Enbrel

[Guest guest]

Enbrel assist - that is fantastic. When it first came out and it

cost $2,000 per month. We could not afford it. That is great.

>

>

> they have a program it's called enbrel quick assit they pay for it

for the first yr then there is copay 75.00 for a 3month supply.I take

my shot weekly.

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> My hubby has pulmonary fibrosis caused by RA. This came on all of a

>

> sudden in July of this year. He had never been diagnosed with RA or

had

>

> any joint pain until July. His rheumy thinks that he has a rare

case of

>

> RA where the RA attacks the lungs before the joints. He also goes

to a

>

> pulmonologist. He is on prednisone and Imuran. His lung doc is

>

> considering Enbrel for him but his rheumy has reservations because

he

>

> has seen studies that it can damage the lungs. The lung doc has

seen

>

> the studies and does not agree with the studies.

>

>

>

> I went online and checked and our ins. covers Enbrel with auth but

it

>

> looks like it is only covered 50%. Does anyone know the cost and

how

>

> often you usually take it? I understand that it is an injection.

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> Lynn J., in Louisiana

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[Guest guest]

I get my delievered as well. My co-pay is $35 but that is picked up through the

enbrel assist program. So in reality I get it for free at this point. I can

not afford even my co-pay.

Re: [ ] Enbrel

Hi Lynn,

I don't know what your pharmacy charges, but when I was on it and picked it

up, it would show that the insurance paid 1400.00 I had to pay 70.00

Heidibug

On Sat, Dec 6, 2008 at 9:32 AM, crj129 <crj129@...> wrote:

> My hubby has pulmonary fibrosis caused by RA. This came on all of a

> sudden in July of this year. He had never been diagnosed with RA or had

> any joint pain until July. His rheumy thinks that he has a rare case of

> RA where the RA attacks the lungs before the joints. He also goes to a

> pulmonologist. He is on prednisone and Imuran. His lung doc is

> considering Enbrel for him but his rheumy has reservations because he

> has seen studies that it can damage the lungs. The lung doc has seen

> the studies and does not agree with the studies.

>

> I went online and checked and our ins. covers Enbrel with auth but it

> looks like it is only covered 50%. Does anyone know the cost and how

> often you usually take it? I understand that it is an injection.

>

> Lynn J., in Louisiana

>

>

>

[Guest guest]

Hi Phil!

While I've not been on Enbrel, I'm on Humira and we think it's loosing it's

effectiveness. I'm on MTX as well. I've already decided that if I have to move

on to another medication, I'm doing it. I'm determined to squeeze as much out

of life as I can, so I'll take my chances. I'm 32 and the mother of two girls

(2nd grad and Kindergarten) so I've got to do what I can to be there for them.

I do have side effects from most of my medications, but so far they aren't

anything life threatening. At least with the Humira I had no side effects (that

I know of). Good luck finding something to get your flare settled down. It's

somehow even worse after you've seen some improvement to go through it all over

again.

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

[Guest guest]

Lori,

How often do you dose your Humira?

©x© Kami ©x©

Re: [ ] Enbrel

Hi Phil!

While I've not been on Enbrel, I'm on Humira and we think it's loosing it's

effectiveness. I'm on MTX as well. I've already decided that if I have to move

on to another medication, I'm doing it. I'm determined to squeeze as much out of

life as I can, so I'll take my chances. I'm 32 and the mother of two girls (2nd

grad and Kindergarten) so I've got to do what I can to be there for them. I do

have side effects from most of my medications, but so far they aren't anything

life threatening. At least with the Humira I had no side effects (that I know

of). Good luck finding something to get your flare settled down. It's somehow

even worse after you've seen some improvement to go through it all over again.

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

[Guest guest]

I inject Humira once every two weeks. We've just upped the MTX to 8 pills a

week, so it will be a few more weeks to see if that will do it.

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

Re: [ ] Enbrel

Lori,

How often do you dose your Humira?

©x© Kami ©x©

[Guest guest]

Have you considered increasing your Humira to every 10 days or even once a week?

