Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 Got the lab work done last week and met with the GP for the treatment this morning. Blood work indicated (still) exposure to TB so TNF=TNH which in my case is an oral medication to take from six to nine months once a day. The good news is I might be able to start on Enbrel in six to eight weeks. I am hoping it will be the right mix that gets me closer to normal. I also got something for pain. Since it's been a year that I've been diagnosed with RA I told him I only have a handful of days that were pain free. So he gave me something that will send me to La La Land, he said make sure you're comfortable before using it. I told him, as many of us know, ya just really tied of something hurting all the time. The other thing is how random RA can affect us, you never know what you're gonna be dealing with from one day to the next. Of course, there's nothing he can do about it, that's just what we're all looking for from our long term treatment. I am really looking foward to meeting with the Rheummy department at the VA. My GP told my that my Rheumatologist indicated I was hedging on treatment which is absolutely not true. I was of the opinion we should have done the TNF six months ago, she was the one that insisted I would be fine on Methotraxate alone. So I'm probably going to move on 's hints to find another Rhematologist (even though she's not an MD!). Stan, Seattle, Clould and cool, whew! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2009 Report Share Posted July 7, 2009 Hi Stan - I'm so happy to hear the doctors are finally getting you started on the TNF treatment and that you might start the Enbrel sooner than expected! I'm glad you're going to check into another Rheumy - I pray the new one will be alot more proactive than this other one you've been seeing. I also pray the pain meds give you relief in the meantime. Better days are ahead.....Doreen : Got the lab work done last week and met with the GP for the treatment this morning. Blood work indicated (still) exposure to TB so TNF=TNH which in my case is an oral medication to take from six to nine months once a day. The good news is I might be able to start on Enbrel in six to eight weeks. I am hoping it will be the right mix that gets me closer to normal. I also got something for pain. Since it's been a year that I've been diagnosed with RA I told him I only have a handful of days that were pain free. So he gave me something that will send me to La La Land, he said make sure you're comfortable before using it. I told him, as many of us know, ya just really tied of something hurting all the time. The other thing is how random RA can affect us, you never know what you're gonna be dealing with from one day to the next. Of course, there's nothing he can do about it, that's just what we're all looking for from our long term treatment. I am really looking foward to meeting with the Rheummy department at the VA. My GP told my that my Rheumatologist indicated I was hedging on treatment which is absolutely not true. I was of the opinion we should have done the TNF six months ago, she was the one that insisted I would be fine on Methotraxate alone. So I'm probably going to move on 's hints to find another Rhematologist (even though she's not an MD!). Stan, Seattle, Clould and cool, whew! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2009 Report Share Posted July 7, 2009 Hi Stan: Glad your visit with your GP went so well. I hope the TB med. does the trick for you so you can start the Enbrel. Finally some pain meds. to help you be more comfortable. Things are looking up for you. Just what you needed, a new Rheumy. I hope that appt. goes well also. It will make a huge difference in your R.A. treatment. We all deserve a good Rheumy who really cares about us, and our daily battles with pain and R.A. Wishing you more sunny days, and also pain free days for you. Rest when you can. It is so important for us. Hugs, Barbara > > Got the lab work done last week and met with the GP for the treatment this morning. Blood work indicated (still) exposure to TB so TNF=TNH which in my case is an oral medication to take from six to nine months once a day. The good news is I might be able to start on Enbrel in six to eight weeks. I am hoping it will be the right mix that gets me closer to normal. I also got something for pain. Since it's been a year that I've been diagnosed with RA I told him I only have a handful of days that were pain free. So he gave me something that will send me to La La Land, he said make sure you're comfortable before using it. I told him, as many of us know, ya just really tied of something hurting all the time. The other thing is how random RA can affect us, you never know what you're gonna be dealing with from one day to the next. Of course, there's nothing he can do about it, that's just what we're all looking for from our long term treatment. I am really looking foward to meeting with the Rheummy department at the VA. My GP told my that my Rheumatologist indicated I was hedging on treatment which is absolutely not true. I was of the opinion we should have done the TNF six months ago, she was the one that insisted I would be fine on Methotraxate alone. So I'm probably going to move on 's hints to find another Rhematologist (even though she's not an MD!). > > Stan, > Seattle, Clould and cool, whew! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2009 Report Share Posted July 7, 2009 Thanks, I tried the pain med last night, no big deal. Actually it didn't really do anything for the flare I was having, and it didn't help me sleep at all. So I guess it's not worth getting addicted, we get to have hangovers without drinking and a lot of pain meds that do nothing. Stan, Seattle, Cloudy. Subject: [ ] Re: TNF Report Hi Stan - I'm so happy to hear the doctors are finally getting you started on the TNF treatment and that you might start the Enbrel sooner than expected! I'm glad you're going to check into another Rheumy - I pray the new one will be alot more proactive than this other one you've been seeing. I also pray the pain meds give you relief in the meantime. Better days are ahead.....Doreen : Â Got the lab work done last week and met with the GP for the treatment this morning. Blood work indicated (still) exposure to TB so TNF=TNH which in my case is an oral medication to take from six to nine months once a day. The good news is I might be able to start on Enbrel in six to eight weeks. I am hoping it will be the right mix that gets me closer to normal. I also got something for pain. Since it's been a year that I've been diagnosed with RA I told him I only have a handful of days that were pain free. So he gave me something that will send me to La La Land, he said make sure you're comfortable before using it. I told him, as many of us know, ya just really tied of something hurting all the time. The other thing is how random RA can affect us, you never know what you're gonna be dealing with from one day to the next. Of course, there's nothing he can do about it, that's just what we're all looking for from our long term treatment. I am really looking foward to meeting with the Rheummy department at the VA. My GP told my that my Rheumatologist indicated I was hedging on treatment which is absolutely not true. I was of the opinion we should have done the TNF six months ago, she was the one that insisted I would be fine on Methotraxate alone. So I'm probably going to move on 's hints to find another Rhematologist (even though she's not an MD!). Â Â Stan, Â Seattle, Clould and cool, whew! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2009 Report Share Posted July 7, 2009 The sun is gone, back to cloudy and cool. Stan Subject: [ ] Re: TNF Report Hi Stan: Glad your visit with your GP went so well. Â I hope the TB med. does the trick for you so you can start the Enbrel. Â Finally some pain meds. to help you be more comfortable. Â Things are looking up for you. Just what you needed, a new Rheumy. Â I hope that appt. goes well also. It will make a huge difference in your R.A. treatment. Â We all deserve a good Rheumy who really cares about us, and our daily battles with pain and R.A. Wishing you more sunny days, and also pain free days for you. Â Rest when you can. Â It is so important for us. Hugs, Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2009 Report Share Posted July 7, 2009 Stan, I remember that we were probable diagnosed around the same time..I was may 2008...I have been on mtx,arava, plaquanil, mtx again by injection...I too have not had much pain free days but some tolerable days..I have been started on enbrel two months ago with the plaquanil..I am getting some relief but not enough in my shoulder and wrist. anyways I know what you mean about the up and downs..When you think your getting better the pain starts all over again..hang in there. once you get treatment for the tb you too will be able to start a biologics... P.S. So glad you found out what MD means because! diane in ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2009 Report Share Posted July 7, 2009 Stan, That's good news that you might be able to start on Enbrel in 6-8 weeks. I thought maybe you would have to wait until the TB treatment is over. Sorry that the pain med didn't do the trick. Good luck with the VA rheumy! Sue On Jul 6, 2009, at 11:44 PM, detour721 wrote: > Got the lab work done last week and met with the GP for the > treatment this morning. Blood work indicated (still) exposure to TB > so TNF=TNH which in my case is an oral medication to take from six > to nine months once a day. The good news is I might be able to start > on Enbrel in six to eight weeks. I am hoping it will be the right > mix that gets me closer to normal. I also got something for pain. > Since it's been a year that I've been diagnosed with RA I told him I > only have a handful of days that were pain free. So he gave me > something that will send me to La La Land, he said make sure you're > comfortable before using it. I told him, as many of us know, ya just > really tied of something hurting all the time. The other thing is > how random RA can affect us, you never know what you're gonna be > dealing with from one day to the next. Of course, there's nothing he > can do about it, that's just what we're all looking for from our > long term treatment. I am really looking foward to meeting with the > Rheummy department at the VA. My GP told my that my Rheumatologist > indicated I was hedging on treatment which is absolutely not true. I > was of the opinion we should have done the TNF six months ago, she > was the one that insisted I would be fine on Methotraxate alone. So > I'm probably going to move on 's hints to find another > Rhematologist (even though she's not an MD!). > > Stan, > Seattle, Clould and cool, whew! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2009 Report Share Posted July 8, 2009 What kind of pain meds did they give you? I don't think we have to worry about becoming addicted to pain killers as long as we use them as directed. Its a shame they didn't at least take the edge off so that you might could sleep better. Are you taking prednisone, too? Call your Rheumy - the squeaky wheel gets the grease - we shouldn't have to suffer in silence.....Doreen Thanks, I tried the pain med last night, no big deal. Actually it didn't really do anything for the flare I was having, and it didn't help me sleep at all. So I guess it's not worth getting addicted, we get to have hangovers without drinking and a lot of pain meds that do nothing. Stan, Seattle, Cloudy. Quote Link to comment Share on other sites More sharing options...
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