Re: New To Group - Introduction

[Guest guest]

Kurt:

It is amazing how much pain we've blocked out or put up with before

surgery and once you have it (mine 2-16-04) you'll be suprised at how

different things will be. I swear the post surgery pain was minimal

compared to the pre thr. Good Luck!

Kenny

>

[Guest guest]

Beth Maxwell,

Welcome,

You may want to visit http://www.Mercury-freeDrugs.org

and, on the " Documents " page, download and read the

first 3 articles there:

1. Thimerosal (49.55% Mercury) Causes Mercury Poisoning -

A Rebuttal to Dr. Novella's Views

2. Dr. Haley's Supporting Slides for Mercury Causes

Mercury Poisoning

3. Mercury Emissions

On addition, you may find the information in my posts

and those of others who, like myself, are engaged in

addressing the major cause of the harm done, Thimerosal

(49.55% mercury) in vaccines and other drugs that is

MERCURY POISONING all Americans who are administered

such drugs to some degree and clinically MERCURY POISONING

more than 1 child in 6 and severely poisoning more than

1 out of every 166 children (if you accept the statistics

stated in the 2004 joint DHHS/CDC/FDA/AAP " Autism A.L.A.R.M. "

flyer as the minimums that they so obviously are.

The " new " developments are the increasing recognition that

this mercury poisoning affects every human organ and system

not just the central nervous system and that the clinical

mercury poisoning is occurring across the age spectrum and

not just in early childhood.

As the mechanisms and drivers of this mercury poisoning are

being elucidated in detail, the treatment regiens are being

broadened to address the other systems and organs affected

such that the benefit of hyperbaric oxygen and, where

diagnosed, active treatments to address " percocious puberty "

and its interferring effect on some other treatments as well

as in-depth diagnostic evaluations to evaluate the extent of

damage to organs other than the brain, gut and kidney (the

glands, liver, pancreas, spleen, epidermis and heart) and

systems other than the central nervous system (e.g., the

various immune and endrocrine systems), and to devise holistic

staged thearapies to mitigate and, where possible, heal the

damage in these other organs and systems as an adjunct to

removing the mercury that is the poison and a trigger for

these harms.

Hopefully, later this year and early next, more of these

findings will be published.

If you are interested in keeping up with the scientific

publications in this area, you may want to visit:

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi

and set up an account there.

Respectfully,

Dr. King

http;//www.dr-king.com

+++++++++++++++++++++++++++++++++++++++++++++++++++++

At 08:58 9/17/05 -0400, Beth Maxwell wrote:

>

>Hi my name is Beth - I just got approved to join your group today.

>I read Evidence of Harm and saw the link to this group at the

evidenceofharm.com website.

>I have 2 children & both are ASD. They are both doing oral DMSA on the

DAN! protocol.

>

>I was wondering if there is any new developments politically or

scientifically from where the book left off.

>I will be searching the archives & hoping to learn new things - looks like

there has been alot of discussion!

>

>Happy to be here.......

>Beth Maxwell

>

>

[Guest guest]

Hi :  Welcome to our wonderful group.  I was sorry to read that for a

young man you are suffering so much pain.  I know several members here are RA

negative, but are still being treated by a Rheumy for RA.  Also, many members

here can answer your questions better then me.  I will be 70 Friday and I have

had positive RA for over 6 years.  For the past 1  1/2 years I have been in a

medicine induced remission, which I am very grateful for.  It took me over 4

years to find the right " cocktail " of meds.  I have been on MTX injections,

daily meds. of Pred., Sulfasalazine, Placquenil, Vit. D & Calcium, and

Leucovorin 1X a week.  I am at the maximum doses of these meds.  My feet and

ankles were hit the hardest, then my hands, fingers, wrists. Before i found the

right " Cocktail " of meds. for me, I suffered 24/7.  My feet and ankles were so

bad, I could hardly stand on them, let alone walk.  RA has changed my life, so

I had to learn to do things

differently, and also pace myself.  These things did not come easily for me,

but I persevered.  I am a very positve person, so I try to keep good thoughts

in my mind.  I am grateful for this time to be pain free.  I really never

thought it would happen to me, but I was wrong.  There is always hope.  A

great requirement is to find the best Rheumy you can, who will listen to you,

treat you with respect, and care about your condition and your suffering. 

There is no need for a Rheumy who will not give you RX's for pain meds.  In

this day and age, a doctore owes you to keep you feeling as well as possible. 