Since I have been doing Humira weekly, I feel like a new person.

©x© Kami ©x©

Re: [ ] Enbrel

Lori,

How often do you dose your Humira?

©x© Kami ©x©

[Guest guest]

I'll bring it up at my next visit. I wonder how much that would effect the

immune system though? I know that I get sick more often, and worse, than I did

prior to starting all of these medications. I really don't want to change if I

don't have to because this really has helped me in the past.

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

Re: [ ] Enbrel

Have you considered increasing your Humira to every 10 days or even once a

week? Since I have been doing Humira weekly, I feel like a new person.

©x© Kami ©x©

[Guest guest]

my hubby will do i for me. he says just say the word. i don't think i could do

it myself.

> >

> > Throw away the package insert.  Trust me.  It's amazing.  It started working

for me within a week.  I didn't gell up anymore.  I was so much more alert and

less ouchy.  Now I'm on monotherapy.  I even took it while pregnant and the baby

is doing just great.  Sure, it's a powerful drug and one to respect, but if

there are problems you can stop.  Most of the scary stuff is very rare and

certainly untreated RA  is a very scary thing.  Try it!!!  You can do it!

> > (I also had a beer before my first shot, that helps!)

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: Sauve <moniquesauve@ ...>

> > @gro ups.com

> > Sent: Tuesday, March 17, 2009 1:55:37 PM

> > Subject: [ ] enbrel

> >

> >

> > hi

> >

> > i'd love to hear from ppl who are on enbrel and ppl who've taken it.

> > i've had the rx i n my fridge for 2 weeks now ready to take but can't

> > get over fear. am in really bad shape. need help with most things. so

> > know i need to do something but the thought of ending up with MS or

> > blind AND RA is more than i can bear. i know it's a small chance but it

> > is there. how did others overcome this fear?

> >

> > thanks so much

> > monique

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

-- Enbrel has been a life saver for me! I am 28 and was diagonsed with

RA when I was 16 years old. I was scared to try it, but after I did, the very

next day, I was washing dishing and actually dancing to some music in the

background and didn't even realize it, my husband did -- and he was shocked!!!

Enbrel has allowed me to live a " normal " life - I have been on Enbrel for about

2 years,  and am pregnant now and still on it. My pregnancy has been perfect,

the baby looks great (due in 3 weeks!!) and I still feel good. They have also

said its ok to breastfeed on too -- I hope this has helped, give it a shot, I

hope you will feel the same!!

Krissy A. Waller

 

" When the power of love overcomes the love of power, the world will know peace. "

 

 

 

 

[Guest guest]

I would just like to echo what others have said. Enbrel also gave me my life

back. I had been forced to quit working and was consistently exhausted and in

pain. Within 2 weeks of my first injection, I was a new person. I have been

taking Enbrel for over 2 years now. I had to go off of it for a couple of weeks

prior to knee replacement surgery. I could tell the difference almost

immediately. For me, the benefits overshadow the possible side effects. I hope

it does the same for you.

Take care,

Pat

[Guest guest]

Hi Heidi,

A big thank you to you for your welcome. Just wish I'd known about this

group earlier. What a lovely bunch of people! Like you Heide, I really

miss working, in a way it's been like a bereavement,a great loss. I've

always felt you lose your identity almost.

Anyway, no more of that doom and gloom, I've got a whole new world

opened up to me now. I hope I can help others along the way and make a

few friends too.

Think it may be because I'm in the UK, but the date on this is fri mar

20 at 08.19am whereas here it is still thu at 8.29pm. Tomorrow, I'll be

doing my 2nd Enbrel injection and hoping for a change in my condition,

even if it's minimal.

Humira did nothing for me, but I sincerely hope it does for you.

Heidi, thank you again for taking the time to chat, much appreciated.

