Re: Hello, new to mscured, but not to MS

[Guest guest]

Hi le,

I don't have any suggestions for you, but I do wonder if you could help me with

something regarding ovarian cysts.

Before the removal of your ovarian cyst, were you periods extremely painful, as

painful as having a kidney stone? Were they painful in your back? Since I was

16, I've had extremely painful periods and very bad back pain on the lower left

side. Normal pain medication does nothing for the pain; I've tried homeopathic

stuff as well, but no luck. Finally (years later), they did a sonogram and found

a " small " cyst in my ovary, at the place where I have the pain, but since it's

small, they don't really care and think that it's nothing.

How did you get surgery and would you recommend surgery for me? (Are there

things in my ovary that a sonogram would not pick up?) I've had the same pain

there for years-- normally, I hear that cysts are supposed to go away. Mine

hasn't (nor has the one in my left breast: my left breast's nipple and areola is

always itchy/burning period or no period! They found a cyst there also with a

sonogram but thought that it was nothing, but it's causing me pain every

day...).

Any advice is appreciated, thanks!

Hello, new to mscured, but not to MS

Hi, my name is Dannielle. I have spent some time browsing mscured and find the

information plentiful I look forward to getting to know some new friends

here and learning! I was diagnosed with MS in 1993 and I have only treated it

naturally... never taken any of the suggested man made meds for MS. I was on

the list, way back in the day when I was diagnosed, and my name came up about a

year later... but after much research regarding the drug, as well as MS, I

kindly denied. Anyway, I am listing my 'health record'... due to the new

health problems I have, I am once again researching for healthy, natural

alternatives to treat not only the MS, but the female issues as well. Any

suggestions are much appreciated!

History:

* Born in '67

* As a child I had multiple extreme allergies, to the point that radical changes

in lifestyle had to be followed

* 1982/83 - large ovarian cyst found, when they opened me up, they found tons

more along the walls of my uterus and had to do exploratory surgery to remove

them as well... that is also when they found the endometriosis for the first

time

* 1987/88 - laparascopic surgery for endometriosis as well as damage that was

done from the first surgery, I had terrible scarring and my ovary had healed to

the uterine wall. I was told the 'flap' of skin that is supposed to cover and

protect my female organs was twisted and balled up into a corner, so they

'fixed' that

* Jan 1991 - 1st child born - C Section

* Feb 1992 - 2nd child born - C Section

* 1993 - had several (5 or 6) teeth removed surgically, due to the fact that

they were rotting from the inside out and they were breaking apart. There was

concern of the infection making me sick (I was experiencing symptoms, which was

later diagnosed as MS), many of them had fillings (there are no more fillings in

my mouth)

* 1993 - was diagnosed with Multiple Sclerosis (started natural treatment)

* Sept 1994 - 3rd child born - C Section - Because of my history of scarring,

they had to cut away and clean up the scar tissue from my past two c sections.

I also had my tubes tied, cut and burnt

* 1/17/07 - Starting living a 'healthy lifestyle' for weight loss... over 50

pounds gone thus far

* I did not see any type of doctor from 1994 until 2010. - Because of the MS,

I had a 'pre existing' condition and I could not get insurance... did not

qualify for state help and could not afford the higher rated (very expensive)

pre existing condition insurance, so I had none

* April 13th, 2010 - First doctors visit with the GYN: Anemia (9.7),

Endometriosis, Fibroids, Prolapse of the uterus, Chronic pelvic pain & Heavy

bleeding - (this doctor has given me only 3 options... Lupron drug, UAE (also

known as UFE) or a complete and radical hysterectomy. I am NOT interested in

any of those, which is why I am researching diet, vitamins, etc... I have an MRI

with an Endometriosis Specialist tomorrow, Wed, 12th)

With Hope,

-Dannielle

[Guest guest]

Hi Dannielle,

Welcome to the group!

Here is a website you may find helpful in treating your MS:

http://tinyurl.com/advice-to-msers

With best wishes,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Welcome le.

Good for you not succumbing to the mainstream drugs.

