Enbrel

[Guest guest]

Thank you ALL for your response to my post. So many of you responded and

you are all wonderful! I really appreciate every one of your opinions and

advice.

Both Kates,

Thank you for the advice. I'll make sure he is holding the skin taught

next time.

It sure does sound like the syringes are less painful! You say the

needles are tinier? I wonder if they are longer! LOL Geesh! we just can't

win!

Just the thought of putting a needle in my abdomen makes me want to

scream! But by what everyone is saying, it sure sounds like the least painful

spot.

I have 3 more sureclicks to use. If it doesn't get better, I'll see about

getting switched to a syringe. ugh!

Heidi,

Yea, we did the shot about a hand a way from the knee. We also let the

alcohol dry first. I felt kind of woozy after the shot so I took a nap. I

already had a bad flare going on in my left wrist at the time. So, I'm not

sure if I feel better yet or if I'm just in between flares right now as far

as the enbrel making me feel better. What's this? Keep your feet on the

floor? I was laying down! Because I was afraid I would move away from

the needle. LOL Maybe that is a problem!

Why do your feet have to be on the floor?

,

Maybe that is why it hurt so bad... I think it went into muscle! OH god,

I might end up having to try the tummy. Yikes! Nope, unfortunately I'm

not thin. About 20 lbs overweight. So got lots of the fatty stuff on the

tummy! OR I could maybe get him to try the fatty part on the arm. Thanks

for the pointers!

Sue,

Thank you! I might have to try the tummy one of these times. I guess

we'll have to just experiment until we get it right.

Thank you all!

What does one do if they can't take biologics? Where does the Rheumy go

from there?

[Guest guest]

Oh I'm so sorry. I pushed send before signing my name on the last post I

sent. I got too excited!

Michigan

[Guest guest]

Autumn,

Wow! Was that some good info! Thank you for that. I will now definitely

get it changes to prefilled syringe.

I didn't know that you could control the pain based on how fast it is

injected.

Thank you so much!

Michigan

..1.

_Re: Enbrel _ (http://grou

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E1BGdycElkAzEwMTQ3OARncnBzcElkAzE3MDUwNjE2MTAE

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Posted by: " a_mccombs2003 " _autumnmccombs@... _

(mailto:autumnmccombs@...?Subject= Re:%20Enbrel) _a_mccombs2003 _

(a_mccombs2003)

Sun Jan 3, 2010 5:10 am (PST)

Hi ,

the Enbrel hurt so bad because the 50 mg dose has a very low pH. I find it

helpful to get the prefilled syringe and to inject it very slowly. If you

are afraid of injecting yourself, maybe your husband could inject the

needle, then you could push the syringe at a pace where you can control the

pain. To get the prefilled syringe, all you need to do is call your doctor and

ask them for a new prescription and specifically say " prefilled syringe. " .

When you fill it at the pharmacy for the first time, make sure to tell the

pharmacist that you want the prefilled syringe, not the autoinjector. I had

a pharmacist order the autoinjector anyway, even after I had the

prescription changed. They didn't realize how bad the autoinjector hurt, so I

had to

explain it to them. Being able to inject it slow really helps me, the shot

doesn't hurt at all when I inject it slowly, but mam, that autoinjector

really hurt. I hope this helps!

Autumn in Indiana

[Guest guest]

If you have plenty of tummy area, then that's the place to use for

injections. There are fewer nerve endings in the tummy than elsewhere,

and that's why diabetics on insulin inject there. Before you inject,

you just pinch up an area between two fingers and inject there. I for

one have to watch out for stretch marks, because I had some big babies.

Sue

On Jan 3, 2010, at 6:34 PM, Normsgrl@... wrote:

> Sue,

>

> Thank you! I might have to try the tummy one of these times. I

> guess

> we'll have to just experiment until we get it right.

[Guest guest]

When I took it it worked pretty quick and very well. However after 5 months, it

just quit working period. Humira did pretty well for over a year then Orencia

never worked and now I am starting Simponi. It is just an individualized

process which is frustrating.

