Re: It has happened again!......Bled out again.

[Guest guest]

Well all, I have been incarcerated again at our local hospital for the past

week. I went in because I could not sit up without assistance in bed and was

sleeping all day. The ambulance came and my BP had gone down to 45 palpalable

and by the time I got to the ER my HGB was down to 4. My family has been told

twice now that people don't usually recover from a Hgb of 4. They started to

transfuse me in the ER without typing or crossmatching. One unit went thru my

port and then they started an IV with the second unit of blood and then they did

it again for a total of 4 units, I think. I have been kept in the ICU and they

gave me medication to calm me which gave me total amnesia. The whole week was a

nightmare. They gave me a new GI doctor who did an endoscopy. They found an

old ulcer, but nothing to account for the current blood loss. Just to make

matters worse, my grandchildren have been battling a cold, which Grandma caught

and turned into pneumonia. Right now, I am so weak. I saw the nurse

practioner at my doctor's offfice and I have tons of follow-up appt with all

types of specialists. I see the hematologist tomorrow.

All stay well, please.

Gentle, tender, angel hugs...............

Debs in FL

[ ] CBC - Low Platelets

My platelets have always been on the low end of normal (140's) but they just

suddenly tanked to about 100. While I know this is low, I was wondering if this

is dangerous? I am off all my medicine right now except the bc I have been on

for 2 1/2 years and tylenol / aleve. Doctor is prescribing Pred for 2 weeks for

a flareup. Will this Help with the Platelets or make it worse?

Red Blood Count is Low

HCT is Low

HGB is a little Low

Everything else on CBC is normal.

Any help is much appreciated.

Kristi F in cali

[Guest guest]

((((((((((((((((((((((((((((((((((((((((((((( Debs

)))))))))))))))))))))))))))))))))))))))))))))))) ...you are in my heart and in

my prayers!

Love ya always...

Cheryle AKA Tess

[ ] CBC - Low Platelets

My platelets have always been on the low end of normal (140's) but they just

suddenly tanked to about 100. While I know this is low, I was wondering if this

is dangerous? I am off all my medicine right now except the bc I have been on

for 2 1/2 years and tylenol / aleve. Doctor is prescribing Pred for 2 weeks for

a flareup. Will this Help with the Platelets or make it worse?

Red Blood Count is Low

HCT is Low

HGB is a little Low

Everything else on CBC is normal.

Any help is much appreciated.

Kristi F in cali

[Guest guest]

The lowest I have gone is  " 6 " I can not imagine a " 4 " HGB  I am sure the

infusions are helping.  Prayers and good wishes being sent your way.

Raniolo

From: Badkneesdebs <BadKneesDebs@...>

Subject: Re: [ ] It has happened again!......Bled out again.

Date: Sunday, February 27, 2011, 11:51 PM

 

Well all, I have been incarcerated again at our local hospital for the past

week. I went in because I could not sit up without assistance in bed and was

sleeping all day. The ambulance came and my BP had gone down to 45 palpalable

and by the time I got to the ER my HGB was down to 4. My family has been told

twice now that people don't usually recover from a Hgb of 4. They started to

transfuse me in the ER without typing or crossmatching. One unit went thru my

port and then they started an IV with the second unit of blood and then they did

it again for a total of 4 units, I think. I have been kept in the ICU and they

gave me medication to calm me which gave me total amnesia. The whole week was a

nightmare. They gave me a new GI doctor who did an endoscopy. They found an old

ulcer, but nothing to account for the current blood loss. Just to make matters

worse, my grandchildren have been battling a cold, which Grandma caught and

turned into pneumonia. Right

now, I am so weak. I saw the nurse practioner at my doctor's offfice and I have

tons of follow-up appt with all types of specialists. I see the hematologist

tomorrow.

All stay well, please.

Gentle, tender, angel hugs...............

Debs in FL

[ ] CBC - Low Platelets

My platelets have always been on the low end of normal (140's) but they just

suddenly tanked to about 100. While I know this is low, I was wondering if this

is dangerous? I am off all my medicine right now except the bc I have been on

for 2 1/2 years and tylenol / aleve. Doctor is prescribing Pred for 2 weeks for

a flareup. Will this Help with the Platelets or make it worse?

Red Blood Count is Low

HCT is Low

HGB is a little Low

Everything else on CBC is normal.

Any help is much appreciated.

