Question for the group

[Guest guest]

Carolyn..I had a rheumatologist who told me that jra is passed through

families..it can go back generations..therefore it can skip generations..on

my dads side..i was told that there was someone in the family who had jra as

a child and grew into adulthood with it..the person passed away and i don't

know if jra had anything to do with it though..never was told..I don't

wonder anymore with Tabs arthritis.i figure it is here so I deal with it..as

we all do..

Now my 15yr old son has informed me that his one knee has been bothering him

for 2 weeks..he has had pain in his legs..but i always thought growing

pains..Tabs rheumy told me to take him to a doctor and get it xrayed..if i

can't then the next time he sees Tab..he will look at my son for me..he is a

great rheumy! I don't think it is jra..but i rather be safe than

sorry..never know about arthur..lol!

(tab17..poly)

From: cybersis40@...

Reply-

Subject: Re: Question for the group

Date: Tue, 9 Apr 2002 10:02:11 EDT

Hi group this is Carolyn and I have a question. How many of you have JRA in

your gentic background either side. I am very courious as to the course JRA

is taking. In my family as far back as my Mom knows there was no family

history on either my father's side or hers. My oldest brother 55, has a

psorasis form of a auto-immune difficiencey, my next brother 52, has had

Ulcerative colitis since a teenager , another form of auto-immune disease.

My

sister 48, well lets just say no brains period and lets just leave it at

that! LOL ! Then I come along with JRA from very early on. I am now 42. I am

wondering if JRA skips generations, if so, how many? as my teenagers are ok

for now. I thank you for your input to my own mystery. Hope you all have

a

great Limber day! Carolyn Mullin, AKA - 2 impatient

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

There is a mom on this list whos kids where both diagnosed at 2 or 3.Her

daughter is poly,and her son is systemic,she is still on it,but you dont hear

from her often.She e-mailed me directly when I was questioning Remicade.Going

back to one auto immune disease can lead to another her son also has crohns

disease.Mom, if your reading this I hope he is still responding to the

remicade,and I hope your daughter is still in the medicated remmission.

Becki and 3systemic

karens tribe wrote:

> I do believe on this list there is someone who has 2 children with

> jra..probably is in the archives..but it is very rare.

> karen(tab17..poly)

>

> From: Casaria Tuttle <snickers4you_2000@...>

> Reply-

>

> Subject: Re: Re: Question for the group

> Date: Tue, 9 Apr 2002 07:12:52 -0700 (PDT)

>

> Carolyn-

>

> JRA does not run in families. It is unbelievably rare

> to have two people in the same family with JRA. There

> is no link, nothing. As far as research goes today

> you should have to worry about your kids, or your kids

> kids. Unfortunately some people are just unlucky, but

> at least it won't be past down the line.

>

> Love to all,

> Casaria & Tasie

>

> __________________________________________________

>

[Guest guest]

Hi Carolyn

I had an Aunt (on my mother's side) that had JRA. I really don't have any

information about any other auto immune disorders.

Val

Rob's Mom (4,systemic)

In a message dated Tue, 9 Apr 2002 10:04:13 AM Eastern Daylight Time,

cybersis40@... writes:

>Hi group this is Carolyn and I have a question. How many of you have JRA in

>your gentic background either side.  I am very courious as to the course JRA

>is taking. In my family as far back as my Mom knows there was no family

>history on either my father's side or hers. My oldest brother 55, has a

>psorasis form of a auto-immune difficiencey, my next brother 52, has had

>Ulcerative colitis since a teenager , another form of auto-immune disease. My

>sister 48, well lets just say no brains period and lets just leave it at

>that! LOL ! Then I come along with JRA from very early on. I am now 42. I am

>wondering if JRA skips generations, if so, how many? as my teenagers are ok

>for now. I thank you for your input to my own mystery. Hope you all have a

>great Limber day! Carolyn Mullin, AKA - 2 impatient

>

>

>

>

>

[Guest guest]

you know how the chiropractors do demos in malls?

well a few years ago we walked up on one and was doing ok at that time

we told the chiro about the problems she has had he claimed he could help

her

so they weighed her and measured her then the worst happened he started

pressing on her spine let him know he had hurt her and he said with

time that would go away lololol well told him she wouldnt let him

touch her again

as we left she said she was doing ok until he decided to touch her she was in

pain after for a few hours

some say that they can help some say they make problems worse

Robbin

[Guest guest]

Hello Carolyn Goedike! mom to Dylan (almost 4)

My doctors have all frowned of bone crackers!

