Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Hi , I have been in your situation. After I was diagnosed I gave up on my dream of being a high school English teacher and moved back in with my parents. My parents live in a 2 story house and I was trapped on the second floor, unable to walk down the steps or do anything. At the time I was on prednisone (80mg/day), naproxyn & Vicodin but it didn't help. I was extremely depressed and often thought about suicide. After 3 months of living at my parents' (and still under my dad's insurance), the HMO agreed to pay for Enbrel. It didn't work so I tried Remicade, and found relief. After being on it for 3 months, I did well enough to stop the Vicodin and significantly reduce the prednisone. I found a job and moved out. That was 9 years ago this June. There are plenty of drugs available now and hope is there, even though it doesn't feel that way sometimes. Take care, Steph in VA This is really wearing on me. I'm in a dark place right now. The pain is awful and a horrible case of self loathing and pity has set in. Someone please tell me you've gone through this and it gets better, because like I said...I'm really bottoming out right now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Stan, you crack me up!! It is so true about the RA Commercials, though. They are so deceiving and then it makes it even worse for those who are able to get " some " relief from one of those meds - its like everyone is expecting us to be miraculously cured. I would be happy with relief, but I don't know if anything will give me back all that I have lost. Sorry - I don't mean to make this worse than what it is, but I really wish more people would be in tune with the REALITY of RA!!.....Doreen I find it interesting how little people know about Rheumatoid Arthritis, they don't know we are the " professionals " of the arthritis community and they don't have a clue what many of us have gone through just to continue working, taking care of our homes, or in some cases just trying to live some kind of a normal life. I watch the national evening news every night and they are now advertising a lot of medications for Rheumatoid Arthritis, which may raise awareness but I'm not sure who they are actually marketing to because I find it amusing. One gal says she takes such and such and now she can continue to skydive. Oh really sweetheart, well thanks to my medication I can LIFT MY OWN COFFEE CUP!!! I've been putting off skydiving until I can afford a full body cast, it'll be like pushing a sarcophagus out a small plane. I'll take the aspirin right before someone yells, " Geronimoooooooo! " Stan, Seattle, Snow on my hill, Clouds in my sky. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 I think its a little bit of it all, Stan. I try to educate those that don't seem to understand, wake up those in denial and those that are jerks or just don't care are not a part of my life anymore. We don't need all that stress.....Doreen I am often shocked at the lack of support we from spouses and family. Especially when symptoms are so obvious and undeniable. Is this a complete lack of understanding, denial, no concern, or people just being jerks? Stan, Seattle, Cloudy. Quote Link to comment Share on other sites More sharing options...
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