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Hi Debby,

Thanks for writing. You are the first person I have found who lives even

remotely close to Spokane. That's very exciting for me. I'd love to be a

part of a support group. Do you have one, or are you interested? I live on

the South Hill and would gladly host people here.

I didn't have much faith in the Hep. in Spokane and that's why I waited 10

months to see Dr. Kowdley in Seattle. He was recommended by Dr. Gershwin

from UC who does the research on PBC that the PBCers support.

Regards to all,

Nina in Spokane, Dx PBC 4/05 PMR 4/06 Just received the news: Stage

2 PBC

Leave your organs here on earth,

HEAVEN knows we need them!

SUPPORT ORGAN DONATION

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I've had good and bad biopsies. One hurt like hell -- the puncture through the

capsule surrounding the liver and another I could hardly feel, the sound of the

clicking was worse than the 18 gauge needle going in for the samples. It all

depends on who does the procedure. I ask how many they've done, have they ever

had one, and what sort of pain management do they give afterward. I ask for

Percocet.

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Nina, I don't live near Spokane now...sorry that I misled you. Actually we are

in Central Calif...a bit of a drive!

As for Dr. Gershwin is well thought of, and actually, if a guy in Seattle was

recommended to you, I would stick with him. The liver guy that I see is from

San Francisco (he an absolutely CREEP! but supposed to be the one you want for a

transplant). So, I will stick with that group.

There would be no chance of you getting a decent liver transplant team in

Spokane even though they do have good hospitals...I would opt for Seattle

myself. Yes, it is a drive, but worth it. We took our son to see a doctor when

he was little in Seattle and it was a drive, but the doctor was very very good!

Anyway, perhaps when we drive through sometime, we can meet! I think that would

be fun!

Good luck with your illness!

Debby

[ ] Re: Biopsy

Hi Debby,

Thanks for writing. You are the first person I have found who lives even

remotely close to Spokane. That's very exciting for me. I'd love to be a

part of a support group. Do you have one, or are you interested? I live on

the South Hill and would gladly host people here.

I didn't have much faith in the Hep. in Spokane and that's why I waited 10

months to see Dr. Kowdley in Seattle. He was recommended by Dr. Gershwin

from UC who does the research on PBC that the PBCers support.

Regards to all,

Nina in Spokane, Dx PBC 4/05 PMR 4/06 Just received the news: Stage

2 PBC

Leave your organs here on earth,

HEAVEN knows we need them!

SUPPORT ORGAN DONATION

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Yeah...it WAS the noise/sound that was the worst! It was a very odd sound!

Debby

[ ] Re: Biopsy

I've had good and bad biopsies. One hurt like hell -- the puncture through the

capsule surrounding the liver and another I could hardly feel, the sound of the

clicking was worse than the 18 gauge needle going in for the samples. It all

depends on who does the procedure. I ask how many they've done, have they ever

had one, and what sort of pain management do they give afterward. I ask for

Percocet.

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  • 2 months later...

THAT is awesome and such a wonderful Christmas present!!! Did you recently have a PCR to see if you had any viral load too? Im just wondering! jaxthesissybabe <thesissybabe@...> wrote: I recently, the day before thanksgiving, had a biopsy which I had put off for a long time due to no insurance and the pain. Well the procedure was quite a bit different than the last one I had. Thank God the biopsy came back okay! The hep c is inactive and I am still in stage one with no

fibrosus. What a great christmas gift. I was not looking forward to another round of treatments. God bless and I hope everyone has a great christmas and a blessed new year.Jackie

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  • 1 month later...

dang you nikki ya didnt have ta make me look that deep into it.lol but thats so true.Nikki Cowan <nikkicowan@...> wrote: That was pretty promising information that you posted about the blood tests replacing the need for biopsy, Tim. Hope that it works out to be true. Good though, that they are finding good levels in your scans, etc.

Scary, though, how so many different doctors treat in such varied ways the same problem. And the variations in individual response to the virus just add to the confusion. Nikki i understand this.#1 i cant even see a doc its always the practioner#2 ive told

both docs this.#3i dunno lolJackie on <redjaxjm > wrote: EVERYONE needs a biopsy,, you CANNOT tell how much damage you have without one Tim.. Tim Parsons knoxville,tn 37931 865-588-2465 x107 work

www.knoxville1.com

The fish are biting.

