Guest guest Posted August 25, 1999 Report Share Posted August 25, 1999 On Wed, 25 Aug 1999 09:33:25 -0400, " Shayne Dillinger " <SDillinger@...> wrote: >From: " Shayne Dillinger " <SDillinger@...> >Here in Southwestern Ohio we've been experiencing a drought all summer, but the last two days its been a steady rain. As much as we need the rain it's made my PA get very bad. I was almost walking without a limp there for awhile. Oh well it's Ohio the weather will change soon. > >Bye for now >Shayne Hey Shayne, I live in Portsmouth Ohio. We got our first big rain in a loooong time last night. I wound up dreaming I was eating potato chips. Turned out it was actually paint chips, that had fallen off the ceiling. They had fallen off the ceiling, 'cause the ceiling was leaking. <G> Oh well, we did need the rain! Steve http://www.zoomnet.net/~steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 1999 Report Share Posted September 4, 1999 There is a difference between cold sores and the mouth sores we get from taking methotrexate. Cold sores are caused by herpes simplex virus and respond to Lysine as well as anti-viral medications. Mouth sores from Methotrexate are caused by the anti-metabolite side effect of methotrexate slowing down the normal sloughing off of cells in our mouth and else where in the body. This causes the cells to remain in place when they are really ready to be sloughed off and they don't work so well to protect our flesh. Our GI tract sloughs off cells the most quickly normally. The methotrexate slows this process. That is why we are prone to both mouth and stomach ulcers- it is not viral. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 1999 Report Share Posted November 12, 1999 As for side effects, I have none this time around. Last time, it was only > mouth sores, which went away after the first week on MTX. [ ] Digest Number 333 > Hi, I am wondering about these mouth sores. I have none on my gums or whatever, but my tongue has been SO SORE for the past week. I look at it and don't really see anything, but I think the " taste buds " are inflammed. The top of my tongue near the tip is so sore. Has anyone had this? I don't remember burning my tongue ( that's what it feels like) and could it be the MXT? I have been rinsing with salt water 3-4 times a day. It helps at the time. I notice if I eat anything salty it really hurts. What else can I do? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 1999 Report Share Posted November 14, 1999 , I have problems with these same pesky, but painful sores. My taste buds get swollen and hurt so bad. Then sometimes I think I must bite them in my sleep because they can bleed too. I have found that taking extra folic acid helps. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 In a message dated Mon, 10 Jan 2000 10:27:40 PM Eastern Standard Time, " Schroeder " <lschroe3@...> writes: > From: " Schroeder " <lschroe3@...> > > When I tried taking MTX, I got the mouth sores everyone has > mentioned. But when I went off the MTX, they promptly went away. > This was about a year and a half ago. > > Now in the last six months, I have developed more mouth sores and > they are not only on the tongue, but around the top of my gums. > VERY painful. > > I went to the rheumie and he thought that maybe, just maybe, the > celebrex might be causing this. Has anyone out there on celebrex > had this problem? > > Went to see a ENT because I am having sinitis bad enough that the > rheumie took me off of Enbrel till it clears up. The ENT guy did > not seem that impressed with the problem of the mouth sores. > (Also the psoriasis is raging since going off the Enbrel and I > ache everywhere now!) > > In the meantime, I am supposed to wear upper and lower retainers > for a TMJ problem and am unable to wear them at all. The sores > are getting worse even though I still take folic acid and have > recently added vitamin B supplements. > > Any ideas as to what could be causing this and anyone had trouble > with the mouth sores while on celebrex? > Appreciate any and all feedback. I am just truly miserable right > now!! Thank you. > > > Poulsbo, WA. > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 , How much folic acid are you taking. Lot's of RDs start you off with 1mg a day but you can go up to 5. I'm on 20mg MTX a week and had problems til I went up to 3mg folic acid. No experience with Enbrel or Celebrex. Hope you're better soon as I know how miserable these sores can make you. --- Schroeder <lschroe3@...