Fibromyalgia organization?

[Guest guest]

Hi all - quick question.

I am a member of the Arthritis Foundation (www.arthritis.org), and do a lot of

volunteer work for my local chapter. I can't figure out clearly which

Fibromyalgia organization is the primary group for advocacy and support, does

anyone have input about these groups?:

National Fibromyalgia Research Association: www.nfra.net

Fibromyalgia Network: www.fmnetnews.com

If neither of these is what you think I'm looking for, please direct me to a

good organization!

Thanks,

Kate P-B

Sent from my Verizon Wireless BlackBerry

[Guest guest]

Kate,

You should probably check these out, too:

National Fibromyalgia Association

http://www.fmaware.org

National Fibromyalgia Partnership, Inc.

http://www.fmpartnership.org

The American Fibromyalgia Syndrome Association, Inc.

http://www.afsafund.org

I'm not sure which organization is considered the primary one, but the

first one is referenced both at Medline and the American College of

Rheumatology.

Not an MD

On Tue, Jul 7, 2009 at 12:16 PM, <microminimalist@...> wrote:

> Hi all - quick question.

>

> I am a member of the Arthritis Foundation (www.arthritis.org), and do a lot of

volunteer work for my local chapter.  I can't figure out clearly which

Fibromyalgia organization is the primary group for advocacy and support, does

anyone have input about these groups?:

>

> National Fibromyalgia Research Association: www.nfra.net

>

> Fibromyalgia Network: www.fmnetnews.com

>

> If neither of these is what you think I'm looking for, please direct me to a

good organization!

>

> Thanks,

> Kate P-B

[Guest guest]

Thanks, ! Exactly the info I was looking for!

Take care,

Kate P-B

Sent from my Verizon Wireless BlackBerry

Re: [ ] Fibromyalgia organization?

Kate,

You should probably check these out, too:

National Fibromyalgia Association

http://www.fmaware.org

National Fibromyalgia Partnership, Inc.

http://www.fmpartnership.org

The American Fibromyalgia Syndrome Association, Inc.

http://www.afsafund.org

I'm not sure which organization is considered the primary one, but the

first one is referenced both at Medline and the American College of

Rheumatology.

Not an MD

On Tue, Jul 7, 2009 at 12:16 PM, <microminimalist@...> wrote:

> Hi all - quick question.

>

> I am a member of the Arthritis Foundation (www.arthritis.org), and do a lot of

volunteer work for my local chapter.  I can't figure out clearly which

Fibromyalgia organization is the primary group for advocacy and support, does

anyone have input about these groups?:

>

> National Fibromyalgia Research Association: www.nfra.net

>

> Fibromyalgia Network: www.fmnetnews.com

>

> If neither of these is what you think I'm looking for, please direct me to a

good organization!

>

> Thanks,

> Kate P-B

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