Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Hi.... The nodule is either a nodule or a ganglian cyst. I also have Fibro now. I'm not a happy camper. Sounds like he'll be supporting disability if he gets the paperwork from them. I know my primary care has received it from them already. Got a new script for amitryptaline? Had blood drawn to check Vitamin D, liver and everything else. Am off MTX and Enbrel for a while as I've had the sniffles for 5 weeks. Sorry so short. Just feeling a bit frustrated. It just never ends. Heidi in Mass. **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 Thanks Doreen....just feeling a little overwhelmed. My unemployment may run out mid-march, which means my insurance will go with it. I just got a few more forms to complete for disability and things have just been sent to my Drs. I'm still sending out resumes and no one calls. LOL, I mean this is awful to be in this gray area. I know I'm not alone, I'm just venting. It is a horrible place to be. Not knowing which way to turn. I did a few errands today and now my elbows and shoulders feel like there are weights on them. I'm miserable, I should be locked in a closet until the real me comes back. Sorry guys. Heidi in Mass. In a message dated 1/21/2009 11:50:49 A.M. Eastern Standard Time, mimi212@... writes: Hi Heidi - You're not alone. I have RA and Fibromyalgia, too. I take the MTX injections instead of the pills and my system seems to be liking it better. I take Neurontin for the FM - that helps, but I get so sleepy for a while in the mornings. I also have nodules forming on my knuckles. My Rheumy didn't seem to concerned about them, but man oh man to they hurt if I bump them. Hang in there. Praying that you feel better soon.....Doreen > > Hi there, > > Yes it is nice to have a Rheumy that listens. He also called me > back at 5 minutes to 5 with my blood test results! Apparently he > ordered them stat. My liver is out of whack. So, no MTX for this > week for sure, and now when I do start it again, I'm to decrease > from 8 pills to 6 and then he wants another blood test. He didn't > want to do a knuckle shot today as I've had so many shots lately > he just wants to give my system a break. I have to go back in a > month and he'll reevaluate that nodule/cyst and everything else. > I'm just frustrated that now I have Fibro added to the mix. > Another DX. I have so many meds right now, and he's really good > about reviewing what I'm on and not wanting anything to clash with > another. I always bring him an updated list. Oh well, this is my > life. I know I'm not alone and I'm glad you replied to let me > realize that. Thanks so much ! > > Heidi in snowy Mass. **************Inauguration '09: Get complete coverage from the nation's capital. (http://news.aol.com/main/politics/inauguration?ncid=emlcntusnews00000003) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 Hi , I'd venture to guess it's the prednisone making you sick, but who knows, maybe you should have some crackers or something with it when you take it, see if that helps. Same for the MTX when you start that. Good luck with that, you'll notice a difference after a while. A good rheumy is hard to find, lock on, hold on tight! LOL. It's terrible when Drs. try to tell us it's all in our head. I haven't had that experience with this yet. I had it ages ago when my stomache stuff was going on, but that didn't last long. Anyway, good luck, keep us posted as to how you handle it. How much are you starting with? I'm starting my Amitryptaline tonight. Eek! Heidi in Mass. In a message dated 1/21/2009 11:03:42 P.M. Eastern Standard Time, betnden@... writes: , I've been told that I'm not disabled, I don't have RA, it's all in my head, and the list goes on. You just grin and bear it or just laugh in their face... Dennis in eastexas On Wed, Jan 21, 2009 at 10:37 AM, shellyg0106 <_shellyg0106@shellyg01_ (mailto:shellyg0106@...) > wrote: > I am new here, but was intrigued by the fact that you mentioned > having fibro with RA. I have had fibro for 15 years and was recently > diagnosed with RA. The meds are numerous! I will be starting > Methotrexate this weekend because, at least for now, I am trying to > keep my job. The 1st rheumy I saw said it was impossible to have > both fibro and RA, so I went somewhere else. I really like this new > doc. He seems to really care and he listens. I am on a laundry list > of drugs, but have just started predisone and folic acid and one or > the other is making me sick to my stomach - can't wait to see what > the MX does! > > > > > > > Hi there, > > > > Yes it is nice to have a Rheumy that listens. He also called me > back at 5 > > minutes to 5 with my blood test results! Apparently he ordered > them stat. My > > liver is out of whack. So, no MTX for this week for sure, and now > when I do > > start it again, I'm to decrease from 8 pills to 6 and then he > wants another > > blood test. He didn't want to do a knuckle shot today as I've had > so many > > shots lately he just wants to give my system a break. I have to go > back in a > > month and he'll reevaluate that nodule/cyst and everything else. > I'm just > > frustrated that now