Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 Thanks Doc, Seems to me treatment is probably the best option for me at this time. >From: " Doc " <gidoc@...> >Reply-Hepatitis Cegroups ><Hepatitis Cegroups> >Subject: Re: biopsy >Date: Mon, 17 Jul 2000 23:17:33 +0530 > >Dear Dee Dee, > >I must have said this earlier but I dont mind stating it again, >currently treatment options for HCV depend upon a high HCV RNA load >alone. They are further reinforced if you have demonstrable hepatitis( >elevated AST/ALT) and or fibrosis( on liver biopsy) going on. This is so >because merely decreasing the viral load has been shown to be of benefit >in halting progression of the disease to cirrhosis and HCC. It is true >that biopsy is the best instrument for determinig the state of the liver >disease. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 Thanks Doc, Seems to me treatment is probably the best option for me at this time. >From: " Doc " <gidoc@...> >Reply-Hepatitis Cegroups ><Hepatitis Cegroups> >Subject: Re: biopsy >Date: Mon, 17 Jul 2000 23:17:33 +0530 > >Dear Dee Dee, > >I must have said this earlier but I dont mind stating it again, >currently treatment options for HCV depend upon a high HCV RNA load >alone. They are further reinforced if you have demonstrable hepatitis( >elevated AST/ALT) and or fibrosis( on liver biopsy) going on. This is so >because merely decreasing the viral load has been shown to be of benefit >in halting progression of the disease to cirrhosis and HCC. It is true >that biopsy is the best instrument for determinig the state of the liver >disease. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 Thanks Doc, Seems to me treatment is probably the best option for me at this time. >From: " Doc " <gidoc@...> >Reply-Hepatitis Cegroups ><Hepatitis Cegroups> >Subject: Re: biopsy >Date: Mon, 17 Jul 2000 23:17:33 +0530 > >Dear Dee Dee, > >I must have said this earlier but I dont mind stating it again, >currently treatment options for HCV depend upon a high HCV RNA load >alone. They are further reinforced if you have demonstrable hepatitis( >elevated AST/ALT) and or fibrosis( on liver biopsy) going on. This is so >because merely decreasing the viral load has been shown to be of benefit >in halting progression of the disease to cirrhosis and HCC. It is true >that biopsy is the best instrument for determinig the state of the liver >disease. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 Thanks Doc, Seems to me treatment is probably the best option for me at this time. >From: " Doc " <gidoc@...> >Reply-Hepatitis Cegroups ><Hepatitis Cegroups> >Subject: Re: biopsy >Date: Mon, 17 Jul 2000 23:17:33 +0530 > >Dear Dee Dee, > >I must have said this earlier but I dont mind stating it again, >currently treatment options for HCV depend upon a high HCV RNA load >alone. They are further reinforced if you have demonstrable hepatitis( >elevated AST/ALT) and or fibrosis( on liver biopsy) going on. This is so >because merely decreasing the viral load has been shown to be of benefit >in halting progression of the disease to cirrhosis and HCC. It is true >that biopsy is the best instrument for determinig the state of the liver >disease. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2000 Report Share Posted July 19, 2000 Sylv, Thats funny, Yeah I also feel there are alot of other things I'd rather be doing on a day I'll miss of work. The antipication is probably worse than the actual experience of the biopsy. You gotta do what you gotta do. I'm thankful I have insurance. Thats another reason I'm going ahead. It's through my employer. Socialized medicine......I doubt if here in the U.S. we'll ever see it. Best of Luck to you.....Dee Dee >From: " sylvati " <sylvati@...> >Reply-Hepatitis Cegroups ><Hepatitis Cegroups> >Subject: Re: biopsy >Date: Mon, 17 Jul 2000 08:59:53 +0100 > >Hi Dee Dee, Yes England. Here we fortunately do not have to pay for >treatment. There is a knack for manipulating the system til you get seen >to >properly though! > >You ask about the biopsy. I can think of better things to do with a >handsome young man than having him slide several inches of steel between my >ribs but that was all he was interested in at the time! I was completely >petrified and gibbering and blubbing all the way through. However, >although >I felt pricks from the many injections of local anaesthetic given first, >there was very little actual pain, either during or after. The worst thing >about it was just the sheer terror! I had heard that sometimes you can get >pain in your right shoulder but this didn't happen to me. If you can find >someone to go along & hold your hand it would probably help. Good luck >with >it. love sylv > biopsy > > > > > > > > > > Hi Everybody, > > > > I hope this posts this time. I seen my Doctor and have an appt. for >a > > > > biopsy the 9th of Aug. This was my