Re: Fighting RA without RA meds, anyone else out there?

[Guest guest]

I am also a cancer survivor...ovarian 16 years ago.

I can not take any RA meds either.

You are not alone.

I have recently found some relief from the fatigue and inflamation by strictly

adhering to a gluten free diet.

It is not the answer for all.

Think positive thoughts and never give up.

Raniolo

From: Anita <amruff65@...>

Subject: [ ] Fighting RA without " RA " meds, anyone else out there?

Date: Tuesday, February 22, 2011, 6:26 PM

 

Hi, I guess I've been in denial about RA, even though I was diagnosed at age 3

with JRA. I was diagnosed with Lupus 2 years ago this month and RA is showing

it's ugly face daily in different joints. Due to years of NSAIDS my liver is

damaged/toxic and reacts to any of the meds my rheumy has suggested. I am also a

Cancer survivor which adds to the 'no you can't take that' list. I just want to

know if anyone out there is in the same situation or am I the lucky woman out?

I'm 45 years old and my life has drastically changed. Acceptance is hard, I need

support or someone to talk to. My employer is worried about money and of course,

my work ethic is Ideal, I work more than the able bodied. So, stress is elevated

right now. I have had to move in with my dad, just so I can afford to go to the

doctors I need to see. I am trying physical/occupational therapy and see what

options I have, if any. I work in an office environment and my hands are

suffering big time.

I used to pride myself on being independent and now I am learning to say no

(feel guilty when I do) and stop when I am tired.

I would appreciate emails, if you don't mind. My pc time is limited in the

evenings due to fatigue from working and the Lupus. I hope each of you have a

few hours of pain free time at some point. Thanks for listening and may peace

find our joints. anita

[Guest guest]

Praying for you, dear Anita.

Shanyka in CA

Sent from my HTC on the Now Network from Sprint!

[Guest guest]

Hello Anita this is ;i hope your feeling better;will i was diag.with RA in

2004 but i

think/feel like i have been in stress since i was 13 yrs.old.I aswell, have

Liver problems

and cannot take Meds.So i must look for other means of help:These are some

things

i participate in 1.Pray.

                     2.Yoga/Stretch.

                     3.Work out with weights.

                     4.Jog/Speed walk;etc.

                     5.Eat right.

I've tried Herbs but that is to Toxic to my Liver through time.

I'm in a rough situation aswell,as you can tell.

My age is 46 as of Oct.And self Employed,so it's close to impossible to afford

any

Health ins.So i have to work harder to achieve my goals.

I still have Flair ups and most of the time their intense but i deal with them.

Compared to other victims of RA:I must be doing something right.

I will be visiting Wake Forest in the Summer time;to find out what type of RA i

have.

Keep in mind:We must stay active to sustain damage!.

Good luck and JESUS be with you.

.

From: Anita <amruff65@...>

Subject: [ ] Fighting RA without " RA " meds, anyone else out there?

Date: Tuesday, February 22, 2011, 6:26 PM

 

Hi, I guess I've been in denial about RA, even though I was diagnosed at age 3

with JRA. I was diagnosed with Lupus 2 years ago this month and RA is showing

it's ugly face daily in different joints. Due to years of NSAIDS my liver is

damaged/toxic and reacts to any of the meds my rheumy has suggested. I am also a

Cancer survivor which adds to the 'no you can't take that' list. I just want to

know if anyone out there is in the same situation or am I the lucky woman out?

I'm 45 years old and my life has drastically changed. Acceptance is hard, I need

support or someone to talk to. My employer is worried about money and of course,

my work ethic is Ideal, I work more than the able bodied. So, stress is elevated

right now. I have had to move in with my dad, just so I can afford to go to the

doctors I need to see. I am trying physical/occupational therapy and see what

options I have, if any. I work in an office environment and my hands are

suffering big time.

I used to pride myself on being independent and now I am learning to say no

(feel guilty when I do) and stop when I am tired.

I would appreciate emails, if you don't mind. My pc time is limited in the

evenings due to fatigue from working and the Lupus. I hope each of you have a

few hours of pain free time at some point. Thanks for listening and may peace

find our joints. anita

[Guest guest]

, my endocrinologist is at Baptist In Winston-Salem, but not my

rheumatologist. My first one was, but he re-located to Atlanta,

leaving them with too few rheumatologists. What doctor are you seeing

there?

Sue

On Feb 23, 2011, at 12:32 PM, robert tennent wrote:

> Hello Anita this is ;i hope your feeling better;will i was

> diag.with RA in 2004 but i

> think/feel like i have been in stress since i was 13 yrs.old.I

> aswell, have Liver problems

> and cannot take Meds.So i must look for other means of help:These

> are some things

> i participate in 1.Pray.

