Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Yes, the recipe is in an old post. That has been discussed a lot. Benadryl and Mylanta. I don't think anything else? I guess we use Anbesol Jr. not the other....ooops. Good Luck. Gretchen and 13 kcclasercreations <eselsor@...> wrote: Thanks! I sopke with his specialist yesterday and they perscribed a " Magic Mouth Wash " it is benadryl, myanta, and some kind of numbing med. They have also recommended that I try the pred. when they start and not wait for the fever. We are trying it so we'll see. , Mom of Chance 11 > > > > Has anyone ever been given anything (meds or otherwise) that helps > prevent the mouth > > ulcers? My son Chance gets them terribly right before the fever > period. Sometimes to the > > point that he won't eat and is very picky about what he eats. > Lately he has been getting them > > on his tongue as well which affects his speech. He normally has 1 > or two small ones > > throughout the month, but during the time right before he fevers > they become very large and > > painful & his mouth and lips swell. Any suggestions would be > great! > > > > > > mom to Chance 11 > > > --------------------------------- Cheap Talk? Check out Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 The recipe for Magic Mouthwash is equal parts benadryl elixer, maalox and viscous lidocaine. Your doctor can order this to be made up for you at the pharmacy. It gives good relief of the pain from the mouth sores; but you don't want the child to drink it, just to swish it around in the mouth for the time it takes you to sing the alphabet song, and spit it out. ---- Gretchen Danson <gretchendanson@...> wrote: > Yes, the recipe is in an old post. That has been discussed a lot. Benadryl and Mylanta. I don't think anything else? I guess we use Anbesol Jr. not the other....ooops. Good Luck. > Gretchen and 13 > > kcclasercreations <eselsor@...> wrote: > Thanks! I sopke with his specialist yesterday and they perscribed a " Magic Mouth Wash " it > is benadryl, myanta, and some kind of numbing med. They have also recommended that I > try the pred. when they start and not wait for the fever. We are trying it so we'll see. > > , > Mom of Chance 11 > > > > > > > > Has anyone ever been given anything (meds or otherwise) that helps > > prevent the mouth > > > ulcers? My son Chance gets them terribly right before the fever > > period. Sometimes to the > > > point that he won't eat and is very picky about what he eats. > > Lately he has been getting them > > > on his tongue as well which affects his speech. He normally has 1 > > or two small ones > > > throughout the month, but during the time right before he fevers > > they become very large and > > > painful & his mouth and lips swell. Any suggestions would be > > great! > > > > > > > > > mom to Chance 11 > > > > > > > > > > > > --------------------------------- > Cheap Talk? Check out Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 , In another support group I'm in, they use the same mouth wash. That person thinks it works well. Elaine > > Thanks! I sopke with his specialist yesterday and they perscribed a > " Magic Mouth Wash " it > is benadryl, myanta, and some kind of numbing med. They have also > recommended that I > try the pred. when they start and not wait for the fever. We are > trying it so we'll see. > > , > Mom of Chance 11 > > > > > > > > Has anyone ever been given anything (meds or otherwise) that helps > > prevent the mouth > > > ulcers? My son Chance gets them terribly right before the fever > > period. Sometimes to the > > > point that he won't eat and is very picky about what he eats. > > Lately he has been getting them > > > on his tongue as well which affects his speech. He normally has 1 > > or two small ones > > > throughout the month, but during the time right before he fevers > > they become very large and > > > painful & his mouth and lips swell. Any suggestions would be > > great! > > > > > > > > > mom to Chance 11 > > > > > > > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.432 / Virus Database: 268.16.13/632 - Release Date: 1/16/2007 4:36 PM > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 Hi, I have nothing to prevent it what I learned a long time ago was mixing baking soda with a little water, make a paste and apply it to the sore with a Q Tip. It numbs it, and eventually after a couple of applications gets rid of it. Usually by the end of day two its gone. Good luck. Azzie mom to kianna 9years old _____ From: [mailto: ] On Behalf Of kcclasercreations Sent: Tuesday, January 16, 2007 2:15 PM Subject: Mouth Sores Has anyone ever been given anything (meds or otherwise) that helps prevent the mouth ulcers? My son Chance gets them terribly right before the fever period. Sometimes to the point that he won't eat and is very picky about what he eats. Lately he has been getting them on his tongue as well which affects his speech. He normally has 1 or two small ones throughout the month, but during the time right before he fevers they become very large and painful & his mouth and lips swell. Any suggestions would be great! mom to Chance 11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 , The Mouth sores you mention is part of what happens with JRA. gets them from time to time. Since they are sometimes called Mouth ulcers. You need to let your Mom know about this. will use warm salty water to swish around in her mouth and spit it out. She also will use Oragel since they can be painful. Celebrex doesn't cause the Mouth sores. They do go away. Robbin <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 Hi .....I was on celebrex for several years and I did occasionally get small mouth blisters. Since I have been off celebrex I dont get as many. Hope this helps. Donna :-) <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 : Tell your rheumatologist and she/he will prescribe folic acid/ folate pills. You can also get it at the pharmacy. <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 