Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 I went to see my neuro and my lesions are progressing and the betaseron isnt working so now she mentioned 2 other meds(which I cant remember)which have huge risks and I dont know if I should do it, one is like chemo and other has a risk for PDL which is fatal. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 Hi , There are lots of ways to treat MS besides the CRAB drugs. For more information, visit http://tinyurl.com/advice-to-msers With best wishes, Dudley Delany http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 The second one is probably Tysabi. My daughters neuro wanted her to do tysabri. He told us that it could kill her from the brain infection and also asked us how we got to his office. When I said we drove there he told us we could have been killed in a car accident and she may as well take the tysabri risk. Then he told my daughter if she wouldn't do tysabri she should find a new dr. So I found a holistic daughter that has my daughter on all natural supplements. Which have done more for my daughter in months than the crab drugs or her EX neuro ever did. She has tried all the crab meds and got worse with each one. She did LDN but had bad reactions to that ie she didn't know us, thought people were breaking into the house just to name a few. It would last about 4 hours. I was told that the pharmacy may have compounded it wrong. Anyway I know its a tough decision. Good luck to you! Sent from my BlackBerry® smartphone with SprintSpeed betaseron not working I went to see my neuro and my lesions are progressing and the betaseron isnt working so now she mentioned 2 other meds(which I cant remember)which have huge risks and I dont know if I should do it, one is like chemo and other has a risk for PDL which is fatal. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2008 Report Share Posted December 12, 2008 All crab drugs are questionable if you want them to work. In the end they all shut down your immunsystem, your bodies only defense, which never made sense to me. Some folks say they work for them, which good for them, problem though, do they cause themselves long term damage, even more devastating!? That would be my uncle to me, he did " well " on the betaferone, but in the end it damaged his brain so bad that he can now only move his left leg.... My husband is the one who was told he has MS, that's why I am here. He took Avonex once and had terrible seizures - the first ones in his life! Never took it again. As for him he would have never taken the risk with Tysabri - thank GOD! The other medication you talk about probably is Chemo not just like it. Chemo is used in MS treatment, just like Interferones used to be cancer treatment at least in Germany. My husband turned out to be mis diagnosed on top of it, he has neuro Lyme's. In any way whatever your health problem, change your diet (stay away from gluten, casein, sugars,..), stay physical active as much as your body allows you, rest when you need it, good supplementation, and good advice from this site! Listen to your body, something NO neuro/doctor can do for you! Good luck, Bianca ________________________________ To: mscured Sent: Thursday, December 11, 2008 7:13:10 PM Subject: betaseron not working I went to see my neuro and my lesions are progressing and the betaseron isnt working so now she mentioned 2 other meds(which I cant remember)which have huge risks and I dont know if I should do it, one is like chemo and other has a risk for PDL which is fatal. Quote Link to comment Share on other sites More sharing options...
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