Guest guest Posted March 28, 2002 Report Share Posted March 28, 2002 > i am sort of new to this board and i have a question....can someone > please tell me what exactly an anti oxident is supposed to do for a > child with Autism? Depends on the anti-oxidant. If you mean ALA, it is a chelator and you would want to use a specific protocol. Here is my chelation overview page, if you are interested. http://www.autismchannel.net/dana/chelate.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2002 Report Share Posted March 28, 2002 > > i am sort of new to this board and i have a question....can someone > > please tell me what exactly an anti oxident is supposed to do for a > > child with Autism? > > > Depends on the anti-oxidant. If you mean ALA, it is a chelator and > you would want to use a specific protocol. Here is my chelation > overview page, if you are interested. > > http://www.autismchannel.net/dana/chelate.htm > > Dana The name of it is Performax. I am not sure what this is supposed to do exactly. It was prescribed by the doctor and i figured i look up what i wanted to know about it on the internet but i am having a hard time finding info on it. the dr did give me a small info sheet about it but i would like to know what exactly it should be doing for my child. By any chance have you ever heard of this? Thanks Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2002 Report Share Posted March 28, 2002 > > i am sort of new to this board and i have a question....can someone > > please tell me what exactly an anti oxident is supposed to do for a > > child with Autism? > > > Depends on the anti-oxidant. If you mean ALA, it is a chelator and > you would want to use a specific protocol. Here is my chelation > overview page, if you are interested. > > http://www.autismchannel.net/dana/chelate.htm > > Dana The name of it is Performax. I am not sure what this is supposed to do exactly. It was prescribed by the doctor and i figured i look up what i wanted to know about it on the internet but i am having a hard time finding info on it. the dr did give me a small info sheet about it but i would like to know what exactly it should be doing for my child. By any chance have you ever heard of this? Thanks Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2002 Report Share Posted March 28, 2002 > The name of it is Performax. I am not sure what this is supposed to > do exactly. It was prescribed by the doctor and i figured i look up > what i wanted to know about it on the internet but i am having a hard > time finding info on it. the dr did give me a small info sheet about > it but i would like to know what exactly it should be doing for my > child. By any chance have you ever heard of this? Thanks > Debbie I have not heard of that. Does the information sheet have an ingredient list? Personally I would not use anything for my child unless I understood it, so I think you are wise to ask about it. If you post the ingredient list, especially what it considers the " active " ingredients, I can try to give more info. Or maybe someone else here has heard of it and can give you info. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 Yes I can help Mum231ASD@... Mandi in Dorset UK > Hi All > > Please can anyone help me, I have placed an order with Houstonni for pep > and zime but they have been delayed in getting to me and I am going to run > out in 2 days time. Please does anyone living in the South-East (we live in > Berkshire) have any spare that they would kindly " lend " to me until my > shipment arrives. > Thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 Phosphatidylserine Phosphatidylserine (PS - found in Cognitex below) is a natural extract of lecithin and a phospholipid that is vital to brain cell structure and function. Phospholipids are molecules with an amino acid component and a fatty acid component which are found in every cell membrane in our bodies. ADHD, dyslexia, dyspraxia, and autism are now considered " phospholipid disorders " because phospholipids are so important in the natural history, symptoms, and prevalence of these conditions which aggregate within families ( et al. 2000a,. PS plays an important role in neurotransmitter systems, brain metabolism levels, and maintaining nerve connections in the brain. PS helps lower cortisol levels that are increased in chronically stressed individuals and improves brain cell membrane fluidity, which helps with dementia and depression. While there is little experimental data available using PS for ADHD as of yet, its many cognitive benefits suggest it should prove extremely helpful (Jorisse et al. 2001). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 do you know what the protocal is for ala and why should this not be givin each day? DMAE Bitartrate 300 mg This caused problems for my kids. Also, I have read that it should not be given every day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 > hi > I have been researching some things to help with my 6 year olds sons > attention. He is 57 pounds and we have tried almost everything. > I stumbled onto this supp. <A HREF= " http://www.americannutrition.com/colorado/ultimate_brain_%20formula.htm " >U\ ltimate Brain Formula</A> and I want to give it a > try. It seems to have all the things in it we try to get with so many other supp. > But the dosage is a problem for me It contains: >>Phosphatidylserine (Leci-PS) 100 mg I don't know what this is. >>DMAE Bitartrate 300 mg This caused problems for my kids. Also, I have read that it should not be given every day. >>Inositol 200 mg Very helpful for certain kids. >>Ginkgo Biloba 24/6 extract 60 mg I have never used this. >>Vinpocetine 10 mg Helpful for some kids with language issues, causes problems for other kids. >>Acetyl L-Carnitine 200 mg Amino acid. I know it helps with low muscle tone issues, not sure about other issues. It caused elevated copper for my kids, so you might consider giving it with zinc. >>Alpha Lipoic Acid 100 mg This is a chelator. I would not recommend giving 10omg, especially only once per day, you would want to use a protocol. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 Here's a link to Cutler's mercury detox protocol. I wouldn't step a foot outside of it. http://www.whats-going-on.net/Andy_protocol.html Re: [ ] Re: help please do you know what the protocal is for ala and why should this not be givin each day? DMAE Bitartrate 300 mg This caused problems for my kids. Also, I have read that it should not be given every day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 > do you know what the protocal is for ala It depends on your child. Low dose and frequently given [every 3-4 hours] is generally recommended here. I used a less-frequent protocol for my kids, fortunately they tolerated it. But high dose once per day I would not recommend. > and why should this not be givin each day? DMAE Bitartrate 300 mg I don't know. I just know it has been stated that it should only be given " for the occasional times when extra mental focus is desired " . Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2005 Report Share Posted January 10, 2005 if its just one word he is not saying, it might be behavioral. stop, for now, asking him to say it or sign it. Probably you will see that in a coupla days or maybe weeks it will come back. don't worry it happens, if your child stops a lot of things he used to do, be concerned. but if its just this, no worried akuna matata. chris non-ya business <blanton@...> wrote: My son stopped signing & saying please. Is this normal? He has been signing it for some time now then started saying it a few months ago. He will not sign nor say it for any thing at all. He will sign thank you & say thank instead. I have showed him time & time again & how to do it but he refuses. Any help please. I also called the SLP & she will be here tomorrow she is on visits today. Thanks for any info. Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2005 Report Share Posted January 10, 2005 I can only assume it has nothing to do with the actual ability to say/sign the word, but more with exerting independence and testing his limits! Be consistent with requesting he say/sign " please " but try not to freak out! Pam (whose son refuses to pronounce his name " Ian " and prefers to say " Eenie " ... regardless of the fact that he can say it correctly!) > > > My son stopped signing & saying please. Is this normal? He has been > signing it for some time now then started saying it a few months > ago. He will not sign nor say it for any thing at all. He will sign > thank you & say thank instead. I have showed him time & time again & > how to do it but he refuses. Any help please. I also called the SLP > & she will be here tomorrow she is on visits today. Thanks for any > info. > > Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Hi Debbie, Who is your insurance carrier? I only ask because we have Cigna and i had the same issues. Then the corporate attorney at my husband's company did some research on our behalf and found out that Cigna is being sued in a couple of states (I believe Michigan and California) for this very thing. They tried to tell us that speech is only covered in the case of a traumatic brain injury. they consider the rest to be developmental delays and do not cover it that way. We got the coverage based on the diagnosis of Apraxia, that being a neurological condition. they cover 70/30 - not the best, but makes those 3x week private therapy slighly painful rather than back breaking! There are lots of sites out here in cyberspace that have insurance suggestions/ideas in them. Good luck - and keep shouting - I think they only listen to those who fight! Kim > FERGIE888@a... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Maybe you can get your dr/slp to write to your insurance indicating that Speech is a Medical Necessity not an optional service. Also, your SLP should write up an thorough evaluation of your child. If she indicates that your child's speech is on par for his age, then the insurance is going to view it as non-necessary. Therefore, she should word it so that she paints a picture of your child desparately needing these services. Even if she is doing really well, have her convey a " not so rosy " picture and maybe they'll change their mind. Keep on them because they are not advocates for those in need they are advocates for their bottom line! " Debbie " <FERGIE888@...