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Charisa:

We have definetely found that weather affects Ashli's arthritis. Even the

doctor mentioned this fact to us. We live in Ohio and the months of Oct -

Feb. are the worse for Ashli. Especially in the morning, because it cools

down so much at night and hard to keep Ashli covered. She wiggles all night

long. Couples suggestions the doctor gave us: waterbed that can warm (out

of question here), heating blanket (we do this but keep on lowest setting,

kind of makes me nervous), pj's with legs, etc. Anything to keep them as

warm as possible during the night.

The tummy problem is a constant one with medications. I'm sure a lot of

people on here will answer you. I've heard a lot about taking maalox and

stuff like that at the same time as the meds. I know we have a problem once

Ashli starts school. She has to make 400 mg motrin after lunch and if she

doesn't eat enough she gets sick in the afternoon and that affects school!

Anyone have a suggestion on this? I've told her and told her about eating

everything, but days happen when she's just not hungry or hates what she has!

We did switch from naproxen to motrin becuase of stomach problems.

God Bless,

Sandi A. (Ashli's Mom)

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,

Fevers haven't really been a problem for Kelsey, so I have never thought of

the waterbed heat making fevers worse. Something to think about, for sure.

She kicks around in her sleep, never staying covered, so the heat really

helps keep her warm and joints loose. Maybe you should ask Skyler's doctor

if a waterbed would be a good idea for him or not. Kelsey's doctor says its

important to keep jra kids warm at night, but we never discussed fevers.

I've also been told an electric blanket would be good, but I'm not sure if

that would be a good idea for the little ones, like Skyler and Kelsey.

Definitely something to think about.

Take care,

MIchelle

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Guest guest

,

As JRA kids often have fevers with their painful

flares, have you found the heated bed has any bad side

effects with the fevers or increases sweating? Though

I know the heat really eases the pain I am allways

afraid of heat packs making the fever worse for

Skyler.

I am trying to find him a quality mattress I can

afford that will fit in his crib or perhaps a small

bed. The water bed idea could be an option for us, he

hurts so badly from sleeping on the current one that I

have him frequently sleep in bed w/me or even on the

couch.

Also, Skyler sweats likea marathon runner when he

sleeps. Hate for him to get dehydrated if I put him

in a heated bed.

[ & Skyler]

--- imshellrenee@... wrote:

<HR>

<html><body>

<tt>

We were able to get Kelsey a waterbed right when she

was diagnosed, and it <BR>

has been WONDERFUL! & nbsp; I can tell the heat really

helps her.<BR>

<BR>

<BR>

</tt>

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For links to websites with JRA info visit: <BR>

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  • 1 month later...

Hi ,

I have heard that Arthiritis becomes bad in places with high humidity .I

don't know how much truth is there is this theory .

Suranjan

rheumatic Weather

HI I am new member. Have RA and I am thinking about taking

antibiotic. I live 2 miles from Ocean . When we move here my

symptoms worsened. I have morning stiffness and pain in my shoulders.

It is a connection between weather and RA. My doctor think that isn't

any??? What do you think ???

ELA

To unsubscribe, email: rheumatic-unsubscribeegroups

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Ela,

Tell your doctor he's nuts. There is a huge connection for many people

between RA symptoms and changes in barometric pressure, so much so for

me that my family calls me the human barometer. For example, yesterday

was beautiful with a great forecast for the coming week, yet I started

hurting like mad and could barely use my hands. Woke up this morning to

rain instead of the sunny day that had been forecast. Guess I should

apply for the weather guy's job. So you're not nuts, your doctor is.

Hugs,

a Peden

Elzbieta Nadler wrote:

> HI I am new member. Have RA and I am thinking about taking

> antibiotic. I live 2 miles from Ocean . When we move here my

> symptoms worsened. I have morning stiffness and pain in my shoulders.

> It is a connection between weather and RA. My doctor think that isn't

> any??? What do you think ???

> ELA

>

>

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http://arthritis.about.com/health/arthritis/cs/weather/index.htmterms=weathe

r

Some say yes, some say no (usually researchers, not arthritics, saying no

LOL ), here is a site where you can read about the different opinions and

research, but if you ask me..YES! I always feel worse with changes in the

weather, the more extreme the change, the worse my reaction. I think

barometric pressure affects me the most, though extreme temperatures in

either direction can also.