A lot of us seem to have had fibroid problems and teeth problems immediately

prior to diagnosis.

I'd get your amalgams removed and I bet you'll feel better. The other thing I

have found helpful is the Best Bet Diet (BBD), basically removal of gluten,

lactose and legumes from your diet. A healthy way of eating for anyone and

you'll see the pounds disappear as well as a lot of the little symptoms of MS.

Exercise, especially swimming, supplements - expecially vitamin D3, relaxed

lifestyle (though not sure I could manage that with 3 kids ). Look into CST

(cranio-sacral therapy) which can help a lot, especially with scar tissue. Keep

your eye on what is happening with CCSVI. None of these are " cures " but help to

chip away at some of the symptoms.

Janet (PPMS diagnosed 1995)

To: mscured

From: teachx3akadannielle@...

Date: Tue, 11 May 2010 15:46:12 +0000

Subject: Hello, new to mscured, but not to MS

Hi, my name is Dannielle. I have spent some time browsing mscured and find the

information plentiful I look forward to getting to know some new friends here

and learning! I was diagnosed with MS in 1993 and I have only treated it

naturally... never taken any of the suggested man made meds for MS. I was on the

list, way back in the day when I was diagnosed, and my name came up about a year

later... but after much research regarding the drug, as well as MS, I kindly

denied. Anyway, I am listing my 'health record'... due to the new health

problems I have, I am once again researching for healthy, natural alternatives

to treat not only the MS, but the female issues as well. Any suggestions are

much appreciated!

History:

* Born in '67

* As a child I had multiple extreme allergies, to the point that radical changes

in lifestyle had to be followed

* 1982/83 - large ovarian cyst found, when they opened me up, they found tons

more along the walls of my uterus and had to do exploratory surgery to remove

them as well... that is also when they found the endometriosis for the first

time

* 1987/88 - laparascopic surgery for endometriosis as well as damage that was

done from the first surgery, I had terrible scarring and my ovary had healed to

the uterine wall. I was told the 'flap' of skin that is supposed to cover and

protect my female organs was twisted and balled up into a corner, so they

'fixed' that

* Jan 1991 - 1st child born - C Section

* Feb 1992 - 2nd child born - C Section

* 1993 - had several (5 or 6) teeth removed surgically, due to the fact that

they were rotting from the inside out and they were breaking apart. There was

concern of the infection making me sick (I was experiencing symptoms, which was

later diagnosed as MS), many of them had fillings (there are no more fillings in

my mouth)

* 1993 - was diagnosed with Multiple Sclerosis (started natural treatment)

* Sept 1994 - 3rd child born - C Section - Because of my history of scarring,

they had to cut away and clean up the scar tissue from my past two c sections. I

also had my tubes tied, cut and burnt

* 1/17/07 - Starting living a 'healthy lifestyle' for weight loss... over 50

pounds gone thus far

* I did not see any type of doctor from 1994 until 2010. - Because of the MS, I

had a 'pre existing' condition and I could not get insurance... did not qualify

for state help and could not afford the higher rated (very expensive) pre

existing condition insurance, so I had none

* April 13th, 2010 - First doctors visit with the GYN: Anemia (9.7),

Endometriosis, Fibroids, Prolapse of the uterus, Chronic pelvic pain & Heavy

bleeding - (this doctor has given me only 3 options... Lupron drug, UAE (also

known as UFE) or a complete and radical hysterectomy. I am NOT interested in any

of those, which is why I am researching diet, vitamins, etc... I have an MRI

with an Endometriosis Specialist tomorrow, Wed, 12th)

With Hope,

-Dannielle

_________________________________________________________________

Hotmail: Free, trusted and rich email service.

https://signup.live.com/signup.aspx?id=60969

[Guest guest]

, thanks for the link of info, very interesting article...

Dudley Delany, I have read your page before... thanks for reminding me about it

p/s: read your profile, AMEN Brother!