Kristi F in cali

[Guest guest]

OMG my dear, dear friend.  I felt just awful reading your letter and what yoou

have been through again.  I so hoped that all those emergency room visits and

hospital stays were done with and in the past.  I feel so bad that you were so

very sick again.  They really need to find where you are bleeding.  I think a

Colinoscopy needs to be done so they can scope the enitre intestines.  Your

blood count was so dangerously low, no wonder you could not sit up in bed and

you were so tired you slept  all the time.  What a nightmare you have been

through.  I get that pneumonia all the time, then need a blood transfusion. 

In the 6 years of living here, I have had Pneumonia 3X and a blood transfusion

each time.  Our immune systems are just shot due to the RA.  I wish I lived

closer to you.  You are always in my thoughts and prayers and I hate that you

have to suffer so much like this.  How is your sugar, under control?  Are you

going to see a blood

specialist also?  What about a gastro Dr.?  They all need to find out where

you are bleeding, address that issue, and correct it.  How do you feel now

after all those blood transfusions?  Less tired?  Do they have you on strong

Iron pills and B12?  Those Cabana boys need to pay better attention to you, and

wait on you hand and foot?  Is your daughter still making special drinks each

night for you to try?  Has she gotten a job yet as a bartender?  Does she know

how to make a Brown Lady?  I had them in Aruba and they are yummy!!  I forgot

to get the receipe from the bartender at the Marriott.  Very, very tasty

Debs!!!!!

 

How are you feeling today ?  Are you getting any extra help now?  I pray that

you get the care you deserve, and that you feel  better very soon.  I wish I

had some answers for you.

 

You are such a dear sweet girl, and I am so sorry that you have been so sick

again.  I hope you are resting as much as you can now.  Take care, much love

comes from me to you Debs.  Please keep me posted.  I hope your Guardian Angel

is near and takes good care of you.  Get better soon.

 

Love and hugs,

 

Barbara

 

I                                       Â\

 Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â\

 Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â\

 Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â\

 Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â\

 Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â On Sun, 2/27/11,

Badkneesde   bs <BadKneesDebs@...> wrote:

From: Badkneesdebs <BadKneesDebs@...>

Subject: Re: [ ] It has happened again!......Bled out again.

Date: Sunday, February 27, 2011, 11:51 PM

 

Well all, I have been incarcerated again at our local hospital for the past

week. I went in because I could not sit up without assistance in bed and was

sleeping all day. The ambulance came and my BP had gone down to 45 palpalable

and by the time I got to the ER my HGB was down to 4. My family has been told

twice now that people don't usually recover from a Hgb of 4. They started to

transfuse me in the ER without typing or crossmatching. One unit went thru my

port and then they started an IV with the second unit of blood and then they did

it again for a total of 4 units, I think. I have been kept in the ICU and they

gave me medication to calm me which gave me total amnesia. The whole week was a

nightmare. They gave me a new GI doctor who did an endoscopy. They found an old

ulcer, but nothing to account for the current blood loss. Just to make matters

worse, my grandchildren have been battling a cold, which Grandma caught and

turned into pneumonia. Right

now, I am so weak. I saw the nurse practioner at my doctor's offfice and I have

tons of follow-up appt with all types of specialists. I see the hematologist

tomorrow.

All stay well, please.

Gentle, tender, angel hugs...............

Debs in FL

[ ] CBC - Low Platelets

My platelets have always been on the low end of normal (140's) but they just

suddenly tanked to about 100. While I know this is low, I was wondering if this

is dangerous? I am off all my medicine right now except the bc I have been on

for 2 1/2 years and tylenol / aleve. Doctor is prescribing Pred for 2 weeks for

a flareup. Will this Help with the Platelets or make it worse?

Red Blood Count is Low

HCT is Low

HGB is a little Low

Everything else on CBC is normal.

Any help is much appreciated.

Kristi F in cali

[Guest guest]

sorry to hear that you are sooo sick, get well hon... praying for you,

Betty, in alabama

[Guest guest]

Debs,

I'm so very sorry that you've had to be incarcerated in the hospital

again. For heaven's sake, can they not find the source of the

bleeding? You have been through so much; it's time you had a break. I

will keep you in my thoughts and prayers.