My rheumy nearly hit the calling once when I suggested it many years ago, when I still had flexibility in my lower back. But now I wonder if I had started that type of treatment, would my back be so rigid today!?

The big problem is most Insurances don't pay for chiropractors, so it becomes an out of pocket expense.

Rusty Limbs

On Wed, 17 Apr 2002 23:12:07 -0700 (PDT) Carolyn Goedike <dylansmommy42298@...> writes:

Hello Everyone,Has anyone ever been to a chiropractor to help withJRA? My son has pauci-JRA (left knee). I have beentold by a friend that a chiropractor might be able tohelp, but I'm not sure what to do. Any help/thoughtswould be appreciated!Thanks,Carolyn - mom to Dylan, almost 4 - pauci-JRA sinceAug. 2001--- wrote:>

[Guest guest]

Carolyn..when Tabithas first rheumy turned out to not be a good one..I did

take her to a chiropractor which i didn't stick to..this one wanted to do

the herbal medicines(which i am not downing) and start her own his own ideas

on how to treat her..I then found another rheumy who was terrific, who is

now teaching. Anyways, I feel that a dr. who specializes in this field would

be better to treat your daughter..but that is my opinion..I would seriously

think about it before trying it.

karen(tab17..poly)

From: Carolyn Goedike <dylansmommy42298@...>

Reply-

Subject: Question For The Group

Date: Wed, 17 Apr 2002 23:12:07 -0700 (PDT)

Hello Everyone,

Has anyone ever been to a chiropractor to help with

JRA? My son has pauci-JRA (left knee). I have been

told by a friend that a chiropractor might be able to

help, but I'm not sure what to do. Any help/thoughts

would be appreciated!

Thanks,

Carolyn - mom to Dylan, almost 4 - pauci-JRA since

Aug. 2001

--- wrote:

>

[Guest guest]

Hi Carolyn...

I didn't think Chiropractors treat knees...only spine....I am not sure but I

will ck at my office, I work with a few....ask around

(Will's mom, 23 mos. pauci)

[Guest guest]

Interestingly enough it was my chiropractor who told me to take my daughter

to the doctor for her swollen knee. He took an xray and told me it needed

medical help. There should be no adjusting on an arthritic joint, it could

cause damage or increase inflamation. Good luck SHU

[Guest guest]

HBOT was what stopped my daughter's tremors. She was having them every 30

seconds. After 75 treatments of HBOT, the tremors stopped, but she then had

" twitches " at bedtime or when she closed her eyes. These twitches often

turned into myoclonic jerks, which could turn into generalized tonic clonic

sz, but they have gotten weaker over time. Ellen

[ ] Question for the group

> My son is almost 3 years post brain-injury due to a car accident.

He was in a coma for 4 months. He is currently receiving HBOT (When

completed Mid Sept. He will have had 100 sessions) My question to the group

is, has severe cerebella (sp?) tremors. We went to the Mayo Clinic in

Rochester MN and they suggested the deep thalamus brain stimulator. Second

opinion from University of Mn, he is not a candidate for the surgery. We

are not in favor of surgery, and Parkinson's meds were horrible. Have any

of you heard of anyone suffering from severe tremors and if so, are there

any therapies you may suggest? Currently is completely off of all

meds ( YEA!) and we would like to keep him off, but his life would be so

much better without the tremors and he could achieve his independence which

he so desires!!

>

>

>

[Guest guest]

While there are no guarantees, I would suggest brain re-mapping, also known

as patterning, as an option for to try to attempt to gain control of

these tremors. I have seen great successes with re-mapping, not specifically

with tremors, but I believe it could help him.

Dr. Cheryl Bruce, MD

The Center

For Exceptional Children and Families, Inc.

P.O. Box 732

Belmont, CA 94002-0732

http://www.gregorycenter.org

cheryl@...

1-650-591-1181

[Guest guest]

Hi Everybody,

As I mentioned, I live in a part of Italy that is particularly foggy and

damp. Also, we have had an exceptionally wet and rainy summer - and for the

past month I have been having trouble with my neck (I am fused from T3 or 4

to the sacrum) - pain and stiffness there and in the shoulders radiating

down my left arm. I wake up at night with the last two fingers of my left

hand tingling - a very unpleasant sensation. Many years ago I had similar

symptoms and was diagnosed with a hearniated cervical disk (clinically and

with a CT and electromyogram) - so I suppose that's the problem again. One

neurosurgeon thought it should be removed and another said to wait it out

that often these things resolve by themselves - I chose to wait it out and

it did get better. But now it's back again and not much fun. Have any of

you had similar problems? Do you think I should chalk the situation up to

the bad weather? If you have had this problem, what have you done about it?