> wrote: > When I tried taking MTX, I got the mouth sores > everyone has > mentioned. But when I went off the MTX, they > promptly went away. > This was about a year and a half ago. > > Now in the last six months, I have developed more > mouth sores and > they are not only on the tongue, but around the top > of my gums. > VERY painful. > > I went to the rheumie and he thought that maybe, > just maybe, the > celebrex might be causing this. Has anyone out > there on celebrex > had this problem? > > Went to see a ENT because I am having sinitis bad > enough that the > rheumie took me off of Enbrel till it clears up. > The ENT guy did > not seem that impressed with the problem of the > mouth sores. > (Also the psoriasis is raging since going off the > Enbrel and I > ache everywhere now!) > > In the meantime, I am supposed to wear upper and > lower retainers > for a TMJ problem and am unable to wear them at all. > The sores > are getting worse even though I still take folic > acid and have > recently added vitamin B supplements. > > Any ideas as to what could be causing this and > anyone had trouble > with the mouth sores while on celebrex? > Appreciate any and all feedback. I am just truly > miserable right > now!! Thank you. > > > Poulsbo, WA. > > ===== C McCullough thelockhorns@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 Had the mouth sore while on MTX, nothing while on Celebrex. When I did get them, I doubled (and sometimes quadrupled) my dose of folic acid and rinsed with salt water. Worked for me. > > When I tried taking MTX, I got the mouth sores everyone has > > mentioned. But when I went off the MTX, they promptly went away. > > This was about a year and a half ago. > > > > I went to the rheumie and he thought that maybe, just maybe, the > > celebrex might be causing this. Has anyone out there on celebrex > > had this problem? > > > > Any ideas as to what could be causing this and anyone had trouble > > with the mouth sores while on celebrex? > > Appreciate any and all feedback. I am just truly miserable right > > now!! Thank you. > > > > > > Poulsbo, WA. > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 , he only gets them a day or so after he takes his MTX. Then they are gone till the next dose. Martha J. [ ] Mouth Sores From: " Schroeder " <lschroe3@...> Martha...thank you so much for the information. I was wondering though if your husband knows what is causing the mouth sores. I would, of course, like to stop taking or using whatever is causing this problem. Or is is something that just goes along with having PA? Thank you so much. Poulsbo, WA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 IMHO - it's part of this disease. Had them before I ever started on meds and have them now especially the next day after MTX. Go away though after about 24 hours. Just my two cents. Helen > [ ] Mouth Sores > > > From: " Schroeder " <lschroe3@...> > > Martha...thank you so much for the information. I was wondering > though if your husband knows what is causing the mouth sores. I > would, of course, like to stop taking or using whatever is > causing this problem. Or is is something that just goes along > with having PA? > > Thank you so much. > > > Poulsbo, WA. > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 , <<In the meantime, I am supposed to wear upper and lower retainers for a TMJ problem and am unable to wear them at all. >> Sorry, I can't help you with the mouth sores, but wanted to add that I too have TMJ. It took SEVEN years to be diagnosed! It can be caused by many things, but mine is definitely caused by inflammation from the PA. A supporting letter from my Reum. reaped me some insurance coverage on a $900 dental appliance. I have to wear it daily, and probably will for life, but the pain and headaches are gone. If any of you are having pain in your jaw (where your mouth opens) and chronic headaches, neck & shoulder stiffness. Go see your dentist and/or periodontist. What a difference this has made for me! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2000 Report Share Posted January 14, 2000 : How much folic acid and other B's do you take per day? I'd like to try it, but I'm not sure how much is TOO much. Thanks, and best wishes, Bunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2000 Report Share Posted January 15, 2000 , Where did you get the Fluocinonide Topical Solution 0.05% from. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 Fluocinonide Cream 0.05% is hydrocortisone cream, the generic name for it is Lidex and yes it works well but I have found Tarzac cream works better for me although very expensive ($250.00 for 60 grams). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2000 Report Share Posted May 13, 2000 It is my understanding that canker sores (apthous ulcers) are autoimmune in nature. Therefor, it is commonly seen with JRA which is also autoimmune in nature. Tyler has had canker sores occasionally in the past but he hasn't had any since he was diagnosed with JRA. DeAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2000 Report Share Posted May 13, 2000 Dear , There are no mouth sores associated with Still's the disease per se. Some people have trouble with mouth sores when they go on methotrexate, a DMARD( disease modifying anti rheumatoid drug). Our daughter is 11 with Still's , but so far hasn't gone on mtx, she is on a lower drug, plaquenil. There is a mixture that is supposed to help with the mouth sores, if your daughter suffers from them, that has been posted before. I am sure if you ask, someone would post it again. Good luck. Just keep reading and learning. mouth sores >can anyone tell me what kind of mouth sores are present with stills, >does it include canker sores, ccrazy questiopn i know but im still >trying to figure this all out, thankyou gina > > >------------------------------------------------------------------------ >$60 in FREE Long Distance! Click Here to join beMANY! today. >1/4126/2/_/524922/_/958190724/ >------------------------------------------------------------------------ > >For links to websites with JRA info visit: >http://www.geocities.com/Heartland/Village/8414/Links.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 Hi group -- need help. Ashli (8 yrs with JRA on 1,200 mg motrin and 200 plaquenil) has a mouth sore on her inner, bottom lip (not on top by her braces, on the bottom). Saw it on Saturday -- never saw a blister or she never complained like a canker sore -- been putting orajel on it and it is doing no better. Thought I read on here once about JRA and mouth sores or maybe is was a reaction to one of the meds. Any help would be appreciated!! God Bless, Sandi A. (Ashli's mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 mommytme@... wrote: > > Hi group -- need help. Ashli (8 yrs with JRA on 1,200 mg motrin and 200 > plaquenil) has a mouth sore on her inner, bottom lip (not on top by her > braces, on the bottom). Saw it on Saturday -- never saw a blister or she > never complained like a canker sore -- been putting orajel on it and it is > doing no better. Thought I read on here once about JRA and mouth sores or > maybe is was a reaction to one of the meds. Any help would be appreciated!! > > God Bless, > Sandi A. (Ashli's mom) Hi Sandi, Sorry to hear that Ashli is having this trouble. I know others here have mentioned remedies to combat the mouth sores that sometimes accompany MTX treatment. For example, the recipe for 'magic mouthwash': a mixture of lidocaine, benydryl, and maalox. If you scroll down to the bottom of this arthritis chat transcript, you'll see that the doctor talks a little about mouth sores as a side effect of MTX, and ways to deal with them. Such as, dissolving Carafate in water and swishing around in one's mouth. And taking Leucovorin the day after MTX instead of daily folic acid. Since your daughter isn't on MTX, I'm not sure if these would be appropriate. The ingrediants require a doctor's prescription. Except for one that is mentioned: saurkraut juice? I never heard of that one, before. Not sure if it would work. Take Care, Georgina Chat Transcript: Tests and Diagnostic Procedures with Barry Waters, M.D. http://arthritisinsight.com/community/chat/july172000.html InsightHostKJ> Tonights topic is Tests and Diagnostic Procedures InsightHostKJ> Dr Waters what one test do you feel is most vaulable in dealing with rheumatic diseases? DrWaters> There is no single test. The most important thing is how the patient feels. So I guess the most important test is the doctor's hearing test. InsightHostKJ> Good answer Dr Waters! Jeff> The gp put me on prednisone right away....will the effect my first visit in any way? Usually if at all possible it's best to see rheumatologist before prednisone. That's why we always see new patients right away if joints swollen or a lot of pain. Guest8> While pregnant my hands, wrists and arms went numb. It's been 3 years since I had my baby and I still have problems. Recently, I've had a lot of pain with it and can't seem to pick things up. I'm wondering if I go in to see the doctor how much poking and prodding he will do. DrWaters> And what does the neurologist say? Guest8> I mean to determine whether this could be arthritis. DrWaters> Arthritis does not cause numbness. Guest8> I don't have numbness anymore. Just the pain. Numbness was only when I was pregnant. This doesn't feel exactly the same, it just hurts. DrWaters> You see why the patient history is so important, you already confused the doctor. Guest8> I'm sorry. I believe that this started out when I was pregnant three years ago. The symptoms come and to though. But