Janet, yes my teeth problems have been my entire life and the female problems

since I was at least 15 years of age. I had all fillings removed back in '93

right before I was diagnosed with MS. My kids are almost all grown now... only

one still left at home, and I am also a Granny now!! Thank you for all the

advice... I will be looking into each of them.

conanobriengirl, yes they have always been. Back when I had the cyst removed,

it had burst within me, so I had no choice... I had to have emergency surgery.

My body does not heal well, I have a severe scarring issue which in turn when

they do any type of surgery on me, I end up having worst issues than what I went

in for. And endometriosis loves scar tissue... For you, I suggest you try

a new GYN... get a second opinion and then maybe even a third. Was your

sonogram internal? That is another option for you... and also an MRI. I,

personally, am not an advocate of surgery (or even doctors and the man made

drugs they try to push) however I am not completely against modern medicine

either.

I want to thank all of you for the warm welcome and the information you have

given!! Back to research!

TeachX3...aka...Dannielle

www.Fit4LifeFriends.com

[Guest guest]

Hi Dannielle,

Low Dose Naltrexone has been found helpful for not only MS but endometriosis.

Best regards,

Dudley

[Guest guest]

Conanobriengirl,

Since you said any advice is appreciated, I just thought I'd put my 2cents in. I

suffered from ovarian cysts for years & yes they were often ferociously

terrible. One day I was watching public television & on a natural health show

they were talking about ovarian cysts with the suggestion of drinking a cayenne

pepper tincture of 1 Tablespoon cayenne pepper mixed with 16 oz of hot water 3

times daily. After 1 day, I got it thru my head that this was not what I wanted

to do, but I made sure to add 3 Tablespoons of cayenne pepper per day into my

diet. For you it may be easier to use the capsules. For me, this worked

marvelously, shrinking the cysts down to nothing. Seriously, it was that easy.

Cheers,

Cheylenna

>

>

> Hi le,

>

> I don't have any suggestions for you, but I do wonder if you could help me

with something regarding ovarian cysts.

> Any advice is appreciated, thanks!

[Guest guest]

Sounds easy enough. I've gotten a lot of advice and I'm going to try (almost)

everything that I can, this certainly being one of them. We'll see what happens.

Thanks so much!

Re: Hello, new to mscured, but not to MS

Conanobriengirl,

Since you said any advice is appreciated, I just thought I'd put my 2cents in. I

suffered from ovarian cysts for years & yes they were often ferociously

terrible. One day I was watching public television & on a natural health show

they were talking about ovarian cysts with the suggestion of drinking a cayenne

pepper tincture of 1 Tablespoon cayenne pepper mixed with 16 oz of hot water 3

times daily. After 1 day, I got it thru my head that this was not what I wanted

to do, but I made sure to add 3 Tablespoons of cayenne pepper per day into my

diet. For you it may be easier to use the capsules. For me, this worked

marvelously, shrinking the cysts down to nothing. Seriously, it was that easy.

Cheers,

Cheylenna

>

>

> Hi le,

>

> I don't have any suggestions for you, but I do wonder if you could help me

with something regarding ovarian cysts.

> Any advice is appreciated, thanks!

[Guest guest]

Sounds easy enough. I've gotten a lot of advice and I'm going to try (almost)

everything that I can, this certainly being one of them. We'll see what happens.

Thanks so much!

Re: Hello, new to mscured, but not to MS

Conanobriengirl,

Since you said any advice is appreciated, I just thought I'd put my 2cents in. I

suffered from ovarian cysts for years & yes they were often ferociously

terrible. One day I was watching public television & on a natural health show

they were talking about ovarian cysts with the suggestion of drinking a cayenne

pepper tincture of 1 Tablespoon cayenne pepper mixed with 16 oz of hot water 3

times daily. After 1 day, I got it thru my head that this was not what I wanted

to do, but I made sure to add 3 Tablespoons of cayenne pepper per day into my

diet. For you it may be easier to use the capsules. For me, this worked

marvelously, shrinking the cysts down to nothing. Seriously, it was that easy.

Cheers,

Cheylenna

>

>

> Hi le,

>

> I don't have any suggestions for you, but I do wonder if you could help me

with something regarding ovarian cysts.

