Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 kristy I was hospitlized I had them so severe. My entire tongue, mouth and throat were covered. I couldnt even swallow my own spit T They gave my acyclovir IV, lidocaine rinses, and dillaudid for pain. I also had 105 degree temp. I ended up in the hospital for 5 days, fever was there for a week. It was horrible. Deb RN Debra ________________________________ From: KristyC <klxman02@...> Sent: Tue, February 2, 2010 7:14:09 PM Subject: [ ] Mouth Sore Help  Hello - I suffer on and off from mouth sores from the MTX. I at times double up on the folic acid when I have a mouth sore but I am curious if anyone else out there has found something that really works to prevent them? I use all the over the counter stuff (canker sore medicines and use actual table salt on them) but I am wondering if maybe someone has found something that has helped them prevent them? Also, what do you do to treat yours? Thank you kindly, Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 When I started to have problems with my mouth, I asked on this board and was told pretty quickly that I needed to up my Folic Acid. I had to increase the MTX to 1.2cc and was not told to increase the folic acid, I was still at 1mg per day. I increased it to 5mg and the problem went away. Now if I start to have any problems with my mouth, I go up from 2mg per day to 5mg and back down when it clears. Maybe that can help you. Dennis in eastexas On Tue, Feb 2, 2010 at 7:14 PM, KristyC <klxman02@...> wrote: > > > Hello - I suffer on and off from mouth sores from the MTX. I at times > double up on the folic acid when I have a mouth sore but I am curious if > anyone else out there has found something that really works to prevent them? > I use all the over the counter stuff (canker sore medicines and use actual > table salt on them) but I am wondering if maybe someone has found something > that has helped them prevent them? Also, what do you do to treat yours? > Thank you kindly, > > Kristy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 hello kristy, i'm not sure about the sores in ur mouth theory. yes mtx does have side effects but i don't remember. SORRY! BUT I DO HAVE A CURE FOR ANY SORES IN THE MOUTH(US LATINOS) always have remedies. 1.) GARGLE WITH WARM WATER AND SALT,IT HAS TO B WARM,NOT COLD.U GET MAYB A 6OZ. PAPERCUP OR GLASS,FILL IT ABOUT HALF WAY WITH WATER, THEN A TABLESPOON OF SALT AND MIX ,THEN GARGLE. IT HAS TO B CONSISTENT THOUGH. YOU CAN'T JUST TRY IT FOR ONE DAT THEN STOP CUZ THEN IT WON'T WORK.WHEN I GET THEM, I DO IT IN THE A.M. NOON,IF POSSIBLE,THEN EVENING... 2.) WARM LEMON AND HONEY TEA GOOD LUCK KRISTY,LET ME NO?~melyndagamez~ Re: [ ] Mouth Sore Help When I started to have problems with my mouth, I asked on this board and was told pretty quickly that I needed to up my Folic Acid. I had to increase the MTX to 1.2cc and was not told to increase the folic acid, I was still at 1mg per day. I increased it to 5mg and the problem went away. Now if I start to have any problems with my mouth, I go up from 2mg per day to 5mg and back down when it clears. Maybe that can help you. Dennis in eastexas On Tue, Feb 2, 2010 at 7:14 PM, KristyC <klxman02@...> wrote: > > > Hello - I suffer on and off from mouth sores from the MTX. I at times > double up on the folic acid when I have a mouth sore but I am curious if > anyone else out there has found something that really works to prevent them? > I use all the over the counter stuff (canker sore medicines and use actual > table salt on them) but I am wondering if maybe someone has found something > that has helped them prevent them? Also, what do you do to treat yours? > Thank you kindly, > > Kristy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 My Dr said today if I get a sore/sores that he will be upping my Folic Acid. Folic Acid prevents the side effects of MTX and mouth sores. I told him I get sick from the folic acid and he laughed at me. He said it is just a vitamin. It's like eating bread. I just take mine at night. Lol. Cheli [ ] Mouth Sore Help Hello - I suffer on and off from mouth sores from the MTX. I at times double up on the folic acid when I have a mouth sore but I am curious if anyone else out there has found something that really works to prevent them? I use all the over the counter stuff (canker sore medicines and use actual table salt on them) but I am wondering if maybe someone has found something that has helped them prevent them? Also, what do you do to treat yours? Thank you kindly, Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 I get mine