I hope you get hte antibiotics, they have made me feel a lot better.

Morning stiffness in one area in which I have gotten a very good response.

It used to last all day, now is sometimes not at all, or at the worst, about

one hour on a bad day. Good luck! And if you'd like to post some

more..we'd love to get to know you better. : ) Liz G

> HI I am new member. Have RA and I am thinking about taking

> antibiotic. I live 2 miles from Ocean . When we move here my

> symptoms worsened. I have morning stiffness and pain in my shoulders.

> It is a connection between weather and RA. My doctor think that isn't

> any??? What do you think ???

> ELA

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Hi Suranjen -

I KNOW humidity makes me hurt so much more. Here where I am (Boston area)

we've been getting so much more humidity than yrs ago (global warming??).

This summer was bad, but the spring and winter is always the worse - the

damp, moist air makes my body hurt so much. Come to think of it, the fall

isn't that great either.... I yearn to move to a place that has a better

climate. Like Hawaii. Or parts of Italy. (I can dream....)

Take care.

Lyn

P.S. ELA - Your doctor is NUTS. I wonder if he or she is young - 'cause even

osteoarthritis is aggravated by (one of my former drs clarified it - said it

was the " barametric pressure changes " that made the pain worse) the weather!

Whatever the cause, YOU know what your body tells you better than any dr, as

long as you pay attention. Then sometimes, our bodies shout to us anyway to

get our attention! :)

------------- rheumatic Weather

>

------------------------------------------------------------------

> HI I am new member. Have RA and I am thinking about taking

>antibiotic. I live 2 miles from Ocean . When we move here my

>symptoms worsened. I have morning stiffness and pain in my shoulders.

>It is a connection between weather and RA. My doctor think that isn't

>any??? What do you think ???

>ELA

>

_________________________________________________________________________

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Cripes, what a doctor! Everyone knows weather bothers both kinds of

arthritis. My orthopedic doc told me heat and humidity is the worst

on

it and she is right because i feel best on really cold frigid, crisp

winter days. Just today had long discussion with my regular doc

including some on weather and hip replacements and arthritis. He has

a

wife who had broken hip and multiple leg breaks and plates in leg

from

an accident so he knows all about her being effected by it. Everytime

we get a big weather change I will ache kinda bad that day and since

the last cooling (like from 100+ to 80+, LOL) I have had a lot of

back

pain.

Truely mind boggling that a doctor doesnt know weather effects

arthritis. Where do these idiots pop up from?

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Dear Zanash, how kind of you! I am glad that you enjoy the Olympic Games.

Hope the fab. weather continues.

Yes, one forgets the old aches and pain momentarily.

Keep well.

Waltraud from " down under "

rheumatic weather

>

> Dear and all those " down under " ,

>

> Congratulations on the absolutely wonderful Olympics being hosted. The

> weather seems to be ideally suited for our group!!!

>

> Slightly off-topic but watching the various games makes one forget the

aches

> and pains.

>

> Loads of wishes and prayers for a speedy recovery to all,

> Zanash

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

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  • 2 months later...

I hate to tell you but it was 81 in Haines City today. They say we may get

some rain tomorrow night, which we need badly and then will get down into the

60's. I would love to see your snow but just want to visit, wouldn't want to

live there. LOL Genny/Fl

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  • 4 months later...
Guest guest

In a message dated 30/04/01 07:40:05 GMT Daylight Time, momscmbc@... writes:

Does this happen to anybody else or am I just "SPECIAL"?

Sorry to disappoint you, but you are not "SPECIAL" (don't mean to be unkind here!!).

At the moment, I am having BIG problems with the PA around and inside my ears, (some of you may remeber me posting about 'ear' problems!!).

I think they have now, (both), become infected, (Dr's visit tomorrow!), which for some reason is causing me pain down the side of my neck, and in the upper half of my chest. The pain is so severe, (I thought it was my heart!!!), that it has now necessitated a visit to my GP.

I know I digress a little, BUT, I am putting it all down to the weather!! I really do suffer when there is any change in temprature, particularly if it goes cold, and especially if there is a cold wind blowing !!