> Sent by: cc: @yaho Subject: [ ] " Help please " ogroups.com 01/30/2006 09:59 PM Please respond to I am having trouble with my account and can not post to the apraxia board. My insurance company said that my daugter no longer qualifies for speech and I need to appeal this process.Her diagonosis code is 784.5 but theysay that is not enough...I am so angry and sad as this speech therapist is the best and has gotten so many words from Maggie We can not afford to keep on with her if it is not accepted Any suggestions Thanks Debbie FERGIE888@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Debbie, They denied us on the code for Apraxia 784.69 claiming its developmental which we all know it's NOT, but they approved the therapy for the code for Language processing disorder 388.43. A great code to use if you have a child with apraxia is 781.3 which is " lack of muscle coordination /coordination disorder. " This shows a physical diagnosis, which is typically covered, versus a developmental diagnosis, which is typically not covered. We have Blue Cross and have a 20 session limit per year. My son has appraxia, aphasia (codes are 784.3,784.69 & 784.5) Let your PT & OT know your codes for speech/language and not to use any developmental/educational codes. (just medical necessity). all the best, Joanne Mulholland [ ] " Help please " I am having trouble with my account and can not post to the apraxia board. My insurance company said that my daugter no longer qualifies for speech and I need to appeal this process.Her diagonosis code is 784.5 but theysay that is not enough...I am so angry and sad as this speech therapist is the best and has gotten so many words from Maggie We can not afford to keep on with her if it is not accepted Any suggestions Thanks Debbie FERGIE888@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 I don't know of any sites, but can you ask the doctor for a letter of medical necessity? Will that be enough? Some insurance companies require one (mine does and the cranio facial surgeon wrote it for me). I'm not sure if that is what they are looking for, but that is where I would start. The only sites I have seen are ones that explain the possible long term effects of not correcting it. I can't remember where I saw them all though, you would have to google " untreated plagiocephaly " and hopefully you can find something there. Good luck! Jake-18m (tort resolved/rt plagio/DocBand 2/11/08) Jordan-4 > > Hi! I am in need of some help. my insurance may or may not denied my > daughter , we are fighting with them to pay but it may take up to a > week to fine out if they do . My question is do you know of any sites > online where I can find proof or any information that this is medically > necessity docters say it is but we are needing some info to back it up. > my mom is has talked to them (insurance) and they told us to get this > info so we have a better chance of getting it approved. we would do the > whole thing with the shriners but I need more info on them and I cannot > afford to go back and forth to the doc's to have scanning done to see > if her head has got bigger or if the brachy / plagio has gotten worse . > THANKS FOR YOUR HELP! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2009 Report Share Posted June 23, 2009 Clora....I see you! Hugs...paula ************** Make your summer sizzle with fast and easy recipes for the grill. (http://food.aol.com/grilling?ncid=emlcntusfood00000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2009 Report Share Posted June 23, 2009 Hi , I am trying to get email sent to me from people in the group. I been waiting for it. For some reason I don't know, I am not gettting the mail for this RA support group. Please tell me what I need to do. I have signed up already. thanks Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2009 Report Share Posted June 24, 2009 Welcome back, Clora. How're you feeling?.....Doreen Hi , I am trying to get email sent to me from people in the group. I been waiting for it. For some reason I don't know, I am not gettting the mail for this RA support group. Please tell me what I need to do. I have signed up already. thanks Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 I understand your concern as we were also told the same thing with our son now 8 months and in a Starband. Could you possibly show him some before and after pictures from this site? I realize its hard to think of putting your little one in a helmet everyday but I guess the good thing is most kids adapt quickly at this age not really even noticing it and since the time frame they have to wear it 2-6 months, for a lifetime of benefit if it works is really just a small blip in the grand scheme of life. Just trying to give you some pointers for your hubby. Good luck with your decision. Praying for some answers for you. > > im the mother of beautiful baby girl vorn full term naturally and perfect. she developed a flat head around 3months everyone gps,physio , pead, etc told me it will round out,..... she is now nearly 7months and although has improved alot i think its still bad ive been told its mild but its not. she is flat in the back and one the one side,and ears are off. her face is fine. it has started to pop out {lumpy head] but her flat side hasnt started yet. im at a loss as what to do my hubby just sees a perfect little girl and believes it will correct itself ears and all. i stress about it everyday, i have no one to talk too and i dont no what to do, she sleeps on her tummy now mostly and at 4months we started side sleeping etc on the good side. she has improved like i said but her ears are still off. do they ever improve? without helmet,, he is fully against helmet as are most specialists in my country australia. thankyou > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 Show your husband before and after pictures, and assure him that the babies get used to it. Our son had a hard time the first few days, but now he doesn't mind at all. The only thing that still bothers him is that he does not like the sound that the little piece of velcro makes when we put it on or take it off (Boston Band). -- Please reply to amarcus@... Quote Link to comment Share on other sites More sharing options...
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