Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 Hi Debby, Thanks for writing. You are the first person I have found who lives even remotely close to Spokane. That's very exciting for me. I'd love to be a part of a support group. Do you have one, or are you interested? I live on the South Hill and would gladly host people here. I didn't have much faith in the Hep. in Spokane and that's why I waited 10 months to see Dr. Kowdley in Seattle. He was recommended by Dr. Gershwin from UC who does the research on PBC that the PBCers support. Regards to all, Nina in Spokane, Dx PBC 4/05 PMR 4/06 Just received the news: Stage 2 PBC Leave your organs here on earth, HEAVEN knows we need them! SUPPORT ORGAN DONATION Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 I've had good and bad biopsies. One hurt like hell -- the puncture through the capsule surrounding the liver and another I could hardly feel, the sound of the clicking was worse than the 18 gauge needle going in for the samples. It all depends on who does the procedure. I ask how many they've done, have they ever had one, and what sort of pain management do they give afterward. I ask for Percocet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2006 Report Share Posted September 30, 2006 Nina, I don't live near Spokane now...sorry that I misled you. Actually we are in Central Calif...a bit of a drive! As for Dr. Gershwin is well thought of, and actually, if a guy in Seattle was recommended to you, I would stick with him. The liver guy that I see is from San Francisco (he an absolutely CREEP! but supposed to be the one you want for a transplant). So, I will stick with that group. There would be no chance of you getting a decent liver transplant team in Spokane even though they do have good hospitals...I would opt for Seattle myself. Yes, it is a drive, but worth it. We took our son to see a doctor when he was little in Seattle and it was a drive, but the doctor was very very good! Anyway, perhaps when we drive through sometime, we can meet! I think that would be fun! Good luck with your illness! Debby [ ] Re: Biopsy Hi Debby, Thanks for writing. You are the first person I have found who lives even remotely close to Spokane. That's very exciting for me. I'd love to be a part of a support group. Do you have one, or are you interested? I live on the South Hill and would gladly host people here. I didn't have much faith in the Hep. in Spokane and that's why I waited 10 months to see Dr. Kowdley in Seattle. He was recommended by Dr. Gershwin from UC who does the research on PBC that the PBCers support. Regards to all, Nina in Spokane, Dx PBC 4/05 PMR 4/06 Just received the news: Stage 2 PBC Leave your organs here on earth, HEAVEN knows we need them! SUPPORT ORGAN DONATION Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2006 Report Share Posted September 30, 2006 Yeah...it WAS the noise/sound that was the worst! It was a very odd sound! Debby [ ] Re: Biopsy I've had good and bad biopsies. One hurt like hell -- the puncture through the capsule surrounding the liver and another I could hardly feel, the sound of the clicking was worse than the 18 gauge needle going in for the samples. It all depends on who does the procedure. I ask how many they've done, have they ever had one, and what sort of pain management do they give afterward. I ask for Percocet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2006 Report Share Posted December 22, 2006 THAT is awesome and such a wonderful Christmas present!!! Did you recently have a PCR to see if you had any viral load too? Im just wondering! jaxthesissybabe <thesissybabe@...> wrote: I recently, the day before thanksgiving, had a biopsy which I had put off for a long time due to no insurance and the pain. Well the procedure was quite a bit different than the last one I had. Thank God the biopsy came back okay! The hep c is inactive and I am still in stage one with no fibrosus. What a great christmas gift. I was not looking forward to another round of treatments. God bless and I hope everyone has a great christmas and a blessed new year.Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 dang you nikki ya didnt have ta make me look that deep into it.lol but thats so true.Nikki Cowan <nikkicowan@...> wrote: That was pretty promising information that you posted about the blood tests replacing the need for biopsy, Tim. Hope that it works out to be true. Good though, that they are finding good levels in your scans, etc. Scary, though, how so many different doctors treat in such varied ways the same problem. And the variations in individual response to the virus just add to the confusion. Nikki i understand this.#1 i cant even see a doc its always the practioner#2 ive told both docs this.