I have Fibro added to the mix. Another DX. I > have so many > > meds right now, and he's really good about reviewing what I'm on > and not wanting > > anything to clash with another. I always bring him an updated > list. Oh > > well, this is my life. I know I'm not alone and I'm glad you > replied to let me > > realize that. Thanks so much ! > > > > Heidi in snowy Mass. > > > > > > > > > > > > In a message dated 1/20/2009 8:58:47 P.M. Eastern Standard Time, > > cynthiadew1@ cynthi > > > > > > > > > > > > Hi, Heidi, > > > > Isn't it great to have a Rheumy that listens? I had a appointment > > today with my Rheumy too. He understands when he asks how I am > > doing, and my answer is " My knees don't hurt " . I laugh and joke > > around, because for me at least to do otherwise means the RA is > > winning. It's nice to have a Rheumy that 'gets' you. I just wanted > > you to know that there is someone else out there who has gone > weeks > > without their RA meds (I had surgery last month, and then caught a > > nasty cold.) So I've developed some lumps and bumps. My hands and > > feet are a mess, but I know that in a couple of weeks back on the > > meds I will feel better. The Doc thinks the nodules are either > > ganglian cysts or just my garden variety RA nodules. You will be > > happy to know, that they will go away. Just give them time. > > > > I hope your week and the coming month is better and with less > pain. > > And know that you are not alone in this. > > > > > > > > > > > > > > > > ************ ************<WBR>**A Good Credit Score is 700 or A > just 2 easy > > steps! > > (_http://pr.atwola.http://pr.atwhttp://pr.atwolahttp://pr.atwolahttp_ (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?) > redir=_http://www.freecredhttp://wwhttp://www.freehttp://www.free_ (http://www.freecreditreport.com/pm/default.aspx?sc=668072) > 26hmpgID=62% 26h > > cemailfooterNO62) > > > > > > [Non-text portions of this message have been removed] > > > > > [Non-text portions of this message have been removed] **************Inauguration '09: Get complete coverage from the nation's capital. (http://news.aol.com/main/politics/inauguration?ncid=emlcntusnews00000003) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 When I was working part of my job was to interview and hire. We were a small shop, and it's pretty tough just staying in business. If people related health issues it usually meant they would not be a good candidate. It's not fair, but it is a fact. Even now, in that situation, I wouldn't hire me. Stan, Seattle, partly cloudy with a sun break. -------------- Original message -------------- From: sposy@... Thanks Doreen....just feeling a little overwhelmed. My unemployment may run out mid-march, which means my insurance will go with it. I just got a few more forms to complete for disability and things have just been sent to my Drs. I'm still sending out resumes and no one calls. LOL, I mean this is awful to be in this gray area. I know I'm not alone, I'm just venting. It is a horrible place to be. Not knowing which way to turn. I did a few errands today and now my elbows and shoulders feel like there are weights on them. I'm miserable, I should be locked in a closet until the real me comes back. Sorry guys. Heidi in Mass. In a message dated 1/21/2009 11:50:49 A.M. Eastern Standard Time, mimi212@... writes: Hi Heidi - You're not alone. I have RA and Fibromyalgia, too. I take the MTX injections instead of the pills and my system seems to be liking it better. I take Neurontin for the FM - that helps, but I get so sleepy for a while in the mornings. I also have nodules forming on my knuckles. My Rheumy didn't seem to concerned about them, but man oh man to they hurt if I bump them. Hang in there. Praying that you feel better soon.....Doreen > > Hi there, > > Yes it is nice to have a Rheumy that listens. He also called me > back at 5 minutes to 5 with my blood test results! Apparently he > ordered them stat. My liver is out of whack. So, no MTX for this > week for sure, and now when I do start it again, I'm to decrease > from 8 pills to 6 and then he wants another blood test. He didn't > want to do a knuckle shot today as I've had so many shots lately > he just wants to give my system a break. I have to go back in a > month and he'll reevaluate that nodule/cyst and everything else. > I'm just frustrated that now I have Fibro added to the mix. > Another DX. I have so many meds right now, and he's really good > about reviewing what I'm on and not wanting anything to clash with > another. I always bring him an updated list. Oh well, this is my > life. I know I'm not alone and I'm glad you replied to let me > realize that. Thanks so much ! > > Heidi in snowy Mass. **************Inauguration '09: Get complete coverage from the nation's capital. (http://news.aol.com/main/politics/inauguration?ncid=emlcntusnews00000003) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 , I've been told that I'm not disabled, I don't have RA, it's all in my head, and the list goes on. You just grin and bear it or just laugh in their face... Dennis in eastexas On Wed, Jan 21, 2009 at 10:37 AM, shellyg0106 <shellyg0106@...