Doreen and Enbrel

[Guest guest]

Hi Doreen: It is too bad that the Enbrel isn't working for you. I know

you have been feeling awful lately. What does your Rheumy have to say?

Will you try another biological med.?

I too wish you would hear from S.S. and get approved so you can get

on with your life. I know it is a big worry for you, and you sure don't

need that in your life. Why they are so slow I don't know. Sure

creates so much stress for you.

I hope you find a new drug that works for you. You sure deserve to

feel better. Finding the right meds. for us is a slow uphill battle.

Wishing you pain free days ahead. Also, I pray you get approved

soon. At least that would lessen your stress level.

Take care, rest, and remember, I care about you.

Hugs,

Barbara

[Guest guest]

Hi Barbara - when I went to see my Rheumy the beginning of last month, he said

it could take up to 6 months to feel the benefits of Enbrel - but the Enbrel

site says 2-4 weeks. I'm not scheduled to go back to my Rheumy until the

beginning of August. I will call him beforehand, but I need to get my bloodwork

done first - I'm overdue. I'm hoping to go on Monday, but everytime I've planned

to go lately, I've felt too rotten to go anywhere. I need to quit putting it off

and just do it - somehow, someway.

Whether or not I try another biologic will depend on when SSD approves my case -

IF it ever does. Its only been two weeks since the hearing, but it feels like

two years - I've been waiting for sooo long. Thanks for the well wishes. I know

the added stress of waiting for a determination is not helping matters

any.....Doreen

>

>

> Hi Doreen: It is too bad that the Enbrel isn't working for you. I

> know you have been feeling awful lately. What does your Rheumy

> have to say? Will you try another biological med.?

>

> I too wish you would hear from S.S. and get approved so you can get

> on with your life. I know it is a big worry for you, and you sure

> don't need that in your life. Why they are so slow I don't know.

> Sure creates so much stress for you.

>

> I hope you find a new drug that works for you. You sure deserve to

> feel better. Finding the right meds. for us is a slow uphill

> battle.

>

> Wishing you pain free days ahead. Also, I pray you get approved

> soon. At least that would lessen your stress level.

>

> Take care, rest, and remember, I care about you.

>

> Hugs,

>

> Barbara

[Guest guest]

Hi Doreen:

I know you are under such stress, but you keep going and try to get

things done. I admire that in you. Stress is just so hard to deal

with. No wonder your R.A. and Fibro are giving you such a hard time.

I so hope the Enbrel starts to help you. You so need a break from all

you have been dealing with. I do know when you are waiting for such

important news, time drags on. I hope they let you know soon. I can't

see why you don't get approval for SSDI. They are just so slow with

their decisions, unfortunately. I am glad you are hanging in there.

I hope you can get out and get your blood work done. That is so

important for you to do. I need to get mine done in 2 weeks also.

I have an attny. appt. this Mon. to fill out and sign some more papers.

She will file them the next day. I will be glad when all is said and

done. I am doing o.k. but deep inside me I am very sad. I am trying

not to get depressed but I feel it some days. I hope this will pass.

Hope you have a good day Doreen, and it is always so nice to chat with

you. Praying for better days ahead for you, and to be pain free.

Hugs,

Barbara

> >

> >

> > Hi Doreen: It is too bad that the Enbrel isn't working for you. I

> > know you have been feeling awful lately. What does your Rheumy

> > have to say? Will you try another biological med.?

> >

> > I too wish you would hear from S.S. and get approved so you can get

> > on with your life. I know it is a big worry for you, and you sure

> > don't need that in your life. Why they are so slow I don't know.

> > Sure creates so much stress for you.

> >

> > I hope you find a new drug that works for you. You sure deserve to

> > feel better. Finding the right meds. for us is a slow uphill

> > battle.

> >

> > Wishing you pain free days ahead. Also, I pray you get approved

> > soon. At least that would lessen your stress level.

> >

> > Take care, rest, and remember, I care about you.

> >

> > Hugs,

> >

> > Barbara

>

[Guest guest]

Doreen,

I'm sorry the Enbrel hasn't started helping you. I tried Enbrel, and it

worked for a short time for me. I have been on Humira for awhile, and

it seems to be helping me, along with the mtx.

I know it may take awhile, but I would sure talk to the rheumy, and look

to try Humira in the future. It might be the one for you.

I'm sorry things are going so slow for you right now, and it doesn't

help to have added pain. Just know your in my thoughts and prayers, and

I am here through all this.

Hugs, Tawny

>

> Hi Barbara - when I went to see my Rheumy the beginning of last month,

he said it could take up to 6 months to feel the benefits of Enbrel -

but the Enbrel site says 2-4 weeks. I'm not scheduled to go back to my

Rheumy until the beginning of August. I will call him beforehand, but I

need to get my bloodwork done first - I'm overdue. I'm hoping to go on

Monday, but everytime I've planned to go lately, I've felt too rotten to

go anywhere. I need to quit putting it off and just do it - somehow,

someway.

