hello again

[Guest guest]

We are there also. Just stay Postitive. We are on the roller coaster ride

together. I have been happy with injections. Aubrey is doing great.Terri

Hello Again

I joined this list last year when my daughter was first diagnosed with JRA but

found that most of the kids on here had much worse symptoms than her and didn't

really felt I fit in and a lot of the medical terms were over my head so I left

My daughter is 2 years old and was diagnosed with Pauci-articular JA after her

knees became too painful to walk

Since then she was seen by a specialist who identified 5 more joints involved

and changed the diagnosis to Poli-articular JA - she was prescribed steroid

tablets and the symptoms greatly improved almost within the week

Then after Christmas she was given steroid injections in all affected joints

and started on weekly methotrexate - wow what a miracle, within hours of the

steroid injections she was running about like it had never happened and has had

a new lease of life ever since - even started doing ballet, which I feared she'd

never be able to do

All's been great, no side effects - but we are nearing the time when her

doctor predicts that the steroid injections may wear off, and she may relapse

I am quite nervous about this and dread the thought of her swelling, stiffness

and pain returning and her being unable to walk again

The doctor said it's not definate that it will return, but I just don't know

what to expect!

Love

xxxxxxxxxxx

[Guest guest]

Hello Ann - I am so pleased that you never went away and that

you are still reading the information on the forum, albeit from time to time. I

can feel your sheer frustration and know that something has to be done soon.

What you need to do Ann is to get the following tests and as soon as possible.

If the NHS refuses to test your Free T4 and Free T3, then you will have to get

these done privately. I am assuming you have not had your FT4 and FT3 tested

because you have not mentioned them at all. You need to ask WHY these are not

being tested from your GP and from your local laboratory, and I would write a

letter to the Chief Executive of your hospital Trust to tell them the importance

of this and you need some authority from somewhere, to ensure that these are

tested.

If you have had them tested, then post the results here together

with the reference range for each of the tests, because most emphatically,

testing Thyroid Stimulating Hormone on its own is less than useless.

Ask also for your blood to be tested to see if any of the

following are low in the reference range: Ferritin, B12, Vitamin D3, zinc,

magnesium and copper. You may have had these tested before, but we need them

again. If any of these are low, your thyroid hormone will not be getting

properly absorbed by the cells and you will need to supplement whatever is low.

Also, can you get the 24 hour salivary adrenal profile done again, now that you

have not been taking any adrenal support - I am 99% that this is your problem,

and even though medication didn't seem to work before, you may need to start

all over again and boost your adrenals thoroughly BEFORE starting thyroid

hormone replacement again.

The other condition that goes along with being hypothyroid that

stops thyroid hormone from being absorbed is systemic candidiasis. If it is at

all possible and you can afford the test Ann, get this checked out through

Genova Diagnostics www.gdx.uk.net .

All of this is going to be a trial Ann, and I know you feel

there is no hope, but I can assure you that there is and there is light at the

end of your long dark tunnel. Any chance you can talk to Dr Peatfield and put

him in the picture. I know he would hate to know what you are going through and

how bad you are feeling.

I am just so pleased you have stayed with us, and we will help

you all we can.

How are the girls btw?

Luv and big (((HUGS))) - Sheila

Will I ever see light at the end of the tunnel? Sheila you

have been very kind and supportive in the past. What do I do? I have never been

able to 'tweak' a dosage that has been effective. I know I must be very

underactive now, so perhaps I am more sensitive than usual (?) but recent

events just take the biscuit. I feel like I am backed into a corner - and

there's only one way out. What do I do?

Ann

X

Checked by

AVG - www.avg.com

Version: 8.5.375 / Virus Database: 270.13.3/2217 - Release Date: 07/03/09

18:11:00

[Guest guest]

Hi Ann

http://www.reference-global.com/doi/abs/10.1515/CCLM.2008.170

Haemolysis: an overview of the leading cause of unsuitable specimens in clinical laboratories

This might explain one or more causes of error, but where ??