> wrote: > I am new here, but was intrigued by the fact that you mentioned > having fibro with RA. I have had fibro for 15 years and was recently > diagnosed with RA. The meds are numerous! I will be starting > Methotrexate this weekend because, at least for now, I am trying to > keep my job. The 1st rheumy I saw said it was impossible to have > both fibro and RA, so I went somewhere else. I really like this new > doc. He seems to really care and he listens. I am on a laundry list > of drugs, but have just started predisone and folic acid and one or > the other is making me sick to my stomach - can't wait to see what > the MX does! > > > > > > > Hi there, > > > > Yes it is nice to have a Rheumy that listens. He also called me > back at 5 > > minutes to 5 with my blood test results! Apparently he ordered > them stat. My > > liver is out of whack. So, no MTX for this week for sure, and now > when I do > > start it again, I'm to decrease from 8 pills to 6 and then he > wants another > > blood test. He didn't want to do a knuckle shot today as I've had > so many > > shots lately he just wants to give my system a break. I have to go > back in a > > month and he'll reevaluate that nodule/cyst and everything else. > I'm just > > frustrated that now I have Fibro added to the mix. Another DX. I > have so many > > meds right now, and he's really good about reviewing what I'm on > and not wanting > > anything to clash with another. I always bring him an updated > list. Oh > > well, this is my life. I know I'm not alone and I'm glad you > replied to let me > > realize that. Thanks so much ! > > > > Heidi in snowy Mass. > > > > > > > > > > > > In a message dated 1/20/2009 8:58:47 P.M. Eastern Standard Time, > > cynthiadew1@... writes: > > > > > > > > > > > > Hi, Heidi, > > > > Isn't it great to have a Rheumy that listens? I had a appointment > > today with my Rheumy too. He understands when he asks how I am > > doing, and my answer is " My knees don't hurt " . I laugh and joke > > around, because for me at least to do otherwise means the RA is > > winning. It's nice to have a Rheumy that 'gets' you. I just wanted > > you to know that there is someone else out there who has gone > weeks > > without their RA meds (I had surgery last month, and then caught a > > nasty cold.) So I've developed some lumps and bumps. My hands and > > feet are a mess, but I know that in a couple of weeks back on the > > meds I will feel better. The Doc thinks the nodules are either > > ganglian cysts or just my garden variety RA nodules. You will be > > happy to know, that they will go away. Just give them time. > > > > I hope your week and the coming month is better and with less > pain. > > And know that you are not alone in this. > > > > > > > > > > > > > > > > **************A Good Credit Score is 700 or Above. See yours in > just 2 easy > > steps! > > (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol? > redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072% > 26hmpgID=62%26bcd=De > > cemailfooterNO62) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 Sorry for your pain and frustration, Heidi. I'm glad that at least it sounds as if your rheumatologist is good. Hang in there, Not an MD On Tue, Jan 20, 2009 at 1:06 PM, <sposy@...> wrote: > Hi.... > > The nodule is either a nodule or a ganglian cyst. I also have Fibro now. > I'm not a happy camper. Sounds like he'll be supporting disability if he > gets > the paperwork from them. I know my primary care has received it from them > already. Got a new script for amitryptaline? Had blood drawn to check > Vitamin > D, liver and everything else. Am off MTX and Enbrel for a while as I've had > the sniffles for 5 weeks. Sorry so short. Just feeling a bit frustrated. > It just never ends. > > Heidi in Mass. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Hi Heidi: Sorry to hear your latest dr. visit didn't go well for you. It is always something!!!!!! I hope you feel better, and that the sniffles just go away. You sure don't need anymore things to go wrong. I will try to send you a longer letter when I get on line again. Happy I can use my PC at the library. I need to bring a pillow next time. This chair is too hard!!!! Miss your letter etc. Talk very soon. Love and monster hugs to you!!!!!!!!!!!!!!!! Hugs, Barbara > > Hi.... > > The nodule is either a nodule or a ganglian cyst. I also have Fibro now. > I'm not a happy camper. Sounds like he'll be supporting disability if he gets > the paperwork from them. I know my primary care has received it from them > already. Got a new script for amitryptaline? Had blood drawn to check Vitamin > D, liver and everything else. Am off MTX and Enbrel for a while as I've had > the sniffles for 5 weeks. Sorry so short. Just feeling a bit frustrated. > It just never ends. > > Heidi in Mass. > **************A Good Credit Score is 700 or Above. See yours in just 2 easy > steps! > (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir\ =http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%2\ 6bcd=De > cemailfooterNO62) > > > Quote Link to comment Share on other sites More sharing options...
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