Re: Re: RESEARCH - Central nervous system toxicity associated with week

[Guest guest]

I hate medication day but dread not having medication day!

Stan,

Seattle, Snow!

-------------- Original message --------------

From: Harnett <wjkh@...>

That's certainly true for me for 24 hours after I take my mtx. But happily

the pay-off is worth it

in NZ

[Guest guest]

Stan,

Have you mentioned this to your rheumatologist?

Not an MD

On Sun, Jan 25, 2009 at 1:12 AM, <stanpfister@...> wrote:

> I hate medication day but dread not having medication day!

>

> Stan,

> Seattle, Snow!

[Guest guest]

We have discussed it a length. Her feeling is that I am not accustomed to

treating a chronic disorder because before being diagnosed I had very few health

issues throughout my life, and I was usually very active both mentally and

physically. She also told me when patients begin treatment many live in a state

of denial and it takes time to accept the reality of the situation, that can be

one to two years. Reasonable people will follow their prescribed treatment and

learn to accept their condition. I was surprised to learn that many do not

accept it and continue to live in a state of denial, putting off or refusing to

take medication, not attempting range of motion exercising, or whatever else is

recommended. Of course, this only results in making it worse on themselves and

eventually they come limping back requiring more treatment that the needed

before they started. And even more surprising, they do it again! I tend to agree

with her view, and I follow treatment. One day the sun wi

ll rise and I'll be dancing on the sunny side of the street, that will will come

when I move out of the northwest! I made the reply long to share with the Group.

Stan,

Seattle, Cloudy.

-------------- Original message --------------

From: <Rheumatoid.Arthritis.Support@...>

Stan,

Have you mentioned this to your rheumatologist?

Not an MD

On Sun, Jan 25, 2009 at 1:12 AM, <stanpfister@...> wrote:

> I hate medication day but dread not having medication day!

>

> Stan,

> Seattle, Snow!

[Guest guest]

Stan, I miss living in your neck of the rainforest. We lived in Bremerton when I

was in the USN. I think you are on to something re: denial. I work in a family

practice clinic and the docs say it's not unusual for patients to refuse to see

a rheumatologist. They will offer to have them meet me - the enbrel posterchild-

and they'll refuse, asking for more prednisone. I don't get it. Sure , no one

wants to have ra, but denial sure is an ouchy place to stay.

Sent from my iPhone

On Jan 25, 2009, at 12:23 PM, stanpfister@... wrote:

We have discussed it a length. Her feeling is that I am not accustomed to

treating a chronic disorder because before being diagnosed I had very few health

issues throughout my life, and I was usually very active both mentally and

physically. She also told me when patients begin treatment many live in a state

of denial and it takes time to accept the reality of the situation, that can be

one to two years. Reasonable people will follow their prescribed treatment and

learn to accept their condition. I was surprised to learn that many do not

accept it and continue to live in a state of denial, putting off or refusing to

take medication, not attempting range of motion exercising, or whatever else is

recommended. Of course, this only results in making it worse on themselves and

eventually they come limping back requiring more treatment that the needed

before they started. And even more surprising, they do it again! I tend to agree

with her view, and I follow

treatment. One day the sun wi

ll rise and I'll be dancing on the sunny side of the street, that will will come

when I move out of the northwest! I made the reply long to share with the Group.

Stan,

Seattle, Cloudy.

-------------- Original message --------------

From: <Rheumatoid.Arthritis.Support@...>

Stan,

Have you mentioned this to your rheumatologist?

Not an MD

On Sun, Jan 25, 2009 at 1:12 AM, <stanpfister@...> wrote:

> I hate medication day but dread not having medication day!

>

> Stan,

> Seattle, Snow!

[Guest guest]

Wow! From your iPhone, that's sooooo cool! Anyway, I was really very surprised

to hear people behave this way, actually I was shocked based simply on the

ordeal I went through before I was diagnosed. It was horrible. In my opinion

it's like finding out you have diabetes (spell check) and then refusing to treat

it, it's just not going to go well under any circumstances. Who would do that?

I thought about getting an iPhone and putting all my music, movies, files, and

phone numbers on it, then I thought I'd have to chain it to my wrist because if

I lost it I'd lose everything in one fell swoop. So I ended up with an iPod and

a cell phone, but still I go into the Mac store once and a while just to drool

over the iPhones.

The ferry run to Bremerton from Seattle is a very neat day trip and Bremerton is

a nice place to visit. Once we were the very first car aboard the ferry so were

right up front. As we sat in the car it looked liked we were driving across the

water and it was just so awesome when we came into the dock, I'll never forget

it. These days they won't let you sit in your car, you have to get out and go to

the upper deck for security reasons, which I suppose it necessary. We have had a

few threats and incidents on the ferry runs. Now, as I sit here writing this,

the coffee cup I am using has the " First Street Coffee Bar, Bremerton,

Washington " logo on it, I swear. I've had this cup for at least seven years so I

can't even tell you if that coffee shop is still in business. But it's really

very ironic that you should mention it don't you think? Just how small is this

world we live in anyway?

Stan,

Seattle, seen clouds, snow flurries, and sunshine all at the same time today!

-------------- Original message --------------

From: Kate Fair <kalfoley@...>

Stan, I miss living in your neck of the rainforest. We lived in Bremerton when I

was in the USN. I think you are on to something re: denial. I work in a family

practice clinic and the docs say it's not unusual for patients to refuse to see

a rheumatologist. They will offer to have them meet me - the enbrel posterchild-

and they'll refuse, asking for more prednisone. I don't get it. Sure , no one

wants to have ra, but denial sure is an ouchy place to stay.

Sent from my iPhone

On Jan 25, 2009, at 12:23 PM, stanpfister@... wrote:

We have discussed it a length. Her feeling is that I am not accustomed to

treating a chronic disorder because before being diagnosed I had very few health

issues throughout my life, and I was usually very active both mentally and

physically. She also told me when patients begin treatment many live in a state

of denial and it takes time to accept the reality of the situation, that can be

one to two years. Reasonable people will follow their prescribed treatment and

learn to accept their condition. I was surprised to learn that many do not

accept it and continue to live in a state of denial, putting off or refusing to

take medication, not attempting range of motion exercising, or whatever else is

recommended. Of course, this only results in making it worse on themselves and

eventually they come limping back requiring more treatment that the needed

before they started. And even more surprising, they do it again! I tend to agree

with her view, and I follow

treatment. One day the sun wi

ll rise and I'll be dancing on the sunny side of the street, that will will come

when I move out of the northwest! I made the reply long to share with the Group.

Stan,

Seattle, Cloudy.

-------------- Original message --------------

From: <Rheumatoid.Arthritis.Support@...>

Stan,

Have you mentioned this to your rheumatologist?

Not an MD

On Sun, Jan 25, 2009 at 1:12 AM, <stanpfister@...> wrote:

> I hate medication day but dread not having medication day!

>

> Stan,

> Seattle, Snow!