request. He agreed but said all >my > > > > blood tests came back favorable, indicating little or no liver >damage. > > >My > > > > blood is cloting fine. He said being genotype 2b means 6 months > > >treatment > > > > and a 40% chance of clearing the virus. I asked if he ran a PCR to >find > > >out > > > > my viral load and he said it doesn't tell you much. Is that true? > > >Makes > > >me > > > > wonder if they are trying to keep costs down. I was wondering if >blood > > > > tests are accurate enough to determine how well the liver is > > >functioning? > > > > Maybe I don't need to have the biopsy. If very little damage, I'm > > >opting > > > > not to go through with treatment for now, otherwise yes. To biopsy >or > > >not > > > > to biopsy........thanks for the input I received on symptoms before > > > > treatment.......Dee Dee > > > > >________________________________________________________________________ > > > > Get Your Private, Free E-mail from MSN Hotmail at >http://www.hotmail.com > > > > > > > > > > > > > ------------------------------------------------------------------------ > > > > Get a NextCard Visa, in 30 seconds! > > > > 1. Fill in the brief application > > > > 2. Receive approval decision within 30 seconds > > > > 3. Get rates as low as 2.9% Intro or 9.9% Fixed APR > > > > 1/6631/1/_/619765/_/963730257/ > > > > > ------------------------------------------------------------------------ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 <<I must have said this earlier but I dont mind stating it again, currently treatment options for HCV depend upon a high HCV RNA load alone. They are further reinforced if you have demonstrable hepatitis( elevated AST/ALT) and or fibrosis( on liver biopsy) going on. >> Glad you're not my doc! hahahaha I have very mild inflamation, normal liver enzymes, low viral load. Starting 3rd month treatment and feel great! alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 <<I must have said this earlier but I dont mind stating it again, currently treatment options for HCV depend upon a high HCV RNA load alone. They are further reinforced if you have demonstrable hepatitis( elevated AST/ALT) and or fibrosis( on liver biopsy) going on. >> Glad you're not my doc! hahahaha I have very mild inflamation, normal liver enzymes, low viral load. Starting 3rd month treatment and feel great! alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 In a message dated 9/2/00 10:04:09 PM Pacific Daylight Time, egroups writes: << ust read some of the posts and was shocked to read yours. I sure hope your daughters biopsy turns out okay. It sounds like another real life Brockivich story. Our prayers and thoughts are with her.[[[[[[[[[[[hugs]]]]]]]]]]]. >> >> Okay, Gail, I missed it, as usual.......what's the story?? Saying a prayer that everything works out okay...... God Bless, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 In a message dated 9/5/00 9:50:27 AM Eastern Daylight Time, Ltb3105@... writes: << Okay, Gail, I missed it, as usual.......what's the story?? Saying a prayer that everything works out okay...... God Bless, >> Hi , I told about our local high school being built in a red zone because they got the land for the bargain price of $1.00 and how now there are over 40 kids with cancer from the school. My daughter just found out she needs a biopsy. Another brilliant move on the school districts part! Thanks for the prayer . All these kids sure need them. I spent the day today with the Mother of one of the kids that are dying. Sure hope I never have to travel that sad, sad road. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Dear Jenn..mine was a brownish color...kinda made me wonder but it was stage II moderate fibrosis. I was thinking it should be pink....oh well. So, my answer I don't know!!!! sorry, mzgee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 hi, mine was the color of tomato flesh kind of red >From: Mzgee1@... >Reply-Hepatitis Cegroups >Hepatitis Cegroups >Subject: Re: biopsy >Date: Fri, 3 Nov 2000 13:40:49 EST > >Dear Jenn..mine was a brownish color...kinda made me wonder but it was >stage >II moderate fibrosis. I was thinking it should be pink....oh well. So, my >answer I don't know!!!! sorry, mzgee > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Good for you Jenn, yes it is very good. Now that the biopsy is behind you, don't you think the worrying was worse than the biopsy. I was like you in expecting a lot of pain everyone told me it was one of the worse pains I would ever have, (I knew that much was not true). I did not have anyone like the people here to talk to. I was thinking the other day, how did I find this group. I can't remember, maybe I will remember someday. Claudine or Marty or someone else might know about the color, I don't...Take Care, Connie I am sorry I did not Welcome all the newcomers, I have not felt real good. So I am saying WELCOME, to you all now. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Good for you Jenn, yes it is very good. Now that the biopsy is behind you, don't you think the worrying was worse than the biopsy. I was like you in expecting a lot of pain everyone told me it was one of the worse pains I would ever have, (I knew that much was not true). I did not have anyone like the people here to talk to. I was thinking the other day, how did I find this group. I can't remember, maybe I will remember someday. Claudine or Marty or someone else might know about the color, I don't...Take Care, Connie I am sorry I did not Welcome all the newcomers, I have not felt real good. So I am saying WELCOME, to you all now. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 jenn.. you mean the color of your liver sliver? Mine was bright red, doc said that looked " healthy " , but I'm sure it just means it's an indication, not anything definite. I mean if your liver came out looking like cooked meat, I'd start to worry! alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 am I a hepper or what.. the whole point of my previous post was a joke sheesh... I said hell yeah my liver is brite red doc! You'd be red with anger too if someone stabbed your guts and pulled out a living sliver! ok ok lame liver sliver joke Its the weekend and I did my pcr lab yesterday and I feel like crap today so played hooky from work but I don't care cause it's Friday and I'm too tired to worry about it alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Mine was a color between you two's color. --- jenn fisher <jenniboop2@...> wrote: > hi, mine was the color of tomato flesh kind of red > > >From: Mzgee1@... > >Reply-Hepatitis Cegroups > >Hepatitis Cegroups > >Subject: Re: biopsy > >Date: Fri, 3 Nov 2000 13:40:49 EST > > > >Dear Jenn..mine was a brownish color...kinda made > me wonder but it was > >stage > >II moderate fibrosis. I was thinking it should be > pink....oh well. So, my > >answer I don't know!!!! sorry, mzgee > > > > > >[Non-text portions of this message have been > removed] > > > > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at > http://www.hotmail.com. > > Share information about yourself, create your own > public profile at > http://profiles.msn.com. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Hey Pat you are doing real good, you have been working. That is much more than me, not that I don't want to. I have been doing some volunteer work here where I am. Last night I made it in and was installing modems for this church group that is trying to teach young and even older people to have self esteem and knowledge to get out from under welfare. I am setting up their computers and will be teaching computer classes to them. It is kind of scary but I know I have it in my brain. Maybe, I need to attend the self esteem courses myself, smile. They also understand if I am not feeling up to it I will not be there. It makes me feel good that I can contribute to making these people's live's better......Connie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Hello Jenn, I didnt know the color was a factor also. Mine is described as tan. I am 3a stage 2 virus. Maybe the lighter the better. Dunno. Flo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2000 Report Share Posted November 12, 2000 I just have to try to get over this whole thing about being preoccupied with thinking about this biopsy. After all he has not even suggested it to me again. My Hepatologist said after two years I will need another one. Well, here it is two years later and he has not mentioned it again(and of course I will not mention it either). Sometimes I ask myself why me???? Does anyone else ever do this? I hate to feel sorry for myself but sometimes I do(esp when I am tired or menses, or achy) Oh well sometimes I feel very lucky that I have these children because I cannot dwell tooooo long on anything. I mean its time to eat, drink, play games and be mommy. LUCKY ME!!! LOVE, AMY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2000 Report Share Posted November 12, 2000 Amy, It is very easy to feel sorry for yourself and that is OK. You don't want to stay there very long because it can keep you there. I really had pity after my transplant I was pathetic. Then one day took over a year I told myself this is enough during my clinic visit told the doctor I was depressed of which the doc gave me Zoloft. I researched about every test I had to go through how it is done, why, I knew more about my procedures than the docs did. I still do. I am the type who hates surprises the docs know that yet they don't get it, then I turn into a very nasty bitch. This is my life I have to deal with the pain the tests the illnesses that go along with it the side effects I have to decide where to place and understand. You must try to get your mind off the medical side for a while and I know how hard that can be. Even for just a moment forget who you are and enjoy some of your life and your children before you lose those moments. Try not to worry about what hasn't happened yet. Just know you are still alive to be with your children. You will eventually get use to this all and put it in its place just another part of your life. gayle/trans.6-99 galye@... ^OO^ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 sorry about caps don;t yell at me >< egroups> >From: " janetelmes " <janetelmes@...