Sue

On Feb 27, 2011, at 11:51 PM, Badkneesdebs wrote:

>

> Well all, I have been incarcerated again at our local hospital for

> the past week. I went in because I could not sit up without

> assistance in bed and was sleeping all day. The ambulance came and

> my BP had gone down to 45 palpalable and by the time I got to the ER

> my HGB was down to 4. My family has been told twice now that people

> don't usually recover from a Hgb of 4. They started to transfuse me

> in the ER without typing or crossmatching. One unit went thru my

> port and then they started an IV with the second unit of blood and

> then they did it again for a total of 4 units, I think. I have been

> kept in the ICU and they gave me medication to calm me which gave me

> total amnesia. The whole week was a nightmare. They gave me a new

> GI doctor who did an endoscopy. They found an old ulcer, but

> nothing to account for the current blood loss. Just to make matters

> worse, my grandchildren have been battling a cold, which Grandma

> caught and turned into pneumonia. Right now, I am so weak. I saw

> the nurse practioner at my doctor's offfice and I have tons of

> follow-up appt with all types of specialists. I see the

> hematologist tomorrow.

>

> All stay well, please.

>

> Gentle, tender, angel hugs...............

>

> Debs in FL

[Guest guest]

Deb,

You are in my thoughts & prayers! Girl, you need a break! Most of all, they've

got to find the source! Barb is right - you definitely need to see a

gastroenologist - please ask about that. We are all concerned so please keep us

posted!

Hugs,

in SC

Sent from my iPhone

On Feb 28, 2011, at 5:37 PM, marysue <marysue@...> wrote:

> Debs,

>

> I'm so very sorry that you've had to be incarcerated in the hospital

> again. For heaven's sake, can they not find the source of the

> bleeding? You have been through so much; it's time you had a break. I

> will keep you in my thoughts and prayers.

>

> Sue

>

> On Feb 27, 2011, at 11:51 PM, Badkneesdebs wrote:

>

> >

> > Well all, I have been incarcerated again at our local hospital for

> > the past week. I went in because I could not sit up without

> > assistance in bed and was sleeping all day. The ambulance came and

> > my BP had gone down to 45 palpalable and by the time I got to the ER

> > my HGB was down to 4. My family has been told twice now that people

> > don't usually recover from a Hgb of 4. They started to transfuse me

> > in the ER without typing or crossmatching. One unit went thru my

> > port and then they started an IV with the second unit of blood and

> > then they did it again for a total of 4 units, I think. I have been

> > kept in the ICU and they gave me medication to calm me which gave me

> > total amnesia. The whole week was a nightmare. They gave me a new

> > GI doctor who did an endoscopy. They found an old ulcer, but

> > nothing to account for the current blood loss. Just to make matters

> > worse, my grandchildren have been battling a cold, which Grandma

> > caught and turned into pneumonia. Right now, I am so weak. I saw

> > the nurse practioner at my doctor's offfice and I have tons of

> > follow-up appt with all types of specialists. I see the

> > hematologist tomorrow.

> >

> > All stay well, please.

> >

> > Gentle, tender, angel hugs...............

> >

> > Debs in FL

>

>

[Guest guest]

OMG! Deb I really hope you get well soon! I too have been having low rbc and I

feel your exhaustion. Please get better!!

in TN

[ ] CBC - Low Platelets

My platelets have always been on the low end of normal (140's) but they just

suddenly tanked to about 100. While I know this is low, I was wondering if this

is dangerous? I am off all my medicine right now except the bc I have been on

for 2 1/2 years and tylenol / aleve. Doctor is prescribing Pred for 2 weeks for

a flareup. Will this Help with the Platelets or make it worse?

Red Blood Count is Low

HCT is Low

HGB is a little Low

Everything else on CBC is normal.

Any help is much appreciated.

Kristi F in cali

[Guest guest]

That's awful, Debs. I'm so sorry to hear this.

I hope your physicians have some better ideas about what to do going

forward and that you are recovering well.