>

> Whether or not I try another biologic will depend on when SSD approves

my case - IF it ever does. Its only been two weeks since the hearing,

but it feels like two years - I've been waiting for sooo long. Thanks

for the well wishes. I know the added stress of waiting for a

determination is not helping matters any.....Doreen

>

[Guest guest]

Thank you so much for your kind words, Barbara. Too bad we didn't live closer -

we could go and get our bloodwork done together. I'm going to check with Enbrel

when I call next week for a *maybe* refill and see what they think about how I

should be feeling by now.

It will be good when all that other paperwork is done and over for you. I know

how hard this has been. Unfortunately, I've been through it twice before myself.

It feels like a death sometimes and I think you have to allow yourself a little

time to grieve. The Cinderella theory is a fallacy - which (I think) makes it

even harder for women going through it, because as little girls we always

believed that we'd marry our prince and live happily-ever-after. Some are

fortunate and live the fairy tale - but in this day and age, there are more

people who are incapable of honoring those vows as the lifetime promise they

were meant to be.

Hang in there sweet lady. Allow yourself the time to grieve, then pick yourself

up, dust yourself off and go on from here knowing you are NOT the one who broke

your vows. You are blessed to have such a loving family there with you so you

are not alone. Get involved with others your age when you can - perhaps your

prince is still out there somewhere. Its obvious this other one never

transformed from a toad.

Love & Hugs.....Doreen

>

>

> Hi Doreen:

>

> I know you are under such stress, but you keep going and try to get

> things done. I admire that in you. Stress is just so hard to deal

> with. No wonder your R.A. and Fibro are giving you such a hard

> time.

>

> I so hope the Enbrel starts to help you. You so need a break from

> all you have been dealing with. I do know when you are waiting for

> such important news, time drags on. I hope they let you know

> soon. I can't see why you don't get approval for SSDI. They are

> just so slow with their decisions, unfortunately. I am glad you

> are hanging in there.

>

> I hope you can get out and get your blood work done. That is so

> important for you to do. I need to get mine done in 2 weeks also.

>

> I have an attny. appt. this Mon. to fill out and sign some more

> papers. She will file them the next day. I will be glad when all

> is said and done. I am doing o.k. but deep inside me I am very

> sad. I am trying not to get depressed but I feel it some days. I

> hope this will pass.

>

> Hope you have a good day Doreen, and it is always so nice to chat

> with you. Praying for better days ahead for you, and to be pain

> free.

>

> Hugs,

>

> Barbara

[Guest guest]

Hi Doreen:

Thank you so much for your kind sweet words. I know you know what I am

going through. You are right. I guess I am grieving for my lost

marriage and my husband. It is all just so sad. I thought I was his

forever wife and he my forever husband. I am trying so hard to stay

positive, but some days it is very hard to do.

I joined the Senior Center here, but they don't do much. I need to get

involved with something so I can meet some woman friends. I had what I

thought was a great friend here for 5 years. She did something so

unforgivable that I terminated our friendship.

I wish my family was closer, but can't change that. I miss my 2 little

babydolls so much. They are 3 and 2 now, and so cute. They are all

coming to visit this fall. I was going to go home next month, but the

flights are still too high.

How far away are we from each other? I am 30 min. from Ft. Myers.

As soon as my financial picture improves, I plan to travel some. I hope

the Judge sees what has been done to me. I simply can't live without

money. Time will tell. I wish the courts weren't so slow down here.

Once again, thanks for your kind and caring words. You are a smart

woman. I feel bad that you had the same thing done to you. I will be

happy again in time. I know you are now. That is so wonderful for you.

Take care of yourself, and talk soon. Wishing you many pain free days

ahead, and your SSDI approval!!!!

Hugs, Your friend,

Barbara

> >

> >

> > Hi Doreen:

> >

> > I know you are under such stress, but you keep going and try to get

> > things done. I admire that in you. Stress is just so hard to deal

> > with. No wonder your R.A. and Fibro are giving you such a hard

> > time.

> >

> > I so hope the Enbrel starts to help you. You so need a break from

> > all you have been dealing with. I do know when you are waiting for

> > such important news, time drags on. I hope they let you know

> > soon. I can't see why you don't get approval for SSDI. They are

> > just so slow with their decisions, unfortunately. I am glad you

> > are hanging in there.

> >

> > I hope you can get out and get your blood work done. That is so

> > important for you to do. I need to get mine done in 2 weeks also.

> >

> > I have an attny. appt. this Mon. to fill out and sign some more

> > papers. She will file them the next day. I will be glad when all

> > is said and done. I am doing o.k. but deep inside me I am very

> > sad. I am trying not to get depressed but I feel it some days. I

> > hope this will pass.

> >

> > Hope you have a good day Doreen, and it is always so nice to chat

> > with you. Praying for better days ahead for you, and to be pain

> > free.

> >

> > Hugs,

> >

> > Barbara

>