best wishes

Bob

>> Hi Sheila,> Just to let you know. I still read the site with interest from time to time. I am feeling no different to usual despite no meds since Feb. My TSH was <0.01 then (100mg T4, 20mg T3) so my GP stopped my T3 prescription. I stopped taking ALL tablets in complete frustration. I consulted a doctor privately recently (Harley Street) who tested my blood. Low and behold all results came back within the normal range. How strange! (TSH 0.72 mIU/L 0.27 - 4.2 ) Exactly seven days later I had the same test with my GP and TSH = 16.5 mIU/L. Something is very wrong with blood testing standards. What do you think? I have not had any medication, not even a lowly pain killer, since Feb - which blood test should I believe? Is there some sort of conspiracy going on? The private chappy would have me believe I am completely normal and my GP is imploring me to go back to T3 and T4. I haven't done anything yet - it makes me very cynical when, despite the amounts of drugs that I take the result is always the same - utter exhaustion. After various NHS endo.s implying that I am insane - I am starting to realise that I must be because every alley that I go up turns out to be blind. Will I ever see light at the end of the tunnel? Sheila you have been very kind and supportive in the past. What do I do? I have never been able to 'tweak' a doseage that has been effective. I know I must be very underactive now, so perhaps I am more sensitive than usual (?) but recent events just take the biscuit. I feel like I am backed into a corner - and there's only one way out. What do I do?> Ann> X>

[Guest guest]

Ann,

You wrote:

> ... I stopped taking ALL tablets in complete frustration. I

> consulted a doctor privately recently (Harley Street) who tested my

> blood. Low and behold all results came back within the normal range. How

> strange! (TSH 0.72 mIU/L 0.27 - 4.2 ) Exactly seven days later I had the

> same test with my GP and TSH = 16.5 mIU/L. Something is very wrong with

> blood testing standards. What do you think?...

That is exactly the sort of TSH response to be expected. TSH does not

respond immediately to changes in thyroxine levels. Plus, T4 in your

system has a half life of about a week. So, when you stopped all meds,

the TSH stayed low until quite a bit later, obviously until your first

test. However, by then the T4 was gone, and the TSH started to climb.

Did you inform your private doctor of the dosage you had been on and

when you stopped? That should change his interpretation of the low TSH.

Chuck

[Guest guest]

KT, you did say NASH, I welcomed you to our group before I read your post. How

did her NASH happen? She can calculate her MELD online, too. All she needs is

to input her INR, bilirubin and creatine into an online site, The MELD Model,

UNOS Modification, http://www.mayoclinic.org/meld/mayomodel6.html.

I'm glad today eased her mind. She has an awesome caretaker.

Kay

[Guest guest]

A long story on how she got her NASH (major medical error, and I will leave it

at that), Her current MELD is 11 down a couple from what she was 3 months ago. I

know it is not high and we are trying to keep it down. She has a outstanding

doctor watching her at Uof Mich, lets me know what is happening and asking me

questions.

 

KT

From: majulitrois <kuerston@...>

Subject: [ ] Re: Hello Again

Date: Wednesday, November 25, 2009, 11:01 PM

 

KT, you did say NASH, I welcomed you to our group before I read your post. How

did her NASH happen? She can calculate her MELD online, too. All she needs is to

input her INR, bilirubin and creatine into an online site, The MELD Model, UNOS

Modification, http://www.mayoclin ic.org/meld/ mayomodel6. html.

I'm glad today eased her mind. She has an awesome caretaker.

Kay

[Guest guest]

hey everybody!

thank you for your support! it is very much appreciated since i don't know

anyone in " real life " who has RA.

mary sue, thanks for the spoon theory!

I am taking methotrexate, plaquinel, and sulfasalzine. I don't know if this is

going to be the ultimate drug cocktail or not, and my doc told me that it will

be at least another month or two before the drugs really start helping.

the big problem for me is that i am unemployed and uninsured and it's very hard

to afford $170 a month on drugs (including other drugs i take for other health

probs). plus monthly doc visits of $75.

hopefully i get a job soon...

this is bad, but instead of taking the plaq. and sulfa twice a day i only take

it once. the pills last just a little longer, which can be helpful.

also, with the methotrexate, is taking 8 pills a week normal?

right now i'm taking 6, but the doc wants me to go up to 8.

take care,

rhiannon

[Guest guest]

Rhiannon: I am employed but with no health insurance so it is hard to afford

rx. I qualified for the patience assistance program from one drug company and

they send me my Celebrex for free to my dr's office to pick up. Check with

companies makes the drug that is the most expensive and apply to that company

for the patient assistance program. You can find that online.