> >Date: Mon, 13 Nov 2000 12:12:02 -0000 >Reply- egroups >Subject: [ ] Biopsy > >What am I missing here? I had a liver puncture biopsy a few years ago and only had the numbing injection. I understood that you had to be awake in order to be able to hold your breath while the needle was inside so that it did not damage the tissue it passed through as you breathed in and out. > >My experience was awful, and to make it worse, the doctor had not done one before and found he had not got enough liver tissue in the needle so he had to do another one straight away (by which time the numbness was nearly worn off!). It could be that it felt so awful because my liver was damaged and was a lot harder than a good one. > >I also expressed the view that if they ever wanted to do another biopsy they would have to catch me first. I've been in training ever since. LOL > >I would be a lot happier if I knew that I could be asleep if it was done again. I have knock-out drops for my endoscopies and they don't worry me at all though when they do banding of the varices I have a memory like a bad dream afterwards of my chest being full of fighting people, all elbows and knees, and I am trying to pull them out! > >Janet >UK > > ><< msg2.html >> ------------------------------------------------------------ How do you spell EMAIL? You @ 37.com - The world's easiest free Email address Get your free email at: http://email.37.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 Janet i also had a very bad biopsy. i now go to a diffrent gastro mainly because of that. my new gastro knows where i stand about a biopsy. i am asleep or VERY drugged or forget about it. heidi >< egroups> >From: " janetelmes " <janetelmes@...> >Date: Mon, 13 Nov 2000 12:12:02 -0000 >Reply- egroups >Subject: [ ] Biopsy > >What am I missing here? I had a liver puncture biopsy a few years ago and only had the numbing injection. I understood that you had to be awake in order to be able to hold your breath while the needle was inside so that it did not damage the tissue it passed through as you breathed in and out. > >My experience was awful, and to make it worse, the doctor had not done one before and found he had not got enough liver tissue in the needle so he had to do another one straight away (by which time the numbness was nearly worn off!). It could be that it felt so awful because my liver was damaged and was a lot harder than a good one. > >I also expressed the view that if they ever wanted to do another biopsy they would have to catch me first. I've been in training ever since. LOL > >I would be a lot happier if I knew that I could be asleep if it was done again. I have knock-out drops for my endoscopies and they don't worry me at all though when they do banding of the varices I have a memory like a bad dream afterwards of my chest being full of fighting people, all elbows and knees, and I am trying to pull them out! > >Janet >UK > > ><< msg2.html >> ------------------------------------------------------------ How do you spell EMAIL? You @ 37.com - The world's easiest free Email address Get your free email at: http://email.37.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 I was told the same thing. Minw is on Thursday, and he told me he had to keep me awake to breath. Christi. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 Janet, I don't blame you for being afraid to have another biopsy. Your experience was a nightmare. You are right about needing to be awake during the biopsy. I too had Versed, but I was not in a half sleep. I was awake enough to know when to hold my breath. It did give me an incredible buzz that took the fear away. I think the key to having a positive experience is to make sure the radiologist who does the test has EXPERIENCE doing liver biopsies. Experience coupled with " good drugs " might make all of the difference in the world. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 Everything Jerry said was like what I experienced; he just described it more clearly and thoroughly than I was able to. The biopsy was, for me, at least, a piece of cake. And it is a very useful tool in moving toward recovery. Harper (AIH 5/00) Quote Link to comment Share on other sites More sharing options...
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