Kindest regards

--- In , Heidi Mendelsohn <hmendelsohn@...>

wrote:

>

> Hi

> Welcome to the group. I have learned so much from the people here and

> can find information on most any subject. I don't know how she does it

but I

> am glad she does. Anyway I am a nurse as well but have been disabled

since

> 2007. I hate not working but just could no longer do it. I was on

Enbrel for

> about 8 months and never really noticed much difference. I am now on

Humera

> and I know it helps my knees. Nothing seems to help my hands but I

will take

> what I can get.

> Feel free to ask any question because if you have a question most

likely

> someone has either has the same question or the answer to it. Again

Welcome

> to the group.

> Heidibug

>

> On Wed, Mar 18, 2009 at 8:29 PM, sarahledsom sarahledsom@...wrote:

>

> >

> > Hi All,

> >

> > I have just come on board tonight so please bare with me while I

find my

> > way around. I'll introduce myself first.

> >

> > My name is , I am 54 and have had this horrible disease for 12

> > years now. For the first 5-6 years I managed to continue working as

a

> > nurse/manager of a Nursing Home for the elderly, which I absolutely

> > adored. About 6 years ago I had a really bad flare up and had to be

> > hospitalised for the first time. For the first 6 years I was only on

MXT

> > 22mg,then it ceased to work. I have had long periods confined to a

> > wheelchair since then, have bad deformities in both hands and both

feet,

> > and have it in both shoulders, knees,wrists, in fact all over. I

badly

> > need 2 knee replacements, but have been told I'm too young!!!!!

That's

> > strange, because I feel 80 years old.

> >

> > My Rheumatologist, decided to put me on

> >

Sulphasalazine,Leflunomide,Dihydracodeine,Etoricoxib,Amitriptyline,Omepr\

\

> > azole and Paracetamol 6 years ago and I'm still on them now(they

have

> > now ceased to work). After a lot of kicking and screaming, I was

finally

> > given Humira last year, but after 5 injections, I became much worse

and

> > my B.P. went through the roof. He wanted me to go on Enbrel

> > immediately, but I said no and that I wanted my body to get rid of

the

> > drug before I put anything else in it.

> >

> > So last friday(13March 09) I had my first injection of Enbrel 50mg,

my

> > next one being this friday. Up til now, I feel no different,but it's

> > early days.

> >

> > Has anyone been on this drug for any length of time and seen a

marked

> > improvement? I know it won't change my hands or feet or even my

knees.

> > Think I'm just hoping that I will just feel well, that would be a

start.

> >

> > I have a lovely saint of a husband, who has gone through all this

with

> > me, 2 sons, one of them is currently serving in Afghanistan, the

other

> > who takes me wherever I need to go, and a gorgeous 5 year old

> > grandaughter who keeps me sane and gives me the reason to keep

fighting.

> >

> > Thank you for allowing me this rant, and I hope to hear from some of

you

> > soon.

> >

> >

[Guest guest]

Hi,

Please let me know what you find out about the cymbalta.

Thank you.

Kathy in Lubbock

[ ] Enbrel

Tawny, I am glad it's helping you . Does the cymbalta make you eat more? I am

so glad to hear you are feeling much better. I care...........Clora.

> Hi Clora,

>

> I hope the enbrel works great for you. I started cymbalta, and it

> helped my fibro pain SO much. I feel like a different person. It has

> also helped the depression going on in my life.

>

> Keep us posted,

>

> Tawny

[Guest guest]

For me the cymbalta made me feel worse ... I hurt more, just wanted to sit on

the couch and not move and I even think the depression was worse. Have tried

other SSRI's and none of them seem to agree with me.

Lou

[ ] Enbrel

Tawny, I am glad it's helping you . Does the cymbalta make you eat more? I am

so glad to hear you are feeling much better. I care...........Clora.

> Hi Clora,

>

> I hope the enbrel works great for you. I started cymbalta, and it

> helped my fibro pain SO much. I feel like a different person. It has

> also helped the depression going on in my life.

>

> Keep us posted,

>

> Tawny

[Guest guest]

Hi Kathy - I was on Cymbalta quite a while ago, but had to stop. I didn't see

any improvement in the fibro symptoms and my anxiety was out of control. Hope

you have better luck.....Doreen

>

> Hi,

> Please let me know what you find out about the cymbalta.