I feel that the drug companies made enough money from my insurance company back

when I had health insurance so I do not feel bad getting the meds for free now.

Good luck!

Pat in So. Oregon

Bureau Alvarez

________________________________

From: rhionnon555 <rhionnon555@...>

Sent: Mon, January 25, 2010 6:54:00 AM

Subject: [ ] hello again

hey everybody!

thank you for your support! it is very much appreciated since i don't know

anyone in " real life " who has RA.

mary sue, thanks for the spoon theory!

I am taking methotrexate, plaquinel, and sulfasalzine. I don't know if this is

going to be the ultimate drug cocktail or not, and my doc told me that it will

be at least another month or two before the drugs really start helping.

the big problem for me is that i am unemployed and uninsured and it's very hard

to afford $170 a month on drugs (including other drugs i take for other health

probs). plus monthly doc visits of $75.

hopefully i get a job soon...

this is bad, but instead of taking the plaq. and sulfa twice a day i only take

it once. the pills last just a little longer, which can be helpful.

also, with the methotrexate, is taking 8 pills a week normal?

right now i'm taking 6, but the doc wants me to go up to 8.

take care,

rhiannon

[Guest guest]

Hi Rhiannon, when I was on methotrexate  Iwas taking 8 pills a week. the pills

are pretty low dose but just follow the directions the doc gives you, some of

those once a week pills can be confusing on when to take them.  I weaned off

all meds but now am going to have to go back on them, I think probably enbrel

now.  sucks to have no insurance, I definitely would check into the patient

assistance, plus in a pinch sometimes they can give you samples at the doc

office.

Kim

________________________________

From: rhionnon555 <rhionnon555@...>

Sent: Mon, January 25, 2010 9:54:00 AM

Subject: [ ] hello again

 

hey everybody!

thank you for your support! it is very much appreciated since i don't know

anyone in " real life " who has RA.

mary sue, thanks for the spoon theory!

I am taking methotrexate, plaquinel, and sulfasalzine. I don't know if this is

going to be the ultimate drug cocktail or not, and my doc told me that it will

be at least another month or two before the drugs really start helping.

the big problem for me is that i am unemployed and uninsured and it's very hard

to afford $170 a month on drugs (including other drugs i take for other health

probs). plus monthly doc visits of $75.

hopefully i get a job soon...

this is bad, but instead of taking the plaq. and sulfa twice a day i only take

it once. the pills last just a little longer, which can be helpful.

also, with the methotrexate, is taking 8 pills a week normal?

right now i'm taking 6, but the doc wants me to go up to 8.

take care,

rhiannon

[Guest guest]

! good to hear from you. I can't believe you're going thru all that...i'm sending you prayers and healing right now. I think of you all the time when i'm in a store and smells become so overshelming i have to leave or get a cart to lean on because i feel sick. Or when i go into my dr's building...they got new carpeting and i literally have to cover my face til i get to her office. i always think of how much worse it must be for you and that must be horrible. i'm so sorry you have to have a procedure done. I pray that you can have the right doctors and the right pain meds to help you thru. I know the hell of the anxiousness that comes along with all the stress. When your mind gets going, remember to bring it back and just focus on healing calm light filling your body, free of chemicals or stress. even if you have to do it all the time. or think of the little puppy that your neighbor had sitting calmly in your lap you are loved and prayed for so let some of the stress go if you can.hugs,bev---------- Original Message ----------From: Natural Medicine <natmedgal@...> Subject: Re: Re:Hello againDate: Wed, 12 Jan 2011 21:29:43 -0800 (PST)Hi all, I haven't been on another planet, since about two months ago or so (I don't even remember anymore) before the holidays I've been having some additional problems and actually been a nervous wreck, trying to deal with it all, so really have been unable to be a part of things here. I finally found out at least what's going on. Most of you here might remember I have MCS pretty intensely, so going into buildings is very problematic. Anyway, I had an accident in the house and really hurt my side.. cracked some ribs and who knows what else because I never went to get an ex-ray or anything..I was doing homeopathic medicine to help me heal. I couldn't get in the car. Then about a month before Christmas, I started having problems with my leg on the other side. I have some yucky vericose veins in that legs so thought right away it was one of those. Well three doctors later, I just had another ultrasound last week and he found a vein that is strangulated so the blood flow is impaired..which is why I have swelling in the leg, pressure and impaired mobility. I have to have a procedure done sometime in February... one of three he said in the office. I've been on the phone with my doctors/ medical contacts because of the chemicals and things he needs to do, to see what we believe I can tolerate. I guess tomorrow I have to call his office and try to get another appointment with him about the chemical sensitivities (since I spoke to my MD) who suggested alternatives and see if he will comply with that. If not, I don't know how... but I'll have to travel to a specialist to get antigen shots made up and other things to try to get me through this. We don't know. One specialist is 5 hours away the other 3 days! It's hard enough to deal with the fallout of being in the buildings but the chemicals for the procedure and the fact that I'll need to take pain meds is a concern that I have to try and work out. If he will only use the chemicals he is comfortable with rather than what would be less toxic for me I will have no choice but to get to an environmental clinic to get those antigens made up. That's a very expensive, debilitating trip. But I would have to try.. if I don't have a nervous breakdown before that. Sometimes it's all a bit much. I know you gals understand with what I've read about your challenges. I really need the support, I'm very worried. So wish me some luck ok and a prayer or two Hugs, There would be nothing to frighten you if you refused to be afraid. Gandhi

