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Hi ,

My name is Kate!  I'm 39 and developed RA suddenly after I delivered my second

son.  We knew we wanted to have a third (I'm actually very NEWLY pregnant right

now!) so I avoided ALL meds.  Early on, after I stopped breastfeeding , I

was on Enbrel and prednisone - but took myself off of all of them (slowly) due

to our desire to try to conceive.  I actually did get pregnant about six months

ago and my RA went into remission, which can happen, but I lost the baby and it

came rushing back.  It was then that I consulted with a doctor who specializes

in nutrition and she put me on a diet that has helped me TREMENDOUSLY with

inflammation and pain.  If you're interested, let me know.

Also - and this may seem kinda " out there " - but I now see a woman who does

" Energy work " and healing.  She's a Chiropractor who specializes in something

called " Bio Geometric Integration " .  You can read about it on this website and

also find someone in your area that practices it:

http://www.bgiseminars.com/BGI_seminiars.html

 

I feel a LOT better since seeing her.  I've been chronicling my journey with

her on the online journal I keep every day.  I had her treat my two year old

son, Gavin, too.  He has CP.  The changes in him after ONE visit were

astounding.  Almost miraculous.

I realize I'm being kinda vague about all of this.  I know it's a little

" different " and " alternative " .  If you're interested, you can email me!

 

Good luck!  Get off that methotrexate and stay off it for a WHILE before you

start trying....

kate.

http://www.caringbridge.org/visit/gavinleong

From: mbar613909 <mbar613909@...>

Subject: [ ] Thinking about getting pregnant

Date: Tuesday, January 19, 2010, 11:50 PM

 

hello all my name is . I am totally new to this forum or blogging stuff. I

am 30 years old and have had RA for about 3 years. I was an avid salsa dancer, a

huge bikram yoga fan,and loved any areobic glass i could bounce around in. RA

put the brakes on all that. I started getting inflamation in my wrists and

fingers, so salsa dancing stopped right along with the hot yoga. I was put on

azulfazine and mobic, then Humera.I saw some relief oh and a lot of

prednisone(gained like ten pounds ! Then i quite all meds before my wedding and

that was a BIG mistake. When i returned from my honeymoon I started treatment. I

started Enbrel and Methotrxate, i have been really good for the last @ years,

but now i am thinking about trying to concieve and i am so scared how my body

will react : ( I have started decreasing my methotrexate and my body is a lil

uncomfortable . Has anyone been in this situatuation ?

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congrats on getting married. I actually got RA after having my son but I have a

friend who has RA and she said it wasnt too bad during pregnancy but I would

definitely talk to your Rheumatologist about what meds to take so you dont have

a massive flare and talk to your obgyn about whats safe to take. 

Good luck

Kim

________________________________

From: mbar613909 <mbar613909@...>

Sent: Tue, January 19, 2010 11:50:41 PM

Subject: [ ] Thinking about getting pregnant

 

hello all my name is . I am totally new to this forum or blogging stuff. I

am 30 years old and have had RA for about 3 years. I was an avid salsa dancer, a

huge bikram yoga fan,and loved any areobic glass i could bounce around in. RA

put the brakes on all that. I started getting inflamation in my wrists and

fingers, so salsa dancing stopped right along with the hot yoga. I was put on

azulfazine and mobic, then Humera.I saw some relief oh and a lot of

prednisone(gained like ten pounds ! Then i quite all meds before my wedding and

that was a BIG mistake. When i returned from my honeymoon I started treatment. I

started Enbrel and Methotrxate, i have been really good for the last @ years,

but now i am thinking about trying to concieve and i am so scared how my body

will react : ( I have started decreasing my methotrexate and my body is a lil

uncomfortable . Has anyone been in this situatuation ?

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Hello Kate,

Can you tell me more about the diet that helped you.

Thanks,

>

> Hi ,

> My name is Kate!  I'm 39 and developed RA suddenly after I delivered my

second son.  We knew we wanted to have a third (I'm actually very NEWLY

pregnant right now!) so I avoided ALL meds.  Early on, after I stopped

breastfeeding , I was on Enbrel and prednisone - but took myself off of all

of them (slowly) due to our desire to try to conceive.  I actually did get

pregnant about six months ago and my RA went into remission, which can happen,

but I lost the baby and it came rushing back.  It was then that I consulted

with a doctor who specializes in nutrition and she put me on a diet that has

helped me TREMENDOUSLY with inflammation and pain.  If you're interested, let

me know.

> Also - and this may seem kinda " out there " - but I now see a woman who does

" Energy work " and healing.  She's a Chiropractor who specializes in something

called " Bio Geometric Integration " .  You can read about it on this website and

also find someone in your area that practices it:

> http://www.bgiseminars.com/BGI_seminiars.html

>  

> I feel a LOT better since seeing her.  I've been chronicling my journey with

her on the online journal I keep every day.  I had her treat my two year old

son, Gavin, too.  He has CP.  The changes in him after ONE visit were

astounding.  Almost miraculous.

