Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 (sigh), Stan, I just love the pnw. I especially appreciate your weather updates. I can't figure out how to change my settings on , so when I log in, I always get Bremerton updates. We lived there from 03-05. The war was heating up and I had just had Charlie, so I had to request release from active duty to avoid leaving a new baby and getting deployed to the Gulf. He was born in the Naval hospital. We could walk to the water from our house and one summer there were whales in the inlet. I thought it was the prettiest place on earth and I remember the smell of pine needles and salt air each morning when I walked into the hospital. I had to be sure not to park too close to the water b/c the naughty seagulls would drop clams on the car. My husband doesn't remember it so fondly. He drove to the bus stop, took the bus to the ferry, took the ferry to Seattle, and then walked about a mile to the King County Archives. It was about 2 hrs one way and with a new baby and not a lot of sunlight, he had the start of a mood disorder and squelched my plans to stay. We're now back in chilly Illy, but I scheme regularly to return, and I keep in touch with my henchmen at Madigan Hospital in Tacoma for jobs. I resisted the i phone for a while. had one and I detested the keyboard. However mine started dying just as we were dealing with my sister's cancer nightmare. I had to get something and I was tempted by the i phone's internet access. I have warmed up to the keyboard and it is really handy. I downloaded a few songs over the weekend and used it as an i pod at the gym. It was sort of neat to be listening to music, working out, and he could call me to ask a question about our son's party that day. I supposed constant access does have it's downside though. Hope everyone is doing well and moving toward a pain free night with dreams of the seaside, whales, and morning salt air, Kate F (landlocked in IL) -------------------------------------------------------------------------------- Support the Lymphoma Research Foundation www.lymphoma.org Our journey curingbridget.blogspot.com ________________________________ From: " stanpfister@... " <stanpfister@...> Sent: Sunday, January 25, 2009 3:07:11 PM Subject: Re: [ ] Re: RESEARCH - Central nervous system toxicity associated with week Wow! From your iPhone, that's sooooo cool! Anyway, I was really very surprised to hear people behave this way, actually I was shocked based simply on the ordeal I went through before I was diagnosed. It was horrible. In my opinion it's like finding out you have diabetes (spell check) and then refusing to treat it, it's just not going to go well under any circumstances. Who would do that? I thought about getting an iPhone and putting all my music, movies, files, and phone numbers on it, then I thought I'd have to chain it to my wrist because if I lost it I'd lose everything in one fell swoop. So I ended up with an iPod and a cell phone, but still I go into the Mac store once and a while just to drool over the iPhones. The ferry run to Bremerton from Seattle is a very neat day trip and Bremerton is a nice place to visit. Once we were the very first car aboard the ferry so were right up front. As we sat in the car it looked liked we were driving across the water and it was just so awesome when we came into the dock, I'll never forget it. These days they won't let you sit in your car, you have to get out and go to the upper deck for security reasons, which I suppose it necessary. We have had a few threats and incidents on the ferry runs. Now, as I sit here writing this, the coffee cup I am using has the " First Street Coffee Bar, Bremerton, Washington " logo on it, I swear. I've had this cup for at least seven years so I can't even tell you if that coffee shop is still in business. But it's really very ironic that you should mention it don't you think? Just how small is this world we live in anyway? Stan, Seattle, seen clouds, snow flurries, and sunshine all at the same time today! ------------ -- Original message ------------ -- From: Kate Fair <kalfoley (DOT) com> Stan, I miss living in your neck of the rainforest. We lived in Bremerton when I was in the USN. I think you are on to something re: denial. I work in a family practice clinic and the docs say it's not unusual for patients to refuse to see a rheumatologist. They will offer to have them meet me - the enbrel posterchild- and they'll refuse, asking for more prednisone. I don't get it. Sure , no one wants to have ra, but denial sure is an ouchy place to stay. Sent from my iPhone On Jan 25, 2009, at 12:23 PM, stanpfister@ comcast.net wrote: We have discussed it a length. Her feeling is that I am not accustomed to treating a chronic disorder because before being diagnosed I had very few health issues throughout my life, and I was usually very active both mentally and physically. She also told me when patients begin treatment many live in a state of denial and it takes time to accept the reality of the situation, that can be one to two years. Reasonable people will follow their prescribed treatment and learn to accept their condition. I was surprised to learn that many do not accept it and continue to live in a state of denial, putting off or refusing to take medication, not attempting range of motion exercising, or whatever else is recommended. Of course, this only results in making it worse on themselves and eventually they come limping back requiring more treatment that the needed before they started. And even more surprising, they do it again! I tend to agree with her view, and I follow treatment. One day the sun wi ll rise and I'll be dancing on the sunny side of the street, that will will come when I move out of the northwest! I made the reply long to share with the Group. Stan, Seattle, Cloudy. ------------ -- Original message ------------ -- From: <Rheumatoid.Arthriti s.Support@ gmail.com> Stan, Have you mentioned this to your rheumatologist? Not an MD On Sun, Jan 25, 2009 at 1:12 AM, <stanpfister@ comcast.net> wrote: > I hate medication day but dread not having medication day! > > Stan, > Seattle, Snow! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 My weather updates are based on looking out the window, I am just about seven miles south of Seattle proper. I do use a weather gadget from Microsoft to see how wrong they are going to be because as you probably remember the weather around here is almost impossible to predict. Lately we've had some snow flurries, my girlfriend and I looked at each other suspiciously, the last time we heard about this snow flurry crap the entire city was shut down for a week! Seattle is interesting because we're really not prepared for anything but a frost, when snow comes everyone goes into a panic. That's because everyone is suffering from a mood disorder (nice segaway uh?) not having seen the sun for weeks at a time. Some people do use artificial sunlight gadgets and I am sure they work for them. My feeling is that if I am going to be depressed about it I have the god given right to be just as miserable about it as well! Having lived in Los Angeles for twenty-one years I guess I got my share of sun. I've been here for almost ten years, so if I hazard a guess I think I might be a little older than Charlie, er...physically, not necessarily mentally. I like it here much more than LA, weather and all. Had I known I was going to have RA I might have picked a different place, but when I think about it I should have become independently wealthy too. Take care. Stan Seattle, Dark. --------- Re: [ ] Re: RESEARCH - Central nervous system toxicity associated with week Wow! From your iPhone, that's sooooo cool! Anyway, I was really very surprised to hear people behave this way, actually I was shocked based simply on the ordeal I went through before I was diagnosed. It was horrible. In my opinion it's like finding out you have diabetes (spell check) and then refusing to treat it, it's just not going to go well under any circumstances. Who would do that? I thought about getting an iPhone and putting all my music, movies, files, and phone numbers on it, then I thought I'd have to chain it to my wrist because if I lost it I'd lose everything in one fell swoop. So I ended up with an iPod and a cell phone, but still I go into the Mac store once and a while just to drool over the iPhones. The ferry run to Bremerton from Seattle is a very neat day trip and Bremerton is a nice place to visit. Once we were the very first car aboard the ferry so were right up front. As we sat in the car it looked liked we were driving across the water and it was just so awesome when we came into the dock, I'll never forget it. These days they won't let you sit in your car, you have to get out and go to the upper deck for security reasons, which I suppose it necessary. We have had a few threats and incidents on the ferry runs. Now, as I sit here writing this, the coffee cup I am using has the " First Street Coffee Bar, Bremerton, Washington " logo on it, I swear. I've had this cup for at least seven years so I can't even tell you if that coffee shop is still in business. But it's really very ironic that you should mention it don't you think? Just how small is this world we live in anyway? Stan, Seattle, seen clouds, snow flurries, and sunshine all at the same time today! ------------ -- Original message ------------ -- From: Kate Fair <kalfoley (DOT) com> Stan, I miss living in your neck of the rainforest. We lived in Bremerton when I was in the USN. I think you are on to something re: denial. I work in a family practice clinic and the docs say it's not unusual for patients to refuse to see a rheumatologist. They will offer to have them meet me - the enbrel posterchild- and they'll refuse, asking for more prednisone. I don't get it. Sure , no one wants to have ra, but denial sure is an ouchy place to stay. Sent from my iPhone On Jan 25, 2009, at 12:23 PM, stanpfister@ comcast.net wrote: We have discussed it a length. Her feeling is that I am not accustomed to treating a chronic disorder because before being diagnosed I had very few health issues throughout my life, and I was usually very active both mentally and physically. She also told me when patients begin treatment many live in a state of denial and it takes time to accept the reality of the situation, that can be one to two years. Reasonable people will follow their prescribed treatment and learn to accept their condition. I was surprised to learn that many do not accept it and continue to live in a state of denial, putting off or refusing to take medication, not attempting range of motion exercising, or whatever else is recommended. Of course, this only results in making it worse on themselves and eventually they come limping back requiring more treatment that the needed before they started. And even more surprising, they do it again! I tend to agree with her view, and I follow treatment. One day the sun wi ll rise and I'll be dancing on the sunny side of the street, that will will come when I move out of the northwest! I made the reply long to share with the Group. Stan, Seattle, Cloudy. ------------ -- Original message ------------ -- From: <Rheumatoid.Arthriti s.Support@ gmail.com> Stan, Have you mentioned this to your rheumatologist? Not an MD On Sun, Jan 25, 2009 at 1:12 AM, <stanpfister@ comcast.net> wrote: > I hate medication day but dread not having medication day! > > Stan, > Seattle, Snow! Quote Link to comment Share on other sites More sharing options...
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