____________________________________________________________Obama Urges Homeowners to RefinanceIf you owe under $729k you probably qualify for Obama's Refi ProgramSeeRefinanceRates.com

[Guest guest]

Hi Bev,

Thank you so much, your kind words and empathy mean a lot. It's so terrible how some of us have so much suffering to deal with. I think we all deserve metals. It's always nice to know you're cared about and that some folks have good thoughts for you, so again thanks. I have to talk to the vein doctor about my docs suggestions and see if he can comply with them.. would make less risks for me as far as the chemical exposures.

After you go in a building and feel this way can do you a detox routine of some kind? I was taught to take reduced L-Glutathione right after, some NAC, and Vit C if possible, To get fresh air, or do some oxygen (I have a tank).. then take a shower to reduce the chemicals on me, and also sweat some out. The amount that gets stored in our cells is amazing. I hope you can do some of these things too. When I am able to sweat out the toxins it helps me a lot. Sometimes I'm not able to.. when then means I have to take a few showers instead. I won't be able to do that after the procedures, didn't even think of that until now.,

Good thought about the Puppy

Hugs,

There would be nothing to frighten you if you refused to be afraid. Gandhi

From: "moodynomad@..." <moodynomad@...> Sent: Thu, January 13, 2011 11:54:20 AMSubject: Re: Re:Hello again

! good to hear from you. I can't believe you're going thru all that...i'm sending you prayers and healing right now. I think of you all the time when i'm in a store and smells become so overshelming i have to leave or get a cart to lean on because i feel sick. Or when i go into my dr's building...they got new carpeting and i literally have to cover my face til i get to her office. i always think of how much worse it must be for you and that must be horrible. i'm so sorry you have to have a procedure done. I pray that you can have the right doctors and the right pain meds to help you thru. I know the hell of the anxiousness that comes along with all the stress. When your mind gets going, remember to bring it back and just focus on healing calm light filling your body, free of chemicals or stress. even if you have to do it all the time. or

think of the little puppy that your neighbor had sitting calmly in your lap

you are loved and prayed for so let some of the stress go if you can.

hugs,

bev---------- Original Message ----------From: Natural Medicine <natmedgal@...> Subject: Re: Re:Hello againDate: Wed, 12 Jan 2011 21:29:43 -0800 (PST)

Hi all,

I haven't been on another planet, since about two months ago or so (I don't even remember anymore) before the holidays I've been having some additional problems and actually been a nervous wreck, trying to deal with it all, so really have been unable to be a part of things here. I finally found out at least what's going on. Most of you here might remember I have MCS pretty intensely, so going into buildings is very problematic. Anyway, I had an accident in the house and really hurt my side.. cracked some ribs and who knows what else because I never went to get an ex-ray or anything..I was doing homeopathic medicine to help me heal. I couldn't get in the car. Then about a month before Christmas, I started having problems with my leg on the other side. I have some yucky vericose veins in that legs so thought right away it was one of those. Well three doctors later, I just had

another ultrasound last week and he found a vein that is strangulated so the blood flow is impaired..which is why I have swelling in the leg, pressure and impaired mobility. I have to have a procedure done sometime in February... one of three he said in the office. I've been on the phone with my doctors/ medical contacts because of the chemicals and things he needs to do, to see what we believe I can tolerate. I guess tomorrow I have to call his office and try to get another appointment with him about the chemical sensitivities (since I spoke to my MD) who suggested alternatives and see if he will comply with that. If not, I don't know how... but I'll have to travel to a specialist to get antigen shots made up and other things to try to get me through this. We don't know. One specialist is 5 hours away the other 3 days!