Are there any " soft " remedies, or tricks that have given you relief? I am

so sick of seeing doctors.... just don't want to bother unless it gets

really unbearable. About the only thing that gives me pain relief is lying

flat on my back with no pillow - but I still have the tingling. Any ideas?

Thanks in advance.

All the best to Everybody,

from Italy

[Guest guest]

,

I am 21 months postop T2-S1. I have similar symptoms, only on the right

side. So far as I know, I have no cervical disc disorders. I can never sleep

with a pillow anymore, and develop headaches every single night, relieved by

getting out of bed. My neurosurgeon cannot find the cause. He keeps

prescribing physical therapy, which I usually refuse after two unsuccessful

rounds. Sometimes, a small fiber filled pillow under my neck helps relieve

the symptoms. I try to stay away from narcotics, and find Aleve (an over the

counter antiinflammatory) helps. But there are those damp, low barometric

pressure days when Vicodin is my only friend. Good luck. Let us know if you

find a solution.

Donna

..

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

...

You might want to try different pillows to see if you can alleviate your

symptoms. I've really helped my neck problems by using a Tempur-Pedic

pillow. A salesperson in the store where I bought mine, suggested that

I use an XL since my neck is relatively long. It took me a few days to

get used to it, but I really love it. You can see the pillow I'm

talking about at:

http://www.tempurpedic.com/shop_swedish_neck_pillows.asp

Good luck!

Regards,

[Guest guest]

Dear ,

I am writing this to the whole group as it may be relevant - thank you so

much for your quick reply and information about the tempurpedic pillow. I

used the address you gave me and got a message that it has been changed to

www.tempurworld.com - I don't know if this is because I was writing from

Italy or if the address has changed for everybody throughout the world.

Just thought you'd want to know. I am contacting the Milan store. Thanks

again!

Best wishes,

[Guest guest]

michael,

at NIH , NINDS in bethesda, MD there are some neuro's there that are looking

at alternative things for treatment and other route causes. Many years ago we

had some labs done like that and the best indicator was lactic acid elevation

post -ictal. it usually is better detected in girls than boys.

wish i could help.

julie

[Guest guest]

In a way, the center is correct in stating the chemical imbalances are

treated. The thing that rocks me the most about your statement is elevated

copper. This is seen across the board in autistic children. I would

venture to guess that your also have high IRON LEVELS, which makes seizures

exasterbate as well. It also appears that you may be wasting zinc? Was

this a hair test? HAve you done a challenge mercury dump, becuase my

autistic children had no mercury either, but only AFTER challanges they were

off the chart. Mercury binds to neural tissue and often does not leave a

signiature of poisining, unless you look at least four elemental levels that

are off, this is the signiature that it skewed the result.

Kathy

[ ] Question for the Group

> Hi All,

> I recently got back the results of my sons testing from the Pfeiffer

Treatment Center. there were quite a number of surprises for me. Mainly that

his mercury levels were practically non-existent. He did have what Pfeiffer

considers an elevated copper serum level even though it was within range for

most medical standards ( just high end - as was his lead level which was 6)

.. He had very high levels of Antimony, Tin, and Titanium, and Zinc as well

as elevated though not too high Aluminum. Does anyone believe that getting

these metal and element numbers lowered will help reduce his absence

seizures ? He does not seem to have a focal area for his seizures so I have

suspected they were chemically related yet I was thinking mercury all along.

The Treatment Center will not really give me a straight answer regarding

seizures as they keep repeated they do not treat seizures - only chemical

imbalances. I will anxiously be awaiting your responses.

>

> Thanks in advance.

> M

>

>

>

[Guest guest]

Kathy,

The Copper level was only high in the serum test not the hair test. The iron

level was not elevated in the hair test or blood. I do not know what a challenge

mercury dump is ? Could you tell me how they do this. I know they are wanting to

do a stool sample but everytime I take him off his probiotics to do the testing

his behavior gets so bad that we have not been able to complete the testing.

