Guest guest Posted January 26, 2000 Report Share Posted January 26, 2000 Dear Joan, Ditto, Le Ann Hoping to get a copy of the book within the next month and when I do, I will be glad to share tidbits that seem appropriate to this list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 Ros, Although minocycline is a useful DMARD for RA and it is also possible that infection could play a role in the etiology of RA, I don't believe there is much current research which supports Brown's theory. Not an MD On Tue, Mar 8, 2011 at 5:37 AM, lind Gittings <rosalig@...> wrote: > Hi Janice > > You commented that " Down the road, I think a cure for some kinds of > RA are going to go back to the infections that seem to trigger it in > so many people. " Well, there are already thousands who are treating > their RA and other auto-immune diseases with antibiotics because they > believe many cases of it come from mycoplasma stealth bacteria and > research seems to bear this out. It's been a theory since the 1930's > and been treated with antibiotics since then but because it's such a > low dose it takes months to see results and people want quick results > so it's not a popular treatment with either rheumatologists or > patients. I opted for it because I didn't want the side effects of > the other drugs but I'm prepared to use them if the antibiotic > treatment isn't enough eventually. Cross my fingers it will be ok > though. > > Ros Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 Hi , Yes, there isn't much evidence out there. That's why I say it's a theory. But it is interesting to me that many people who take many different kinds of antibiotics for other reasons have periods of no pain for the duration of the medication. That's just anecdotal from people on the lists - some of them decided to use mino or doxycycline after they saw the effect of the other antibiotics on their disease. I'd love to know how they work. My doc says minocin is anti- inflammatory but if so, it's not terribly effective. It must be something to do with being a DMARD too. Plaquenil didn't work for me on its own but I added the minocin and it was brilliant. But had to stop the plaquenil and the inflammation worsened, though not too badly. Interesting. I appreciate all your research . You must enjoy it. I like research too but not so much on this disease as on other interests so I'm glad you're doing this one. It's a great service. Ros Quote Link to comment Share on other sites More sharing options...
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