It's hard enough to deal with the fallout of being in the buildings but the chemicals for the procedure and the fact that I'll need to take pain meds is a concern that I have to try and work out. If he will only use the chemicals he is comfortable with rather than what would be less toxic for me I will have no choice but to get to an environmental clinic to get those antigens made up. That's a very expensive, debilitating trip. But I would have to try.. if I don't have a nervous breakdown before that. Sometimes it's all a bit much. I know you gals understand with what I've read about your challenges. I really need the support, I'm very worried.

So wish me some luck ok and a prayer or two

Hugs,

There would be nothing to frighten you if you refused to be afraid. Gandhi

____________________________________________________________Obama Urges Homeowners to RefinanceIf you owe under $729k you probably qualify for Obama's Refi ProgramSeeRefinanceRates.com

[Guest guest]

Eliabeth and all.....also if you get a rebounder, or what I have

that is way less expensive, a mini trampoline, you can gently

bounce on it to help move things thru your lymph nodes..also

a workout ball....I got both of mine at Walmart a few years ago...

both inexpensive....and I sit on my ball and bounce gently, and when I feel good, I do other things......always drink lots of water when you do things that are detoxing so as to dilute it and push it thru your organs...

Hugs

Dede

When the power of love

overcomes the love of power

the world will know peace.

~ Jimi Hendrix

Re: Re:Hello again

! good to hear from you. I can't believe you're going thru all that...i'm sending you prayers and healing right now. I think of you all the time when i'm in a store and smells become so overshelming i have to leave or get a cart to lean on because i feel sick. Or when i go into my dr's building...they got new carpeting and i literally have to cover my face til i get to her office. i always think of how much worse it must be for you and that must be horrible. i'm so sorry you have to have a procedure done. I pray that you can have the right doctors and the right pain meds to help you thru. I know the hell of the anxiousness that comes along with all the stress. When your mind gets going, remember to bring it back and just focus on healing calm light filling your body, free of chemicals or stress. even if you have to do it all the time. or think of the little puppy that your neighbor had sitting calmly in your lap

you are loved and prayed for so let some of the stress go if you can.

hugs,

bev

----- Re: Re:Hello again

Date: Wed, 12 Jan 2011 21:29:43 -0800 (PST)

Hi all,

I haven't been on another planet, since about two months ago or so (I don't even remember anymore) before the holidays I've been having some additional problems and actually been a nervous wreck, trying to deal with it all, so really have been unable to be a part of things here. I finally found out at least what's going on. Most of you here might remember I have MCS pretty intensely, so going into buildings is very problematic. Anyway, I had an accident in the house and really hurt my side.. cracked some ribs and who knows what else because I never went to get an ex-ray or anything..I was doing homeopathic medicine to help me heal. I couldn't get in the car. Then about a month before Christmas, I started having problems with my leg on the other side. I have some yucky vericose veins in that legs so thought right away it was one of those. Well three doctors later, I just had another ultrasound last week and he found a vein that is strangulated so the blood flow is impaired..which is why I have swelling in the leg, pressure and impaired mobility. I have to have a procedure done sometime in February... one of three he said in the office. I've been on the phone with my doctors/ medical contacts because of the chemicals and things he needs to do, to see what we believe I can tolerate. I guess tomorrow I have to call his office and try to get another appointment with him about the chemical sensitivities (since I spoke to my MD) who suggested alternatives and see if he will comply with that. If not, I don't know how... but I'll have to travel to a specialist to get antigen shots made up and other things to try to get me through this. We don't know. One specialist is 5 hours away the other 3 days!