Thanks,

[Guest guest]

[ ] Question for the Group

>

>

> > Hi All,

> > I recently got back the results of my sons testing from the Pfeiffer

> Treatment Center. there were quite a number of surprises for me. Mainly

that

> his mercury levels were practically non-existent. He did have what

Pfeiffer

> considers an elevated copper serum level even though it was within range

for

> most medical standards ( just high end - as was his lead level which was

6)

> . He had very high levels of Antimony, Tin, and Titanium, and Zinc as well

> as elevated though not too high Aluminum. Does anyone believe that

getting

> these metal and element numbers lowered will help reduce his absence

> seizures ? He does not seem to have a focal area for his seizures so I

have

> suspected they were chemically related yet I was thinking mercury all

along.

> The Treatment Center will not really give me a straight answer regarding

> seizures as they keep repeated they do not treat seizures - only chemical

> imbalances. I will anxiously be awaiting your responses.

> >

> > Thanks in advance.

> > M

> >

> >

> >

[Guest guest]

Deneesa,

I don't know the answer to your question, but I hope that Hannah feels

better. I will say a special prayer for her. God Bless!

Grace

On Sun, 26 Oct 2003 14:05:04 EST deneesad@... writes:

> Help!!! My daughter has been throwing up for the last 4 days; she is

> on the

> ketogenic diet and two meds - Dilantin and tegretol; We are adding

> tegretol in

> hopes of taking her off dilantin; Hannah is throwing up everyday

> around the

> same time and then she is fine for the rest of the day; She is

> already on

> Zantac for gastro problems; Neurologist is not sure what if could

> be; She gets her

> breakfast (heavy keto meal) mixed with her two meds - we are

> wondering if this

> is too hard on her system even thought the throwing up just started

> and we

> have been doing the meds /diet combo since Oct 1- when we added

> tegretol- we

> are steading increasing the Tegretol to get it therapuetic; she is

> on 300mgs and

> she weighs 27lbs. Thanks for any info that may be helpful!!!

> Deneesa,

> Hannah's mommy

>

>

[Guest guest]

HI DENEESA, MY NAME IS MARK, WHEN I WAS YOUMG DILANTIN JUST MADE ME SICK,I'VE

BEEN TAKING TEGRETOL NOW FOR 31 YEARS EVERYTHING ELSE JUST MADE ME HAVE MORE

SEIZURES AND WHATEVER YOU DO DON'T LET DR'S GIVE HER KEPPRA.KEPPRA LEADS TO

DEPRESSION,SUICIDE MEMORY LOSS AND OTHER BAD THINGS AND I'LL PRAY FOR HANNAH.MAY

GOD BLESSHANNAH AND HEAL HER QUICKLY,MARK HOGUE

" Grace H. " <foxyfox8@...> wrote:Deneesa,

I don't know the answer to your question, but I hope that Hannah feels

better. I will say a special prayer for her. God Bless!

Grace

On Sun, 26 Oct 2003 14:05:04 EST deneesad@... writes:

> Help!!! My daughter has been throwing up for the last 4 days; she is

> on the

> ketogenic diet and two meds - Dilantin and tegretol; We are adding

> tegretol in

> hopes of taking her off dilantin; Hannah is throwing up everyday

> around the

> same time and then she is fine for the rest of the day; She is

> already on

> Zantac for gastro problems; Neurologist is not sure what if could

> be; She gets her

> breakfast (heavy keto meal) mixed with her two meds - we are

> wondering if this

> is too hard on her system even thought the throwing up just started

> and we

> have been doing the meds /diet combo since Oct 1- when we added

> tegretol- we

> are steading increasing the Tegretol to get it therapuetic; she is

> on 300mgs and

> she weighs 27lbs. Thanks for any info that may be helpful!!!

> Deneesa,

> Hannah's mommy

>

>

[Guest guest]

HI AGAIN DENEESA,YOU NEED TO GET HANNAH ON SUNRIDER CHINESE HERBAL FOODS, IF YOU

E-MAIL ME YOUR HOME ADDRESS I WILL SEND YOU A CD THAT EXPLAINS THE PRODUCT. IT

FLUSHES OUT POISONOUS TOXINS OUT OF YOUR BODY,IT BALANCES YOUR BODY INSIDE AND

OUTSIDE AS WELL.I'VE BEEN TAKING IT SINCE JULY AND I'VE YET HAVE HAD A SEIZURE

SINCE THEN. AGAIN I PRAY THAT GOD WILL HEAL HANNAH QUICKLY SINCERELY,MARK HOGUE

deneesad@... wrote:Help!!! My daughter has been throwing up for the last 4

days; she is on the

ketogenic diet and two meds - Dilantin and tegretol; We are adding tegretol in

hopes of taking her off dilantin; Hannah is throwing up everyday around the

same time and then she is fine for the rest of the day; She is already on

Zantac for gastro problems; Neurologist is not sure what if could be; She gets

her

breakfast (heavy keto meal) mixed with her two meds - we are wondering if this

is too hard on her system even thought the throwing up just started and we

have been doing the meds /diet combo since Oct 1- when we added tegretol- we

are steading increasing the Tegretol to get it therapuetic; she is on 300mgs and

she weighs 27lbs. Thanks for any info that may be helpful!!! Deneesa,

Hannah's mommy

[Guest guest]