> Thank you.

> Kathy in Lubbock

[Guest guest]

Hi Clora,

Meds work different on everyone, but the Cymbalta is amazing. My

appetite is the same. I went so long with horrible pain, and I didn't

realize it was the fibro. I am so better, my fatigue is way down too.

My family is amazed at the change in me. The med also helps neuropathy

pain, which I have. I take neurontin for it, and I'm hoping in 6

months, I can go off it.

If your having fibro pain, I say try it. You have to try something to

see if it works.

You take care,

Tawny

>

> Tawny, I am glad it's helping you . Does the cymbalta make you eat

more? I am so glad to hear you are feeling much better. I

care...........Clora.

[Guest guest]

I have been on Cymbalta for 4 years- miracle drug. Helped so much with the

Fibro. pain AND the Depression! No weight gain, no shakes, no fuzziness, no

anything! Only helped me! When the Fibro. kicks hard, I take Lyrica and that

helps put it back in its place. The Dr. has talked to me about Savella in place

of the Cymbalta if needed. I have only positive experiences with this med and ow

it has helped me. We all react differently to meds, just keep trying until you

find the right ones for you. Have a pain-free day! - D. in HOT and

too dry south Louisiana

>

>

>

> >

> > Tawny, I am glad it's helping you . Does the cymbalta make you eat

> more? I am so glad to hear you are feeling much better. I

> care...........Clora.

>

[Guest guest]

Hi Tawny:

 

I am so happy you are feeling so much better.  That is such wonderful news.  No

wonder you family is so happy.  They finally are seeing you feel good again. 

Thank God for all these wonderful meds. that are available to us.

 

I pray you will have many more of these days ahead.

 

Hugs,

 

Barbara

From: tdianaok <tdianaok@...>

Subject: [ ] Re: Enbrel

Date: Saturday, June 27, 2009, 4:51 PM

Hi Clora,

Meds work different on everyone, but the Cymbalta is amazing. My

appetite is the same. I went so long with horrible pain, and I didn't

realize it was the fibro. I am so better, my fatigue is way down too.

My family is amazed at the change in me. The med also helps neuropathy

pain, which I have. I take neurontin for it, and I'm hoping in 6

months, I can go off it.

If your having fibro pain, I say try it. You have to try something to

see if it works.

You take care,

Tawny

>

> Tawny, I am glad it's helping you . Does the cymbalta make you eat

more? I am so glad to hear you are feeling much better. I

care........ ...Clora.

[Guest guest]

Thanks Barbara,

Its so wonderful to be feeling better. I have been suffering for many

years, so for a relief, its incredible. I am having some problems with

my new blood pressure med. I hope the side effects goes away.

I hope your feeling well. It is nice to have a med to help out. I

would be in horrible shape without my meds.

Take care my friend,

Tawny

>

> Hi Tawny:

>

> I am so happy you are feeling so much better. That is such wonderful

news. No wonder you family is so happy. They finally are seeing you

feel good again. Thank God for all these wonderful meds. that are

available to us.

>

> I pray you will have many more of these days ahead.

>

> Hugs,

>

> Barbara

[Guest guest]

Thanks Clora, for all your kind words and prayers. It means so much to

me. I hope the enbrel works for you. I was on it for awhile, and it

just wasn't working well. The doctor put me back on humira. I've been

on it for quite awhile. It does help keep me mobile.

Yes, fibro can show its ugly self. I just never knew fibro was so

painful. I am hoping the med keeps helping me. It is so worth it.

Good luck on the enbrel, keep us posted. We just have to keep trying

meds, until we get the right one to help.

Take care my friend,

Tawny

>

> Tawny,,,, If there's one thing I learned from RA, it's that medicine

works different on people. The rumor is that enbrel takes appetite from

some people. I hope it takes mine. It would save me from getting my

tummy stapled.