Dale Ellen

[Guest guest]

Hi ,

I was on Enbrel for quite a while before I went on Remicade, not only did I have

good results but when I had to discontinue all types of biologics for what

turned out to be several years, my rheumy found out that I had not lost any

ground from an RA standpoint. I was kept on prednisone, but the Enbrel had

actually kept my disease at a certain level, Unfortunately, I was started back

on Enbrel about 2 years ago and this time I got no relief, but boy that initial

round of Enbrel, helped my joint pain and my fatigue.

Gentle, tender angel hugs,

Debs in FL

Re: [ ] enbrel

Hi Michele...there are people who don't have as good results with enbrel

but have good results with Humira so he may want to switch you to something

else. It may take longer for you to get all the benefits. But I felt the

enbrel helped me within days really.....which is rare. Don't give up, if

one doesn't work, something else will possibly help you.

I'm so thrilled with enbrel though..... I've been on it since 2005.

Maybe he will try something else....

Hugs..paula

[Guest guest]

I started on Enbrel about 6 years ago. I use the regular pre-mixed

syringe. Along the way, I've learned a few tricks. My rheurmy told me to

stay away from the auto-inject syringes - you have no control over how fast

it releases the medicine. I also found that unless the syringe is warmed up

sufficiently, the injection really burns and causes a big black of many

colours, which can stick around for weeks. I usually take the syringe out

of the fridge and hold it in my hand until it's up to body temp. and then

inject it. Squeezing the injection site while sticking the needle in also

helps, just be sure to release the squeezing while actually pushing the

plunger. When you're all finished, put some pressure on the injection site

with a clean tissue and your finger for about 10 seconds.

These little gimmicks work for me. I suspect that warming the syringe (and

medicine in it) would help you. Just leaving it out of the fridge takes too

long and it may still not be up to body temp.

I hope this will help you.

Katriina

[Guest guest]

I take Enbrel too, and I also warm the synringe in my hand, rolling t back and

forth and bring it to room temperature.

I always inject in my thighs (on the side) and sometimes my stoch, but a

sure-fire thing for me is to ICE IT, 5 minutes before (they send you an icepack

with the Enbrel) and 5 minutes after the injection (clean the area with alcohol

before and after).

It works everytime for me. I havent had a problem yet. If the meds are cold,

they become thick and hurt, so definitely at least bring it to room temperature.

[Guest guest]

I noticed a difference at the 7 day mark. Other people notice more of a

difference after several weeks. I hope it works well and works fast for you.

Kate F

Sent from my iPhone

On Dec 14, 2010, at 1:24 PM, suzanne lieberman <suzyl62@...> wrote:

> I just started enbrel last night and I have to say that it did not hurt yes it

did burn alittle but my husband did warm it up in his hands then gave it to me

in my belly. Can anyone tell me how long it took to start to feel it working

woke up today still in pain.I do know i need to give it some time.

> thank you suzy

>

>

[Guest guest]

I'm into my third month now, and I am starting to feel the difference. I was

kind of hoping for more but at this point I'm happy for any change for the

better. Good luck and my prayers are with you.

.....Randy.....

Sent via DROID on Verizon Wireless

[ ] Re: Enbrel

I just started enbrel last night and I have to say that it did not hurt yes it

did burn alittle but my husband did warm it up in his hands then gave it to me

in my belly.  Can anyone tell me how long it took to start to feel it working

woke up today still in pain.I do know i need to give it some time.

thank you suzy

[Guest guest]

ok thank you kate.I hope it works too next is IV and I really dont want to do

that yet.

suzy

[Guest guest]

From: OKD <Cofade_2000@...>

Subject: [ ] Re: Enbrel and my Rummy

Date: Tuesday, April 5, 2011, 6:16 AM

 

Are there any large teaching hospitals near by? Sometimes the larger hospitals

have Rheumy's that consult 1/4 time, like once a week. You might have luck with

it that way.

Believe it or not, sometimes a good primary care physician can consult with a

Rheumatologist and maybe begin to treat you.

Usually when a large community or teaching hospital sees a need, they find a way

to employ an Rheumatologist as well.

OKD