I can never imagine suffering in pain 24/7 and not getting any pain meds.  Pain

is very wearing to the body and soul.  Pain will override everything.  There

were many, many days I could not get out of bed without the help of my pain

meds, and a walker.  When I was first diagnosed, I was almost in a wheel

chair.  That alone will tell you how

bad I was.  I have come a long way in 5  1/2 years.  I have learned to just

take one day at a time, and rest as often as needed.  That is what has worked

well for me.  I rest or nap each afternoon, as I tire easily.  Our bodies

fight this ugly beast of a disease, 24/7.  No wonder we are all so tired.

I am glad you found us.  Everyone here knows what you are dealing with 24/7. 

The ONLY people who understand about RA and what we live with each and every

day, are the wonderful caring, loving people here.  This is where I learned

about RA.  I knew nothing about it when I got diagnosed.

The best day of my life, was joining this group.  I did a wonderful thing for

myself.  You can cry, vent, get angry, etc. here.  We all know what you are

going through.

I wish you many pain free days ahead.  Again, welcome here.

 

Hugs,

 

Barbara

From: shawnthomas9500 <shawnthomas9500@...>

Subject: [ ] New To Group - Introduction

Date: Monday, January 25, 2010, 12:45 PM

 

Hello,

To briefly describe my condition: I have had 3 surgeries on my right hip to

repair a labral tear and have limited mobility in that joint. My left also has a

tear and I am contemplating surgery. I have had neck pain since I was about 13

years old, I am now 29. My pain and stiffness is now in my hands, my elbows,

feet, knees and back...basically overall inflammation. I have been to several RA

specialist who have done blood tests, all of which have come back negative. One

Dr. believed I had Anklosing Spondylitis, but then decided I did not. I can't

understand what is causing this chronic pain and it is creating numerous

challenges in my life, bouts w/ depression etc. Again, I am a 29 year old male,

who appears to be in good shape. My pelvis is out of allignment due to my hip

issues and my gait has changed as a result. But, Doctors are telling me that

this shouldn't cause the overall inflammation. ..Any thoughts or feedback would

be great greatly

appreciated.

Sincerely,

[Guest guest]

From: shawnthomas9500 <shawnthomas9500@...>

Subject: [ ] New To Group - Introduction

Date: Monday, January 25, 2010, 12:45 PM

 

Hello,

To briefly describe my condition: I have had 3 surgeries on my right hip to

repair a labral tear and have limited mobility in that joint. My left also has a

tear and I am contemplating surgery. I have had neck pain since I was about 13

years old, I am now 29. My pain and stiffness is now in my hands, my elbows,

feet, knees and back...basically overall inflammation. I have been to several RA

specialist who have done blood tests, all of which have come back negative. One

Dr. believed I had Anklosing Spondylitis, but then decided I did not. I can't

understand what is causing this chronic pain and it is creating numerous

challenges in my life, bouts w/ depression etc. Again, I am a 29 year old male,

who appears to be in good shape. My pelvis is out of allignment due to my hip

issues and my gait has changed as a result. But, Doctors are telling me that

this shouldn't cause the overall inflammation. ..Any thoughts or feedback would

be great greatly

appreciated.

Sincerely,

[Guest guest]

Hi, .

I'm very sorry to hear about your problems.

I'm not sure where you are or whom you've seen, but maybe going to an

excellent institution such as s Hopkins in MD, Mayo Clinic in MN,

Hospital for Special Surgery in NY, or Cleveland Clinic in OH would

help you get an accurate diagnosis. At least at the first two, you can

get an interdisciplinary consultation in which a team tries to arrive

at the correct diagnosis.

Not an MD

On Mon, Jan 25, 2010 at 11:45 AM, shawnthomas9500

<shawnthomas9500@...> wrote:

> Hello,

>

> To briefly describe my condition: I have had 3 surgeries on my right hip to

repair a labral tear and have limited mobility in that joint.  My left also has

a tear and I am contemplating surgery.  I have had neck pain since I was about

13 years old, I am now 29.  My pain and stiffness is now in my hands, my elbows,

feet, knees and back...basically overall inflammation.  I have been to several

RA specialist who have done blood tests, all of which have come back negative.

 One Dr. believed I had Anklosing Spondylitis, but then decided I did not.  I

can't understand what is causing this chronic pain and it is creating numerous

challenges in my life, bouts w/ depression etc.  Again, I am a 29 year old male,

who appears to be in good shape.  My pelvis is out of allignment due to my hip

issues and my gait has changed as a result.  But, Doctors are telling me that

this shouldn't cause the overall inflammation...Any thoughts or feedback would

be great greatly appreciated.

>

> Sincerely,

>

>

[Guest guest]

Hello . Since joining this group I have learned a lot. I have RA and

it does not stay in remission. I started walking everyday August 2009 and

had enjoyed it until this last couple of months due to hip and left knee

pain. You will love this group for it is so informational and very helpful

input from others. I may not respond to all responses or posts but I read them

everyday.

Irish