Not an MD

On Sun, Feb 27, 2011 at 10:51 PM, Badkneesdebs <BadKneesDebs@...> wrote:

>

> Well all, I have been incarcerated again at our local hospital for the past

week.  I went in because I could not sit up without assistance in bed and was

sleeping all day.  The ambulance came and my BP had gone down to 45 palpalable

and by the time I got to the ER my HGB was down to 4.  My family has been told

twice now that people don't usually recover from a Hgb of 4.  They started to

transfuse me in the ER without typing or crossmatching.  One unit went thru my

port and then they started an IV with the second unit of blood and then they did

it again for a total of 4 units, I think.  I have been kept in the ICU and they

gave me medication to calm me which gave me total amnesia.  The whole week was a

nightmare.  They gave me a new GI doctor who did an endoscopy.  They found an

old ulcer, but nothing to account for the current blood loss.  Just to make

matters worse, my grandchildren have been battling a cold, which Grandma caught

and turned into pneumonia.    Right now, I am so weak.  I saw the nurse

practioner at my doctor's offfice and I have tons of follow-up appt with all

types of specialists.  I see the hematologist tomorrow.

>

> All stay well, please.

>

> Gentle, tender, angel hugs...............

>

> Debs in FL

[Guest guest]

Hi Betty

Thank you for your dear prayers. I am still weak and my cough persists, not as

bad as it was, but still persists. I see the hematologist on Monday. Hope that

he can prescribe an antibiotic and maybe some cough medicine. My blood test

will tell the story regarding my blood story. I don't feel very strong, but

maybe it is just from being in bed for so long.

Again thanks for your prayers, they mean so much to me.

Gentle, tender angel prayers ................

Debs in FL

Re: [ ] It has happened again!......Bled out again.

sorry to hear that you are sooo sick, get well hon... praying for you,

Betty, in alabama

[Guest guest]

My Dear Barbara.......

Well, I go to the hematologist on Monday. While I was in the hospital, he was

never called as a consultant. They ended up giving me over 4 units of blood.

In the ER, they started the first unit of blood in my portacath & they also

started a second unit of bloodd in an IV line that they were somehow able to

start. After they rehydrated me, my blood count went down again and they

started the same procedure that they had just done. During all this I went into

respiratory arrest & they had to make a decision as to whether or not they would

tube me or not. The one who took it the worse was my youngest daughter (yest,

the bartender). She never left my side even in the ICU. The hardest part was

when I had that medication that caused me to have amnesia. She thought I had

suffered some kind of brain damage from the loss of oxygen. She was just

hysterical so she called my oldest daughter who came to the hospital and she

calmed her down. I could not remember my name, my birthday, my kids names, my

husbands name; as soon as the medication stopped working, I was like myself as

so nothing was ever wrong. I was in a fog & hardly remeber anything. One thing

I won't forget is the look on my daughter's face in her eyes.

I have been fighting these blood loss episodes since I gave birth to Vickie.

They did an ediscope this past stay and they found an old healed ulcer. The

doctors feel that there is some type of a sore on the back of my small

intestine, but no one can find it. They have to find it during the actual

active bleeding. Up until then, it is going to be stop and go. I am afraid

that I am not going to make it to hospital in time.

Well, it is cocktail time here. My daughter is serving Mimosa this evening.

Where are those cabana boys!!!!

Please stay well and safe, my friend. I will post something as soon as I get

home from hematolgoist on Monday. I have to keep on fighting these episodes for

my daughters, I love them so much.

Gentle, tender angel hugs my dear friend...........

Debs in FL

[ ] CBC - Low Platelets

My platelets have always been on the low end of normal (140's) but they just

suddenly tanked to about 100. While I know this is low, I was wondering if this

is dangerous? I am off all my medicine right now except the bc I have been on

for 2 1/2 years and tylenol / aleve. Doctor is prescribing Pred for 2 weeks for

a flareup. Will this Help with the Platelets or make it worse?

Red Blood Count is Low

HCT is Low

HGB is a little Low

Everything else on CBC is normal.

Any help is much appreciated.

Kristi F in cali

[Guest guest]

Tess, my dear friend....................

Thank you for your prayers and hugs.......they are much appreciated. Right

now, I need all the prayers that I can get. I am so frightened and worried

about my daughters. I see my hematologist on Monday.

Gentle, tender angel hugs across the miles to friends sent by God.

Love.............................

Debs in FL

Re: [ ] It has happened again!......Bled out again.

((((((((((((((((((((((((((((((((((((((((((((( Debs

)))))))))))))))))))))))))))))))))))))))))))))))) ...you are in my heart and in

my prayers!

Love ya always...

Cheryle AKA Tess

[ ] CBC - Low Platelets

My platelets have always been on the low end of normal (140's) but they just

suddenly tanked to about 100. While I know this is low, I was wondering if this

is dangerous? I am off all my medicine right now except the bc I have been on

for 2 1/2 years and tylenol / aleve. Doctor is prescribing Pred for 2 weeks for

a flareup. Will this Help with the Platelets or make it worse?