Sores on your palms and soles may very well have been pustular palmar/plantar psoriasis. I had it for several years on my palms and for almost a year on my soles before it was finally diagnosed. It was variously misdiagnosed as eczema, contact dermatitis, fungus, etc. If I had not started having excruciating joint and tendon pain, they may never have figured it out! regards, sherry z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 Hello; I had mouth sores for many, many years before getting P and the PA. FYI - I can almost eliminate them if I take L-lysine a couple of times a month. I have included an abstract for a paper that may have the info you want. Let me know if you can't get the paper and I will try to help. Ann Rheum Dis. 2007 Sep 6 [Epub ahead of print] Links Environmental risk factors for the development of psoriatic arthritis: results from a case control study.Pattison EJ, on BJ, Griffiths CE, Silman AJ, Bruce IN. arc epidemiology Unit, The University of Manchester, United Kingdom. OBJECTIVE: To identify potential risk factors for the onset of inflammatory arthritis (IA) in a large cohort of patients with psoriatic arthritis (PsA) of recent onset. METHODS: We recruited cases with psoriasis and an onset of IA within the past 5 years. Controls were patients who had psoriasis but no arthritis. We assessed potential factors associated with the development of IA using a detailed postal questionnaire. An unmatched analysis adjusted for age and gender was performed. Exposure was censored in the controls at a " dummy-date " assigned randomly in proportion to the percentage of cases developing IA in any given year. RESULTS: We studied 98 cases and 163 controls. Exposures showing a positive association prior to the onset of IA in patients with psoriasis were: rubella vaccination (OR [95% C.I.] = 12.4 [1.2-122]), injury sufficient to require a medical consultation (2.53 [1.1-6.0]), recurrent oral ulcers (4.2 [2.0-9.0]) and moving house (2.3 [1.2- 4.4]). Cases were also more likely to have experienced a fractured bone requiring hospital admission (50% vs. 9%, p=0.040). CONCLUSIONS: We found a number of environmental exposures associated with the onset of IA in subjects with psoriasis. The strongest associations were with trauma thereby adding to the hypothesis of a 'deep Koebner phenomenon' in PsA. Our data also suggest that exposure of the immune system to certain infection related triggers may also be of relevance. Further studies are needed to verify these observations and to examine potential immunological mechanisms that underlie them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 The hand and feet sound more like psoriasis. Did the mouth sores start before or after the MTX? MTX can cause this reaction and is helped with folic acid. A dermatologist would be able to help you best in this situation. Rhuemy's are not necessarily well versed in the are of P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 I have psoriasis and PA and I take mtx and enbrel. I had mouth sores several years ago and they got so bad I had to have them cauterized. My ent told me I was alergic to raw tomatoes and when I eliminated them from my diet, no more sores. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 I've had mouth sores since I was a little girl. They come almost every month and last for 1-2 weeks. If I take vitamin C on a regular basis they are less severe and sometimes I miss a month. I never fevered as a child nor do I now. If I eat acidic foods like oranges, tomato sauces, grapefruit, pop.... the ulcers come immediately. Also if I injure the inside of my mouth...right away it turns into an ulcer. My son doesn't seem to get them like I do. I have acid reflux as an adult and my son had it as a newborn. I attribute my ulcers to my acid reflux. I've seen a little one on my son's tongue once during an episode. I do think there is a genetic connection between Acid Reflux, Ulcers, and somehow? Just a guess though! Amy- Mom to -almost 3 years old --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 I've had mouth sores since I was a little girl. They come almost every month and last for 1-2 weeks. If I take vitamin C on a regular basis they are less severe and sometimes I miss a month. I never fevered as a child nor do I now. If I eat acidic foods like oranges, tomato sauces, grapefruit, pop.... the ulcers come immediately. Also if I injure the inside of my mouth...right away it turns into an ulcer. My son doesn't seem to get them like I do. I have acid reflux as an adult and my son had it as a newborn. I attribute my ulcers to my acid reflux. I've seen a little one on my son's tongue once during an episode. I do think there is a genetic connection between Acid Reflux, Ulcers, and somehow? Just a guess though! Amy- Mom to -almost 3 years old --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 Hi Vivian, My daughter has had mouth ulcers since she was 18 mo. Now she is 13 and we are still dealing with them. Her doc gives us a swish and swallow med . Magic Mouthwash. Seems to help. Takes away the pain for a bit. You can apply it with a q-tip to the ulcer. Ask you doctor about it. Just try to stay away from any spiceyor salty foods. During this time, I let my daughter indulge on ice cream. Yum........... Hope this helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 Hi Vivian, My daughter has had mouth ulcers since she was 18 mo. Now she is 13 and we are still dealing with them. Her doc gives us a swish and swallow med . Magic Mouthwash. Seems to help. Takes away the pain for a bit. You can apply it with a q-tip to the ulcer. Ask you doctor about it. Just try to stay away from any spiceyor salty foods. During this time, I let my daughter indulge on ice cream. Yum........... Hope this helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 I wish I had a doctor to ask! I was diagnosed by an Infectious Disease doctor who doesnt deal with Reactive Arthritis. I've been to 2 Rheumatologists and both were basically nutty. One actually told me I have Osteoarthritis. He hugged me on the way out and said he was sure I would be better soon and not to worry. (That was way back in the beginning of October) Then I went though 5 more doctors (long boring story) before I finally got to the doctor that had a clue and knew right off what I had once he spent time with me and asked the appropriate questions and examined me. (Unlike all the others!