It's hard enough to deal with the fallout of being in the buildings but the chemicals for the procedure and the fact that I'll need to take pain meds is a concern that I have to try and work out. If he will only use the chemicals he is comfortable with rather than what would be less toxic for me I will have no choice but to get to an environmental clinic to get those antigens made up. That's a very expensive, debilitating trip. But I would have to try.. if I don't have a nervous breakdown before that. Sometimes it's all a bit much. I know you gals understand with what I've read about your challenges. I really need the support, I'm very worried.

So wish me some luck ok and a prayer or two

Hugs,

There would be nothing to frighten you if you refused to be afraid. Gandhi

____________________________________________________________

Obama Urges Homeowners to Refinance

If you owe under $729k you probably qualify for Obama's Refi Program

SeeRefinanceRates.com

[Guest guest]

Hi Patty,

Thanks so much I appreciate that

Hugs,

There would be nothing to frighten you if you refused to be afraid. Gandhi

From: glory2glory1401 <glory2glory1401@...> Sent: Sat, January 15, 2011 11:11:58 AMSubject: Re:Hello again

Oh my goodness, you are up for some excitement, aren't you?I'm so sorry to hear about your vein issues! I hope that you can get through it, though I know that the MCS issues affect everything you do. If you have understanding docs, that helps a little, but in the end, you will have to just get through it.May God give you the strength you need to endure and get better fast!Hugs,Patty>> Hi all,> > I haven't been on another planet, since about two months ago or so (I don't even > remember anymore) before the holidays I've been having some additional problems > and actually been a nervous wreck, trying to deal with it all, so really have >

been unable to be a part of things here. I finally found out at least what's > going on. Most of you here might remember I have MCS pretty intensely, so going > into buildings is very problematic. Anyway, I had an accident in the house and > really hurt my side.. cracked some ribs and who knows what else because I never > went to get an ex-ray or anything..I was doing homeopathic medicine to help me > heal. I couldn't get in the car. Then about a month before Christmas, I started > having problems with my leg on the other side. I have some yucky vericose veins > in that legs so thought right away it was one of those. Well three doctors > later, I just had another ultrasound last week and he found a vein that is > strangulated so the blood flow is impaired..which is why I have swelling in the > leg, pressure and impaired mobility. I have

to have a procedure done sometime > in February... one of three he said in the office. I've been on the phone with > my doctors/ medical contacts because of the chemicals and things he needs to do, > to see what we believe I can tolerate. I guess tomorrow I have to call his > office and try to get another appointment with him about the chemical > sensitivities (since I spoke to my MD) who suggested alternatives and see if he > will comply with that. If not, I don't know how... but I'll have to travel to a > specialist to get antigen shots made up and other things to try to get me > through this. We don't know. One specialist is 5 hours away the other 3 days!> > It's hard enough to deal with the fallout of being in the buildings but the > chemicals for the procedure and the fact that I'll need to take pain meds is a > concern that

I have to try and work out. If he will only use the chemicals he is > comfortable with rather than what would be less toxic for me I will have no > choice but to get to an environmental clinic to get those antigens made up. > That's a very expensive, debilitating trip. But I would have to try.. if I don't > have a nervous breakdown before that. Sometimes it's all a bit much. I know you > gals understand with what I've read about your challenges. I really need the > support, I'm very worried.> > So wish me some luck ok and a prayer or two > > > > Hugs,> > > There would be nothing to frighten you if you refused to be afraid. Gandhi>

[Guest guest]

Hi Patty,

The only time my kidneys seem to be affected is when I have adrenal crashes or from the steroids in general. A while back we thought I might have stones or as my doc puts it "slush" so I took some herbs to help clean out my kidneys just in case because I can't do a typical flush. Seemed to help. I keep D-Mannose here which is so great.. and sometimes I take colloidal silver in conjunction with the D-mannose. But maybe you should try the D-Mannose if you haven't already. Do herbs sit well enough with you that you can experiment a little bit?

Hugs,

There would be nothing to frighten you if you refused to be afraid. Gandhi

From: glory2glory1401 <glory2glory1401@...> Sent: Sat, January 15, 2011 11:17:15 AMSubject: Re:Hello again

,I'm just wondering, how is your kidney function through all of this?Patty>> Hi Bev,>  > Thank you so much, your kind words and empathy mean a lot. It's so terrible how > some of us have so much suffering to deal with. I think we all deserve metals. > It's always nice to know you're cared about and that some folks have good > thoughts for you, so again thanks. I have to talk to the vein doctor about my > docs suggestions and see if he can comply with them.. would make less risks for > me as far as the chemical exposures.>  > After you go in a building and feel this way can do you a detox routine of some > kind?