Red Blood Count is Low

HCT is Low

HGB is a little Low

Everything else on CBC is normal.

Any help is much appreciated.

Kristi F in cali

[Guest guest]

Dear Sue.....

I am about as fed up as anyone is. This has actually been going off and on

since after my first daughter was born & that was many years ago. They feel

that there is a bleed in back of the small intestine. They have to find it when

it is activevly bleeding. I barely know when I have one of these episodes.

Usually I don't even know when I am starting to bleed, there is no pain.

Thank you for your prayers and good wishes. I will keep everyone postes.

Gentle, tender angel hugs...............

Debs in FL

Re: [ ] It has happened again!......Bled out again.

Debs,

I'm so very sorry that you've had to be incarcerated in the hospital

again. For heaven's sake, can they not find the source of the

bleeding? You have been through so much; it's time you had a break. I

will keep you in my thoughts and prayers.

Sue

On Feb 27, 2011, at 11:51 PM, Badkneesdebs wrote:

>

> Well all, I have been incarcerated again at our local hospital for

> the past week. I went in because I could not sit up without

> assistance in bed and was sleeping all day. The ambulance came and

> my BP had gone down to 45 palpalable and by the time I got to the ER

> my HGB was down to 4. My family has been told twice now that people

> don't usually recover from a Hgb of 4. They started to transfuse me

> in the ER without typing or crossmatching. One unit went thru my

> port and then they started an IV with the second unit of blood and

> then they did it again for a total of 4 units, I think. I have been

> kept in the ICU and they gave me medication to calm me which gave me

> total amnesia. The whole week was a nightmare. They gave me a new

> GI doctor who did an endoscopy. They found an old ulcer, but

> nothing to account for the current blood loss. Just to make matters

> worse, my grandchildren have been battling a cold, which Grandma

> caught and turned into pneumonia. Right now, I am so weak. I saw

> the nurse practioner at my doctor's offfice and I have tons of

> follow-up appt with all types of specialists. I see the

> hematologist tomorrow.

>

> All stay well, please.

>

> Gentle, tender, angel hugs...............

>

> Debs in FL

[Guest guest]

My dear friend Debs.

 

I hope and pray that at your hemotologist appt. he has some answers for you. 

Also, that he can find your bleeder, repair it so you can move on with your life

again.  I am sure you are very scared at this point.  I would be too.  Too

much is happening to you.  I pray to God your health goes in a better

direction, and you feel better and better each day.

 

I do know how much you love your daughters, and how much they love you too.  It

is very painful when we see pain, fear and suffering in our childrens eyes. 

They just want thier mother to feel good, have a life, and a better quality of

life for you.  I know you feel like you are at the end of your rope with all

this, and I can truly understand why.  Please draw some more strength from

within, and this will carry you forward.  These Drs. have got to fix this issue

for you.  I know by the time you feel sick, it becomes critical for you.  I

also know each episode if more scarier then the last one.  My thoughts and many

prayers are with you now, and when you go Monday.  I know you want to throw in

the towel, but you just can't.  Your husband, daughters, family and friends

want you well again, and I want that for you too.  I do know these last 5 years

have been terrible for you.  But, thank God, you are still here with us.  Just

keep fighting and

pray your dr. will have a solution for these bleeding issue. 

 

I am instructing the Cabana boys to take better care of you.   More good

drinks, nice food, and nice desserts for you.  I hope they have you under the

grass umbrella in the shade and enjoying your Mimosa drinks that your daughter

made for you.  Tell them to save a spot for me.  I hope they are all good

looking too.  Are they playing your favorite songs and singing to you too? 

They better be!!!!!!

 

Lots of love and hugs from me to you Debs.  You are due for better days ahead

and better health.  God Bless you, my sweet dear friend.....

 

Hugs,

 

Barbara

From: Badkneesdebs <BadKneesDebs@...>

Subject: Re: [ ] It has happened again!......Bled out again.