~) Then he said I should find a Rheumy and I got the another nut who " doesnt like to give titles or put people into categories " . I have no idea what that means. Now I have an appointment at in St. Louis and I'll hopefully get someone who has actually seen and treats this. In the last doctors profile, listed at the University, it said that he treats Reiters, but obviously he just hugs people and wishes them well. (he hugged me goodbye and said to check back in 3 months because he's sure I'll be alllllllllllllllll better by then. It must be something they learn in Rheumotology 101 because I've never had a doctor do that before and I get it with both Rheumotologists? (the good news is they sent me an evaluation in the mail and you had better believe I filled it out! So, until my appointment, I'll be here with my cherry anbesol. Its extremely frustrating if you didnt catch that in my writing....lol! Thanks for letting me vent. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 >(he hugged me goodbye and said to check back in 3 months because he's sure I'll be alllllllllllllllll >better by then. It must be something they learn in Rheumotology 101 because I've never had a doctor do that before and I get it with both >Rheumotologists? I've encountered a similar experience with rheumatologists...either they were condescending about how I would get better, or there was the case of one doctor who outright told me, " You are never going to get better, so suck it up and get used to being sick all the time. " I wanted to punch that guy! There I was desperate for help and he just said " tough luck " and shuffled me out the door. Good luck with your next appointment---hopefully it will go better than the previous ones did! ~ _________________________________________________________________ Climb to the top of the charts! Play the word scramble challenge with star power. http://club.live.com/star_shuffle.aspx?icid=starshuffle_wlmailtextlink_jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2008 Report Share Posted June 6, 2008 I guess you would need to find out the cause of the mouth sores first. I do not think NSAID's cause mouth sores. There is medicine, magic mouthwash, that can treat the mouth sores but it does not prevent them. Mouth sores are very painful, is your child getting them bad? Have you spoken to your doctor about this? > > I've heard people worry about mouth sores with mtx, but my son has > them with NSAIDs. Or else just with the JRA. is there really > anything that can be done to prevent or heal them? > > thanks. > > Lucinda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 Vitamin C def…or B vitamin deficiencies are sometimes associated with mouth symptoms…depends on exact location and symptoms. Maybe also think about drug side effects. See ASPEN Core Curriculum if available Amy Long Carrera MS, RD, CNSC Clinical Dietitian Northridge Hospital Medical Center & Center for Weight Loss Surgery 818-885-8500 x 4034 amy.long@... From: [mailto: ] On Behalf Of gracielynn17 Sent: Friday, November 06, 2009 6:07 AM Subject: Mouth Sores Hello, Do you know of a vitamin deficiency/toxicity related to mouth sores? -Thank You Grace L Registered Dietitian | Diabetes Educator Bon Secours Richmond Health System | St. 's Diabetes Treatment Center 5875 Bremo Road | Richmond, VA | 23226 W: 804-287-7079 | F: 804-287-7839 | grace_millerbshsi (DOT) org Good Help to Those in Need® Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 Hello, If the pt is RNY, it's probably a B vitamin deficiency or a vitamin A deficiency. I'd start by verifying that they're compliant with their daily MVI (x2) Robin , MS RD Registered Dietitian Richmond Medical Center, Kaiser Permanente Richmond, CA > > Hello, > > Do you know of a vitamin deficiency/toxicity related to mouth sores? > > -Thank You > > Grace L Registered Dietitian | Diabetes Educator > Bon Secours Richmond Health System | St. 's Diabetes Treatment Center > 5875 Bremo Road | Richmond, VA | 23226 > W: 804-287-7079 | F: 804-287-7839 | grace_miller@... > > > Good Help to Those in Need® > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Joan, What do you mean cancer sores? did you mean canker? I ask cause was at dentist last week, and i have major mouth sores at times....well the dentist told me he thought my sore was cancer and to go to oral surgeon...and do your sores hurt? I was hospitalized in June as I had 105 degree temp and my tongue mouth and lips were covered with hunreds of very painful sores. I couldnt swallow my own spit. spent 5 days in the hospital...  Debra ________________________________ From: jvanvelsor <jvanvelsor@...> Sent: Thu, February 4, 2010 3:33:21 PM Subject: [ ] mouth sores  I have periodically had cancer sores (oral herpes) for years, many times when my immune system is low. This was long before I had an auto-immune disease. When I first feel the beginning symptoms, I take Lysine (an amino acid). I take 2 pills (500mg) three times a day. Often, I can prevent their development. Many people take lysine every day to prevent an outbreak. I hope this helps, they are so painful and make one feel so ugly besides! Yuck. Joan in Fair Oaks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 I take 17.5 mg MTX/week and 10 mg of Leucovorin Calcium 12 hours following the shot. It reduces nausea and completely takes away mouth sores. Why don't you ask your dr for that? Joy Quote Link to comment Share on other sites More sharing options...
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