Get more visitors on your site using Search Marketing.

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Nikki, the fibrosure test is only accurate at both ends of the spectrum and very UN-reliable in the middle stages,, maybe in time they will get it figured out but as for right now, they are not very reliable.. I have my own case as an example and have heard of several others too.. If you are stage 0-1 OR 4,, its accurate but if you are inbetween 1-4, its NOT reliable... unfortunately.. oh how much easier it would have been..Nikki Cowan <nikkicowan@...> wrote: That was pretty promising information that you posted about the blood tests replacing the need for biopsy, Tim. Hope that it works out to be true. Good though, that they are finding good levels in your scans, etc. Scary, though, how so many different doctors treat in such varied ways the same problem. And the variations in individual response to the virus just add to the confusion. Nikki i understand this.#1 i cant even see a doc its always the practioner#2 ive told both docs this.#3i dunno lolJackie on <redjaxjm > wrote: EVERYONE needs a biopsy,, you CANNOT tell how much damage you have without one Tim.. Jackie

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Well that is sure too bad. Yes, perhaps that will improve, I hope. It would make testing much more available to

those of us that fall through the cracks and can get neither aid nor insurance. Thanks for the info.

Nikki

Nikki,

the fibrosure test is only accurate at both ends of the spectrum and very

UN-reliable in the middle stages,, maybe in time they will get it figured out

but as for right now, they are not very reliable.. I have my own case as an example and have heard of

several others too.. If you are stage 0-1 OR 4,, its accurate but if

you are inbetween 1-4, its NOT reliable...

unfortunately..

oh how much easier it would have been..

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well Im sure they ARE working on improving the parameters and it will, in time be better.. do you know what stage you are at Nikki? If you are stage 0-1, you can safely rely on its results...Nikki Cowan <nikkicowan@...> wrote: Well that is sure too bad. Yes, perhaps that will improve, I hope. It would make testing

much more available to those of us that fall through the cracks and can get neither aid nor insurance. Thanks for the info. Nikki Nikki, the fibrosure test is only accurate at both ends of the spectrum and very UN-reliable in the middle stages,,

maybe in time they will get it figured out but as for right now, they are not very reliable.. I have my own case as an example and have heard of several others too.. If you are stage 0-1 OR 4,, its accurate but if you are inbetween 1-4, its NOT reliable... unfortunately.. oh how much easier it would have been.. Jackie

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  • 6 months later...

My sons lymph nodes go down into his chest some times. Some times his neck

is so swollen that it hurts to move but the dr. said it is part of .

don't they think it's connected ... im sorry to hear that he has to have this

done. My son is 13 and I think it would probably hurt me just as bad as him.

good

luck to both of you and please keep us informed of his progress bless you

char

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They wanted to see why his lymph glands are always so swollen so they wanted to

see what was causing them to swell and stay swollen. They got in there today and

couldnt get to his lymph nodes so they biopsied his muscle. very frustrating.

Cause now they will have to go and do it again it makes me wonder why he did it.

the muscle was swollen and he thought it was the lymph node, it really upsets me

cause the nih wanted the lymph node tissue

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Yeah nick's has always did it that is why they thought he had . Like fran

said we are really not in the PFS class they are not sure exactly what is going

on. Yeah it kills me when my sons go through this, I think it hurts me more then

them.

thank you good luck with your son as well and keep me posted i willl keep you

all informed if we learn something

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  • 9 months later...
Guest guest

I have had three punch biopsies with the diagnosis of folliculitis. Dah!........My unanswered question still remains, what is causing the inflammation? My three derms were incredibly...........ok, I will be nice......they didn't remain my derms.

biopsy

has anyone here ever done a biopsy for this? and if you did, what werethe results? i did two biopsies and both came out as "insect bites" but they didn'tknow what kinda bites or provide me with any helpful information. soyah i was wondering if you guys have the same results and what the docrecommended you do to help it.

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Guest guest

I know that if I have to deal with this a few more months I will be

seeking treatment outside of this country. Almost got the ivermectim

for myself today, but going to wait for one more big clean and Elimite

treatment. Diet has really changed, and no includes heavy garlic and

spice, plus garlic tablets, and 4 parasite cleans capsules...and no

sweets. :/

>

> I have had three punch biopsies with the diagnosis of folliculitis.