> Any advice is appreciated, thanks!

[Guest guest]

After years and years of pain (sometimes as you described - like a kidney

stone) and also after having an ablation to reduce the severity of bleeding, I

opted to have exploratory surgery and gave permission to remove whatever might

have been causing problems. Turned out that I had a lot of endometriosis and

scar tissue in addition to a huge blood cyst. The ovary and tube were both

removed and the scarring and offending tissue removed. I've had little or no

symptoms since.

Of course, I had three surgeries in as many years, and I feel that all of it

might have contributed to the onset of the MS symptoms. Surgery is serious no

matter how minor and should be carefully considered.

Best -

Metta

 

________________________________

To: mscured

Sent: Tue, May 11, 2010 12:59:47 PM

Subject: Re: Hello, new to mscured, but not to MS

 

Hi le,

I don't have any suggestions for you, but I do wonder if you could help me with

something regarding ovarian cysts.

Before the removal of your ovarian cyst, were you periods extremely painful, as

painful as having a kidney stone? Were they painful in your back? Since I was

16, I've had extremely painful periods and very bad back pain on the lower left

side. Normal pain medication does nothing for the pain; I've tried homeopathic

stuff as well, but no luck. Finally (years later), they did a sonogram and found

a " small " cyst in my ovary, at the place where I have the pain, but since it's

small, they don't really care and think that it's nothing.

How did you get surgery and would you recommend surgery for me? (Are there

things in my ovary that a sonogram would not pick up?) I've had the same pain

there for years-- normally, I hear that cysts are supposed to go away. Mine

hasn't (nor has the one in my left breast: my left breast's nipple and areola is

always itchy/burning period or no period! They found a cyst there also with a

sonogram but thought that it was nothing, but it's causing me pain every

day...).

Any advice is appreciated, thanks!

Hello, new to mscured, but not to MS

Hi, my name is Dannielle. I have spent some time browsing mscured and find the

information plentiful I look forward to getting to know some new friends here

and learning! I was diagnosed with MS in 1993 and I have only treated it

naturally... never taken any of the suggested man made meds for MS. I was on the

list, way back in the day when I was diagnosed, and my name came up about a year

later... but after much research regarding the drug, as well as MS, I kindly

denied. Anyway, I am listing my 'health record'... due to the new health

problems I have, I am once again researching for healthy, natural alternatives

to treat not only the MS, but the female issues as well. Any suggestions are

much appreciated!

History:

* Born in '67

* As a child I had multiple extreme allergies, to the point that radical changes

in lifestyle had to be followed

* 1982/83 - large ovarian cyst found, when they opened me up, they found tons

more along the walls of my uterus and had to do exploratory surgery to remove

them as well... that is also when they found the endometriosis for the first

time

* 1987/88 - laparascopic surgery for endometriosis as well as damage that was

done from the first surgery, I had terrible scarring and my ovary had healed to

the uterine wall. I was told the 'flap' of skin that is supposed to cover and

protect my female organs was twisted and balled up into a corner, so they

'fixed' that

* Jan 1991 - 1st child born - C Section

* Feb 1992 - 2nd child born - C Section

* 1993 - had several (5 or 6) teeth removed surgically, due to the fact that

they were rotting from the inside out and they were breaking apart. There was

concern of the infection making me sick (I was experiencing symptoms, which was

later diagnosed as MS), many of them had fillings (there are no more fillings in

my mouth)

* 1993 - was diagnosed with Multiple Sclerosis (started natural treatment)

* Sept 1994 - 3rd child born - C Section - Because of my history of scarring,

they had to cut away and clean up the scar tissue from my past two c sections. I

also had my tubes tied, cut and burnt

* 1/17/07 - Starting living a 'healthy lifestyle' for weight loss... over 50

pounds gone thus far

* I did not see any type of doctor from 1994 until 2010. - Because of the MS, I

had a 'pre existing' condition and I could not get insurance... did not qualify

for state help and could not afford the higher rated (very expensive) pre

existing condition insurance, so I had none

* April 13th, 2010 - First doctors visit with the GYN: Anemia (9.7),

Endometriosis, Fibroids, Prolapse of the uterus, Chronic pelvic pain & Heavy

bleeding - (this doctor has given me only 3 options... Lupron drug, UAE (also

known as UFE) or a complete and radical hysterectomy. I am NOT interested in any

of those, which is why I am researching diet, vitamins, etc... I have an MRI

with an Endometriosis Specialist tomorrow, Wed, 12th)