Anyone else suffer like this ???

Mike (from the UK)

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Guest guest

> In a message dated 30/04/01 07:40:05 GMT Daylight Time,

momscmbc@a...

> writes:

>

>

> >

>

> Sorry to disappoint you, but you are not " SPECIAL " (don't mean to

be unkind

> here!!).

>

> At the moment, I am having BIG problems with the PA around and

inside my

> ears, (some of you may remeber me posting about 'ear' problems!!).

> I think they have now, (both), become infected, (Dr's visit

tomorrow!), which

> for some reason is causing me pain down the side of my neck, and in

the upper

> half of my chest. The pain is so severe, (I thought it was my

heart!!!), that

> it has now necessitated a visit to my GP.

>

> I know I digress a little, BUT, I am putting it all down to the

weather!! I

> really do suffer when there is any change in temprature,

particularly if it

> goes cold, and especially if there is a cold wind blowing !!

>

> Anyone else suffer like this ???

>

> Mike (from the UK)

Mike, This is Dena. My grandmother,my mother, myself and my daughters

have all complained with headaches or body aches when the weather

changes. I have lived in Calif-Montana and Idaho and I personally

feel worse in the colder climates. However, thunderstorms (which you

definately get in warm climates) seem to be the worst. My mom says

she always feels worse(headaches) when, as she puts it, two weather

systems are fighting over us. It seems like Dr.s used to think you

were crazy if you linked increased pain with weather changes but now

they(Dr.s) even ask the question on the new patient sheets. Do they

finally believe?? Too bad my Grandmother (REST HER SOUL) isn't here

to see that. She used to get so mad at Dr.s when they brushed off the

thought of it. I usually don't do well in high humidity either

(ASTHMA) but when my husband and I finally made it to Hawaii I felt

soo great! I told him that when he retires I really would like to

live there. At least part-time. Back to weather induced pain. I used

to joke with the local weatherman that I would call him whenever I

could feel the weather changing but all I would be able to tell them

is that it is changing but not when or how. Everyone be Happy--Like I

tell " NORMAL PEOPLE " when they ask how do you stand all the pain- I

respond that on most days it is definately better than the

alternative. Spring brings hope! Enjoy it! Dena

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Guest guest

Yeah... weather changes are horrible. I live on the southwest coast of Canada and when the weather changes to wet (our practically normal state) and cold, I just want to take my meds and go to bed!

Stress is another problem, and today our community is living with the possibly preventable death of a 3 year old, a situation that reminds me of an experience I had several years ago when in my work I discovered the body of a 3 month old baby who was killed by his father (who was standing behind me at the time I saw the baby). This is definitely not a good day for me...

-----Original Message-----From: picbond@... [mailto:picbond@...]Sent: 30-Apr-01 7:32 AM Subject: Re: [ ] WeatherIn a message dated 30/04/01 07:40:05 GMT Daylight Time, momscmbc@... writes:

Does this happen to anybody else or am I just "SPECIAL"? Sorry to disappoint you, but you are not "SPECIAL" (don't mean to be unkind here!!). At the moment, I am having BIG problems with the PA around and inside my ears, (some of you may remeber me posting about 'ear' problems!!). I think they have now, (both), become infected, (Dr's visit tomorrow!), which for some reason is causing me pain down the side of my neck, and in the upper half of my chest. The pain is so severe, (I thought it was my heart!!!), that it has now necessitated a visit to my GP. I know I digress a little, BUT, I am putting it all down to the weather!! I really do suffer when there is any change in temprature, particularly if it goes cold, and especially if there is a cold wind blowing !! Anyone else suffer like this ??? Mike (from the UK)

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Guest guest

Mike - I think changes in weather bother my joints too - and not just

necessarily cold. The change from cold to hot weather bothers me as well, in

fact I think more so. The heat seems to make my joints swell, probably

because of fluid retention. Oh, let's just face it - EVERYTHING makes me

hurt!! I'm sick of PA today.

Hoping tomorrow is better,

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In a message dated 02/05/01 03:58:29 GMT Daylight Time, picbond@... writes:

(some of you may remeber me posting about 'ear' problems!!). I think they have now, (both), become infected, (Dr's visit tomorrow!)