Dah!........My unanswered question still remains, what is causing the

inflammation? My three derms were incredibly...........ok, I will be

nice......they didn't remain my derms.

>

>

>

> biopsy

>

>

> has anyone here ever done a biopsy for this? and if you did, what were

> the results?

>

> i did two biopsies and both came out as " insect bites " but they didn't

> know what kinda bites or provide me with any helpful information. so

> yah i was wondering if you guys have the same results and what the doc

> recommended you do to help it.

>

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  • 1 month later...

Only you will have to make that choice. I will gladly share my

situation and, maybe you can get something from it.

Yes, cancer can be spread with a biopsy. I joined this group after my

biopsy came back prostate cancer. I joined groups, read as much as I

could. Information will be your biggest weapon.

Cancer cells get their energy by stagnation and, feed on sugar. And,

they cannot live in an alkaline environment.

Now, I had a radical prostate removal. I had it because my family was

beside themselves when I told them I wasnt having surgery. But, after

I read a bit, I found an herb called, Paw Paw which has been known to

kill cancer cells. (So does Graviola but, PP is stronger) I

drastically reduced my sugar. Gave up soda, cakes etc. I also take a

bicarbinate in the AM and PM to boost my PH. Fresh vegetables, and a

little fruit. All organic if possible.

My Gleason scale was a 9 with cancer in 4 of the 6 biopsies. On

surgery day, the doctor sounded grim and told me he would take the

lymph glands and, if they looked bad, he would just sew me up. I

asked how everything looked at first glance. His answer was " not too

bad " .

So, I do think what I was doing, was definately helping. I wished I

didnt have the surgery but, my two daughters were on verge of a

nervous breakdown.

You will get some wonderful input from these people here.

>

> Hi all:)

>

> I am new member of the group.I am in urgent situation so i am

asking

> this question to you without being able to make any searches at

> archieves. so,excuse me for that please.

>

> My gynecologist detected a structure in my uterus and he wants me

to

> have biopsy for it. I am reluctant to have it as i have read in the

> past that it might cause spreading of the cancerious cells.

>

> I would like to take your opinion on this.

> best wishes

> nil

>

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You will need to make that decision yourself.

I prefer to know exactly what is going on, so I did the biopsy.

ar

On Wed, 20 Aug 2008 23:49:38 -0000, " yildiz " <yildiz22@...> said:

> Hi all:)

>

> I am new member of the group.I am in urgent situation so i am asking

> this question to you without being able to make any searches at

> archieves. so,excuse me for that please.

>

> My gynecologist detected a structure in my uterus and he wants me to

> have biopsy for it. I am reluctant to have it as i have read in the

> past that it might cause spreading of the cancerious cells.

>

> I would like to take your opinion on this.

> best wishes

> nil

--

Arlyn Grant

arlynsg@...

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what brand of paw paw did you use?

From: mfsevera

....Cancer cells get their energy by stagnation and, feed on sugar. And, they

cannot live in an alkaline environment.

Now, I had a radical prostate removal. I had it because my family was beside

themselves when I told them I wasnt having surgery. But, after I read a bit, I

found an herb called, Paw Paw which has been known to kill cancer cells. (So

does Graviola but, PP is stronger) I

drastically reduced my sugar. Gave up soda, cakes etc. I also take a

bicarbinate in the AM and PM to boost my PH. Fresh vegetables, and a little

fruit. All organic if possible...........

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Just my opinion.. I would do the biopsy, then maybe do the Budwig diet, pawpaw,

and evrything else re prevention.

I had bleeding in my urine for over 6 months and the docs kept aying it was just

enlarged prosate..finally they did a cytoscopic exam, where they go in and take

a look,a nd found 3 tumors in my bladder..they took them out, and said one was

" aggressive, and usually comes back, and then they woulfd have to remove the

bladder " , which a BIG surgery !!

An oncologist said " youhave to have 6 chemo treatemnts ,plus maybe radiation,and

they will still have to remove the bladder " Her reason was ' afew cells amy

ahve escaped, nd there is no reliable test to detect them!! I dont think money

was her motive,,she works for the county hospital..