#3i dunno lolJackie on <redjaxjm > wrote: EVERYONE needs a biopsy,, you CANNOT tell how much damage you have without one Tim.. Tim Parsons knoxville,tn 37931 865-588-2465 x107 work www.knoxville1.com The fish are biting. Get more visitors on your site using Search Marketing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 Nikki, the fibrosure test is only accurate at both ends of the spectrum and very UN-reliable in the middle stages,, maybe in time they will get it figured out but as for right now, they are not very reliable.. I have my own case as an example and have heard of several others too.. If you are stage 0-1 OR 4,, its accurate but if you are inbetween 1-4, its NOT reliable... unfortunately.. oh how much easier it would have been..Nikki Cowan <nikkicowan@...> wrote: That was pretty promising information that you posted about the blood tests replacing the need for biopsy, Tim. Hope that it works out to be true. Good though, that they are finding good levels in your scans, etc. Scary, though, how so many different doctors treat in such varied ways the same problem. And the variations in individual response to the virus just add to the confusion. Nikki i understand this.#1 i cant even see a doc its always the practioner#2 ive told both docs this.#3i dunno lolJackie on <redjaxjm > wrote: EVERYONE needs a biopsy,, you CANNOT tell how much damage you have without one Tim.. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2007 Report Share Posted February 23, 2007 Well that is sure too bad. Yes, perhaps that will improve, I hope. It would make testing much more available to those of us that fall through the cracks and can get neither aid nor insurance. Thanks for the info. Nikki Nikki, the fibrosure test is only accurate at both ends of the spectrum and very UN-reliable in the middle stages,, maybe in time they will get it figured out but as for right now, they are not very reliable.. I have my own case as an example and have heard of several others too.. If you are stage 0-1 OR 4,, its accurate but if you are inbetween 1-4, its NOT reliable... unfortunately.. oh how much easier it would have been.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2007 Report Share Posted February 23, 2007 well Im sure they ARE working on improving the parameters and it will, in time be better.. do you know what stage you are at Nikki? If you are stage 0-1, you can safely rely on its results...Nikki Cowan <nikkicowan@...> wrote: Well that is sure too bad. Yes, perhaps that will improve, I hope. It would make testing much more available to those of us that fall through the cracks and can get neither aid nor insurance. Thanks for the info. Nikki Nikki, the fibrosure test is only accurate at both ends of the spectrum and very UN-reliable in the middle stages,, maybe in time they will get it figured out but as for right now, they are not very reliable.. I have my own case as an example and have heard of several others too.. If you are stage 0-1 OR 4,, its accurate but if you are inbetween 1-4, its NOT reliable... unfortunately.. oh how much easier it would have been.. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 can i ask why they did a biopsy on him. what are they concerned about. thanks char Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 My sons lymph nodes go down into his chest some times. Some times his neck is so swollen that it hurts to move but the dr. said it is part of . don't they think it's connected ... im sorry to hear that he has to have this done. My son is 13 and I think it would probably hurt me just as bad as him. good luck to both of you and please keep us informed of his progress bless you char Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 They wanted to see why his lymph glands are always so swollen so they wanted to see what was causing them to swell and stay swollen. They got in there today and couldnt get to his lymph nodes so they biopsied his muscle. very frustrating. Cause now they will have to go and do it again it makes me wonder why he did it. the muscle was swollen and he thought it was the lymph node, it really upsets me cause the nih wanted the lymph node tissue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Yeah nick's has always did it that is why they thought he had . Like fran said we are really not in the PFS class they are not sure exactly what is going on. Yeah it kills me when my sons go through this, I think it hurts me more then them. thank you good luck with your son as well and keep me posted i willl keep you all informed if we learn something Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 I have had three punch biopsies with the diagnosis of folliculitis. Dah!........My unanswered question still remains, what is causing the inflammation? My three derms were incredibly...........ok, I will be nice......they didn't remain my derms. biopsy has anyone here ever done a biopsy for this? and if you did, what werethe results? i did two biopsies and both came out as "insect bites" but they didn'tknow what kinda bites or provide me with any helpful information. soyah