>

> I am so happy you are doing better. I remember when you was in

constant pain. My heart went out to you during that time. We may be

doing better but sometimes we have something else like fibro. I am

praying for you Tawny. I have not stop praying for this group, even

after I left. I know God answers prayers.

> I Care....................Clora

[Guest guest]

Hi Tawny:  I am so happy that you are finally feeling better.  I hope you

continue to feel like this, and I also hope your new B.P. med. kicks in and you

can take it successfully.  I know you have been feeling awful for such a long

time.  Those days are behind you.

     Now you can begin to get your life back.  Like you, I just take one day at

a time.  I do the things I can, the rest will have to wait.  One thing I have

learned, is that I am a very patient person.  It did not come easy!!

     Wishing you many pain free days ahead.  I hope you have a lovely day.  Much

love and hugs.

 

Barbara

From: tdianaok <tdianaok@...>

Subject: [ ] Re: Enbrel

Date: Monday, June 29, 2009, 8:22 PM

Thanks Barbara,

Its so wonderful to be feeling better. I have been suffering for many

years, so for a relief, its incredible. I am having some problems with

my new blood pressure med. I hope the side effects goes away.

I hope your feeling well. It is nice to have a med to help out. I

would be in horrible shape without my meds.

Take care my friend,

Tawny

>

> Hi Tawny:

>

> I am so happy you are feeling so much better. That is such wonderful

news. No wonder you family is so happy. They finally are seeing you

feel good again. Thank God for all these wonderful meds. that are

available to us.

>

> I pray you will have many more of these days ahead.

>

> Hugs,

>

> Barbara

[Guest guest]

Enbrel does not have that effect on me.

Did this ringing in your ears and bad moods start shortly after you

started on the Enbrel?

Sue

On Jul 12, 2009, at 10:22 PM, D. wrote:

> The Enbrel is messing with me- a fairly loud ringing in my ears (to

> where I have to ask people to repeat stuff often!) and is causing me

> to have a really bad mood. My Rheumy says that he has never heard

> of these problems. Grrrr. Anyone else?

[Guest guest]

Yes, this all started within the first week of me starting this med. Also, a

bone deep tiredness. The mood starts to elevate a little bit by the end of the

7 days, then it is time for another shot. The Dr. says to keep on and the

tiredness might go away. Atleast, the 24/7 nausea went away after 3 weeks! I

wonder if it is all worth it. I am 13 days out without the shot, to see if this

will all get right. So far, no. D.

>

> Enbrel does not have that effect on me.

>

> Did this ringing in your ears and bad moods start shortly after you

> started on the Enbrel?

>

> Sue

>

[Guest guest]

Nae,

I've been on Enbrel for over 5 years, without mtx or prednisone. I

can't take mtx because it causes my white blood cell count to be so

low. I have had no adverse reactions, except an occasional injection

site reaction. The Enbrel works very well for me, so well that at

present I am spacing out the injections more.

Sue

On Aug 6, 2009, at 5:41 PM, dazot24 wrote:

>

> Is there anyone here who takes Enbrel? I just started it 3 weeks ago

> after being on mtx, predisone & folic acid (along with a maraid (sp)

> of

> other meds for many different reasons, sadly [(] ) for at least 20

> years. My dream is to get off the Predisone. Well, the mtx also. My

> question is, were you able to get off both mtx & Pred.?

>

> So far, I've got increased energy and no pain. But there has been an

> out

> break of itichiness & redness. Plus a headache I cannot get rid of. My

> last injection, I took a double dose of Benadryl. Anyone else

> experience

> this? Thanks so much. Nae

>

[Guest guest]

NAE..It's me..a....I take the 25 mg twice a week...and self mix it.

That way i don't get a huge dose at one time. It may be better for you trying

it that way.

Hugs..a

[Guest guest]

Hi Nae...sore foot... same ole same ole.

Yes, two injections a week and its not the sure click or one

click..whatever they call it...You have to do it yourself with a regular needle.

I have

him order the 30 g .half inch needle.

a

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