recently, there's just a lot of pain. DrWaters> What's wrong with being poked and prodded? Guest8> LOL, it all depends on what the poking and prodding is being done with. I guess what I'm asking is the testing with a lot of needles?? I saw something about blood tests and am wondering what kind of things show up that determine arthritis. DrWaters> The doctor needs to hear when your hands hurt, if you are stiff, what other symptoms you have, etc. He needs to look at your skin and joints, etc. It may or may not be necessary to get lab or xrays. You can't be diagnosed in a Chat room! Guest8> I understand that thank you. I'm was just asking! Guest33> When I first went to the doctor for pain and swelling in the feet, I had an elevated sed rate. Now after pred and NSAIDS, it is at 4, although I still have a lot of visible swelling. Is this because of the medications? DrWaters> Yes, and that's a perfect example of why we follow the patients symptoms and not the sed rate. It's OK to get sed rate initially, but it's pretty useless for follow-up decisions. deb> you mentioned psoriasas{sp?} in the skin exam. I'm not sure of the correlation? what do they check the nails for? DrWaters> Psoriatic arthritis is one of the most common types of inflammatory arthritis, as common as RA, and often as severe. Only way to diagnose it is by looking at the nails, skin and joints. Lab dosen't help and xrays help only in advanced cases. Psoriasis is often present ONLY in the nails. Jeff> So....the RF doesn't mean much either. Mine was 365 DrWaters> In psoriatic arthritis the RF is negative. RA is such a striking disease that usually the RF only helps confirm an already obvious diagnosis. DrWaters> Jeff first. 365 is very high. If you have multiple swollen joints, about symmetric on both sides of body, AM stiffness and such a high RF you almost certainly have RA. Ask for methotrexate if your RD seems dumb. Jeff> how do they feel about the patient asking for special drugs or trying to dictate treament DrWaters> Jeff, if doctor gets mad you can always pretend you were joking. Plus, it's a good way to at least test if the doctor is interested in you as an individual and respects your opinion. You're allowed to be wrong, you didn't go to medical school. > Bone density test? When is it recommended and how often should it be repeated? DrWaters> Now , good question. Very contoversial. I recommend it for all post menopausal women not on estrogen and for patients on prednisone. Cut-off is supposed to be 7.5 mg daily or more but I use 5 mg as cut-off. Usually, except in patients on HIGH dose steroids (>20 mg daily) not useful to check more often then every 2 years. Guest33> I have had some minimal erosion show up on x-rays a year ago. I have not had them taken since then. How often do you recommend x-rays be taken of active joints? DrWaters> 33, that's a good ? too. Personally, I rarely follow xrays. I'm in the minority on this. It's not like we have a million treatments to choose from. If there is pain or stiffness or swelling I try new or more, if patient feels and looks great, who cares about the xrays. InsightHostKJ> Dr Waters I vote you become a traveling doctor and take care off all of us Jeff> there ya go > I 2nd that KJ Guest33> What if the patient looks and feels great but stil has some stubborn joints? DrWaters> 33 - usually try to inject those. Or maybe fiddle with medications. Depends how much they bother you. Don't you agree that's ultimately more practical then xray. Guest33> Yes, thank you! TEXAS> HAVE RF OF 189, CRP OF 8....SOMETIMES VERY ILL ASIDE FROM ra symptoms. am i morphing into lupus DrWaters> If all I know is someone is " ill " how do I know they have lupus? Most people who are ill have colds. Dale> Perhaps someone has already asked this, but if not, is there any way to definitely diagnos RA if it does not show up in bloodwork? DrWaters> Yes and no. If someone has a symmetric polyarthritis and rheumatoid nodules they definitly have RA even if RF negative. If a symmetric polyarthritis and no psoriasis or bowel problems, probably have RA even if RF -, but Dx more iffy. christinemj> MY RD has been hesistant to diagnosis me with RA. Most recently he is using predisone as a " trial and error " . I have had a positive reponse to the pred., and am now weaning off. He has stated that we will try Plaquenil next, if the pain returns after the pred. wean. I am questioning his motives - since I hurt in the meantime - and am wondering if this is a " normally accepted practice. " DrWaters> Absolutely standard. Often we can't tell if patient has inflammatory arthritis or not so we try pred for 2 or 3 weeks and if MUCH better on pred probably has inflam arthritis so then start