Date: Sunday, February 27, 2011, 11:51 PM

Well all, I have been incarcerated again at our local hospital for the past

week. I went in because I could not sit up without assistance in bed and was

sleeping all day. The ambulance came and my BP had gone down to 45 palpalable

and by the time I got to the ER my HGB was down to 4. My family has been told

twice now that people don't usually recover from a Hgb of 4. They started to

transfuse me in the ER without typing or crossmatching. One unit went thru my

port and then they started an IV with the second unit of blood and then they did

it again for a total of 4 units, I think. I have been kept in the ICU and they

gave me medication to calm me which gave me total amnesia. The whole week was a

nightmare. They gave me a new GI doctor who did an endoscopy. They found an old

ulcer, but nothing to account for the current blood loss. Just to make matters

worse, my grandchildren have been battling a cold, which Grandma caught and

turned into pneumonia. Right

now, I am so weak. I saw the nurse practioner at my doctor's offfice and I have

tons of follow-up appt with all types of specialists. I see the hematologist

tomorrow.

All stay well, please.

Gentle, tender, angel hugs...............

Debs in FL

[ ] CBC - Low Platelets

My platelets have always been on the low end of normal (140's) but they just

suddenly tanked to about 100. While I know this is low, I was wondering if this

is dangerous? I am off all my medicine right now except the bc I have been on

for 2 1/2 years and tylenol / aleve. Doctor is prescribing Pred for 2 weeks for

a flareup. Will this Help with the Platelets or make it worse?

Red Blood Count is Low

HCT is Low

HGB is a little Low

Everything else on CBC is normal.

Any help is much appreciated.

Kristi F in cali

[Guest guest]

Barbara.....you have no idea how much strength I get from your notes. Your

words of encouragement seem to come just at the right time. I saw the

hematologist yesterday and my hgb came up a little bit, but no where ehere it

needs to be. He gave me an IV of iron and I need to go back in a few weeks for

another IV. The doc has absolutely no idea why I have these bleeding episodes.

I guess I just have to try to keep tabs on myself and if I feel a little

sick.....chances are that I am probably a lot of sick! Right now I am going

thru my body peeling all of the skin from the massive blood transfusion. What a

mess right now.

Having my two grandchildren here 4-5 days a week doesn't help with my

exhaustion. My grandson is almost 9 mos old and he has started to pull himself

up and try to walk! Once they try to walk, next step is running. Well, most

days they are the best medicine. It is just trying to get back to myself that

makes it extra hard righht now.

The cabana boys are gearing up right now for the " season " . My daughter is also

gearing up on her drink making.....so all we need is you here!!!!!! Hurry down

Sister!

Gentle, tender angel hugs to a special friend!!!!!

Love............

Debs in FL

[ ] CBC - Low Platelets

My platelets have always been on the low end of normal (140's) but they just

suddenly tanked to about 100. While I know this is low, I was wondering if this

is dangerous? I am off all my medicine right now except the bc I have been on

for 2 1/2 years and tylenol / aleve. Doctor is prescribing Pred for 2 weeks for

a flareup. Will this Help with the Platelets or make it worse?

Red Blood Count is Low

HCT is Low

HGB is a little Low

Everything else on CBC is normal.

Any help is much appreciated.

Kristi F in cali

[Guest guest]

Hi Debs.

 

Gosh, it must be ESP today for I have been thinking of you, and wondering how

your Dr. appt. went. 

 

I am happy the numbers are coming up, even if it is slowly.  Your IV Iron

infusions should start to make you feel better.  You are so run down now from

everything you have been through.  It will take some time for your Iron to

work.  I know each time I am in the hospital with Pnemonia and anemia,, I feel

better when I get my blood transfusions.  My PCP also have me on speical Iron

pills that I take for a year.  He also has my blood tested very often.  I

never knew when I needed a transfusion or when my blood was low.  All this has

happened to me since getting diagnosed with RA.  In 6 years I have had

Pneumonia 4 times, and blood transfusions 3 times.

I thought my tiredness was from a very low Hypothyroid condition, along with

RA.  It took me a long time to bounce back to normal.  You have been through

much more then me, so it will take time for your body to recover from all that.

 

I never had that skin peeling and it must be sore as hell.  Can you put

anything on the area to soothe the new skin?  It is so hard to recover when you

have serious issues back to back.  My heart goes out to you Debs.  I thought

that after your bad time last year, that things were better for you etc.  I was

so shocked and deeply saddened with what you have been dealing with, and another

serious stay in the hospital.  I pray you just focus on getting stronger and

better each day.