in an injection which hurts Deb rn Sent from my iPhone On Feb 2, 2010, at 10:58 PM, hlhsinfo@... wrote: My Dr said today if I get a sore/sores that he will be upping my Folic Acid. Folic Acid prevents the side effects of MTX and mouth sores. I told him I get sick from the folic acid and he laughed at me. He said it is just a vitamin. It's like eating bread. I just take mine at night. Lol. Cheli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 hey kristy, how many sores? are they big? i get a few small ones the day after i take my mtx. they always seem to be in the same spot(s), which is a little weird. my doc told me to take double the amt of folic acid the before, during and after i take the mtx. so far, it hasn't seemed to help. i may have to take a lower dose. maybe that's something to think about? also, green tea with honey helps soothe my mouth. rhiannon > > Hello - I suffer on and off from mouth sores from the MTX. I at times double up on the folic acid when I have a mouth sore but I am curious if anyone else out there has found something that really works to prevent them? I use all the over the counter stuff (canker sore medicines and use actual table salt on them) but I am wondering if maybe someone has found something that has helped them prevent them? Also, what do you do to treat yours? Thank you kindly, > > Kristy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 I have used Lysine and it seemed to help. You can get this at Wal Mart and I took it several times a day, This and OTC Abrava has helped me. On the Tish radio show he mention soaking a cotton ball in oil and holding it on the sore. Said the oil helped coat the sore to improve healing. I haven't tried this. I had some test done recently and I was deficient in folate acid. All I had ever taken was 1 MG a day, so it makes sense that increased folic acid would help. I have taken MTX a long time and stopped in Nov to clear up sinus infections and haven't started back yet. No big problem so far but see Rheumy later this month. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 I also get mouth sores and have found a great remedy in baking soda. I put a little bit in my hand, then mix water to make a paste, I put that on the sore for about a minute. The sore is usually gone the next day. Take Care, River Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 I was getting pretty bad fever blister-type things on my lips when I first started the Metho and just scrubbed them gently with hydrogen peroxide, which stopped them from spreading. It hurt a bit, but it did work. They stopped coming on a month or so into the treatment, so I haven't had to worry about them lately. M > > Hello - I suffer on and off from mouth sores from the MTX. I at times double up on the folic acid when I have a mouth sore but I am curious if anyone else out there has found something that really works to prevent them? I use all the over the counter stuff (canker sore medicines and use actual table salt on them) but I am wondering if maybe someone has found something that has helped them prevent them? Also, what do you do to treat yours? Thank you kindly, > > Kristy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2010 Report Share Posted February 7, 2010 I had a similar experience with blisters on the inside of my lips shortly after starting methotrexate - my doctors included a review of my potassium levels in my monthly blood panel at some point within the first year after starting MTX based on my report of various symptoms and discovered I was severely potassium deficient - once I was taking sufficient SlowK to bring my potassium level within normal ranges the mouth sores disappeared and have not been problem since (2+ years) although I've continued to take MTX since 2007 to present day. Ask your doctor to check your potassium level the next time you have blood work. This was my experience but the connection seemed clear to me in terms of results. Good luck! Deb Deborah (andersondeborah274@...) > > Hello - I suffer on and off from mouth sores from the MTX. I at times double up on the folic acid when I have a mouth sore but I am curious if anyone else out there has found something that really works to prevent them? I use all the over the counter stuff (canker sore medicines and use actual table salt on them) but I am wondering if maybe someone has found something that has helped them prevent them? Also, what do you do to treat yours? Thank you kindly, > > Kristy Quote Link to comment Share on other sites More sharing options...
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