Re: remicade Infusion

[Guest guest]

In a message dated 04/17/2001 1:20:31 PM Eastern Daylight Time,

karenestey@... writes:

<< However, the insurance company denied coverage based

on the fact that its not approved by FDA for Psoriatic Arthritis.

I wondering if anyone has knowledge of any studies which would give

some basis for appeal to the insurance company.

Thanks, >>

- See if your rheumy can say it's seronegative rheumatoid arthritis.

Also, my rheumy told me that Enbrel and Remicade will be approved for PA in

the near future. Don't know if he can wait, so if not, most rheumatologists

will " fudge " it a little and call it RA.

I think mine came up with polyarthritis w/ sero neg and psoriasis. PatB

[Guest guest]

Dear Liz,

I agree with Connie about the test for hormones for menopause. I

had it, too, and though the test said I wasn't in menopause, my body

said differently! I've had problems for the past 20 months, I'm 51

now, and I KNOW I got menopause for my 50th birthday present! Gee,

THANKS BODY! Seriously, though, you know your own body best, and I'd

suggest you just trust instincts.

CelticJade (Judy D.)

[Guest guest]

In a message dated 1/22/2011 4:55:08 P.M. Central Standard Time,

suzyl62@... writes:

Ok so now I am set to start the Remicade Infusion next week. Can anyone

tell me about this drug and how you feel after you are done the infusion. I

know everyone is diff but I would like to know like how long it takes and do

you feel sick from it stuff like that. ty suzyl62 >

I feel a little tired the evening after my infusion. My fatigue (which I

had been feeling for a week or so) went away the next morning. After trying

Methotrexate and Arava, Remicade is like a miracle drug for me.

dd

[Guest guest]

thank you so much for the info. I hear that you do get  tired after the

infusion.  how long it take for you to get it ?

thank you suzyl62

[Guest guest]

I just had my third infusion of Remicaid & I haven't felt this good since I was

diagnosed almost 3 years ago. I started feeling good after 1 week after the

initial infusion. This (the 3rd) infusion I have been really tired. Its been 3

days & I'm still tired but not like I was the 1st & 2nd day after this infusion.

I took Humera & it caused high blood pressure with me. Then I took Enbrel. It

reduced my symptoms but didn't stop it. Remicaid has stopped all of my symptoms

except the fatigue but that is reduced alot. I look forward to the infusions

cause I feel better after them.

Good luck

Jill

>

> thank you so much for the info. I hear that you do get  tired after the

infusion.  how long it take for you to get it ?

> thank you suzyl62

>

>

>

>

>

[Guest guest]

In a message dated 1/23/2011 8:42:16 A.M. Central Standard Time,

suzyl62@... writes:

thank you so much for the info. I hear that you do get tired after the

infusion. how long it take for you to get it ? >

It takes about two hours. They have equipment so you can watch a DVD. They

also have some snacks and juice or water. My clinic also has WiFi, so I

bring my computer and catch up on email, etc.

dd

[Guest guest]

so I started my Remicade 3 weeks ago It was like a wonder drug. just had my 2

infusion and I did not feel the same very tired and feel like I was getting the

flu but its been 4 days and I think I am feeling better. is this the way other

people on Remicade feel too. I will be getting my next one march 22, any info

would be great, ty

suzyl62

[Guest guest]

I get Remicade infusions as well every six weeks.  Yes, it does leave you

exhausted the day of the infusion, at least, it does me.  It is my wonder drug

as well as I failed MTX. Enbrel, Humira, Simponi, Orencia.  I actually take a

laptop and do work but by the end of the infusion I am exhausted.  I take a

preload of tylenol and atarax to reduce chances of side effects, but I've taken

atarax many times before without it even phasing me.  So I believe the actual

infusion just has this effect.  I felt like i was moving through water last

time.  I can't go back to work afterwrds that day but am fine the next day.

[Guest guest]

In a message dated 2/27/2011 9:28:27 A.M. Central Standard Time,

deulrich@... writes:

So I believe the actual infusion just has this effect. I felt like i was

moving through water last time. I can't go back to work afterwrds that

day but am fine the next day. >

The infusion nurse said the tiredness comes from the Remicade doing its

work. She said to not stress myself and " let it have its way with me. " Last

month, I was a little tired the day of the infusion, but felt wonderful the

next day. This month, I was really tired for three days, then had a flare on

the 4th day. My body ached in every joint. I was working and could hardly

walk. When I got home, I took paid meds as prescribed, then laid down. In a

few hours, the pain was gone and I'm back to my new normal.

dd

[Guest guest]

In a message dated 2/27/2011 12:17:52 P.M. Central Standard Time,

dgd301@... writes:

So I believe the actual infusion just has this effect. I felt like i was

moving through water last time. I can't go back to work afterwrds that

day but am fine the next day. >

The infusion nurse said the tiredness comes from the Remicade doing its

work. She said to not stress myself and " let it have its way with me. "

Last

month, I was a little tired the day of the infusion, but felt wonderful

the

next day. This month, I was really tired for three days, then had a flare

on

the 4th day. My body ached in every joint. I was working and could hardly

walk. When I got home, I took paid meds as prescribed, then laid down. In

a

few hours, the pain was gone and I'm back to my new normal. >

I said that wrong. I get my infusions every eight weeks -- not every month.

dd