Hi Deneesa,

From a web search it looks like vomiting is not uncommon with this

diet. Have you

contacted your doctor since this is going on for days now? Do you

think it may have to do with the drugs and the diet combined?

Whatever hospital you are working with should have some information

on how to work with this. You may want to have her blood levels

checked to be sure they are not being skewered by the diet.

Zoe

Ketogenic Diet

.... antiepileptic drugs, the ketogenic diet has a variety of side

effects that range

from minor to severe. Common ones include nausea, vomiting,

constipation, and ...

http://www.neuro.wustl.edu/epilepsy/pediatric/

articleKetogenicDiet.html

> Help!!! My daughter has been throwing up for the last 4 days; she

is on the

> ketogenic diet and two meds - Dilantin and tegretol; We are adding

tegretol in

> hopes of taking her off dilantin; Hannah is throwing up everyday

around the

> same time and then she is fine for the rest of the day; She is

already on

> Zantac for gastro problems; Neurologist is not sure what if could

be; She gets her

> breakfast (heavy keto meal) mixed with her two meds - we are

wondering if this

> is too hard on her system even thought the throwing up just

started and we

> have been doing the meds /diet combo since Oct 1- when we added

tegretol- we

> are steading increasing the Tegretol to get it therapuetic; she is

on 300mgs and

> she weighs 27lbs. Thanks for any info that may be helpful!!!

Deneesa,

> Hannah's mommy

[Guest guest]

Hi Mark,

This Sunrider Chinese herbal foods, is this some kind of a special diet

you have to be on and is it expensive? Also where do we get it from.

Thanks for the info. God Bless!

Grace

On Sun, 26 Oct 2003 17:45:50 -0800 (PST) mark hogue

<markhogue2002@...> writes:

> HI AGAIN DENEESA,YOU NEED TO GET HANNAH ON SUNRIDER CHINESE HERBAL

> FOODS, IF YOU E-MAIL ME YOUR HOME ADDRESS I WILL SEND YOU A CD THAT

> EXPLAINS THE PRODUCT. IT FLUSHES OUT POISONOUS TOXINS OUT OF YOUR

> BODY,IT BALANCES YOUR BODY INSIDE AND OUTSIDE AS WELL.I'VE BEEN

> TAKING IT SINCE JULY AND I'VE YET HAVE HAD A SEIZURE SINCE THEN.

> AGAIN I PRAY THAT GOD WILL HEAL HANNAH QUICKLY SINCERELY,MARK HOGUE

>

> deneesad@... wrote:Help!!! My daughter has been throwing up for

> the last 4 days; she is on the

> ketogenic diet and two meds - Dilantin and tegretol; We are adding

> tegretol in

> hopes of taking her off dilantin; Hannah is throwing up everyday

> around the

> same time and then she is fine for the rest of the day; She is

> already on

> Zantac for gastro problems; Neurologist is not sure what if could

> be; She gets her

> breakfast (heavy keto meal) mixed with her two meds - we are

> wondering if this

> is too hard on her system even thought the throwing up just started

> and we

> have been doing the meds /diet combo since Oct 1- when we added

> tegretol- we

> are steading increasing the Tegretol to get it therapuetic; she is

> on 300mgs and

> she weighs 27lbs. Thanks for any info that may be helpful!!!

> Deneesa,

> Hannah's mommy

>

>

[Guest guest]

IF YOU E-MAIL ME YOUR ADDRESS I'LL SEND YOU A CD THAT EXPLAINS EVERYTHING ABOUT

SUNRIDER MAY GOD BLESS YOU. P.S. WOULD YOU LIKE TO BE ADDED TO MY SCRIPTURE LIST

ISEND OUT EVERYNIGHT FOR THE NEXT DAY. THANK YOU,MARK HOGUE

" Grace H. " <foxyfox8@...> wrote:Hi Mark,

This Sunrider Chinese herbal foods, is this some kind of a special diet

you have to be on and is it expensive? Also where do we get it from.