I was taught to take reduced L-Glutathione right after, some NAC, and Vit > C if possible, To get fresh air, or do some oxygen (I have a tank).. then take a > shower to reduce the chemicals on me, and also sweat some out. The amount that > gets stored in our cells is amazing. I hope you can do some of these things too. > When I am able to sweat out the toxins it helps me a lot. Sometimes I'm not able > to.. when then means I have to take a few showers instead. I won't be able to do > that after the procedures, didn't even think of that until now., > Good thought about the Puppy  >  > Hugs,> >  > There would be nothing to frighten you if you refused to be afraid. Gandhi> > > > > ________________________________> From: "moodynomad@..." <moodynomad@...>> > Sent: Thu, January 13, 2011 11:54:20 AM> Subject: Re: Re:Hello again> >  > ! good to hear from you. I can't believe you're going thru all > that...i'm sending you prayers and healing right now. I think of you all the > time when i'm in a store and smells become so overshelming i have to leave or > get a cart to lean on because i feel sick.  Or when i go into my dr's > building...they got new carpeting and i literally have to cover my face til i > get to her office. i always think of how much worse it must be for you and that > must be horrible.  i'm so sorry you have to have a procedure done.  I

pray > that you can have the right doctors and the right pain meds to help you thru.  > I know the hell of the anxiousness that comes along with all the stress. When > your mind gets going, remember to bring it back and just focus on healing calm > light filling your body, free of chemicals or stress. even if you have to do it > all the time. or think of the little puppy that your neighbor had sitting > calmly in your lap   > you are loved and prayed for so let some of the stress go if you can.> hugs,> bev> > ----- Re: Re:Hello

again> Date: Wed, 12 Jan 2011 21:29:43 -0800 (PST)> > > Hi all,>   > I haven't been on another planet, since about two months ago or so (I don't even > remember anymore) before the holidays I've been having some additional problems > and actually been a nervous wreck, trying to deal with it all, so really have > been unable to be a part of things here. I finally found out at least what's > going on. Most of you here might remember I have MCS pretty intensely, so going > into buildings is very problematic. Anyway, I had an accident in the house and > really hurt my side.. cracked some ribs and who knows what else because I never > went to get an ex-ray or anything..I was doing homeopathic medicine to help me > heal.  I couldn't get in the car. Then about a month before Christmas, I

started > having problems with my leg on the other side. I have some yucky vericose veins > in that legs so thought right away it was one of those. Well three doctors > later, I just had another ultrasound last week and he found a vein that is > strangulated so the blood flow is impaired..which is why I have swelling in the > leg, pressure and impaired mobility.  I have to have a procedure done sometime > in February... one of three he said in the office. I've been on the phone with > my doctors/ medical contacts because of the chemicals and things he needs to do, > to see what we believe I can tolerate. I guess tomorrow I have to call his > office and try to get another appointment with him about the chemical > sensitivities (since I spoke to my MD) who suggested alternatives and see if he > will comply with that. If not,

I don't know how... but I'll have to travel to a > specialist to get antigen shots made up and other things to try to get me > through this. We don't know. One specialist is 5 hours away the other 3 days!>   > It's hard enough to deal with the fallout of being in the buildings but the > chemicals for the procedure and the fact that I'll need to take pain meds is a > concern that I have to try and work out. If he will only use the chemicals he is > comfortable with rather than what would be less toxic for me I will have no > choice but to get to an environmental clinic to get those antigens made up. > That's a very expensive, debilitating trip. But I would have to try.. if I don't > have a nervous breakdown before that. Sometimes it's all a bit much. I know you > gals understand with what I've read about your challenges. I really need the > support,

I'm very worried.>  > So wish me some luck ok and a prayer or two   > >  >   > Hugs,> >  > There would be nothing to frighten you if you refused to be afraid. Gandhi> >  >  > > __________________________________________________________> Obama Urges Homeowners to Refinance> If you owe under $729k you probably qualify for Obama's Refi Program> SeeRefinanceRates.com>