 

I do not know how you can manage a very busy 9 mo. old baby that is trying to

walk etc. I know I could not do that anymore.  I had to come to terms with my

RA, and decide what I can do or can't do anymore.  I had to give up a lot Debs,

but I am so grateful for the things I still can do, even if it is a different

way.  Plus, learning to pace myself was very difficult, but I do it.  I use to

do so much in a day, then I would be half dead for 3 days after.  I changed

that!!!!!

 

I hope you start to see yourself feeling better with the iron infusions.  When

is your next appt. with the hemotologist?  Do yoou need to get blood tests

often?  I am sure you are sick of seeing so many drs., taking more pills,

etc.  But it is worthwhile so we can get better and stronger so we can start to

enjoy our lives.  I look at all the meds I take, and, sigh, it makes me feel

like a failure.  But the realistic side of me says I need them to stay alive,

feel good and have a life, even if it is a restricted life.  Our RA sure is a

challenge for us.

 

I am still in my leg cast, and of course it is the right foot and leg, so I

can't drive yet.  I have cabin fever badddddd!!!!!!!!!  I see my Ortho. Dr. in

2 more weeks, and he will tell me when it can come off.  I do take it off at

bedtime and it feels so good.

 

I forgot to tell you before that the Lyrica my Rheumy put me on for the

Neuropathy, works wonderful and no more foot pain, no tingeling, and no

numbness.  I never thought I would see the day that my feet would be pain free

etc.  My feet have put me through hell for 6 years.  I am a new woman!!!!!!! 

Just old!!!!!!!

 

Yes, those Cabana boys are taking good care of you.  I am happy your daughter

is still practicing her bar tender skills of making good drinks for you to

sample each day.  What a life Debs!!!!!!!!  You so deserve it, and with this

wonderful weather now, you must feel great!  I love this time of year here. 

Feels good to be alive.

 

I hope and pray for you Debs that you begin to heal and feel better and better

each day.  All of your issues have taken its toll on you.  I know you will

heel, maybe slowly, but you will heel and then your life will be so good.  Lots

and lots of hugs and love to you from me.

 

I know it is hard for you to rest with the little ones, but I hope you can as it

is so important for your recovery.

 

When I can drive etc.  I will make my way to your side of Florida.  Then your

daughter can give me yummy samples of her bar tending skills!!!!  Oh what

joy!!!

 

May God surround you with His loving arms.

 

Hugs and love to my sweet friend from your good friend.

 

Barbara

[Guest guest]

Hi Sweetie.....

Well this is the end of my day.......1:30 am!!!!!!! The kids were here again and

the older one is having speech delay problems so I have gone back to my teaching

days and it is me, Madyson and Mr Potato Head!!!!She will be 3 in August and

doesn't have much to say yet so they send her for speech therapy on Thursday,

only SIL picks him up at his regular time. It is a blistering schedule here. I

don't think I was this busy when my own kids were little, when I was younger and

when I was healthier! Actually I can do the speech therapy in bed and thank

goodness my girls really do most of the watching the kids, running after the

kids and feeding the kids. You know that none of this would be possible if I

still worked. My husband has also been somewhat retired for the last year so he

is a big help too. I raised my family to just kinda get the job done and keep

family close.

OK next, I started to get some more information from my family as to what was

going on in the hospital as I don't remember anything of why I went, what they

did, what they found and what is coming down the pike for me.

Apparently the location of the ulcer was so peculiar that they felt Ikeep having

these episodes because the ulcer is lying very close to an artery and that is

what hemorrhages when the ulcers get big enough to start to rub against the

artery. They apparently feel that they are going to see this during one of

these episodes and they can then go in and operate to stop it once and for all.

Unfortunately, they don't want to subject me to any unnecessary surgery due to

other problems I have; respiratory, cardiac, diabetic and who knows what else.

This is the story that I have heard mentioned by several drs, but no one ever

pursued it any further. I don't know how many more episodes I can stand before

my body won't need to worry about unnecessary surgery. Just found this

information out from the discharge summary.

The new schedule with the hematologist is every 4 weeks NO LONGER. Today I have

had a terrible headache and I am terrible dizzy.

Starting to get the outside backyard and pool fixed up for summer. Bought a rug

for under the dining table. Going to send Ron and for some green plants.

They say that the sign of a non depressed person is green healthy plants. I

think we should be OK down here from frost. Silly me, of course, it has to be

OK, what did I think this was......Chicago!!!!!!!