i was wondering if you guys have the same results and what the docrecommended you do to help it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 I know that if I have to deal with this a few more months I will be seeking treatment outside of this country. Almost got the ivermectim for myself today, but going to wait for one more big clean and Elimite treatment. Diet has really changed, and no includes heavy garlic and spice, plus garlic tablets, and 4 parasite cleans capsules...and no sweets. :/ > > I have had three punch biopsies with the diagnosis of folliculitis. Dah!........My unanswered question still remains, what is causing the inflammation? My three derms were incredibly...........ok, I will be nice......they didn't remain my derms. > > > > biopsy > > > has anyone here ever done a biopsy for this? and if you did, what were > the results? > > i did two biopsies and both came out as " insect bites " but they didn't > know what kinda bites or provide me with any helpful information. so > yah i was wondering if you guys have the same results and what the doc > recommended you do to help it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Only you will have to make that choice. I will gladly share my situation and, maybe you can get something from it. Yes, cancer can be spread with a biopsy. I joined this group after my biopsy came back prostate cancer. I joined groups, read as much as I could. Information will be your biggest weapon. Cancer cells get their energy by stagnation and, feed on sugar. And, they cannot live in an alkaline environment. Now, I had a radical prostate removal. I had it because my family was beside themselves when I told them I wasnt having surgery. But, after I read a bit, I found an herb called, Paw Paw which has been known to kill cancer cells. (So does Graviola but, PP is stronger) I drastically reduced my sugar. Gave up soda, cakes etc. I also take a bicarbinate in the AM and PM to boost my PH. Fresh vegetables, and a little fruit. All organic if possible. My Gleason scale was a 9 with cancer in 4 of the 6 biopsies. On surgery day, the doctor sounded grim and told me he would take the lymph glands and, if they looked bad, he would just sew me up. I asked how everything looked at first glance. His answer was " not too bad " . So, I do think what I was doing, was definately helping. I wished I didnt have the surgery but, my two daughters were on verge of a nervous breakdown. You will get some wonderful input from these people here. > > Hi all:) > > I am new member of the group.I am in urgent situation so i am asking > this question to you without being able to make any searches at > archieves. so,excuse me for that please. > > My gynecologist detected a structure in my uterus and he wants me to > have biopsy for it. I am reluctant to have it as i have read in the > past that it might cause spreading of the cancerious cells. > > I would like to take your opinion on this. > best wishes > nil > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 You will need to make that decision yourself. I prefer to know exactly what is going on, so I did the biopsy. ar On Wed, 20 Aug 2008 23:49:38 -0000, " yildiz " <yildiz22@...> said: > Hi all:) > > I am new member of the group.I am in urgent situation so i am asking > this question to you without being able to make any searches at > archieves. so,excuse me for that please. > > My gynecologist detected a structure in my uterus and he wants me to > have biopsy for it. I am reluctant to have it as i have read in the > past that it might cause spreading of the cancerious cells. > > I would like to take your opinion on this. > best wishes > nil -- Arlyn Grant arlynsg@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 what brand of paw paw did you use? From: mfsevera ....Cancer cells get their energy by stagnation and, feed on sugar. And, they cannot live in an alkaline environment. Now, I had a radical prostate removal. I had it because my family was beside themselves when I told them I wasnt having surgery. But, after I read a bit, I found an herb called, Paw Paw which has been known to kill cancer cells. (So does Graviola but, PP is stronger) I drastically reduced my sugar. Gave up soda, cakes etc. I also take a bicarbinate in the AM and PM to boost my PH. Fresh vegetables, and a little fruit. All organic if possible........... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Just my opinion.. I would do the biopsy, then maybe do the Budwig diet, pawpaw, and evrything else re prevention. I had bleeding in my urine for over 6 months and the docs kept aying it was just enlarged prosate..finally they did a cytoscopic exam, where they go in and take a look,a nd found 3 tumors in my bladder..they took them out, and said one was " aggressive, and usually comes back, and then they woulfd have to remove the bladder " , which a BIG surgery !! An oncologist said " youhave to have 6 chemo treatemnts ,plus maybe radiation,and they will still have to remove the bladder " Her reason was ' afew cells amy ahve escaped, nd there is no reliable test to detect them!! I dont think money was her motive,,she works for the county hospital.. I am not going to do that..I am going to get this BCG treatment thru a catheter..much less invasive, and has a high success rate of preventing recurrences..plus Budwig,pawpaw, etc.. I just wish they had diagnosed it earlier.it probably was not aggressive in the early stages..What a hassle!! " yildiz " <yildiz22@...> wrote: I am new member of the group...My gynecologist detected a structure in my uterus and he wants me to have biopsy for it. I am reluctant to have it as i have read in the past that it might cause spreading of the cancerious cells. I would like to take your opinion on this. best wishes nil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Paw Paw and graviola reduce the ATP energy of all cells in the body. Supposedly, cancer cells have a lower ATP energy level than normal cells, so lowering all ATP energy will kill cancer cells, but normal cells still have enough ATP activity to stay alive. However, some things raise ATP energy. I believe these include CoQ10, flaxseed oil, alpha lipoic acid, and some other things. I think these things need to be avoided in a low ATP protocol. Conversely, they are taken in large doses in a high ATP protocol. > > what brand of paw paw did you use? > > > From: mfsevera > ...Cancer cells get their energy by stagnation and, feed on sugar. And, they cannot live in an alkaline environment. > Now, I had a radical prostate removal. I had it because my family was beside themselves when I told them I wasnt having surgery. But, after I read a bit, I found an herb called, Paw Paw which has been known to kill cancer cells. (So does Graviola but, PP is stronger) I > drastically reduced my sugar. Gave up soda, cakes etc. I also take a bicarbinate in the AM and PM to boost my PH. Fresh vegetables, and a little fruit. All organic if possible........... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Natures Sunshine. It's the only brand I found. > > what brand of paw paw did you use? > > > From: mfsevera > ...Cancer cells get their energy by stagnation and, feed on sugar. And, they cannot live in an alkaline environment. > Now, I had a radical prostate removal. I had it because my family was beside themselves when I told them I wasnt having surgery. But, after I read a bit, I found an herb called, Paw Paw which has been known to kill cancer cells. (So does Graviola but, PP is stronger) I > drastically reduced my sugar. Gave up soda, cakes etc. I also take a bicarbinate in the AM and PM to boost my PH. Fresh vegetables, and a little fruit. All organic if possible........... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Thank you for all the answers given.Some cyber frineds told me that there would not be risk of spreading at uterine biopsy as cell would directly go down and out.Does that sound logical?I could not totally understand it. thanks very much nil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 What brand of bicarb do you take ? ~Amber -- Re: [ ] Re: biopsy what brand of paw paw did you use? From: mfsevera .....Cancer cells get their energy by stagnation and, feed on sugar. And, they cannot live in an alkaline environment. Now, I had a radical prostate removal. I had it because my family was beside themselves when I told them I wasnt having surgery. But, after I read a bit, I found an herb called, Paw Paw which has been known to kill cancer cells. (So does Graviola but, PP is stronger) I drastically reduced my sugar. Gave up soda, cakes etc. I also take a bicarbinate in the AM and PM to boost my PH. Fresh vegetables, and a little fruit. All organic if possible........... ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 I don't either,but I would do " due diligence " from many sources...keeping in mind the source, as to whether they are biased. one way or the other...maybe do a google search on the question. I just know in my case I wish they had diagnosed it earlier and took it out Ca.is nothing to fool with. From: Nil Sent: Wednesday, August 20, 2008 9:49 PM Thank you for all the answers given.Some cyber frineds told me that there would not be risk of spreading at uterine biopsy as cell would directly go down and out.Does that sound logical?I could not totally understand it. thanks very much nil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 As long as the only ingredient was " sodium bicarbonate " and contained no other metals, I used it. Common baking soda is sodium bicarb. Â From: Stargazer <Stargazer@...> Subject: Re: [ ] Re: biopsy Date: Thursday, August 21, 2008, 1:13 AM What brand of bicarb do you take ? ~Amber Quote Link to comment Share on other sites More sharing options...
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