Plaquenil or other DMARD. If symptoms bad should stay on 5 or 7.5 mg of prednisone for a few months until Plaquenil works. Donna> Are bowel problems synonymous with RA? DrWaters> Opposite. Often patients who have inflam arthritis and don't have RA and don't have psoriatic arthritis have inflammatory bowel disease - Crohn's disease or ulceratice colitis. deb> as a rule of thumb, how long is too ong to be on prednisone? DrWaters> It's probably OK to be on 7.5 mg of pred or less forever, but if patient can do well off it, then they should be off it. But only if doing well. In diabetics, prefer pred only if things terrible off it. > I have a neurologist, neurosurgeon, opthalmologist,hand doctor, foot doctor, RD, PCP with labs and x-rays and MRI's at 3 different facilities. Any recommendations on how to pull it all together? DrWaters> Probably not, medicine has become too complex and specialized. > That's what I've learned; was just hoping. lol Dale> In your opinion, if one has one autoimmune disease are they more likely to develope a second? DrWaters> Yes, I think that's very true. A weird immune system is a weird immune system. I always say that. Dale> Thank you...I always knew I was weird! LOL DrWaters> I meant it as a compliment. TEXAS> are there any definitive test for fms, and what is the final result of this illness if it is progressive DrWaters> No tests for FMS, it's purely symptom/exam thing. End result is addiction to arthritis chats. Guest190> LOL > lol > lol InsightHostKJ> LMAO! Ain't that the truth! TEXAS> thanks, i guess.....lol Guest30> Do autoimmune diseases group together, now I'm being tested for 4th disease, others are lupus, sjogren's and autoimmune hearing loss? DrWaters> Autoimmune diseases group. Sjogren's/RA/Lupus often overlap. Hearing thing less common but well reported. deb> My daughter has been on 20mgs up to 80mgs due to a dx of bullous pemphagoid. Has been on pred since Jan. Always starts breaking out again when down to 20mgs. I'm scared because of her being on pred so long. What other specialist can she see besides derm? DrWaters> Pemphagoid is bad. Have her ask derm if they use methotrexate or immuran or Enbrel. I don't know myself. Make sure she's on Fosamax or Actonel to prevent osteoporosis, too. Really only derm, and rheum for osteoporosis prevention. Dale> Do you have any " magic " cure for mouthsores due to MTX? DrWaters> Dissolve Carafate in water and swish in mouth. Take Leucovorin day after MTX instead of daily folic acid. It's a tough problem. When I get a little canker sore I'm a grouch. Dale> Thank you. Someone suggested sauerkraut juice, but I haven't tried it. Dale> How much folic acid can one take per day? DrWaters> Skeptical about the kraut, but try it if you're not the gassy type. I use 1 mg of folic acid daily for each 3 methotrexate pills weekly. Dale, have you been tried on leucovorin? Dale> No I have not. I take 2mg folic acid/day DrWaters> You see, you do need to tell your rheum what to do. Jeff was right. How much MTX? Dale> He's slowly getting used to it. 20mg DrWaters> 2 or 3 folic acid would be correct. Dale> What is the benefit of leucovorin? And what is carafate? DrWaters> Keep up the good work Dale, our patients are our most important teachers. Of course, in a different sense, but close enough. Dale> Thank you very much. Please send me the bill! LOL DrWaters> Leucovorin is a potent blocker of MTX. For some crazy reason if you take lecovorin 12 to 24 hours after MTX the MTX works and side-effects often go away. Very strange. The original article was by a Dr. Jeff Shiroky, if your rheum needs a reference. Carafate is a medicine for stomach ulcers. In some patients it gets rid of oral ulcers if the dissolve a tab in water and swish it around mouth a few times a day. DrWaters> Tina, I still have a lot of charts to scribble (which is what my wife calls completeing the charts - she's a pediatrician. So I have to go. InsightHostKJ> You go right ahead Dr Waters...and thank you so much! Dale> Thank you, Dr. Waters InsightHostKJ> I'm sorry about the time confusion! Guest190> Nite Doctor > Thanks > Thank you very much - good info. Guest119> Thank you Dr Waters. Do return. InsightHostKJ> We always appreciate your time with us! DrWaters> You know, I used to like computers. Now with this cable modem thing I'm beginning to hate them. I hope all the Cable Modem executives get FMS. InsightHostRon> ROFLMAO > rofl InsightHostKJ> ROFLMAO and with your luck they will all be your patients! InsightHostRon> hehehehehe DrWaters> I take it back, you're right. I hope they get ACNE. InsightHostKJ> LMAO > LOL deb> lol InsightHostRon> lol DrWaters> OK, bye eveyone. InsightHostKJ> Thanks again Dr! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2000 Report Share Posted October 8, 2000 In a message dated 10/8/00 9:04:21 PM Eastern Daylight Time, barblarson@... writes: << lately, i have been suffering from almost continual bouts of mouth sores. they are usually on the tongue , but sometimes the inside cheek or lip. never visible, but absolutely agonizing. >> Barb: Are you on Methotrexate? MTX can cause mouth sores...I am on Folic Acid to prevent them while I'm on MTX...you can get Folic Acid w/o a prescription. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2000 Report Share Posted October 8, 2000 are you on methotrexate? if you are get folic acid. if not you could have what is commonly known as trashmouth..that's basically a yeast infection of the mouth. either way get it check out _Adriel > From: Barb Larson <barblarson@...> > Reply- egroups > Date: Sun, 08 Oct 2000 11:35:58 -0700 > egroups > Subject: [ ] Mouth Sores > > Hi All > lately, i have been suffering from almost continual bouts of mouth sores. they > are usually on the tongue , but sometimes the inside cheek or lip. never > visible, but absolutely agonizing. they throb all night and keep me awake. i > can't eat, can't talk, and when i do talk i have to > slur like a drunk. my boyfriend keeps asking me if i've taken too much pain > medication. does anyone know if this couth be PA related? > > thanks, barb > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2000 Report Share Posted October 8, 2000 Barb, If you are on methotrexate, it causes the mouth sores because it depletes your folic acid. My RD put me on folic acid with the MTX and that stopped the sores. I can sympathize. Rae [ ] Mouth Sores > Hi All > lately, i have been suffering from almost continual bouts of mouth sores. they are usually on the tongue , but sometimes the inside cheek or lip. never visible, but absolutely agonizing. they throb all night and keep me awake. i can't eat, can't talk, and when i do talk i have to > slur like a drunk. my boyfriend keeps asking me if i've taken too much pain medication. does anyone know if this couth be PA related? > > thanks, barb > > > > > Please visit our new web page at: > http://www.wpunj.edu/icip/pa > > This past year had moderated a chat on arthritis at www.about.com on Thursday evenings and hopes to start up doing so again soon- we will keep you posted! Meanwhile, if anyone would like to start a weekly chat on egroups, please contact or . Thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2000 Report Share Posted October 9, 2000 Barb, if you have a strep infection usually your RD will have you stop the mtx so your immune syst can help fight if off with the antibiotic. Most of the other suggestions mentioned prev. are true, but let your RD advise you. Mtx as well as antibiotics can cause oral thrush, but there is a special red 'magic mouthwash' the oncologist give to chemo patients that is a miracle. My husband used it as well as I did. It is a special mixture made by the pharmacist. Do take folic acid anyway. Good luck. Remember always check with your RD for medical advise when on meds. Advice is free, but can be costly to your health. Have a better day. Betty in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2000 Report Share Posted October 9, 2000 Barb - you don't say if you are on MTX, but mouth sores are definately MTX related - if you are on it, be sure to take plenty of folic acid and discuss with your rheumy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2000 Report Share Posted October 9, 2000 Hi, My doctor's prescribe Stanford mouthwash. I think it's fairly easy to make and most pharmacy's can fill the prescription. If you need to get the recipe, call Stanford University Medical Center's pharmacy in Palo Alto, CA. The main number is (650) 723-4000. My mother-in-law had Sjogrens and was given this for her pain. I asked for it and my phamacy in Fresno, was able to fill it. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2000 Report Share Posted October 9, 2000 That must be the miracle mouth wash given to oncology patients. It is real super. It is red and thick and really very tasty. Betty in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 Allyane, I will be thinking about you on Thursday and I will be praying that you not have any undue pain. Just remember the lack of pottie time when they are wanting you to drink after the procedure. I think you will be fine. I've already told you the process. You will ace this test...It's only a test, You will get through it. Again, I'll keep you in my prayers, Donna Ken LaValley <kenlav@...> wrote: Quote Link to comment Share on other sites More sharing options...
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