I was wondering how your leg was doing. You know, I lost most of my right leg

during the first bout of sepsis and then I decided to have that right leg

amputated above the knee to cut down on the number of sepsis bouts that were

trapped in the old knee joint. One thing that I never mi drissed or wanted to

get a new drivers license. As you know, driving down here is absolutely

terrible. I know I have become a nuscance to my family, but I always make sure

that there is a free lunch in it for them........Dangle food in front of my

family's face and they will follow you anywhere!!!!

I gotta get some shut eye before those little kids come back again!

I love you Sweetie and look forward to you and me on my back patio!!!!

Gentle, tender angel hugs for heeled bones.

Love ya....................

Debs in FL

Re: [ ] It has happened again!......Bled out again.

Hi Debs.

Gosh, it must be ESP today for I have been thinking of you, and wondering how

your Dr. appt. went.

I am happy the numbers are coming up, even if it is slowly. Your IV Iron

infusions should start to make you feel better. You are so run down now from

everything you have been through. It will take some time for your Iron to work.

I know each time I am in the hospital with Pnemonia and anemia,, I feel better

when I get my blood transfusions. My PCP also have me on speical Iron pills

that I take for a year. He also has my blood tested very often. I never knew

when I needed a transfusion or when my blood was low. All this has happened to

me since getting diagnosed with RA. In 6 years I have had Pneumonia 4 times,

and blood transfusions 3 times.

I thought my tiredness was from a very low Hypothyroid condition, along with RA.

It took me a long time to bounce back to normal. You have been through much

more then me, so it will take time for your body to recover from all that.

I never had that skin peeling and it must be sore as hell. Can you put anything

on the area to soothe the new skin? It is so hard to recover when you have

serious issues back to back. My heart goes out to you Debs. I thought that

after your bad time last year, that things were better for you etc. I was so

shocked and deeply saddened with what you have been dealing with, and another

serious stay in the hospital. I pray you just focus on getting stronger and

better each day.

I do not know how you can manage a very busy 9 mo. old baby that is trying to

walk etc. I know I could not do that anymore. I had to come to terms with my

RA, and decide what I can do or can't do anymore. I had to give up a lot Debs,

but I am so grateful for the things I still can do, even if it is a different

way. Plus, learning to pace myself was very difficult, but I do it. I use to

do so much in a day, then I would be half dead for 3 days after. I changed

that!!!!!

I hope you start to see yourself feeling better with the iron infusions. When

is your next appt. with the hemotologist? Do yoou need to get blood tests

often? I am sure you are sick of seeing so many drs., taking more pills, etc.

But it is worthwhile so we can get better and stronger so we can start to enjoy

our lives. I look at all the meds I take, and, sigh, it makes me feel like a

failure. But the realistic side of me says I need them to stay alive, feel good

and have a life, even if it is a restricted life. Our RA sure is a challenge

for us.

I am still in my leg cast, and of course it is the right foot and leg, so I

can't drive yet. I have cabin fever badddddd!!!!!!!!! I see my Ortho. Dr. in 2

more weeks, and he will tell me when it can come off. I do take it off at

bedtime and it feels so good.

I forgot to tell you before that the Lyrica my Rheumy put me on for the

Neuropathy, works wonderful and no more foot pain, no tingeling, and no

numbness. I never thought I would see the day that my feet would be pain free

etc. My feet have put me through hell for 6 years. I am a new woman!!!!!!!

Just old!!!!!!!

Yes, those Cabana boys are taking good care of you. I am happy your daughter is

still practicing her bar tender skills of making good drinks for you to sample

each day. What a life Debs!!!!!!!! You so deserve it, and with this wonderful

weather now, you must feel great! I love this time of year here. Feels good to

be alive.

I hope and pray for you Debs that you begin to heal and feel better and better

each day. All of your issues have taken its toll on you. I know you will heel,

maybe slowly, but you will heel and then your life will be so good. Lots and

lots of hugs and love to you from me.

I know it is hard for you to rest with the little ones, but I hope you can as it

is so important for your recovery.

When I can drive etc. I will make my way to your side of Florida. Then your

daughter can give me yummy samples of her bar tending skills!!!! Oh what joy!!!

May God surround you with His loving arms.

Hugs and love to my sweet friend from your good friend.

Barbara