

turned out that my liver was failing! And the cause was Methotrexate .....which

I no longer take!

           Please, Please...if you must use this often dangerous drug,

PLEASE, once a month, get a blood test! Tho' I do not know you, I am a

Christian, and YOU are part of a small and growing group of people who suffer

from a terrible disease...and I CAN say that I love you, for your daily

courage,for your pain, that only one who suffers from this knows....

       and I would be amiss if I didn't warn you.

                           Take care, and be

happy...................love, ken

[Guest guest]

RA really is a nightmare isn't it! When I was first diagnosed last year I had no

idea what I was in for, I didn't even know there was such a thing as a

Rheumatologist. I sorta knew it wasn't gonna be good when I found this Newsgroup

because it had only one primary topic: Rheumatoid Arthritis. Lol, that was sort

of a clue. And then I learned that if the RA doesn't kill you the treatment

will. I mean 'cmon, who takes medication that makes you feel worse than you did

before you took it? Then doctors start tellin' you things like " this is sixty

percent effective " and you're really really happy for it (thank god I might get

some relief you think to yourself). What I personally hate most about it most is

just when you think you are getting a handle on how life is gonna be here comes

Fat RA again to change everything up (thinking of Bill Cosby's character Fat

Albert, Hey, hey hey). It really is a nightmare.

Stan

Seattle, Dark.

Fat RA, hey hey hey...

Sent: Sunday, June 7, 2009 2:06:50 PM GMT -08:00 US/Canada Pacific

Subject: [ ] Re: mtx - need some advice  PLEASE READ THIS REPLY!!!!!!!

Ken,

Thanks for speaking up...  You are right, the only people who understand what

we go through are those who are also living this night mare.   I've been on

methytrexate for 2 years now, with the amount changing based on my symptoms...

 My doctor is very good and I have my blood tested normally every six weeks to

look for adverse effects.  I think its always best to be proactive...  

Bonnie

[Guest guest]

In my experience and from what I've read in the Group most doctors will start

you out on a low dose for four to six weeks and may increase the dose based on

how you respond to the medication and what your lab work indicates. But I am

only taking MTX. I don't know anything about Presdnisone.

Stan

Seattle, Sun!

Sent: Monday, June 8, 2009 8:41:19 AM GMT -08:00 US/Canada Pacific

Subject: [ ] Re: mtx - need some advice  PLEASE READ THIS REPLY!!!!!!!

So Stan:

Can you play with the levels of MTX/Prednisone and just take them when you need

it, or does it have to build up in your system to work?

OKD

[Guest guest]

In a message dated 6/8/2009 4:42:02 P.M. Central Daylight Time,

Cofade_2000@... writes:

Do you ever get RA in the jaw, my jaw has been aching alot lately. >>

When I was getting pain throughout my body and before I was diagnosed, I

had it in my jaw -- left side only.

dd

**************Download the AOL Classifieds Toolbar for local deals at your

fingertips.

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[Guest guest]

MTX takes months to build up in your system, and conversely, months to

completely leave your system. Prednisone works immediately if the dosage is

right. Both medications need to be taken as dosed, especially the prednisone.

You have to follow the dosing guidelines to a " T " , else you could find yourself

in some trouble.

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

[Guest guest]

Usually when I " feel " a flare coming on it's already too late, it will be

inflamed within two or three hours. There's not a lot you can do about it

anyway. You can get RA in your jaw, it's happened to me once but others in the

Group have indicated it can be common for them.

Stan

Sent: Monday, June 8, 2009 1:44:41 PM GMT -08:00 US/Canada Pacific

Subject: [ ] Re: mtx - need some advice  PLEASE READ THIS REPLY!!!!!!!

Do you ever feel the RA Flares coming on, like the heat before the pain and

swelling?  What do you do when you feel it coming on?

Do you ever get RA in the jaw, my jaw has been aching alot lately.

OKD

[Guest guest]

Sorry, there is no immediate relief. The quickest would be prednisone. After a

day or two on the proper dose, you should begin to feel better. If you have

access to a pool, and can immerse yourself, you'll feel wonderful while you are

in there. The only problem is that you eventually have to get out. :-)

One of the biggest shocks of having something like RA is that there is no quick

fix, let alone a long standing one. When you're used to going to the doctor and

getting a script for antibiotics and being better in a week or two, learning

(and fully realizing) that you have a chronic condition is a big life change.

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

[ ] Re: mtx - need some advice PLEASE READ THIS REPLY!!!!!!!

So in reading all of these replies, there is really nothing one can do to

immediately relief the burning of the flares. The pain, I understand can be

relieved right away, but not the burning....

OKD

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[Guest guest]

I've had a flare up in my jaw, but only once so far. It was by far one of the

most miserable things I've ever dealt with and the only thing that worked for me

was going back on the prednisone.

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

[Guest guest]

Hi my name is and I also experience alot of jaw pain and it also feels

like I have a sore throat just on one side of my neck.  Sometimes my pain get so

bad I cant hardly chew or swallow.  But I'm so glad to know there are others

experiencing the same pain. when i tell people that it hurts in my face they

look at me like i'm crazy.  Is there anything to kinda ease the pain.

 

 

From: stanpfister@... <stanpfister@...>

Subject: Re: [ ] Re: mtx - need some advice PLEASE READ THIS

REPLY!!!!!!!

Date: Monday, June 8, 2009, 9:58 PM

Usually when I " feel " a flare coming on it's already too late, it will be

inflamed within two or three hours. There's not a lot you can do about it

anyway. You can get RA in your jaw, it's happened to me once but others in the

Group have indicated it can be common for them.

Stan

Sent: Monday, June 8, 2009 1:44:41 PM GMT -08:00 US/Canada Pacific

Subject: [ ] Re: mtx - need some advice  PLEASE READ THIS REPLY!!!!!!!

Do you ever feel the RA Flares coming on, like the heat before the pain and

swelling?  What do you do when you feel it coming on?

Do you ever get RA in the jaw, my jaw has been aching alot lately.

OKD