With Hope,

-Dannielle

[Guest guest]

all these things are present in my family, my moms side, me, my twin, my

girls, her girls, always have been. we found out its actually that we are

all carriers of ALD. theres very little info on treating that so we were

told to look at MS treatment. AMN carriers often get lesions on spine, am

haviung an MRI tomorrow. have always had female issues, fibroids, crazy

legs, UTI, gait trouble the last couple years and some slight neurological

changes, speech, etc. and processing.

kerry

On Tue, May 11, 2010 at 11:46 AM, TeachX3 wrote:

>

>

>

> Hi, my name is Dannielle. I have spent some time browsing mscured and find

> the information plentiful I look forward to getting to know some new

> friends here and learning! I was diagnosed with MS in 1993 and I have only

> treated it naturally... never taken any of the suggested man made meds for

> MS. I was on the list, way back in the day when I was diagnosed, and my name

> came up about a year later... but after much research regarding the drug, as

> well as MS, I kindly denied. Anyway, I am listing my 'health record'...

> due to the new health problems I have, I am once again researching for

> healthy, natural alternatives to treat not only the MS, but the female

> issues as well. Any suggestions are much appreciated!

>

> History:

>

> * Born in '67

>

> * As a child I had multiple extreme allergies, to the point that radical

> changes in lifestyle had to be followed

>

> * 1982/83 - large ovarian cyst found, when they opened me up, they found

> tons more along the walls of my uterus and had to do exploratory surgery to

> remove them as well... that is also when they found the endometriosis for

> the first time

>

> * 1987/88 - laparascopic surgery for endometriosis as well as damage that

> was done from the first surgery, I had terrible scarring and my ovary had

> healed to the uterine wall. I was told the 'flap' of skin that is supposed

> to cover and protect my female organs was twisted and balled up into a

> corner, so they 'fixed' that

>

> * Jan 1991 - 1st child born - C Section

>

> * Feb 1992 - 2nd child born - C Section

>

> * 1993 - had several (5 or 6) teeth removed surgically, due to the fact

> that they were rotting from the inside out and they were breaking apart.

> There was concern of the infection making me sick (I was experiencing

> symptoms, which was later diagnosed as MS), many of them had fillings (there

> are no more fillings in my mouth)

>

> * 1993 - was diagnosed with Multiple Sclerosis (started natural treatment)

>

> * Sept 1994 - 3rd child born - C Section - Because of my history of

> scarring, they had to cut away and clean up the scar tissue from my past two

> c sections. I also had my tubes tied, cut and burnt

>

> * 1/17/07 - Starting living a 'healthy lifestyle' for weight loss... over

> 50 pounds gone thus far

>

> * I did not see any type of doctor from 1994 until 2010. - Because of the

> MS, I had a 'pre existing' condition and I could not get insurance... did

> not qualify for state help and could not afford the higher rated (very

> expensive) pre existing condition insurance, so I had none

>

> * April 13th, 2010 - First doctors visit with the GYN: Anemia (9.7),

> Endometriosis, Fibroids, Prolapse of the uterus, Chronic pelvic pain & Heavy

> bleeding - (this doctor has given me only 3 options... Lupron drug, UAE

> (also known as UFE) or a complete and radical hysterectomy. I am NOT

> interested in any of those, which is why I am researching diet, vitamins,

> etc... I have an MRI with an Endometriosis Specialist tomorrow, Wed, 12th)

>

> With Hope,

> -Dannielle

>

>

>

--

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www.ac4ald.com

www.ALDkids

www.marineparents.com