Hi All,

CONFIRMED !!! Also my joints have become 'infected!!!'...Now I have to go and see my Rhemy and Dermo, urgently she says !!

Can someone inform me of the benefits of ENBREL, and what it does, etc?? Thanks.

Mike (from the UK)

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In a message dated 5/1/01 7:59:28 PM Pacific Daylight Time, picbond@...

writes:

<< I

really do suffer when there is any change in temprature, particularly if it

goes cold, and especially if there is a cold wind blowing !!

Anyone else suffer like this ???

>>

Mike

You are not alone. I know a day or so ahead of time. It depends on how

bad or big a storm. If it is a big storm it starts a day or two ahead, a

small one or a change in the temp,expecially cold, I will know about a day.

Then the day of the storm the pain will let up some. Sounds crazy but that

is truely how it is.

I love the warm (not hot) sunshine. The heat affects the psorasis for

me. I should say too much heat or too much sunshine and the cold affects not

only the joints but the whole body too.

Soaking in the sunshine today.

Nanny

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Guest guest

Dena,

I, too, tend to get headaches when the air pressure is changing (like from

one kind of system to another). My arthritis seems to be aggravated on

these days too. Rain doesn't bother me--unless it's in the process of

changing from hot to cold or vice versa.

=\

Sinead

>From: puttinpugs@...

>Reply-

>

>Subject: [ ] Re: Weather

>Date: Wed, 02 May 2001 02:43:21 -0000

>

>

> > In a message dated 30/04/01 07:40:05 GMT Daylight Time,

>momscmbc@a...

> > writes:

> >

> >

> > >

> >

> > Sorry to disappoint you, but you are not " SPECIAL " (don't mean to

>be unkind

> > here!!).

> >

> > At the moment, I am having BIG problems with the PA around and

>inside my

> > ears, (some of you may remeber me posting about 'ear' problems!!).

> > I think they have now, (both), become infected, (Dr's visit

>tomorrow!), which

> > for some reason is causing me pain down the side of my neck, and in

>the upper

> > half of my chest. The pain is so severe, (I thought it was my

>heart!!!), that

> > it has now necessitated a visit to my GP.

> >

> > I know I digress a little, BUT, I am putting it all down to the

>weather!! I

> > really do suffer when there is any change in temprature,

>particularly if it

> > goes cold, and especially if there is a cold wind blowing !!

> >

> > Anyone else suffer like this ???

> >

> > Mike (from the UK)

>

>

>Mike, This is Dena. My grandmother,my mother, myself and my daughters

>have all complained with headaches or body aches when the weather

>changes. I have lived in Calif-Montana and Idaho and I personally

>feel worse in the colder climates. However, thunderstorms (which you

>definately get in warm climates) seem to be the worst. My mom says

>she always feels worse(headaches) when, as she puts it, two weather

>systems are fighting over us. It seems like Dr.s used to think you

>were crazy if you linked increased pain with weather changes but now

>they(Dr.s) even ask the question on the new patient sheets. Do they

>finally believe?? Too bad my Grandmother (REST HER SOUL) isn't here

>to see that. She used to get so mad at Dr.s when they brushed off the

>thought of it. I usually don't do well in high humidity either

>(ASTHMA) but when my husband and I finally made it to Hawaii I felt

>soo great! I told him that when he retires I really would like to

>live there. At least part-time. Back to weather induced pain. I used

>to joke with the local weatherman that I would call him whenever I

>could feel the weather changing but all I would be able to tell them

>is that it is changing but not when or how. Everyone be Happy--Like I

>tell " NORMAL PEOPLE " when they ask how do you stand all the pain- I

>respond that on most days it is definately better than the

>alternative. Spring brings hope! Enjoy it! Dena

>

>

_________________________________________________________________

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Guest guest

In a message dated 04/05/01 16:16:54 GMT Daylight Time, TADEL630@... writes:

The heat seems to make my joints swell, probably because of fluid retention. Oh, let's just face it - EVERYTHING makes me hurt!! I'm sick of PA today.

Hoping tomorrow is better,

,

Dead right !! :-)

If I can be rude here, it is a S*** !!!!!!