I am not going to do that..I am going to get this BCG treatment thru a

catheter..much less invasive, and has a high success rate of preventing

recurrences..plus Budwig,pawpaw, etc..

I just wish they had diagnosed it earlier.it probably was not aggressive in the

early stages..What a hassle!!

" yildiz " <yildiz22@...> wrote:

I am new member of the group...My gynecologist detected a structure in my

uterus and he wants me to have biopsy for it. I am reluctant to have it as i

have read in the past that it might cause spreading of the cancerious cells. I

would like to take your opinion on this.

best wishes

nil

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Paw Paw and graviola reduce the ATP energy of all cells in the body.

Supposedly, cancer cells have a lower ATP energy level than normal

cells, so lowering all ATP energy will kill cancer cells, but normal

cells still have enough ATP activity to stay alive.

However, some things raise ATP energy. I believe these include CoQ10,

flaxseed oil, alpha lipoic acid, and some other things. I think these

things need to be avoided in a low ATP protocol. Conversely, they are

taken in large doses in a high ATP protocol.

>

> what brand of paw paw did you use?

>

>

> From: mfsevera

> ...Cancer cells get their energy by stagnation and, feed on sugar.

And, they cannot live in an alkaline environment.

> Now, I had a radical prostate removal. I had it because my family

was beside themselves when I told them I wasnt having surgery. But,

after I read a bit, I found an herb called, Paw Paw which has been

known to kill cancer cells. (So does Graviola but, PP is stronger) I

> drastically reduced my sugar. Gave up soda, cakes etc. I also take

a bicarbinate in the AM and PM to boost my PH. Fresh vegetables, and a

little fruit. All organic if possible...........

>

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Natures Sunshine. It's the only brand I found.

>

> what brand of paw paw did you use?

>

>

> From: mfsevera

> ...Cancer cells get their energy by stagnation and, feed on sugar.

And, they cannot live in an alkaline environment.

> Now, I had a radical prostate removal. I had it because my family

was beside themselves when I told them I wasnt having surgery. But,

after I read a bit, I found an herb called, Paw Paw which has been

known to kill cancer cells. (So does Graviola but, PP is stronger) I

> drastically reduced my sugar. Gave up soda, cakes etc. I also take

a bicarbinate in the AM and PM to boost my PH. Fresh vegetables, and a

little fruit. All organic if possible...........

>

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Thank you for all the answers given.Some cyber frineds told me that there would

not be risk of spreading at uterine biopsy as cell would directly go down and

out.Does that sound logical?I could not totally understand it.

thanks very much

nil

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What brand of bicarb do you take ?

~Amber

-- Re: [ ] Re: biopsy

what brand of paw paw did you use?

From: mfsevera

.....Cancer cells get their energy by stagnation and, feed on sugar. And,

they cannot live in an alkaline environment.

Now, I had a radical prostate removal. I had it because my family was

beside themselves when I told them I wasnt having surgery. But, after I read

a bit, I found an herb called, Paw Paw which has been known to kill cancer

cells. (So does Graviola but, PP is stronger) I

drastically reduced my sugar. Gave up soda, cakes etc. I also take a

bicarbinate in the AM and PM to boost my PH. Fresh vegetables, and a little

fruit. All organic if possible...........

------------------------------------

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I don't either,but I would do " due diligence " from many sources...keeping in

mind the source, as to whether they are biased. one way or the other...maybe do

a google search on the question.

I just know in my case I wish they had diagnosed it earlier and took it out

Ca.is nothing to fool with.

From: Nil

Sent: Wednesday, August 20, 2008 9:49 PM

Thank you for all the answers given.Some cyber frineds told me that there

would not be risk of spreading at uterine biopsy as cell would directly go down

and out.Does that sound logical?I could not totally understand it.

thanks very much

nil

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As long as the only ingredient was " sodium bicarbonate " and contained no other

metals, I used it. Common baking soda is sodium bicarb.

 

From: Stargazer <Stargazer@...>

Subject: Re: [ ] Re: biopsy

Date: Thursday, August 21, 2008, 1:13 AM

What brand of bicarb do you take ?

~Amber

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