> 2.Yoga/Stretch.

> 3.Work out with weights.

> 4.Jog/Speed walk;etc.

> 5.Eat right.

> I've tried Herbs but that is to Toxic to my Liver through time.

> I'm in a rough situation aswell,as you can tell.

> My age is 46 as of Oct.And self Employed,so it's close to impossible

> to afford any

> Health ins.So i have to work harder to achieve my goals.

> I still have Flair ups and most of the time their intense but i deal

> with them.

> Compared to other victims of RA:I must be doing something right.

> I will be visiting Wake Forest in the Summer time;to find out what

> type of RA i have.

> Keep in mind:We must stay active to sustain damage!.

> Good luck and JESUS be with you.

> .

>

[Guest guest]

Hello sue,i don't know the name of any of the Rheumatologist at Wake Forest

at this time;this will be my first.I'm on a waiting list at this time.

.

[Guest guest]

When my wonderful first rheumatologist at Baptist relocated to

Atlanta, the one that took over his patients was completely

overwhelmed and could not handle them all. After that, I found one in

High Point. He is a good one, just not as personable as my first one.

I hope you get a good one. Maybe they've been able to hire someone

else by now.

Sue

On Feb 23, 2011, at 3:07 PM, robert tennent wrote:

> Hello sue,i don't know the name of any of the Rheumatologist at

> Wake Forest at this time;this will be my first.I'm on a waiting list

> at this time.

> .

[Guest guest]

hi ,

may JESUS be with you too, hon. you kep on trusting in our LORD, he

will be your help and comfort.

i am 69 yrs old, have OA, RA, and DDD. i can just barely walk around

in my house. live in pain, 24/7..... even with pain meds, i spend a

lot of time crying, the pain is so bad. right now i'm having a bad

flare up, seems like it don't want to quit this time.

take care,

may GOD be with you, with his love, mercy, peace, and comfort.

Betty, in Alabama

[Guest guest]

Hi Anita,

my journey began in early 2009 with fatigue, RA was diasgnosed in jan 2010. I

had to quit my job, I was working with icebags on my hands fulltime for 4

months, when I asked for " part-time " job, they did not want me. I am at home

for a year now, getting better only after a strict diet for wheat, not for

metotrexate, plaquenil, deltacortil and etol. the medicine will prevent to

procede of the illness, but we have to help our bodies to win the game. try the

diet. no fried food, no wheat, no corn. I am not in remission yet, I can feel it

in my fingers,  but I believe I will be better. I am taking the peels, rest

along the day if I need, I don't force to walk, move around or anything if I

think I can not do. my family and friends think I am in depression also but  I

am not. pain, fatigue and fragility all removes my energy. I am waiting and

watching, I will need my small joints in hands and wrist so I do some exercise

very very softly

especially rotational ones. you can find some in internet. don't be sad. I hope

wee all get better and work again someday. I am 43 years now, I was full updated

my books for work (I forgot to say, I am a doctor, funny !! I believed so many

months that my fatigue is psychologic, I did not love my clinic etc ) ), I am

looking my library at home now, wondering if I can find energy to help someone

in medicine again. wish we all find it. You survived cancer, so you can do it

now with RA. RA is not curable, there is no treatment.. I learned it in

university of course but actually learned it two months ago when I have an

infection. It blowed up. I tried to count the peels I took for a year, what did

they do? no treatment. but they will prevent the deformation, subluxation of our

joints etc. food is important. search net RA and diet, you will find patient's

experiments with RA. Be patient.

with love.. ender.

[Guest guest]

Hello Betty it's good to hear from people like you,you our an inspiration to us

all.I wonder

sometimes that my Faith is the only thing that well get me through now and later

in life.

I'm so sorry your in pain;Flair ups can be something very bad;we just don't know

what kind

or how bad.From one Light Bearer to another,thank you.

.

From: bettygates tds.net <bettygates@...>

Subject: Re: [ ] Fighting RA without " RA " meds, anyone else out there?

Date: Wednesday, February 23, 2011, 6:20 PM

 

hi ,

may JESUS be with you too, hon. you kep on trusting in our LORD, he

will be your help and comfort.

i am 69 yrs old, have OA, RA, and DDD. i can just barely walk around

in my house. live in pain, 24/7..... even with pain meds, i spend a

lot of time crying, the pain is so bad. right now i'm having a bad

flare up, seems like it don't want to quit this time.

take care,

may GOD be with you, with his love, mercy, peace, and comfort.

Betty, in Alabama

[Guest guest]

Betty in Alabama,

I like what you wrote - so very true only our Lord can give us the strength,

help and comfort. Vivian in CA

------------------------------------