Thanks for the info. God Bless!

Grace

On Sun, 26 Oct 2003 17:45:50 -0800 (PST) mark hogue

<markhogue2002@...> writes:

> HI AGAIN DENEESA,YOU NEED TO GET HANNAH ON SUNRIDER CHINESE HERBAL

> FOODS, IF YOU E-MAIL ME YOUR HOME ADDRESS I WILL SEND YOU A CD THAT

> EXPLAINS THE PRODUCT. IT FLUSHES OUT POISONOUS TOXINS OUT OF YOUR

> BODY,IT BALANCES YOUR BODY INSIDE AND OUTSIDE AS WELL.I'VE BEEN

> TAKING IT SINCE JULY AND I'VE YET HAVE HAD A SEIZURE SINCE THEN.

> AGAIN I PRAY THAT GOD WILL HEAL HANNAH QUICKLY SINCERELY,MARK HOGUE

>

> deneesad@... wrote:Help!!! My daughter has been throwing up for

> the last 4 days; she is on the

> ketogenic diet and two meds - Dilantin and tegretol; We are adding

> tegretol in

> hopes of taking her off dilantin; Hannah is throwing up everyday

> around the

> same time and then she is fine for the rest of the day; She is

> already on

> Zantac for gastro problems; Neurologist is not sure what if could

> be; She gets her

> breakfast (heavy keto meal) mixed with her two meds - we are

> wondering if this

> is too hard on her system even thought the throwing up just started

> and we

> have been doing the meds /diet combo since Oct 1- when we added

> tegretol- we

> are steading increasing the Tegretol to get it therapuetic; she is

> on 300mgs and

> she weighs 27lbs. Thanks for any info that may be helpful!!!

> Deneesa,

> Hannah's mommy

>

>

[Guest guest]

is 10 years old and was on the diet from age 5 1/2 - almost 8. After

the first 6 - 9 months on the diet he had periods of vomiting that we could

never figure out, that would last hours or a few days and then disappear.

We would tweak his ratio's, change creams or other food items, but it would

go away and then return for no reason. His labs were never abnormal enough

for the doctors to be concerned with, they always felt they were ok. By the

end of the diet he would hardly eat anything, every meal was a fight, had

lost weight and they feared he was becoming anorexic from it. His appetite

has never been the same and he can no longer eat anything with sugar in it,

without having a seizure within a few hours. This past January he was

diagnosed with a metabolic disorder, Glutaric Aciduria type II. The

vomiting he experienced may be related to this condition. While on the diet

he was on Depakote, Zonegran, Klonopin & Clobazam (at different times over

those 2+ years, not all at the same time). He is now on Lamictal and

Topamax, with the Topamax being #1 to wean off of next due to loss of speech

and weight loss. He also currently takes Carnitor, B2 and Vit E. Since

starting the Carnitor & Lamictal, his energy, balance, responses and

thinking has improved dramatically, but we will have to see what returns for

him after weaning the Topamax.

I don't know if any of this helps your situation, but I wanted to share it

with you in case it helps.

Jill F.

Mom to

[ ] Re: Question for the group

Hi Deneesa,

From a web search it looks like vomiting is not uncommon with this

diet. Have you

contacted your doctor since this is going on for days now? Do you

think it may have to do with the drugs and the diet combined? Whatever

hospital you are working with should have some information

on how to work with this. You may want to have her blood levels

checked to be sure they are not being skewered by the diet.

Zoe

Ketogenic Diet

.... antiepileptic drugs, the ketogenic diet has a variety of side

effects that range

from minor to severe. Common ones include nausea, vomiting,

constipation, and ...

http://www.neuro.wustl.edu/epilepsy/pediatric/

articleKetogenicDiet.html

> Help!!! My daughter has been throwing up for the last 4 days; she

is on the

> ketogenic diet and two meds - Dilantin and tegretol; We are adding

tegretol in

> hopes of taking her off dilantin; Hannah is throwing up everyday

around the

> same time and then she is fine for the rest of the day; She is

already on

> Zantac for gastro problems; Neurologist is not sure what if could

be; She gets her

> breakfast (heavy keto meal) mixed with her two meds - we are

wondering if this

> is too hard on her system even thought the throwing up just

started and we

> have been doing the meds /diet combo since Oct 1- when we added

tegretol- we

> are steading increasing the Tegretol to get it therapuetic; she is

on 300mgs and

> she weighs 27lbs. Thanks for any info that may be helpful!!!

Deneesa,

> Hannah's mommy