>

> I realize I'm being kinda vague about all of this.  I know it's a little

" different " and " alternative " .  If you're interested, you can email me!

>  

> Good luck!  Get off that methotrexate and stay off it for a WHILE before you

start trying....

> kate.

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Hi ,

Sure!  The doctor told me to try this for two weeks - see how I felt - and then

decide if I wanted to keep it up.  To be honest, I wasn't sure I would last TWO

DAYS, let alone two weeks. I am a person addicted to sweets.  I ate a Strawberry

Frosted pop tart every single morning.  I love coffee.  I lived on Diet Coke. 

So, when she said to give up:  Caffeine, Sugar, soda, anything made with white

flour and cut down carbs severely...I wanted to cry.  Every morning she told me

to make a smoothie - I would freeze bananas (peeled in a zip loc bag

individually) and throw one in the blender along with:  frozen blueberries, a

scoop of protein powder, a soft boiled egg (1 minute boil), psyllium powder, 8

oz of filtered water and any other extra fruit I wanted (I usually picked a

pear).  Then she told me to snack on nuts, raisins, etc. during the day.  To add

lots of protein and veggies.  I would grill a bunch of chicken breasts on the

weekend to eat

all week for lunch.  I would also buy those steam bags of veggies that are so

easy to throw in the microwave.  I was hard core and did it for two weeks.  You

know what happened?  Not only did my pain and inflammation decrease... but I

realized I felt a lot better.  Two weeks has now turned into several months. 

Just to give you an idea of the drastic change... I would wake up with crippled

hands.  I have two babies - a two year old with Cerebral Palsy and a one year

old active walker.  I needed help to dress myself - so I definitely needed help

to get them up, dressed, fed, etc.  I wouldn't feel functional until noon.  It

was dreadful.  Now - I only have slight pain in my wrists that is bearable.  I

don't get swelling that much at all.  It's amazing.

I hope that helps!  The way I see it - there really are no side effects to

changing your diet that are negative!!!  It's worth a shot.  It was for me!!

Good luck...and keep us posted!

kate.

http://www.caringbridge.org/visit/gavinleong

From: <cntrygrl86@...>

Subject: [ ] Re: Thinking about getting pregnant

Date: Wednesday, January 20, 2010, 12:41 PM

 

Hello Kate,

Can you tell me more about the diet that helped you.

Thanks,

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What an inspiration! I'm looking into various dietary changes because the meds

I've finally been put on, while easing the RA symptoms a bit, are taking a toll

on my energy and I'm depressed all the time. I'm getting tired of the medical

roller coaster I've been on. You have inspired me. Can you give some tips/tricks

on how to kick the cravings for carbs and sweets? How long did it take and how

hard was it? You certainly have your hands full! Kudos to you.

Michele

>

> Hi ,

> Sure!  The doctor told me to try this for two weeks - see how I felt - and

then decide if I wanted to keep it up.  To be honest, I wasn't sure I would last

TWO DAYS, let alone two weeks. I am a person addicted to sweets.  I ate a

Strawberry Frosted pop tart every single morning.  I love coffee.  I lived on

Diet Coke.  So, when she said to give up:  Caffeine, Sugar, soda, anything made

with white flour and cut down carbs severely...I wanted to cry.  Every morning

she told me to make a smoothie - I would freeze bananas (peeled in a zip loc bag

individually) and throw one in the blender along with:  frozen blueberries, a

scoop of protein powder, a soft boiled egg (1 minute boil), psyllium powder, 8

oz of filtered water and any other extra fruit I wanted (I usually picked a

pear).  Then she told me to snack on nuts, raisins, etc. during the day.  To add

lots of protein and veggies.  I would grill a bunch of chicken breasts on the

weekend to eat

> all week for lunch.  I would also buy those steam bags of veggies that are so

easy to throw in the microwave.  I was hard core and did it for two weeks.  You

know what happened?  Not only did my pain and inflammation decrease... but I

realized I felt a lot better.  Two weeks has now turned into several months. 

Just to give you an idea of the drastic change... I would wake up with crippled

hands.  I have two babies - a two year old with Cerebral Palsy and a one year

old active walker.  I needed help to dress myself - so I definitely needed help

to get them up, dressed, fed, etc.  I wouldn't feel functional until noon.  It

was dreadful.  Now - I only have slight pain in my wrists that is bearable.  I

don't get swelling that much at all.  It's amazing.

> I hope that helps!  The way I see it - there really are no side effects to

changing your diet that are negative!!!  It's worth a shot.  It was for me!!

> Good luck...and keep us posted!

> kate.

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