At the moment, I feel like a Puff Adder !! about to strike ! :-) lol

On the theraputic side, I find dealing with my Bonds and Certificates on eBay, tends to take my mind off it !!!

Mike (from the UK)

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Guest guest

I'm having a hard time period....i love the warm weather but just been finally diagnosed? with PA...I've lived with it in my shoulder for 8 years...Just in the past 2 moths has it taken my legs....I'm very active and it's depressing to not be able to do and go as I'm accustomed to doing....I'm a young 33 with 4 beautiful children and a loving husband....There are so many things I wanted to do....I have hope I'm able to do them all...It's very frustrating though....wishinf you all the best THE MTNCAT

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In a message dated 05/05/01 23:51:24 GMT Daylight Time, mtncat8881@... writes:

There are so many things I wanted to do....I have hope I'm able to do them all...It's very frustrating though....wishinf you all the best

Hi The MTNCAT!

Hope you are feeling better today. Try not to get 'too' down! I know it is frustrating, we all feel it. What we have to remember, is that sometimes, we have 'good' days, and these are the ones that we have to cherish.

We all get depressed from time to time, (some more than others!), but this is the time that we should be talking to someone, (even if it is on here in our group!!), which, sometimes, helps.

Anyway, hope you have a pain free day.

Mike (from the UK)

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  • 4 months later...

In a message dated 9/24/01 7:14:44 AM Central Daylight Time,

jwmson1@... writes:

> n Durham for Friday the high is 71 with a low of 47; on Saturday the

> high is 70 with a low of 49 and on Sunday the high is 72 with a low of

> 52. Sounds like a sweater might be in order for partying on the patio

> at the Hawthorn!

>

>

>

>

Yes, I love this weather. It has taken a turn this week....yesterday it was

90 and today the high is 78 and lower 70's the rest of the week. Just pray

for no rain!!

in Raleigh

MGB 11/22/99 270/127 size 24/4

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The Weather Channel says " mostly sunny " which is great! Fall is my

favorite time of year - warm days and " nippy " at night! I wore panty

hose to church yesterday (big mistake) and was dying! It was 87 and

very humid -- had to stand outside while my 6-year-old got soccer

pictures taken (I was still dressed from church of course). Can't wait

to be able to have a fire in the fireplace!

Re: Weather

In a message dated 9/24/01 7:14:44 AM Central Daylight Time,

jwmson1@... writes:

> n Durham for Friday the high is 71 with a low of 47; on Saturday the

> high is 70 with a low of 49 and on Sunday the high is 72 with a low of

> 52. Sounds like a sweater might be in order for partying on the patio

> at the Hawthorn!

>

>

>

>

Yes, I love this weather. It has taken a turn this week....yesterday it

was

90 and today the high is 78 and lower 70's the rest of the week. Just

pray

for no rain!!

in Raleigh

MGB 11/22/99 270/127 size 24/4

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  • 2 months later...

Oh, my what a thread I started (weather--ohhh sorry, we got way off topic,

so hope no one is mad at me!)and it still said Axel the nasty! soooo sorry, have

changed the RE: title once more, now everyone please stop responding to that old

title, we love our Axel and wouldn't want him to only be known by this nasty

thread, ha, ha! Hey, it stopped raining here for half a day, whoa, is this frog

dryin' out yet, hmmmm....we'll see. I'm praying for a little slow down at

least....

Love ya'll,

Lilla

Mony after Thanksgiving it was 81 here (central Tx), the following

Wed it was in the 30s all day, now it's been in the 70s, rainy and

VERY humid for the past few days. What mixed up weather.

E Long

--- Lilla Luoma

--- lillabell@...

Mitakuye oyasin....We Are All Related

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  • 2 months later...

Hi ,

Sounds like Ohio is much like VA. Today is was 70+ and tomorrow it will be in

the forties and may possibly snow. I still can't figure out if the weather

effects me. I guess I should keep a diary.

Shirley in VA

" Ralph l. McGillvary " <jca@...> wrote: hi all,

i live in sw ohio, and we have either hot or cold

weather, very little in between. and it can be cold

in july and hot in january. yesterday it got up to 66, and

today it is 20 and snowing! my pa stays the same

no matter the weather. stress and tiredness affect me.

gordon, thank goodness you are ok.

susan in ohio

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