Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 For almost 3 years I have been told I have OPCA. This after about 3 years of misdiagnosis and eliminating all other disorders. Yesterday I got a diagnosis (from all 3 staff neuros) of ALS - Lou Gehrig Disease. Over the years I have been suspected of having MG (Myasthenia Gravis) and Parkinsons. Now this! All my symptoms appear to me to be similar or identical to other MSA patients i.e. Dysphasia, dysarthria, ataxia, partial bladder incontinence, etc. I do not have orthostatic hypotension as in SDS and this appears to me to be the only basic difference in OPCA and Shy-Drager. One of the neuros claims to have had OPCA patients before but if so, he is the only doctor I have seen in 5 years who claimed to have had other OPCA patients. ly, he does not seem to know as much as some of our group members. My experience has been that virtually all docs are loathe to admit lack of knowlege about ANYTHING! They give me no explaination other than that my recent EMG indicates ALS rather than OPCA. I know what ALS is and the prognosis. Anyone else been through this??? Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.