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Lung Nodules?

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Hi all,

About a month ago I posted wondering about ribcage pain. Everyone was SO helpful

- thank you! I did ask my Dr (Rheumy) about Costochondritis & pleurisy, but she

said the location of the pain other symptoms did not indicate that. My pain is

really localized on my upper right side & sometimes radiates around my back. It

is very painful. I have given up on my GP as she just acts like I am bothering

her everytime I call & my Rheumy has pretty much taken over. She originally sent

me for an ultrasound as she was worried it was my liver & /or gall bladder. All

came back ok. Then she sent me for a CT scan wondering if I had a broken rib or

pneumonia that did not show up on the original xray.

Well... no broken bones/pneumonia, but I have 5 small nodules in my lung as well

as unexplained scar tissue on my 2nd & 5th rib on the right side.(Unexplained,

as I've never had an injury/surgery there before that I can recall). No broken

bones. She suspects (as was my initial self diagnosis) that my coughing from

bronchitis tore some muscle/cartilage in that area. She said something like that

could take 6 months or so to heal (especially for someone like me who doesn't

get much time to rest with a toddler, two older kids, household, job & on &

on....)

She also said nodules can be common with RA & normally harmless. But I have

always been RA factor negative (she just tested me again on Friday) & that she

has only seen patients with RA positive showing nodules. My SED rate is about 3x

what it normally is (wh/ is generally high to begin with).

She is sending me to a pulmonologist & I'm just so worried...she also is

confused about my scar tissue.

She also pulled me off Orencia (which was helping) because I keep getting sick

with infections - sad :(

Can I trade this body in for one that works please??

Thanks for listening

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Hi :  I went through that with my lungs.  The last time I had pneumonia,

I had to have several x-rays done.  The last one showed many lung nodule's, so

my PCP sent me to a lung specialist.  He wanted to make sure they were not

anything to worry about.  Worry I sure did.

Over the next 6 months, I had more x-rays, and they were still there.  He then

sent me for a P.E.T. lung xray.  Finally they were gone.  He just had to take

this time to be sure I had a good outcome, and for 6 months to go by.

I have had pneumonia over 30 times in my life, and have Brocnhitis often.  My

lung lobes are scared from all the Pneumonia bouts.  I followed up with several

visits with the lung dr. and all is fine now.  That was over 3 years ago..

It is good you see a lung dr., and give him time to x-ray you as many times as

he needs to do. It is hard not to worry.

I wish you the best.

 

Hugs,

 

Barbara

From: Toz <keptoz@...>

Subject: [ ] Lung Nodules?

Date: Wednesday, March 3, 2010, 7:34 PM

 

Hi all,

About a month ago I posted wondering about ribcage pain. Everyone was SO helpful

- thank you! I did ask my Dr (Rheumy) about Costochondritis & pleurisy, but she

said the location of the pain other symptoms did not indicate that. My pain is

really localized on my upper right side & sometimes radiates around my back. It

is very painful. I have given up on my GP as she just acts like I am bothering

her everytime I call & my Rheumy has pretty much taken over. She originally sent

me for an ultrasound as she was worried it was my liver & /or gall bladder. All

came back ok. Then she sent me for a CT scan wondering if I had a broken rib or

pneumonia that did not show up on the original xray.

Well... no broken bones/pneumonia, but I have 5 small nodules in my lung as well

as unexplained scar tissue on my 2nd & 5th rib on the right side.(Unexplained,

as I've never had an injury/surgery there before that I can recall). No broken

bones. She suspects (as was my initial self diagnosis) that my coughing from

bronchitis tore some muscle/cartilage in that area. She said something like that

could take 6 months or so to heal (especially for someone like me who doesn't

get much time to rest with a toddler, two older kids, household, job & on &

on....)

She also said nodules can be common with RA & normally harmless. But I have

always been RA factor negative (she just tested me again on Friday) & that she

has only seen patients with RA positive showing nodules. My SED rate is about 3x

what it normally is (wh/ is generally high to begin with).

She is sending me to a pulmonologist & I'm just so worried...she also is

confused about my scar tissue.

She also pulled me off Orencia (which was helping) because I keep getting sick

with infections - sad :(

Can I trade this body in for one that works please??

Thanks for listening

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Hi Barb,

I've been reading all the RA e-mails, and have not written before, Except

when I read about your nodules on your lung. When I ended up in the hospital

*(it will be 2 years ago in April), it was the RA doctor who notice the nodules

on my lung, and what caused me to be in the hospital.

She is the one who actually told the Pulmonary doctor what they were, and

from having the RA. Once I was put on the prednisone (20 mg) for a month, I was

retested by the Pulmonary doctor, and they had disappeared. I have not had any

problems since then. Maybe ask your doctor about being on the prednisone - hope

it helps, I know how scary it can be. My prayers are w/you

Elena

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Hi Elena.  It took almost a year for all the nodules to be gone.  I had many

x=rays and the last one was the P.E.T. x-ray and it showed my lungs were all

clear finally.  The lung Dr. wanted to be sure it was not cancer.

I have been on daily Pred. for almost 6 years now.  I started on it when I was

diagnosed with RA

and have never been able to get off it.  I try all the time but so far no luck

getting off it.  For me it is a wonder drug and I tolerate it very well.

 

I am glad your lungs are good now.  It was very scarey for me going through all

the tests until I knew they were gone.

 

Take care, and rest as much as you can.

 

Hugs,

 

Barbara

From: elena manfredi <elenamanfredi1@...>

Subject: Re: [ ] Lung Nodules?

Date: Thursday, March 4, 2010, 8:27 PM

 

Hi Barb,

I've been reading all the RA e-mails, and have not written before, Except when I

read about your nodules on your lung. When I ended up in the hospital *(it will

be 2 years ago in April), it was the RA doctor who notice the nodules on my

lung, and what caused me to be in the hospital.

She is the one who actually told the Pulmonary doctor what they were, and from

having the RA. Once I was put on the prednisone (20 mg) for a month, I was

retested by the Pulmonary doctor, and they had disappeared. I have not had any

problems since then. Maybe ask your doctor about being on the prednisone - hope

it helps, I know how scary it can be. My prayers are w/you

Elena

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I am glad that you are getting help for your cough. My husband coughed for years

and his PCP said it was caused by asthma. He was on inhalers with expensive

copays. His PCP xrayed his lungs in 2005 but did not xray again until 2008. By

that time the damage was done. He has pulmonary fibrosis caused by RA, or

rheumatoid lung. He was not diagnosed with RA until after the PF diagnosis. Just

don't let a doctor ever tell you that you have to live with a cough. There is

always a reason. I wish that we would have gotten a second opinion back in 2005.

Lynn in Louisiana, hubby with rheumatoid lung caused by RA

>

> Glad to hear you got some type answer. I go tomorrow to complain about the

> same pain. I hope the ultrasound shows nothing and this nagging cough will

> soon go away. I get it every month and telling my PCP goes in one ear and

> out the other. With her saying it is due to sinus drainage. Prescribes me a

> nose spray and still nothing...no stop coughing even with throat spray and

> lozenges. Glad you are at least getting your RA doctor to take notice as

> they should.

>

> Irish

>

>

>

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